The report of the House of Lords Terminally Ill Adults (End of Life) Bill Committee has been published. Less of a ‘report’ than I was expecting - more a compilation of evidence - but useful nonetheless. committees.parliament.uk/committee/81...

Terminally Ill Adults (End of Life) update As many will know, the House of  Lords convened a Select Committee to consider the Bill, which heard from witnesses in late October / early November.  It has now finished its evidence sessions.  The transcripts of the oral evidence given by witnesses can…

“The difference between this [hospice] and the hospital is the dignity” Thank you Sarah Dawood for writing this important article on dying with dignity - and to the patients and families at St Raphael’s for sharing their experiences. www.newstatesman.com/spotlight/he...

The Association for Palliative Medicine has produced a Myth Buster on assisted dying and the Terminally Ill Adults bill. The debate must be based on evidence, not soundbites and spin. It’s an essential tool for Peers, journalists and other commentators. apmonline.org/wp-content/u...

Stimulating and productive meeting today of our NIHR Policy Research Unit in palliative and end of life care. So lucky to work with such brilliant colleagues. For more info on our work: www.kcl.ac.uk/research/nih...

Latest paper from the @mariecurieeolc.bsky.social Better End of Life programme. Meta-level evidence supporting provision of in-home palliative care, specialist palliative care and integration of primary pall care w specialist support. journals.sagepub.com/doi/10.1177/... @palliativemedj.bsky.social

🚨Calling UK health and care practitioners! Please help us shape the work of the new Impact Centre for palliative and end-of-life care. Survey takes 15 mins to complete. We especially want to hear from people from Wales, Scotland and Northern Ireland 🙏 Survey 👇

Join us on 21st October for this year’s Cicely Saunders Institute Michal Galazka Study Day! 👉Topic - Delivering Integrated Palliative Care 👉Great speakers - including @drbenbowers.bsky.social Dr Matthew Allsop and Dr Sarah Mitchell 👉In person and online 👉Free! Registration: shorturl.at/JzMwG

Join us on 21st October for this year’s Cicely Saunders Institute Michal Galazka Study Day! 👉Topic - Delivering Integrated Palliative Care 👉Great speakers - including @drbenbowers.bsky.social Dr Matthew Allsop and Dr Sarah Mitchell 👉In person and online 👉Free! Registration: shorturl.at/JzMwG

🔔 We are looking for people aged 18-25 living with complex health conditions to help us with a research study. 📋 The study is about how we measure the symptoms and concerns that matter to you. We’ll pay you £25ph. 📧 Contact Rachel (details below) if you are interested.

Our report for the UK Covid Inquiry on palliative and end of life care during the pandemic has been published. We include 15 recommendations to strengthen palliative and end of life care so it is fit for the future, including future pandemics. covid19.public-inquiry.uk/documents/in...

Please could you help with the Impact Centre for Palliative and End-of-Life Care Stakeholder Survey, colleagues. Led by @katherinesleeman.bsky.social Your insights will directly inform the Centre’s plans: qualtrics.kcl.ac.uk/jfe/form/SV_...

📣 Are you a UK-based professional working in palliative or end of life care? 💥 Help shape priorities for the new Impact Centre for Palliative and End-of-Life Care. We’re inviting health & care professionals & commissioners to complete our Stakeholder Survey 👉 qualtrics.kcl.ac.uk/jfe/form/SV_...

🔔 HIRING! We are looking for a Grade 6 Research Associate to join our great team, delivering policy-focused research to improve palliative and end of life care. 📅 Closes 7th August 📧 Contact me for info t.co/SR2iA63y0o

🔔 HIRING! We are looking for a Grade 6 Research Associate to join our great team, delivering policy-focused research to improve palliative and end of life care. 📅 Closes 7th August 📧 Contact me for info t.co/SR2iA63y0o

New paper from PhD Fellow Rachel Chambers Evaluating the measurement properties of patient-reported outcome measures for young adults with life-limiting conditions: A systematic review journals.sagepub.com/doi/10.1177/...

Read about the new Impact Centre for Palliative and End-of-Life Care 👇👇👇 t.co/lMlnKGHzEi

Help us shape the work of the Impact Centre! If you are a health / care professional or responsible for delivering / commissioning services for dying people, help us understand how the Impact Centre can help YOU by filling out our short survey: qualtrics.kcl.ac.uk/jfe/form/SV_...

We're delighted to host the new Impact Centre for Palliative and End-of-Life Care, spearheaded by @katherinesleeman.bsky.social, at the Cicely Saunders Institute. More information 👇

King's is delighted to announce the Impact Centre for Palliative and End-of-Life Care. The Centre will enable the provision of high-quality palliative and end-of-life care across the UK and create systemic change in the delivery of care for dying people. www.kcl.ac.uk/news/half-of...

Improving palliative and end-of-life care has never been more important. I am thrilled to announce the Impact Centre for Palliative and End-of-Life Care, which will accelerate better care for dying people by closing the gap between evidence and practice. www.kcl.ac.uk/news/half-of...

It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done I summarise the key findings here MPs must not take the silencing of these groups as reassurance #AssistedDying @katiewhitemp.bsky.social

Yep that’s Justin Webb behind me & I’ll be on the Today programme very shortly to talk about - joy! - winning the 2025 @womensprize.bsky.social for non-fiction for THE STORY OF A HEART! Tune in to learn about the medical miracle that is organ donation 🩷🫁🫀

Royal College of Pathologists statement on the TIA / assisted dying bill. “The College cannot support clause 35 as drafted in the current version of the Bill.” t.co/Wv5kaQMpVZ

Terminally Ill Adults (End of Life) Bill updated with amendments likely to pass at Report stage, and updated questions: www.mentalcapacitylawandpolicy.org.uk/terminally-i...

Is assisted dying a treatment? This question is not just interesting philosophically - it has important implications in terms of clinical practice and law. New BMJ Opinion by Prof Gareth Owen, Prof @capacitylaw.bsky.social and me Free link: bmj.com/cgi/content/...

As Dan Hitchens notes in this piece, not all hospice doctors are ‘anti’ assisted dying. But the strength of feeling among the hospice workforce about this legislation, and the unintended consequences (for patients, staff and the wider sector) outlined here, can’t be ignored. t.co/kCd9n62rBd

Interview with me in Prospect - part of rolling coverage on assisted dying www.prospectmagazine.co.uk/ideas/a-good...

“Policy makers are not going to be knocking at our door looking for evidence” @katherinesleeman.bsky.social on bridging the evidence-policy gap and the 3Ps: ⭐️ Perspective ⭐️ People ⭐️ Perseverance With examples of evidence-informed policy making An area I need to learn more about…. #EAPC2025 Day 3

🎉 I am thrilled to launch the Dementia Journeys website - a new digital platform sharing powerful stories from carers, & exploring what better end-of-life dementia care looks like based on research from the UCL/KCL EMBED-Care programme 👉 www.dementia-journeys.com #DementiaActionWeek 1/8

So great to work with @theliminalspace.bsky.social on our new Dementia Journeys website 👇👇👇

Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social “Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”

Very happy that our final paper from the OPTIMAL-Care study is out in BMC Medicine! This multi-method study, brilliantly led by Matthew Allsop, examines the optimal development, implementation & evaluation of digital advance care plans (EPaCCS). bmcmedicine.biomedcentral.com/articles/10....

Globally, only 14% of people who need palliative care actually receive it. A decade after the WHA Resolution, what progress had been made? New paper in BMJ Global Health: Confronting global inequities in palliative care gh.bmj.com/content/10/5...

One certainty on assisted dying: this is an awful way to introduce it www.thetimes.com/article/2693...

Palliative care consultant @jamillahussain1.bsky.social says insufficient consideration has been given to how disadvantaged communities may be affected by assisted dying Bill t.co/8x35RGcwzD

This letter, in today’s Times, stopped me in my tracks. The assisted dying Bill will affect all of society, in ways that have barely been considered. Indeed, it already is…

Great piece by @sarahditum.bsky.social on fear of dying www.thetimes.com/article/4cc1...

Strong statement from the Royal College of Psychiatrists. “We cannot support the Terminally Ill Adults Bill as it stands” www.rcpsych.ac.uk/docs/default...

What the assisted dying Impact Assessment tells us - and what it leaves out. By me t.co/xW6DkDmpmF

The Royal College of Physicians latest position statement on the Terminally Ill Adults Bill www.rcp.ac.uk/policy-and-c...

By Robert Clarke, former MP and Attorney General for Victoria, Australia t.co/5LuwsXZGV2

The Children’s Commissioner has today published a report sharing children's views on assisted dying. Children will be affected by law change. It is important to listen to their views. t.co/9YtA0TBfmN

Today I have clocked up 10k steps going from excellent meeting (NIHR Integrated Academic Trainees presentations) to excellent meeting (NIHR Policy Research Unit Directors) and now I’m working in a cafe in the sun. #perfectday #reasonstobeanacademic #noteverydayislikethis

We hear a lot about “faecal” and “faeculent” vomiting in the assisted dying debate. But what does this really mean? Very helpful explainer from Dr Tony Duffy blogs.bmj.com/spcare/2025/...

Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social www.sciencedirect.com/science/arti...

Episode 3 of the Inside Health mini series on assisted dying / suicide now available. Topic: what the actual death is like www.bbc.co.uk/sounds/play/...

New paper led by @joannamdavies.bsky.social explores the social determinants of where people die using linked UK Census and mortality data. By investigating moderators and mediators, we identify novel potential mechanisms to reduce inequalities. 👇👇👇

I’m recruiting to three exciting new roles in my team - deadline for applications 9th April!

The KCL Complex Life and Death Decisions group is holding a webinar with 39 Essex Chambers today at 330pm on the Terminally Ill Adults Bill - Update and emerging flashpoints. Info and sign up link here: www.39essex.com/events/termi...