Evaluating Programmes & Creative Engagement Initiatives. Register for our Collaborative workshop exploring methods for evaluating creative engagement initiatives and participatory methods for evaluating programmes www.eventbrite.com/e/evaluating... @lucyselman.bsky.social @mobcommassets.bsky.social

📢Research Handbook on End of Life Care and Society (eds Clark & Samuels) now out OPEN ACCESS. Delighted to contribute the chapter on bereavement. PDF available here: www.elgaronline.com/edcollchap-o...

Grief’s Grace: Launching our Living Archive in Weston-super-Mare. Read Louise Hill-Davis' blog here coastalcch.bristol.ac.uk/news/ How do we carry loss and still find strength and connection? When we share it, grief can become a source of grace. @lucyselman.bsky.social @mobcommassets.bsky.social

Co-creating Services: Stakeholder Engagement from Design to Evaluation. Recording & slides from our latest capacity building workshop are now on our website. coastalcch.bristol.ac.uk/capacity-bui... @lucyselman.bsky.social @mobcommassets.bsky.social

Proud of this Kidney International paper: doi.org/10.1016/j.ki.... Nephrology involves optimal delivery of treatments that prolong life, preserve & replace organ function. The art lies in shaping this care to the person. @rachaelmorton.bsky.social @lucyselman.bsky.social @flissmurtagh.bsky.social

The first seminar of our new series is now available on YouTube! Thanks again to Christy Denckla @hsph.harvard.edu @harvard.edu for a fascinating discussion exploring a public health perspective on grief & bereavement with @lucyselman.bsky.social. Watch here: griefcentre.bristol.ac.uk/events

If you are interested in bereavement research, join us on 30 July at 2pm (UK time) to hear from Dr Christy Denckla on A Public Health Perspective on Grief & Bereavement www.ticketsource.co.uk/goodgrieffes...

Patient preferences in RRT choice Review in @kireports.bsky.social www.kidney-international.org/article/S008...

On 30 July we have the first of our new @griefcentrebris.bsky.social online seminar series. Join us at 2pm to hear Dr Christy Denckla @hsph.harvard.edu talk on A Public Health Perspective on Grief & Bereavement. Register at: www.ticketsource.co.uk/goodgrieffes...

Last week we had our annual in-person team meeting in Weston. Lovely to welcome colleagues from across sectors from Blackpool/the NW and Hastings/the SW and show them around Weston in the sunshine! Blog here coastalcch.bristol.ac.uk/news/#WSM-me... @lucyselman.bsky.social @mobcommassets.bsky.social

Watch our capacity-building workshops "A changing landscape and the need for complexity-informed approaches" and "Trauma-informed practice: Tools, stories, and strategies for impact" coastalcch.bristol.ac.uk/capacity-bui... @lucyselman.bsky.social @mobcommassets.bsky.social @buketkara.bsky.social

Do you work for a bereavement service? If so, pls take a look at this v. short survey for a project we are running to support the analysis of qualitative client feedback data. Open until 31 July. There'll also be a focus group on 17 Sept - see flyer. app.onlinesurveys.jisc.ac.uk/s/cardiff/be...

📢 In BMJo: That’s why I wanted him to go on dialysis-a qualitative analysis of older patients’ & family members’ perspectives on kidney failure treatment rdcu.be/ewi4l @lucyselman.bsky.social @leilarooshenas.bsky.social @peolcsw.bsky.social @wolfsonpallcare.bsky.social @flissmurtagh.bsky.social

A wonderful day at Goldney House with @lucyselman.bsky.social & @leseldawson.bsky.social for the launch of The Bristol Centre for Grief Research & Engagement (1 July). 🎉 The Centre will focus on interdisciplinary & multidisciplinary research into grief, death & loss. See: griefcentre.bristol.ac.uk

1/3 Coming up: Life in a Coastal Town - a new free exhibition exploring #MentalHealth and community, Weston Museum, Weston-super-Mare, 8-17 July 2025. The exhibition shares original artwork by local people exploring their experiences during some of life's toughest times. More info: bit.ly/4ltc4H8

Starting on Tuesday, an exhibition of creative outputs from the @coastalcch.bsky.social research project, created by young refugees, people in recovery from substance use, and bereaved people. Visit at Weston Museum, 8-17 July. Read all about it: shorturl.at/10dPx

Plenary day! Thanks for the invitation to present at the public health & palliative care research seminar - papers below if you want to learn more. Some great talks today & a hour spent zine-ing 👌 ✂️📰🖊️ @eapcvzw.bsky.social @coastalcch.bsky.social @peolcsw.bsky.social @mobcommassets.bsky.social

Great to be in Victoria for the @eapcvzw.bsky.social public health palliative care reference group research seminar. This evening we are hearing the brilliant @waitingroomrev.bsky.social talking about their new book, Hope for the Best, Plan for the Rest.

www.kireports.org/article/S246... If all roads to lead to dialysis, the kidney failure population will experience unmet needs unseen for decades. @lucyselman.bsky.social @flissmurtagh.bsky.social @kidneycoalition.bsky.social @rcpdmeetings.bsky.social @kidneyint.bsky.social

Congratulations Catriona! 👏🎉

📣 New #OpenAccess paper: “Bereavement Training in the Workplace, Can it Help Bridge the Grief Support Gap? A Qualitative Evaluation of Employers’ and Employees’ Views” journals.sagepub.com/doi/10.1177/... Supported by @arcnenc.bsky.social #Bereavement #Qualitative #Research #PalliativeCare

My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social

If you're at #eapc2025 and want to hear more about @goodgrieffest.bsky.social and end-of-life literacy, join us at 4.30pm today, Hall 3AB! @eapcvzw.bsky.social

What a brilliant plenary by Smriti Rana, Head of the WHO Collaborating Centre for Training and Policy on Access to Pain Relief 👏👏👏 @eapcvzw.bsky.social #eapc2025

Joint #EAPC2025 presentation with Dr Sabrina Bajwah - our #equitable #BereavementCare For all study #Trust #Respect #EquityOfAccess #Model informed our successful recruitment of 120 participants. #Racism a key themes informing bereavement experiences @eapcvzw.bsky.social @lucyselman.bsky.social

Read Arts Council England's piece about Good Grief Weston highlighting the festival as "a best practice example of cross-sector collaboration and the role of creativity in promoting health and wellbeing in our communities." www.artscouncil.org.uk/creative-mat... @lucyselman.bsky.social

Making final preparations for our #EAPC2025 presentation tomorrow @11.45am on #BereavementSupport for ethnically diverse communities @lucyselman.bsky.social

Dialysis was framed as ‘treatment’, and possible complications minimised. CKM [conservative kidney management] was framed as ‘non-treatment’ and linked to advance care planning, palliative care and death." academic.oup.com/ckj/advance-... Via @lucyselman.bsky.social‬

It was a huge honour to welcome the fabulous @drkathrynmannix.bsky.social to Bristol Uni for the first ever @griefcentrebris.bsky.social & @goodgrieffest.bsky.social event. Thank you so much to everyone who joined us -- here are some snaps of the day

As part of our project, we are running creative workshops supporting mental health in our 3 focus areas: young people’s mental health, substance use, serious illness and bereavement. Read more coastalcch.bristol.ac.uk/project-acti... @lucyselman.bsky.social @mobcommassets.bsky.social

📣 New paper now online @ckj-era.bsky.social: How do patient information documents present dialysis and conservative kidney management? A document analysis. academic.oup.com/ckj/advance-... @flissmurtagh.bsky.social @peolcsw.bsky.social @wolfsonpallcare.bsky.social @danafarber.bsky.social

This week is Mental Health Awareness week. The CC&CH project aims to generate evidence and resources to improve mental health in our focus areas by enhancing and widening access to community assets. Read more coastalcch.bristol.ac.uk @lucyselman.bsky.social @mobcommassets.bsky.social

This sound really interesting Lucy. Are you aware of the co-designed & co-delivered @arcengland.bsky.social @meetmacintyre.bsky.social Loss & Bereavement Course? arcengland.org.uk/loss-and-ber... It's run by Jess, @nicolapayne21.bsky.social & myself - I'm bias but well-worth checking out!

Read about our second discussion forum and World Cafe held in Weston-super-Mare last month coastalcch.bristol.ac.uk/news/#WsMDis... @lucyselman.bsky.social @mobcommassets.bsky.social

Don't miss our first event next Friday 9 May. We can't wait to welcome Dr Kathryn Mannix to Bristol for an interview with Andrew Blades @bristoluni.bsky.social. Tickets here: www.ticketsource.co.uk/goodgrieffes...

Reminder that @drkathrynmannix.bsky.social is visiting the southwest in May! Join us in Bristol or Weston-super-Mare 👀 www.goodgrieffest.com/events/ Plus, free events coming up with Prof Robert Neimeyer and Prof Mary-Frances O'Connor

'Why we need to talk about death': fantastic interview with @lucyselman.bsky.social by @markmardell.bsky.social in @prospectmagazine.co.uk. Lucy is co-founder of @goodgrieffest.bsky.social & the newly launched @griefcentrebris.bsky.social. www.prospectmagazine.co.uk/ideas/a-good... #DyingMatters

Good to talk to Mark @prospectmagazine.co.uk for this interview, following on from this @bmj.com piece on Facing Death Differently www.bmj.com/content/387/...

Read about our second discussion forum and World Cafe held in Blackpool last month coastalcch.bristol.ac.uk/news/#Blackp... @lucyselman.bsky.social @mobcommassets.bsky.social

We're delighted to launch the new @griefcentrebris.bsky.social today! The Bristol Centre for Grief Research and Engagement will unite our research, education, and policy and public engagement on the topics of grief, death and loss. www.bristol.ac.uk/news/2025/ap... @leseldawson.bsky.social

Looking forward to joining colleagues in Victoria in June for the EAPC Public Health Palliative Care conference. I'll be giving a plenary on relationships and power in cross-sector collaboration. Registration is open at event.fourwaves.com/eapcirs2025

New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data bmcpalliatcare.biomedcentral.com/articles/10.... Congratulations Maja!

Reminder that @drkathrynmannix.bsky.social is visiting the southwest in May! Join us in Bristol or Weston-super-Mare 👀 www.goodgrieffest.com/events/ Plus, free events coming up with Prof Robert Neimeyer and Prof Mary-Frances O'Connor

New guide to conducting personalised annual reviews for people with multiple long-term conditions published. The approach, developed by CAPC & @arc-west.bsky.social researchers, involves conducting a ‘whole-person’ review instead of individual disease-specific reviews. bit.ly/3FDiKTo #PrimaryCare

So pleased Kathryn Mannix will be visiting Bristol on 9 May. In the current context it is more vital than ever to open up conversations about death, dying and grief. Please spread the word! @cendeathsociety.bsky.social @arnosvalecemetery.bsky.social @bwhc.bsky.social @bristoluni.bsky.social

We are looking forward to welcoming the amazing Dr Kathryn Mannix to Weston-super-Mare in May! Please spread the word🙏 #Weston-super-mare #DyingMattersAwarenessWeek @capcbristol.bsky.social @danaldridgemp.bsky.social @bwhc.bsky.social @hospiceuk.bsky.social www.goodgrieffest.com/events/talki...

Delighted to give oral evidence to the Palliative Care Commission yesterday & meet Alison Penny (National Bereavement Alliance) & colleagues on the panel. Good luck to all the Commissioners pulling together the evidence. Written call open until 28/3: palliativecarecommission.uk/submit-writt...

Our first face-to-face meeting for our @nihr.bsky.social research on #equitable #BereavementSupport led by Sabrina Bajwah and myself. Great to have our #community #researchers with us for conducting analysis @lucyselman.bsky.social

PS if you liked this, you may also be interested in t.co/B5fTbmQu00

Thanks Lucy! Please read: our findings suggest that we have made little progress in helping older, frailer and comorbid people understand the true trade offs between preparing for dialysis and conservative management. We need to do better and suggest some approaches that might help.