Wolfson Palliative Care Research Centre
@wolfsonpallcare.bsky.social
📤 274
📥 312
📝 37
Find us at
https://www.hyms.ac.uk/research/research-centres-and-groups/wolfson
pinned post!
Welcome to the Wolfson Palliative Care Research Centre on Bluesky! To find out more about us please take a look at our webpages
www.hyms.ac.uk/research/res...
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Wolfson Palliative Care Research Centre
The Wolfson Palliative Care Research Centre aims to find and help deliver the best palliative care services and treatments.
https://www.hyms.ac.uk/research/research-centres-and-groups/wolfson
10 months ago
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Our large umbrella review of models, components and outcomes of palliative and end-of-life care provided to adults living at home is now out! This includes evidence from 66 systematic reviews! All you want to know about models of care!
journals.sagepub.com/doi/full/10....
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Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca...
Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...
https://journals.sagepub.com/doi/full/10.1177/02692163251362567
8 days ago
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Wolfson Palliative Care Research Centre
12 days ago
What is it like to experience exacerbations? How should clinicians talk to people about exacerbations? Read our article to find out...
@wolfsonpallcare.bsky.social
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Wolfson Palliative Care Research Centre
Stephanie Meddick-Dyson
3 months ago
My absolute pleasure to talk about palliative care in the ICU at this year’s
@ics-updates.bsky.social
#SOA2025
. It makes me very happy to see how much traction the conversation is getting and the eagerness from both palliative and intensive care to learn and grow.
@wolfsonpallcare.bsky.social
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Wolfson Palliative Care Research Centre
2 months ago
@wolfsonpallcare.bsky.social
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Wolfson Palliative Care Research Centre
2 months ago
@wolfsonpallcare.bsky.social
add a skeleton here at some point
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Wolfson Palliative Care Research Centre
Donna Wakefield
4 months ago
Smiles all around at the team
@wolfsonpallcare.bsky.social
@hyms.ac.uk
stand at
#EAPC2025
in
#Helsinki
🇫🇮 We’re all friendly, come by & say hello ☺️
#PalliativeCare
#Hpc
#hapc
#Research
@jonathankoffman.bsky.social
@flissmurtagh.bsky.social
@sophiepask.bsky.social
@miriamjohnsonhyms.bsky.social
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Wolfson Palliative Care Research Centre
Sunitha Daniel
4 months ago
Congratulations to Susanne de Wolf-Linder from
@wolfsonpallcare.bsky.social
one of the best 5 posters at
@eapcvzw.bsky.social
#EAPC2025
#IPOS-Dem
is a valid and reliable outcome measure for assessing and monitoring palliative symptoms and concern for those with dementia
@flissmurtagh.bsky.social
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Prof of Implementation science Mark Pearson leads EAPCC workshop highlighting need for theoretically-underpinned translation of evidence into practice."Even the best evidence won't implement itself". See
www.hyms.ac.uk/postgraduate...
4 months ago
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LGBTQI+ inclusive palliative care being addressed via audience participation - more important than ever in current times.
@eapcc.bsky.social
4 months ago
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Wolfson Palliative Care Research Centre
Sunitha Daniel
4 months ago
Come and visit the team
@wolfsonpallcare.bsky.social
at
@eapcvzw.bsky.social
#EAPC2025
and learn more about our work and courses offered MSc , PGcert and PGdiploma in
#PalliativeCare
#implementationscience
@implementsci.bsky.social
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@donnawakefield.bsky.social
presenting her SR on inequity & inequality in Lung Disease
@eapcc.bsky.social
4 months ago
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Wolfson Palliative Care Research Centre
Sophie Pask
4 months ago
#EAPC2025
has crept up and is finally here! Landed in Helsinki yesterday and excited for a jam packed programme. Excited to be with colleagues from all around the globe to consider where we have come from, where we are at, and where we are going with palliative care.
@wolfsonpallcare.bsky.social
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Wolfson Palliative Care Research Centre
BJGP Open
5 months ago
COPD | This interview study with patients and carers highlights the importance of plain language (‘flare up’ rather than 'exacerbation') and the lasting effect on patient behaviour of a clinician's response to help-seeking for flare-ups ➡️
doi.org/10.3399/BJGP...
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Wolfson Palliative Care Research Centre
Lucy Selman
5 months ago
📣 New paper now online
@ckj-era.bsky.social
: How do patient information documents present dialysis and conservative kidney management? A document analysis.
academic.oup.com/ckj/advance-...
@flissmurtagh.bsky.social
@peolcsw.bsky.social
@wolfsonpallcare.bsky.social
@danafarber.bsky.social
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Early emphasis on symptom management, preparation for exacerbations, and post-exacerbation reviews are practical ways that clinicians can support patients and carers to manage these events better. Read more here:
bjgpopen.org/content/earl...
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Exploring patients’ and carers’ experiences, understandings and expectations of COPD exacerbations:an interview study
Background Chronic obstructive pulmonary disease (COPD) exacerbations are clinically significant events that affect millions of people globally. Aim To explore patients’ and carers’ experiences, unde...
https://bjgpopen.org/content/early/2025/05/04/BJGPO.2024.0026.full
5 months ago
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#YorkshireandHumberPalliativeCareResearchNetwork
improving
#PC
and
#EOLC
through research, member of public,health or social care practitioner, commissioners, researchers from
#Yorkshire
and
#Humber
working on
#PC
and
#EOLC
www.hyms.ac.uk/research/res...
confirmsubscription.com/h/j/F344C951...
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Subscribe to Yorkshire and Humber Palliative Care Research Network
https://confirmsubscription.com/h/j/F344C951356552C4
5 months ago
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@flissmurtagh.bsky.social
delivered the endowed
#SamuelGeelecture
2025
@rcphysicians.bsky.social
Less medicine and more care
#palliativecare
in NHS improving
#qualityoflife
in older age sometimes means less medicine, not more.
player.rcp.ac.uk/ee/live/samu...
@hyms.ac.uk
@uniofhull.bsky.social
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Samuel Gee lecture 2025: Less medicine and more care: the role of palliative care in the NHS | RCP Player
RCP Player offers healthcare professionals the latest medical updates through webinars, videos and podcasts. Explore our wide range of resources today.
https://player.rcp.ac.uk/ee/live/samuel-gee-2025
5 months ago
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New strategy, developed in collaboration with patients, families and hospice staff, improved
#delirium
care in the four hospice sites with 13% reduction in delirium days following implementation.
#DAMPEN_D
#YorkshireCancerResearch
@miriamjohnsonhyms.bsky.social
www.hyms.ac.uk/research/sto...
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Study paves the way for improved management of delirium in hospices
A study is leading the way in improving the detection, assessment, management and prevention of delirium in specialist palliative care units.
https://www.hyms.ac.uk/research/stories/study-paves-the-way-for-improved-management-of-delirium-in-hospices
6 months ago
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reposted by
Wolfson Palliative Care Research Centre
Donna Wakefield
6 months ago
Nationally data is gathered on quality of cancer care when CURATIVE- screening, access to treatment & outcomes, survival….. But no agreed measure/monitoring of QUALITY for those with advanced cancer This feels wrong! Great talk & discussion by Dr Lesley Henson 👏👏
@wolfsonpallcare.bsky.social
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Wolfson Palliative Care Research Centre
Dr Kathryn Mannix
6 months ago
Does your role include care of people towards the end of their lives at home, in hospital or care homes? This looks good: my pals at Harlington Hospice invite you to join them for an updates day on 18th June. Apply here
www.harlingtonhospice.org/conference/
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Listen to
@miriamjohnsonhyms.bsky.social
talk to Dr Kat Ralston in clinical conversation podcast of
@rcpedin.bsky.social
on PC in
#Heartfailure
podcasts.rcpe.ac.uk/show/clinica...
@hyms.ac.uk
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Palliative Care in Heart Failure (17 Mar 2025)
In this episode, Dr Kat Ralston chats with Prof Miriam Johnson about palliative care in heart failure.
https://podcasts.rcpe.ac.uk/show/clinical-conversations/palliative-care-in-heart-failure-17-mar-2025/
6 months ago
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Our
#PACEstudy
shows visiting
#JeanBishopIntegratedCareCentre
can improve the wellbeing of older people living with frailty.
@uniofhull.bsky.social
trial comparing the wellbeing and QOL of individuals who received care at Centre with group in the community without it.
www.hyms.ac.uk/research/sto...
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Integrated Care Centre boosts wellbeing of patients with frailty
Research has shown that the Jean Bishop Integrated Care Centre improves the wellbeing of older people living with frailty.
https://www.hyms.ac.uk/research/stories/integrated-care-centre-boosts-wellbeing-of-patients-with-frailty
6 months ago
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Wolfson Palliative Care Research Centre
Hull York Medical School
6 months ago
Don’t miss our next exclusive Clinical Anatomy Masters Webinar! Join Programme Director Dr Paul McKeegan to discover how our programmes will boost your skills and career potential 🦴 Register your place here:
york-ac-uk.zoom.us/webinar/regi...
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Wolfson Palliative Care Research Centre
Hull York Medical School
6 months ago
Why study Health Professions Education? Join Programme Directors Dr Amaya Ellawala and Dr Millie Kehoe on 20 May to find out! 🩺 🎓
york-ac-uk.zoom.us/webinar/regi...
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Wolfson Palliative Care Research Centre
Miriam Johnson
7 months ago
Delighted to share our first paper from a great collaboration for the BreatheINDIA project - a realist review about breathlessness self management.
@wolfsonpallcare.bsky.social
www.nature.com/articles/s41...
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BREATHLEssness in INDIA (BREATHE-INDIA): realist review to develop explanatory programme theory about breathlessness self-management in India - npj Primary Care Respiratory Medicine
npj Primary Care Respiratory Medicine - BREATHLEssness in INDIA (BREATHE-INDIA): realist review to develop explanatory programme theory about breathlessness self-management in India
https://www.nature.com/articles/s41533-025-00420-2
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Wolfson Palliative Care Research Centre
Rick Bauer (he/him/él)
7 months ago
New WHO Document highlights compassion in health care.
www.who.int/news/item/07...
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New WHO document highlights the role of compassion in primary health care
The World Health Organization has released a new report, "Compassion and primary health care", which explores the vital role compassion plays in primary health care (PHC). The document synthesizes fin...
https://www.who.int/news/item/07-02-2025-new-who-document-highlights-the-role-of-compassion-in-primary-health-care
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reposted by
Wolfson Palliative Care Research Centre
Lucy Selman
7 months ago
📢 New paper in BMJ Open, led by
@barnyhole.bsky.social
. ‘It’s basically ‘have that or die’’: a qualitative study of older patients’ choices between dialysis and conservative kidney management
@leilarooshenas.bsky.social
@peolcsw.bsky.social
@wolfsonpallcare.bsky.social
@flissmurtagh.bsky.social
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Wolfson Palliative Care Research Centre
Kate Binnie
7 months ago
If you live with lung disease & breathlessness/anxiety 🫁😫you can access FREE online support at Asthma+Lung UK & Roy Castle Foundation. "Body Breathing" sessions are trauma-informed, fully accessible & offer tips & tricks to develop coping skills based on my PhD research
@wolfsonpallcare.bsky.social
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Would you like to know more about how to support your patients with their breathlessness? Do read 'Living with breathlessness: its impact on patients and carers' by
@annhutchinson.bsky.social
in the March issue of GPN (free to register)
@hyms.ac.uk
www.journalofpracticenursing.co.uk/index.php
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Home
Journal of general practice nursing - Home
https://www.journalofpracticenursing.co.uk/index.php
7 months ago
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Would you like to know more about how to live well with breathlessness and have an opportunity to do some chair yoga? Then do come along to our Colliderfest session on 14/3/25 from 6.30. For more info and to book your free ticket see:
events.colliderfest.co.uk/2025#/whatso...
7 months ago
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Do you live with a Lung condition? Please fill in the Asthma and Lung UK survey
@asthmaandlung.org.uk
asthmaandlung.eu.typeform.com/lungsurvey?u...
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Life with a lung condition survey
Tell us about living with a lung conditions, and the care you get for it. Your answer will help us campaign to represent you.
https://asthmaandlung.eu.typeform.com/lungsurvey?utm_source=homepage&utm_medium=website_aluk&utm_campaign=life_with_a_lung_condition&utm_id=&typeform-source=www.asthmaandlung.org.uk
7 months ago
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Our Wolfson Scientific forum kickstarted with Dr. Helene Elliott-Button presenting her findings from a modified Delphi on the principles for undertaking
#research
among minority ethnic populations. Stay tuned for publication information with their recommendations
#PalliativeCare
7 months ago
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Coming up... Dr. Jonathan Koffman's presentation on the association between
#ethnicity
,
#HealthCare
service use and ~opiod prescribing in patients with
#Cancer
7 months ago
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Second on today's Scientific Forum is Dr. Elisha De-Alker presenting on the secondary analysis of trends in UK expenditure on long-term
#Healthcare
.
#PalliativeCare
7 months ago
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According to
@asthmaandlung.org.uk
1 in 10 people in the UK live with chronic
#Breathlessness
... Are you one of those? If so, there are strategies to allow you to
#LiveWell
with breathlessness. Download our guide for free:
breathlessness.hyms.ac.uk?page_id=35
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A guide to living well with breathlessness - Breathlessness
Breathlessness is not something to hide away; keeping active and involved with others will help life be as good as possible. Doctors, nurses and physiotherapists can help people manage their breathles...
https://breathlessness.hyms.ac.uk/?page_id=35
8 months ago
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Wolfson Palliative Care Research Centre
Donna Wakefield
8 months ago
📣Exciting news- Super new book out today 📖 “Oxford case histories in Palliative Medicine” - lots of learning with cases then Q&As Available in physical textbook version here
global.oup.com/academic/pro...
or E-book Enjoyed writing my cases which were around
#Inequalities
in
#PalliativeCare
✍️
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Wolfson Palliative Care Research Centre
Cathy Payne
8 months ago
Be a catalyst for change! Join the 2nd EUonQoL Stakeholder Forum on 26 February and help shape the future of
#QualityofLife
measurement in
#cancercare
. ✍️ Register now 🔗
www.europeancancer.org/events/319:f...
Funded by the European Union - Horizon Europe - Grant Agreement n. 101096362.
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From Data to Action: Advancing Public Health through Quality-of-Life...
https://www.europeancancer.org/events/319:from-data-to-action.html
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Living with
#ChronicBreathlessness
: a study reveals its profound psychological & physical toll on older, frail adults. Barriers in care highlight the need for better identification, education, and proactive management in
#PrimaryCare
.
t.co/jlrY75ANHR
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https://www.nature.com/articles/s41533-024-00409-3#citeas
https://t.co/jlrY75ANHR
8 months ago
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Wolfson Palliative Care Research Centre
Hull York Medical School
8 months ago
🚨In our next Inaugural lecture Professor of Public and Global Health Helen Elsey will be sharing insights from her research, which includes working with partners in sub-Saharan Africa and Asia, to address the major public health challenges we face:
hullyorkmedicalschool.formstack.com/forms/inaugu...
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reposted by
Wolfson Palliative Care Research Centre
The Lancet
9 months ago
"Choice can only be exercised when options exist that enable equitable access to comprehensive care." On the cover, a Comment explores assisted dying, complex systems, and global equity in palliative care. Read this & more ➡️
tinyurl.com/42n97mp4
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Interesting and worrying paper to read...
add a skeleton here at some point
8 months ago
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reposted by
Wolfson Palliative Care Research Centre
Lucy Selman
9 months ago
Our blog on findings from the OSCAR study is now online
@ukkidney.org
education.ukkidney.org/blog/oscar
Full paper:
bmcnephrol.biomedcentral.com/articles/10....
@peolcsw.bsky.social
@capcbristol.bsky.social
@flissmurtagh.bsky.social
@wolfsonpallcare.bsky.social
@cacenotes.bsky.social
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Did you see this special issue on Digital Health with palliative care? While Digital Health has the potential to enhance palliative care, major gaps exist regarding its role and application in patients with serious illnesses Deadline for submissions is 28th April 2025 Link:
tinyurl.com/4a7erxf2
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Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
https://journals.sagepub.com/page/pmj/call-for-papers-digital-health/?pbNew
9 months ago
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One of our very own! Congrats, Jordan! 👏🧑🎓
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9 months ago
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reposted by
Wolfson Palliative Care Research Centre
Kate Binnie
9 months ago
I've been teaching yoga, breathwork and meditation to patients, caregivers & HCPs in palliative care settings for a long time. My
#realist
research
@wolfsonpallcare.bsky.social
unpicks the relational & soothing mechanisms activated by these approaches that lead to down-regulation of distress.
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Congrats, Donna! 👏👏
add a skeleton here at some point
9 months ago
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reposted by
Wolfson Palliative Care Research Centre
Prof Fliss Murtagh
about 1 year ago
New research funded by MarieCurie, highlighting patchy and inconsistent end of life care. The report aims to drive change to improve care for people with advanced illness and their families. See
www.hull.ac.uk/work-with-us...
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Research shows painful truth of end of life care
New research by Hull York Medical School underpins a new Marie Curie report highlighting patchy and inconsistent end of life care.
https://www.hull.ac.uk/work-with-us/more/media-centre/news/2024/research-shows-painful-truth-of-end-of-life-care
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reposted by
Wolfson Palliative Care Research Centre
Prof Fliss Murtagh
10 months ago
Our Postgraduate Taught webinars continue next week! Discover how our PGCert, PGDip and MSc in Palliative Care: Implementing Best Practice programme will help you to make a difference to people living with long-term and life-limiting conditions:
www.hyms.ac.uk/postgraduate...
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PGCert, PGDip and MSc in Palliative Care: Implementing Best Practice
Learn how to develop, deliver and evaluate care that facilitates best practice in palliative care and care for people living with life-limiting conditions.
https://www.hyms.ac.uk/postgraduate-taught/pgcert-pgdip-msc-in-palliative-care-implementing-best-practice
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Read about the successes of the COPD Baton Pass in our new blog post on the Breathlessness blog
breathlessness.hyms.ac.uk?p=2014
9 months ago
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The James Lind Alliance has published a Lancet paper on 10 research questions in breathlessness:
www.thelancet.com/journals/lan...
We welcome these questions as they complement the work we have been part of with the IPCRG. Please see Desktop Helper No.17
www.ipcrg.org/DTH17
10 months ago
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