New book on #delirium for families - coming out in August 2025. #newbook

Listen to our latest Mini Series with Dr Anne Finucane and Dr David Gillanders and you'll find out more about their brilliant resource - mygriefmyway.co.uk - listen here or wherever you get your pods. rossmcintosh.co.uk/links/

The Royal Society of Medicine have launched their medical student essay competition - palliative care section. 2000 words by 25th sept. Title: “Difficult patients" or a difficult system? Reimagining palliative care for people with serious mental illness. www5.shocklogic.com/scripts/jmev...

Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social

Great to see over 100 posters on the management of psychological symptoms & needs at #eapc2025. Check out our poster on research required in this area. And feel free to join our network to exchange ideas on research and practice in this space: www.mainexchange.org.uk

My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social

Myth: Sedatives (like benzos) are mostly helpful in calming delirium. Fact: Sedatives often worsen delirium. Non-drug approaches (reorientation, hydration, mobility) are first-line treatments.

Grant writing workshop - Edinburgh 08.05.25. 👉 Networking & brainstorming ideas for future grant applications on mental wellbeing towards end-of-life. 👉Bursaries available for 2 early career researchers 👉Info: www.mainexchange.org.uk/news/grant-w... Funded by @mariecurieeolc.bsky.social

New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data bmcpalliatcare.biomedcentral.com/articles/10.... Congratulations Maja!

My Grief My Way: All welcome to our webinar on the development of an acceptance based bereavement support website to enhance coping and quality of life after bereavement. 10.06.25. With @davidgillanders.bsky.social Register: www.mainexchange.org.uk/webinars/ Funded by @mariecurieeolc.bsky.social

Our meta review out now on psychosocial interventions in #dementia #palliative care - critical gaps in evidence on care co-ordination, transitions, and carer support www.sciencedirect.com/science/arti...

Want to engage more with someone who has memory loss or dementia, but don't know where to start? With OU Connect, I've created a short guide to Reminiscence Therapy, using objects to unlock memories & connections. Interactive & free printout here - publuu.com/flip-book/46...

🔔 RECRUITMENT ALERT 🔔 Very excited to be recruiting to THREE new posts (Lecturer, G6/7 and G4) in my team at King’s College London to set up and grow a new Impact Centre for Palliative and End of Life Care. See next tweets for details. Impact Centre: www.kcl.ac.uk/research/the... Pls share

Invitation: Our next Mental health and wellbeing in Advanced Illness Network (MAIN) webinar is on 1 April @ 1pm. Topic: Identification of psychological distress in palliative care. With @lgrahamwisener.bsky.social & Dr Niall Galligan. Register here: events.teams.microsoft.com/event/a35af4...

*New paper*: As in other settings, the term 'delirium' is rarely used. Targeted training alongside timely advice from specialist palliative care teams is recommended. Led by: Liz Arnold. With Juliet Spiller. Funded by @mariecurieeolc.bsky.social bmcpalliatcare.biomedcentral.com/articles/10....

This paper is a helpful reminder of importance of consistent and scheduled #writing! I've recently started to write everyday but the paper offers tips how to make it more structured and effective🤩 Thanks @johnmacartney.bsky.social and Rachel Perry! #academicsky nilq.qub.ac.uk/index.php/ni...

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

You can also now download and read our report, "'To Know Dying' Identifying research areas in palliative and end of life care for the social sciences and humanities" healthopenresearch.org/documents/7-1 @ericaborgstrom.bsky.social @brionyhudson.bsky.social @marigreenfield.bsky.social

Looking forward to the next MAIN webinar, TODAY at 12:30 with @paedpallcare.bsky.social & @victoriaefisher.bsky.social On the health and wellbeing of parents and children with life-limiting conditions. Still time to register here!: www.mainexchange.org.uk/webinars/upc...

REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care. The results will help shape research funding - so have your say, *especially* if you are have a social science or humanities background!

Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:

If you interested in research on mental health and wellbeing for people impacted by advanced illness, please check out our MAIN website and resources. Free to join. All welcome. Next webinar is 17.01.25. Funded by @mariecurieuk.bsky.social www.mainexchange.org.uk

Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...

Wrap the Tree in a bow 🌲 🎁 🧑‍🎄 I wrote #TheTreeThatBends to help people excel & feel well. Highlights include: 🌟 Developing a Flexible Mind by being Anchored, Willing & Empowered 🌟 Navigating our ‘Get’, ‘Threat’ & ‘Reset’ modes to reduce the risk of burnout. Order: amzn.eu/d/1AWTjM8 #booksky

Sharing our delirium resources for healthcare professionals caring for people approaching end-of-life. Includes advice on using the 4AT to identify delirium. youtu.be/e6PXbWvWCTI?...

Care for spiritual distress (existential crisis) has been added to the Scottish Palliative Care Guidelines. tinyurl.com/y4k67ja5

BLUESKY MEGA-THREAD Altmetric is thrilled and also LITERALLY RELIEVED to officially announce: We are now tracking research attention as it happens on Bluesky! We have been picking up posts on the site since late Oct. Our team is on Bluesky all day answering questions. Let's get into it!

Loving this new paper on complexity in medicine, using pediatrics as the worked example. Too many medical authors (and the MRC) run fast and loose with the terms 'complexity' and 'complex interventions'. They should read this paper. #medsky #academicsky #philsci 🧪 www.nature.com/articles/s41...

Dear @rthonwesstreeting.bsky.social You said that part of the reason you couldn’t vote for the AD bill was the lack of adequate palliative care in the UK. You are the health secretary. Will you now pledge publicly & immediately to fix that? Or are dying people not enough of a priority?

Thanks @lbc.co.uk for having me on to discuss AD. Both Keir Starmer & Wes Streeting know full well how grossly underfunded UK palliative care is - & they have the power to change that. But will they? Or will they turn their backs on dying people? www.lbc.co.uk/news/palliat...

Scottish Partnership for Palliative Care's monthly ebulletin is out. Everything you need to know on policy, practice, news, events and some research. Sign up on our home page and this month's available here www.palliativecarescotland.org.uk/viewmail.php...

Around 600,000 people who die in the UK each year could benefit from palliative care. Palliative care needs to be state funded, as it is now in the Republic of Ireland. @rthonwesstreeting.bsky.social bmcpalliatcare.biomedcentral.com/articles/10.... (See estimates of need - Tables 3+4)

Palliative Care Doctor, Dr Rachel Clarke, "There are thousands of people suffering unnecessary pain" "We may be in a peculiar position where we have a state funded dying service but we don't have a state funded palliative care service"

Really important super short survey to capture the UK palliative care research capacity. Please consider completing this if you work in UK #palliativecare or #endoflifecare.

*NEW* estimates of palliative care need in the UK: 2017-2021. bmcpalliatcare.biomedcentral.com/articles/10....

Two in one 😀 Read about realist evaluation, how it differs from other research approaches, and why it is well-suited for palliative care: journals.sagepub.com/doi/epub/10.... And how we can get to high-quality realist research through strong reflexivity practice: journals.sagepub.com/doi/epub/10....

Delighted to have contributed to this investigation into hospice and end of life care, and the huge challenges faced by the sector. It couldn’t be more timely. Keeping Care Alive: Hospices in Crisis? will air on ITV, 8:30pm, Thursday 28th November

All welcome to our next MAIN Event webinar. "Crisis Prevention not Crisis Management: the health and wellbeing of parents and children with life-limiting conditions" Fri 17th Jan (Online): 12:30 - 2pm With @paedpallcare.bsky.social & Dr Victoria Fisher. Register here for free: bit.ly/4hXf4L4