📢 The January 2026 EHC Novel #Treatment Review (#NTR) is here! Highlights from #ASH2025, regulatory updates & advances in haemophilia treatment—FVIII mimetics, gene therapy, rebalancing therapies & more. 👏 Thanks to our NTR Working Group! 🔗 buff.ly/q09vsZp

🎉 Welcome to our #WomenAndBleedingDisorders Committee’s new members! Together, we'll continue supporting & advocating for #Women in the #BleedingDisorders community. Thank you to outgoing members for your dedication & valuable contributions! 👉 buff.ly/mQhkkmW

🎉 Welcome to our Mental Health Working Group’s new members! Together, we'll continue supporting #MentalHealth & wellbeing in the #BleedingDisorders community. Thank you to outgoing members for your dedication & valuable contributions! 👉 buff.ly/akJ1roF

🎉 Welcome to our #ERIN Committee’s new members! Together, we'll strengthen ERIN's impact, raise awareness & advocate for better care for #ExtremelyRare #BleedingDisorders. Thank you to outgoing members for your dedication! 👉 buff.ly/BWGSWaj

📚 Today is International #EducationDay! At EHC, we empower the bleeding disorders community through EHC Academy—our platform for treatment education, health policy, care resources & more. 🔗 Explore: academy.ehc.eu #BleedingDisorders #EHCAcademy

❓Ageing with a bleeding disorder brings unique challenges. What worries you? Share your questions anonymously 👉 buff.ly/15hLxQi 🎯 We'll address them throughout our year-long project#LivingWellAgeingWell, check its resources: buff.ly/mB2IPh0

📢 Essential new #VonWillebrandDisease resource! The EHC Handbook on #VWD covers symptoms, diagnosis, treatment & more. 🎯 Perfect for EHC National Member Organisations, patients & families. Get your copy & share: buff.ly/bpYYYnv #EHCommunity

🩸#ExtremelyRare Bleeding Disorder of the Month: #GlanzmannThrombasthenia (GT) —a rare platelet disorder affecting daily life. 🔎 Learn more about GT & support better care access: community.ehc.eu/focus-area/e...

🗣️EHC President Miguel Crato reflects on 2025: a year of strengthening our foundations & ensuring equitable access to treatments for ALL patients with #BleedingDisorders across Europe. Thank you to our NMOs, partners & volunteers! ❤️ buff.ly/bhFzozG

EHC issues a Statement on Severe Adverse Event in #Marstacimab #ClinicalTrial. Read the statement: ehc.eu/news/stateme... We will continue to follow developments and review any additional information shared by regulatory authorities and Pfizer as the investigation progresses.

🙏 Thank you to all our amazing volunteers who supported the European bleeding disorders community in 2025! Your dedication means everything. ❤️ #EHCommunity #VolunteerAppreciation #BleedingDisorders

📖 "Eating Well and Staying Strong" is a practical nutrition guide for older adults with #BleedingDisorders, including a 7-day menu example. Created by EHC with expert geriatricians in the #LivingWellAgeingWell project. 🔗 Download it 👉 buff.ly/rpJiBPe

🎥 New EHC Virtual Café Talk now available on @EHCTVChannel! In the context of our #LivingWellAgeingWell project, join Dr Birkan İlhan and Dr William McKeown for expert insights on #Nutrition and #HealthyAgeing for people with #BleedingDisorders 👇

🩸From plasma to personalised therapy with ultra-long half-life products—Explore 70+ years of innovation in #BleedingDisorder #ReplacementFactorTherapies on #EHCucate 👇 📚 History of Replacement Factor Therapies 📚 Principles of Factor Replacement 📚 Practical Foundations of RFT 🔗 buff.ly/p4xaQ8G

🚀 Don't miss our webinar programme in partnership with @erneurobloodnet.bsky.social, which is part of "Living Well, Ageing Well", our year-long Ageing project! 🗓️ We start in January 2026 - Register now 👇

🌟 Discover #ThisWay 2025 webinars on storytelling, joint health & art therapy—now with subtitles in 5 languages! Watch anytime for physical & mental well-being tips for the #BleedingDisorders community. 🎥 youtube.com/playlist?lis...

💚 On 5–7 Dec, we hosted #ERIN2025 in Berlin, uniting patients with #ExtremelyRare #BleedingDisorders & families. 🗣️ Sessions covered treatment updates, unmet needs & lived experiences. 🤝 Thanks to the ERIN Committee for their dedication! #EHCommunity

📖 Knowledge should speak every language 🌍 "Is haemophilia (fe)male?", our Booklet on #WomenWithHaemophilia & Female Carriers, is now available on the #EHCAcademy in 7 languages! More coming soon, thanks to EHC National Member Organisations. ❤️ 🔗 academy.ehc.eu/library/#WHD...

🇩🇪Hämophilie: eine Krankheit von Männern? Women are too often excluded from the #Haemophilia narrative. 📘🩸 Our EHC Booklet challenges misconceptions & calls for change. Discover it in German 🔗 buff.ly/hlzf8rr #FrauenMitHämophilie #WomenWithBleedingDisorders #RareDiseases

🎥 #ERIN Webinar recording now live! Watch our panel discuss #BleedingDisorders of Unknown Cause (#BDUC), diagnostic testing, treatment & patient advocacy. Featuring experts & patient voices, in collaboration with @eahad.bsky.social. Watch now 👇 youtu.be/vMbhTTBnxM8?...

🔬 @ema.europa.eu's PRAC committee issues new communication to healthcare professionals on injectable tranexamic acid medicines following their Oct 27-30 meeting. Important safety update for medical practitioners 👇 www.ema.europa.eu/en/news/meet... #Pharmacovigilance #DrugSafety #EMA

💪 Europe’s #BleedingDisorders community is #Ageing—and thriving! 🗣️ Join Miguel Crato, Olivia Romero Lux & William McKeown as they discuss our new project #LivingWellAgeingWell. 🎥 Watch our first Virtual Café Talk: youtu.be/BrdIsSzBPI0?...

EHC is pleased to participate in today's joint @ema.europa.eu Patients' and Consumers' Working Party/Healthcare Professionals' Working Party meeting. We value the opportunity to contribute to the #BleedingDisorders community’s perspective and continue strengthening collaboration. #EMA

📣 It’s time for @ema.europa.eu to add #VonWillebrandFactor (VWF) to the EU #CriticalMedicines List! VWF is life-saving for patients with #VonWillebrandDisease, the most common inherited bleeding disorder. Read our full statement here 🔗 buff.ly/3egmFbB

It's #MedicineSafetyWeek!👇

🎓 The 2025 EHC #HealthEconomics Course wraps up with 100% positive ratings for the 3rd year running! Thank you to all participants for your dedication. You're now equipped to drive real change in HTA & access to treatments. See you in 2026! 🌍 #PatientAdvocacy

✅ Mission accomplished! The EHC delegation in #Slovenia visited healthcare facilities, exchanged knowledge & met with health authorities. 🇸🇮 Together, we’re building better care for all! 👇 community.ehc.eu/news/ehc-del... #EHCommunity

📸 Relive the magic of #EHC2025! All the best moments from three unforgettable days in Vienna are now live on our Flickr. Download your favourites and share your memories with the #EHCommunity! 👉 flic.kr/s/aHBqjCz8fe

🇮🇹 Emofilia: una malattia di gene(re)? L'opuscolo EHC su donne con emofilia e portatrici è disponibile in italiano! 📘 Shining a light on misdiagnosis & need for change. Discover it 🔗 buff.ly/HOXU6yb #DonneEmofilia #Haemophilia #WomenWithBleedingDisorders #RareDiseases

📚 New EHC book "Emma and the Playhouse" helps kids with #VonWillebrandDisease explain their condition to friends & family. Written by Cathy Verbraeken, illustrated by Mariana Ostanik. Free download available! ➡️ buff.ly/FXhUvi6 #VWD #BleedingDisorders #RareDiseases

🧬 What if #BleedingDisorders could be cured, not just managed? The EHC's new booklet explores the promising world of #CRISPR technology — and what it could mean for patients. 📖 Download now: academy.ehc.eu/wp-content/u...

🦷 Living with a bleeding disorder? Share your dental care experiences with the EHC. Your voice helps us support patients & raise awareness. 🗣 Anonymous option available: form.dragnsurvey.com/survey/r/b0e... #BleedingDisorders #OralHealth

📣 People with #VonWillebrandDisease rely on #VonWillebrandFactor (VWF) to live safely — yet supply remains fragile. We urge National Competent Authorities to classify VWF as a #CriticalMedicine to protect patient access across Europe. www.ehc.eu/news/ehc-urg...

📣 Ageing with a bleeding disorder brings unique challenges. What worries you? 👉 Share your questions anonymously: buff.ly/LZl4src 🗣️ We'll address them throughout our new year-long project. Let's learn together! 🤝 #LivingWellAgeingWell

📣 On #WorldMentalHealthDay, make your voice heard! Our #EHCSurvey on #MentalHealth is open until 9 November. Available in 18 languages for people with #BleedingDisorders & caregivers. 🗣️ Your experience matters: buff.ly/sCrblPo

📣 On #WorldMentalHealthDay, we release our #EHCRoundTable Executive Summary on #MentalHealth in the #BleedingDisorders Community. Mental health IS healthcare. 📄 Read more: buff.ly/jpp4qrJ

Ageing is different for everyone. For people with bleeding disorders, it brings unique challenges. 💛 Join the EHC Living Well, Ageing Well project & share your story! 🔗 Ask anonymously: form.dragnsurvey.com/survey/r/a55... #LivingWellAgeingWell #WorldGeriatricDay #HealthyAgeing

🌍 Today is #WorldGeriatricDay! 👥We’re launching “Living Well, Ageing Well” — our year-long project supporting people with #BleedingDisorders to live healthy, active lives at every age. 🔗 Learn more: www.ehc.eu/news/ehc-lau... #LivingWellAgeingWell #HealthyAgeing

🎯 Powerful conversations today at our #EHCRoundTable! Experts & advocates tackled #MentalHealth stigma in #BleedingDisorders care. From EU policy to practical support: we're bridging the gaps together. 💪 Mental health IS healthcare! Read more here 🔗 www.ehc.eu/news/ehc-rou...

On #WorldPatientSafetyDay, we join the global call to put patients first. At the ISTH, we know that advancing science is only meaningful when paired with a steadfast commitment to safety in care @who.int Swipe through to hear directly from ISTH members on why patient safety matters.

🩸 Today is #WorldPatientSafetyDay! 🩸 #PatientSafety means ensuring no one is left without #CriticalMedicines. 📣 EHC calls for #VonWillebrandFactor to be added to the EU List of Critical Medicines. 🇪🇺 Read more: buff.ly/PZwEYnH #WPSD2025

🇵🇱 Czy hemofilia ma płeć? Dostępne w języku polskim! 📘We’re proud to launch the Polish translation of our EHC Booklet on #WomenWithHaemophilia & Female Carriers—shining a light on misdiagnosis & need for change. Discover it here 🔗https://buff.ly/kLqNnX5 #KobietyZZaburzeniamikrwawienia

📣 It’s time for @ema.europa.eu to add #VonWillebrandFactor (VWF) to the EU #CriticalMedicines List! VWF is life-saving for patients with #VonWillebrandDisease, the most common inherited bleeding disorder. Read our full statement 🔗 buff.ly/PZwEYnH

💪 This #WorldPTDay, we celebrate how physiotherapy helps our #BleedingDisorders community stay strong and prevent falls as we age. Tailored exercise strengthens muscles, improves balance & builds bone density! Learn more: world.physio

📄 #EHCThinkTank releases new paper on #BleedingDisorders registries! After 2+ years of workshops, they present solutions for fragmented data & poor collaboration: ✅ Better transparency ✅ Standardised collection ✅ Core EU dataset Read it now 🔗 buff.ly/18DDr3W

#VonWillebrandDisease affects up to 1% of people but is often overlooked. Delays in #VonWillebrandFactor supply can be dangerous - healthcare systems must recognise VWF as a #CriticalMedicine. @ema.europa.eu #CriticalCare #BleedingDisorders

Without access to #VonWillebrandFactor (VWF), people with #VonWillebrandDisease face significant limitations preventing life-threatening bleeding. Healthcare systems must recognise VWF as #CriticalMedicine 📣 @ema.europa.eu #CriticalCare #BleedingDisorders

📄 Issue Two of the EHC Novel Treatment Review 2025 is now available! 🩸 Latest developments in rare #BleedingDisorders treatments, including regulatory approvals & emerging therapies. Thanks to our NTR Working Group! Read 👉 buff.ly/4ueN6Lx #NovelTreatments

The recognition of #VonWillebrandFactor as a #CriticalMedicine is a decision based on evidence, equity and medical urgency. @ema.europa.eu #VonWillebrandDisease #CriticalCare #BleedingDisorders

It's time for health systems to recognise #VonWillebrandFactor as a #CriticalMedicine. We're not asking for privileges—we're asking for access to treatment that makes a difference for people with #VonWillebrandDisease. It's about equity and social justice. 🩸 @ema.europa.eu