The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday. It’s hugely important, not least in the context of the assisted dying bill. It’s had almost no media coverage. committees.parliament.uk/publications...

🧵/ Today a damning parliamentary report on the state of palliative care services in England was published. Services are patchy, underfunded & “ill-equipped” to address end-of-life needs. Bereavement support is “frequently inaccessible. The palliative care workforce is in a “critical” situation”.

Our report for the UK Covid Inquiry on palliative and end of life care during the pandemic has been published. We include 15 recommendations to strengthen palliative and end of life care so it is fit for the future, including future pandemics. covid19.public-inquiry.uk/documents/in...

Telling our birth & death stories matters. It helps us understand what happened. It enables others to know more. It normalises these important life events. It moves emotionally profound experiences to the safe storage of autobiographical memory. We can help by listening. @virtualhospice.bsky.social

Ministers urged to guarantee NHS jobs for new midwives amid understaffing

📣 New #OpenAccess paper: “Bereavement Training in the Workplace, Can it Help Bridge the Grief Support Gap? A Qualitative Evaluation of Employers’ and Employees’ Views” journals.sagepub.com/doi/10.1177/... Supported by @arcnenc.bsky.social #Bereavement #Qualitative #Research #PalliativeCare

Great thought provoking Q&A session …. highlighting that we can write reports to policy makers telling them again & again that #Inequities persist- but we need to be proposing potential *solutions* + if policies are implemented we can’t assume that they will work, they need evaluating #EAPC2025

Followed by Dr Sarah Mitchell describing the complex policy landscape and opportunities for researchers to influence policy making at different healthcare system levels. Very relevant to my work on tackling #Inequalities in #PalliativeCare #EAPC2025 Day 3

“Policy makers are not going to be knocking at our door looking for evidence” @katherinesleeman.bsky.social on bridging the evidence-policy gap and the 3Ps: ⭐️ Perspective ⭐️ People ⭐️ Perseverance With examples of evidence-informed policy making An area I need to learn more about…. #EAPC2025 Day 3

Very happy that our final paper from the OPTIMAL-Care study is out in BMC Medicine! This multi-method study, brilliantly led by Matthew Allsop, examines the optimal development, implementation & evaluation of digital advance care plans (EPaCCS). bmcmedicine.biomedcentral.com/articles/10....

One certainty on assisted dying: this is an awful way to introduce it www.thetimes.com/article/2693...

Globally, only 14% of people who need palliative care actually receive it. A decade after the WHA Resolution, what progress had been made? New paper in BMJ Global Health: Confronting global inequities in palliative care gh.bmj.com/content/10/5...

Community nurses based in the UK? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social

Public misunderstanding, myths, and misinformation can hamper good end-of-life care. We need a better conversation to help support better deaths and overcome barriers, whether or not there’s a change in the law on assisted dying, @mancunianmedic.bsky.social www.bmj.com/content/389/...

A fabulous Friday! Thank you @drkathrynmannix.bsky.social for insightful, thoughtful & honest conversations, plus adding your wise words to our hospice wisdom tree 🌲 Also a big thank you to @jedjerwood.bsky.social & @sharonhudson.bsky.social #palliativecare #hospice #DyingMattersAwarenessWeek

Read Sean’s blog here: qicn.org.uk/51302-2

Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred? Please help with our short anonymous survey & share widely with colleagues 🙂 Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_... @crystaloldman.bsky.social @theqicn.bsky.social

The Grief Centre will deliver its first in-person public engagement event during Dying Matters Awareness Week (5-11 May): Dying for Beginners: An interview with @drkathrynmannix.bsky.social on Friday 9 May 2025 from 12-1pm at 11 Woodland Road, Bristol BS8 1TB. Register to attend: bit.ly/4jFZi7i

The building blocks to quality improvement that form the roots of most projects. While the tools and techniques on top of them may vary depending on the context, these foundational elements are essential to successful and sustainable improvement:

#AprilFools Of course our daffodil isn’t going anywhere, but palliative and end of life care is a prickly subject right now. Services are overstretched, underfunded and overlooked. Visit: campaigns.mariecurie.org.uk/page/163063/... to see how you can support.

Key actions for public partnership ❤️Step back from the hamster wheel, connect and see hope ❤️Don't forget you a part of your own community- share your gifts ❤️Put a pin in the map for your service and search your community around them- engage, hear get involved ❤️Be PROUDLY PALLIATIVE #PCC2025

‘A form doesn’t help you think’ @tuffrey-wijne.com & Amanda #pcc2025 Let’s talk about funerals www.victoriaandstuart.com @roisincomms.bsky.social

Dr Kerrie Noonan @keznoo.bsky.social Urges us not to event plan and invite people in but instead actively show up within existing community, see and value the strengths, be curious and I would add be humble #PCC2025 #DeathLiteracy

The awesome @drjrubenstein.bsky.social discusses the need to improve health care workers understanding of Palliative Care - without that public involvement hits a dead end His animations give voice to the behaviours and fear and around Palliative Care #PCC2025 youtu.be/BbNi_-wYXJE?...

Dr Kirsty Boyd challenges us in the assumption that care at home is preferred or right and we should look at the reality of this in our planning and decision making #PCC2025

Dr Kirsty Boyd talks to us about 'Care for People who are Dying' instead of End of Life Care for people with multiple needs. Noting the increase in cause of death not just in dementia but renal and heart disease #PCC2025

I’m presenting at the Dorothy House Palliative Care Research Conference on 5 June, discussing the timely, effective and safe use of injectable end-of-life medications. Bringing together our brand new research for the first time! Tickets can be purchased via: www.dorothyhouse.org.uk/palliative-c...

If you are reeling from Trump & Vance's disgusting performance towards Zelensky last night, might you consider donating to www.hospiceukraine.com, the tiny charity I set up with Henry Marsh to support local Ukrainian palliative care teams? We delivered this Land Rover to a rural hospice in Dec...

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

The Marie Curie Research into Practice Conference 2025 is taking place this week. 🗓️ Feb 11-14, 2025 (Free & Online) ➡️ Register now (it's not too late to join for the remaining days of the conference): mariecurie.ivent-pro.com/events/resea...

Protect ‘nurse’ bill gets support in parliament A bill that would prevent misuse of the job title ‘nurse’ has passed its first reading in parliament. #nursing #nurse #nurses #protectedtitle #legislation #parliament #health #healthcare #government #policy www.nursingtimes.net/policies-and...

We have had excellent feedback from delegates at our Dorothy House Masterclass in January Delegates found this course: "stimulating", "well-taught", "informative", "inspiring", "supportive", "well-taught", "relevant", "evidence-based", and "useful in everyday practice" @strathcarron.bsky.social

Join our Masterclass in Palliative Care, featuring topics from Oxford’s Advanced Course 2024, with new updates and case-based learning. Held at Strathcarron Hospice in Fankerton, Scotland - near Falkirk. 5th March, £250, 5CPD. Book on our website: sobelleducation.org.uk/product/mast...

A new report from @mariecurieuk.bsky.social shows the UK spends £11.7bn on end of life care, largely on hospital care, even though most people would rather die at home or in a hospice. Read more ➡️ www.mariecurie.org.uk/document/pub...

"This report shows that the way we look at care at the end of someone’s life is not working, for dying people, their families or the public purse." - Katie Reade, Head of Policy and Public Affairs, Hospice UK. Read more on The Guardian ⬇️ www.theguardian.com/society/2025...

🧡 Keech Hospice Care's new programme advocates for greater outreach of end-of-life and palliative care in homeless communities - part of the Masonic Charitable Foundation's partnership with us. Read how Mark is changing lives for those experiencing homelessness: www.hospiceuk.org/latest-from-...

Our new Editorial in BMJ Supportive and Palliative Care on inequity and inequality in palliative and end of life care, and smarter use of routine data to measure and monitor inequalities, and to inform decision-making. 👇👇👇

🚨Our Research into Practice Conference platform is now live🚨 Log in or register now to explore the posters, booths, full programme and to edit your profile. Join us for the first session on Tuesday 11, 10am, which explores public spend and system pressures for palliative and end of life care.

Assisted Dying: am reading a lot of “I am for it in principle, but not this Bill” over last few days. My Radio 4 Today head-to-head and my concerns about some of the safety aspects on patients self-administering lethal drugs. From 52:33 onwards: www.bbc.co.uk/sounds/play/...

Assisted Dying: If the aim of the Committee stage is - as has been repeatedly claimed - to ensure that the UK ends up with the safest possible legislation, then how is the bias inherent in this witness list possibly conducive to that end?

Brilliant piece reflecting on the role of palliative care and societal coersion by Janice Turner in the Times today #assisteddying

➡️Want to avoid being in hospital? ➡️What to live well with multiple long term conditions? ➡️Want to recover from being acutely ill in hospital in your own home? ➡️Want to have good end of life care at home? ✅️Invest in District Nursing.

LAST CHANCE to benefit from the Early Bird Discount Early Bird Closing (TODAY) 31 January at 5pm Get your tickets pccongress.org.uk/registration/ Full Programme available via the website Day 1 - pccongress.org.uk/day-1-progra... Day 2 - pccongress.org.uk/day-2-progra... #PalliativeCare #Event

My new book ‘The Cancer Roadmap’ was launched today It’s for anyone affected by cancer It tells you what is it, what causes it, how it’s treated, who to trust, how to understand risk + spot red flags on social media when it comes to alternative cures. Get yours here lnk.to/TheCancerRoa...

Just getting ready for our 2 day course 'General Medicine for Palliative Care Physicians'. If you've missed the date, you can still purchase the recordings to watch over the next 3 months..https://www.sobelleducation.org.uk/product/gen-med-2025/.

Thank you so much to Vic Lyons of Dementia UK for her fascinating webinar yesterday - Ask an Admiral Nurse. We learnt so much! If you weren't able to attend, it's now on our YouTube channel! Here's the link: https://buff.ly/4jM46ZQ @dementiauk.bsky.social

An important fact: “Between 75% and 90% of home based care at the end of life is provided by unpaid carers, often family members.” And when that’s 24 hours around the clock, that’s really hard, especially when it’s just one or two people trying to do it. #EOLC #EndOfLifeCare #PalliativeCare

25th March 2025 @rowcrofthospice.bsky.social Dementia and Palliative Care Conference rowcrofthospice.org.uk/dementiaconf...

Our blog on findings from the OSCAR study is now online @ukkidney.org education.ukkidney.org/blog/oscar Full paper: bmcnephrol.biomedcentral.com/articles/10.... @peolcsw.bsky.social @capcbristol.bsky.social @flissmurtagh.bsky.social @wolfsonpallcare.bsky.social @cacenotes.bsky.social