This week is #Myelomaawareness Myeloma is often slower to diagnose due to vague symptoms. This tool from Myeloma UK can help talk about symptoms. Share it with colleagues too to help raise awareness. www.myeloma.org.uk/wp-content/u... #myelomasware @ukons.bsky.social @myelomauk.bsky.social

I had constant chest infections. They’d clear up for a little while then return."⚠️ Carly's symptoms of constant infections and fatigue were shrugged off repeatedly. Share this to raise awareness of the myeloma warning signs. ⚠️ #MyelomaAwarenessWeek #MyelomaWarningSigns youtu.be/Zqhb019gR9Y?...

Many people living with myeloma experience symptoms for months or even years before receiving a diagnosis. Fatigue that won’t go away, recurring infections and unexplained pain are just a few of the warning signs that are often overlooked. ⚠️ #MyelomaWarningSigns www.youtube.com/watch?v=wV8y...

Incredible news this morning that people with myeloma in England will be able to get this treatment. www.bbc.co.uk/news/article...

This graphic... wow

So proud to launch this video today that talks about the incredible work of @myelomauk.bsky.social and why we do what we do. Please do share. #myeloma youtu.be/1z5kc6PQndY?...

Access to life-changing treatments should never be about the ability to pay. That's why @myelomauk.bsky.social have joined forces with our supporter Jason to call for CAR-T cell treatments to be available on the NHS for people with myeloma. www.bbc.co.uk/news/article...

Prof Martin Kaiser (@mymkaiser.bsky.social) who led the study, says: “We would like all myeloma patients to be able to access the newer diagnostic tests which enable clinicians to group individual patients based on their risk profile and provide treatment that is tailored to their needs.”

Today Myeloma UK joined 50+ cancer charities as #OneCancerVoice, calling on the UK Government to fully fund the National Cancer Plan and improve care for those affected by cancer. #myeloma

Going for a blood test, waiting for results and then trying to make sense of the results can be extremely worrying. Our latest Ask The Nurse blog looks at some of the questions we get about blood tests. #myeloma #myelomasky www.myeloma.org.uk/library/ask-...

At the Oxford Myeloma Workshop last week, Karthik Ramasamy provided insight into the RADAR trial investigating risk & response-adapted therapy following autoSCT in transplant-eligible pts with newly diagnosed #MultipleMyeloma. Watch here: 👉 https://buff.ly/40OgEHv #MMSM #Myeloma #BMTsm #CTSM

Myeloma UK was at #ASH2024 here's some of the things we learned and how it will impact our work going forward. www.myeloma.org.uk/news/ash2024... #myelomasky #myeloma #MGUS #SmoulderingMyeloma

At Myeloma UK we're often asked about treatments and clinical trials for new drugs in the UK. A drug called selinexor (Nexpovio®) is one of the latest treatments to be approved. In this month's blog, we tell you more about selinexor and how it works. #myeloma www.myeloma.org.uk/library/ask-...

Our session on cancer evolution is chaired by Dr Elise Rees and Prof @ciccarellilab.bsky.social. @kanefos.bsky.social has presented his work on the blood-cancer immunity cycle: learning from multiple-myeloma disease evolution.

Absolutely lovely first day back in the office chatting to @drscottarthurmp.bsky.social about his Private Members Bill for rarer cancers and all things early diagnosis and access to treatments. #myeloma

Stunning sunrise this morning. Happy Christmas Eve.

🎅 The Saughton santa? Every year, prison officer Colin O’Flaherty ensures the children of inmates at HMP Edinburgh have a present to open at Christmas: www.scotsman.com/news/scottis...

Officially out of office until 2025. Bring on the wrapping, running and festive feels. I love this time of year so much.

Exciting news to finish up 2024 #myeloma #survivorship #research www.myeloma.org.uk/news/myeloma...

I will never understand the LinkedIn algorithm. Why are you showing me updates from 3 weeks ago

Is there a starter pack floating around with journalists/ news outlets.

Trying to take a pretty bridge picture in winter means a lovely reflection from the glass 🤣

In the last six months, our network provided 1.4 MILLION food parcels. This shouldn't be happening. Everyone should be able to afford essentials like food, toiletries and heating.

The absolute frustration of trying to rearrange appointments.

Absolutely gorgeous sunset tonight

So pleased to see the Royal Sussex County Hospital receive recognition for their dedication. John McEvoy who is living with #myeloma said "If not for my team and my wife I would not be here." www.bbc.co.uk/news/article...

My very talented colleague Dr Sandra Quinn and her poster on the complex psychological burden of living with a #myeloma precursor condition. Making sure patient experience is heard at #ASH24

Welcome to this OncoAlert Session Round Up during #ASH24 Todays Round up is on Multiple Myeloma focusing on Advancing Minimal Residual Disease or MRD, on detection, impact on prognosis and treatment decisions Transcript found on YouTube link

Dr Charlotte Pawlyn shares some of the abstracts she's looking forward to at #ASH24 #Myeloma hcp.myeloma.org.uk/community-ex...

So #ASH24 starts this week And instead of making slides for my presentation Friday morning I’m making friendship bracelets. Obviously. If I throw them to the audience maybe that’ll pass for a presentation?

It's hard to believe that #ASH24 is this weekend. Myeloma UK Director of Research and Patient Advocacy, Shelagh McKinlay, will be heading there with a few of our colleagues. Here's her look ahead #myeloma #research hcp.myeloma.org.uk/news/myeloma...

Almost every review I've ever read about myeloma #MMsm starts with something (true) like, "Recent advances in myeloma have led to significant improvements in..." Quite a jolt to see how different the prognosis was for myeloma 60 years ago... and how these papers used to begin!

The way this debate has been conducted gives me hope. Hope for political discourse. Hope that people will take the time to listen and discuss rather than shout each other down.

Many fine things have been written (on both sides) about assisted dying - a subject upon which I feel very conflicted - but I think Hugo’s column today is the finest I’ve read. www.thetimes.com/article/5050...

#QuarterOfAMillion auction in aid of #Myeloma UK. Please share or if you can donate something I’d love to hear from you 🥰 www.32auctions.com/QuarterOfAMillion2

Myeloma UK has set up a brand new community hub for healthcare professionals. It's a dedicated space with all the latest info on #myeloma treatments, research and more. We'll shortly be sharing a look ahead to #ASH2024 . Join the community today hcp.myeloma.org.uk/sign-up/

Ovens are expensive to use and take a while to heat up. Cooking in a microwave or an air fryer is faster, and they use less energy. #FuelPovertyAwarenessDay

This time last year I "graduated" from my running club's couch to 5km group. Since then I've run pretty much every week . I've even completed two official 10km races. More than that I've found an amazing supportive community. #running

One of the best things about the Scottish Cancer Conference is the variety of attendees. People affected by cancer, clinicians, politicians, researchers all in one space. It makes prepping for an exhibition stand complicated, we had everything from our patient dairy to scientific posters #myeloma

If you’re going to #ASH24 let me know! I’m starting a starter pack… @ash-hematology.bsky.social

On the early train heading to the @cancerresearchuk.org Scottish Cancer Conference today. Anyone heading along? Really looking forward to hearing from Professor Kessler on the challenges and opportunities of using AI for early detection of cancer.

Tree is up

If you are in the UK and you are bombarded with direct mail and advertising emails, your details may be on Data Broker’s lists. You can remove your details free and quickly. blog.welfare.scot/say-no-to-th...

Woohoo

Haven’t found a Scottish third sector folk/campaigners starter pack so here’s one - follow/reply if I’ve not added you and you want to be on it. go.bsky.app/BFP22uD

We often highlight how swings mean a lot to teenage girls, and are a hit with most people of all ages and backgrounds. But they are mainly only located in playground areas assigned to smaller children. It’d be great to have more swings that encourage people to get outside, socialise and have fun.

The priorities of people affected by myeloma must be heard as part of the government's 10-year health plan. I've drafted this blog in case it helps anyone planning to respond. www.myeloma.org.uk/news/make-yo...

I have written in The House magazine about my Private Members' Bill on rare cancers treatment incentivisation : www.politicshome.com/thehouse/art...