Hope they get the required amount!!

One of the big COVID facts that tend to make people go deer in headlights is the high percentage of asymptomatic infections. Unfortunately these infections can still cause you or others problems months or years later. This was known back in 2020 but shushed up afterwards.

"Long COVID-19: a Four-Year prospective cohort study of risk factors, recovery, and quality of life" bmcinfectdis.biomedcentral.com/articles/10.... "Nearly 29% of post-acute COVID-19 patients developed long COVID-19" #LongCovid #PASC #Novid

See you soon for our genetic results webinar! Spots are limited to 3000, and registering does not guarantee a spot. Don't worry - we will also be sharing it live to our Facebook page at the time facebook.com/decodeMEstudy as well as recording it so that you can watch it back.

On tärkeää, että pitkää koronaa käsitellään edelleen mediassa – aihe on yhteiskunnallisesti merkittävä ja koskettaa monia. Käsittelyn tulee kuitenkin olla monipuolista, tasapainoista ja rohkeaa. Tällä hetkellä kukaan ei tunnu uskaltavan kyseenalaistaa HUS:n Pitkittyneiden oireiden klinikan […]

I feel like I'm trapped in a symptoms cyclone

#freedomflotilla #madleen #gaza #palestine #greta

#madleen #flotilla #gaza #greta

Clips from The Golden Girls (1989): Dorothy sees a neurologist after months of #MECFS symptoms. He tells her there’s nothing wrong, it’s just ageing — and suggests a psychiatrist. She begins to doubt herself—until Rose comforts her saying “Doctors don’t know everything.”

Mikä pettymys, (vaikkei yllätäkään), hallitukselta jää uupumaan teot palestiinalaisten kansanmurhan pysäyttämiseksi.

Kas, kerrankin muutakin kuin liiran laarumia!

Israel suorittaa kansanmurhaa: EBU päästää palkintopallille. Espanja puolustaa ihmisoikeuksia: EBU uhkaa sakoilla! – Kun ihmisoikeudet ovat vaakalaudalla, hiljaisuus ei ole vaihtoehto. Rauhaa ja oikeutta Palestiinalle!

Germaine's poem from 25 years ago is deeply moving and a powerful reminder of why awareness and support are still so needed. Thank you for sharing💙 #mecfs #MEawarenessday.”

Reminder that half the population of Gaza are children. www.theguardian.com/commentisfre...

In what world is this acceptable? In what world can any country continue to provide weapons to a nation who declares it will seize all of the land of another people and remain there as long as it wishes, perhaps forever? In what world do other governments remain silent about this? Sadly, in ours.

Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome Links in image: www.cochranelibrary.com/cdsr/doi/10.... retractionwatch.com/2025/01/23/t... Screenshot from the AMMES May email newsletter #MEcfs #CFS

“Shared Metabolic Changes Among People with ME/CFS, Fibromyalgia, or Gulf War Syndrome Suggest Common Biomarkers and Treatments” Summary article from the Solve ME/CFS Initiative @solveme.bsky.social solvecfs.org/shared-metab... #MEcfs #CFS #Fibromyalgia

ME Association: Leading UK Charity invests in Canadian trial of drug treatment for #MECFS & #LongCovid We've provided funding to Dr Luis Nacul (principal investigator) for an important clinical trial in Canada to test the potential benefits of low-dose naltrexone #LDN meassociation.org.uk/h5h2

So much to say, but don't even know where to being. As my #lc#me turned 3yrs it became 15yrs since my #stroke. Went through new set of neuropsychological tests and was faced with the aftermath post stroke.. things I had blissfully (purposefully) forgotten after so much #medicalgaslighting

"Tyranny requires your fear and your silence and your compliance. Democracy requires your courage." -- @govpritzker.illinois.gov

I keep saying it: scientists know exactly what #BirdFlu can do in the brain, and it is not good. SARS-CoV-2 was a new virus we had to learn about. #H5N1 is not.

Science moves forward, even if some desperately cling to outdated beliefs.. #longcovid #pem #pwme

🌍 The Perfect Storm: Myalgic Encephalomyelitis (ME) and the Long COVID Crisis 🌍 🔍Together, we need to fight for greater visibility, support, and change in ME/CFS research! #MyalgicEncephalomyelitis #MECFS #LongCovid #MedicalCrisis #PandemicManagement #HumanitarianCrisis

😷 Here’s what’s happening this week in #LongCOVID research: bit.ly/4hsEm2Y 💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/

Today @thesicktimes.bsky.social: an honor to have the great @davetuller1.bsky.social writing for us, covering the recent scandal at Cochrane over their flawed ME/CFS review. thesicktimes.org/2025/02/04/r...

Ensi viikolla! Mukaan mahtuu. #pitkäkorona #longcovid

My newest video 'Why Elon Musk Keeps Attacking Wikipedia' is out on my YouTube channel! You can find the link in the comments!

Petition: Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark ”Doctors have told Line that if she does not get out of bed during the next 2 weeks, she will be forcibly committed to a psychiatric hospital.” www.change.org/p/prevent-fo...

Darren's struggle with #longcovid is a powerful reminder of how we suffer silently. The moment he spoke about wishing to go for a walk with his children, I broke down in tears -this is also my wish. We urgently need more research and treatments -everyone deserves the chance to live a full life💙

Tärkeä tiedote #pitkäkorona #longcovid sairastaville! #SuomenCovid-yhdistys järjestää verkko-infotilaisuuden, jossa jaetaan uusinta tutkimustietoa + fyssarin luento kuntoutuksesta. Alla lisää tietoa tilaisuudesta! Jaa tietoa eteenpäin, jotta mahdollisimman moni pääsee hyödyntämään tilaisuutta💙

This post hit me deeply. Books have always been a huge part of my life, and losing the ability to read (yet again) is crushing. While it's comforting to know I’m not alone in this, it’s also heartbreaking that so many of us are going through this. 💙 #pwme #lc #ChronicIllness #Books

“Terrible things are happening outside. Poor helpless people are being dragged out of their homes. Families are torn apart. Men, women, and children are separated. Children come home from school to find that their parents have disappeared.” Diary of Anne Frank January 13, 1943

When a government tells us, within the course of one week, that we can't have new hospitals but must have new runways, you know that it is not working on our behalf, but on behalf of economic power.

The #PACEtrial: controversial study that has influenced #me/cfs treatment worldwide for years. Now, with its flaws exposed and treatment guidelines revised, the same flawed narrative threatens #longcovid patients. The fight continues!

Wow, big surprise. It turns out that getting sick more often does *not* make you stronger, but actually weakens you and makes you more prone to illness. The idea that 'kids just need to be exposed to bugs' needs to die. jamanetwork.com/journals/jam...

Immunity debt is mentioned regularly by the press but it’s a completely unproven scientific theory. It wasn’t even conceived until after 2020 and yet it’s often on the news like science fact. healthydebate.ca/2023/01/topi...

SarsCov2 is not a seasonal respiratory virus. It is a neuro -vascular virus more akin to EBV or HIV than flu. #maskup #medsky

🔎 First #me/cfs Study in Finland 🔎 #Invalidiliitto 's study findings: 📉 Physical & mental functioning significantly impaired ⚡ Common symptoms: #fatigue, #pain, & #PEM 🤝 Major gaps in healthcare & support services More knowledge & support urgently needed. www.invalidiliitto.fi/ajankohtaist...

#LongCovid mirrors #me/cfs in key ways, esp. post-exertional malaise ( #pem ) – where exertion worsens symptoms. Emerging research links this to mitochondrial dysfunction, endothelial issues & muscle fiber shifts. Still no treatments, but trials are underway. Science must catch up.

“It’s still killing 1000 people each week - and those are just the few countries still reporting” Covid leaves a devastating trail of destruction. 1000 dead each week means even more left disabled & still - we do nothing Pretending it’s over is literally ending lives.

I'm not asking healthcare professionals to watch TV or keep up with the news. I'm asking them to read the most influential medical periodical in the world? Don't psychologise #LongCovid patients. #NeuroCovid www.nejm.org/doi/full/10....

Is it so hard for the entertainment industry to prioritize people’s health? The risks of #LongCovid are serious, and no one should have to push themselves to the limit after being sick, particularly having been sick with #covid. This is truly heartbreaking #invisibleillness #covidisnotover

Hyvää itsenäisyyspäivää, Glad självständighetsdag, Happy independence day💙107🇫🇮 Silence around far-right movements and neo-Nazism is alarming—these have no place in Finnish society. We must stand up for a world where empathy, mutual respect, science, art, diversity, and inclusion can thrive.

Looks like the CLoCk study downplays biological mechanisms & systemic dysfunctions underpinning #longcovid risking oversimplification. This perpetuates stigma and leaves lc misunderstood. We need research that focuses on biomed evidence & highlights lived experiences. #biologyoflongcovid

Powerful and deeply moving piece by Matt McGorry. His vulnerability and relentless advocacy for Long Covid and disability justice are truly inspiring. Thank you for sharing your story and pushing for systemic change. Solidarity and support. #LongCovidAwareness #DisabilityJustice

One day, #MECFS and #LongCovid patients will be diagnosed through biomarkers, treated for i.a. #PEM, autonomic dysfunction, and immune abnormalities—and above all, met with respect. Harm and neglect will be history.

M.E. is a story of abandonment, abuse, coverups, neglect, injustice, gaslighting & scandal. The trail of nefarious behaviour leads to the very top of our institutions. It's now being repeated with #LongCovid patients. #ExposeMENow #GreatestMEdicalScandal #ThereforME #pwLC #pwME

Lately, I’ve been reflecting a lot on neurological symptoms of #LongCovid & #me, especially the cognitive ones. Brain fog, memory issues & trouble concentrating feel relentless. What helps you manage #BrainFog or #Cognitiveissues? Let’s share tips and support each other.

This aligns all too well with what I’m experiencing. No amount of brain training programs, mindfulness, or “just pushing through” is going to fix this. #longcovidisreal #longcovidawareness

When the mask mandate was lifted from Mass General Brigham in May '23, hospital transmission of resp virus went up. When the mandate was re-instituted in Jan '24, infection rates went down. www.news-medical.net/news/2024052...