The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME www.gofundme.com/f/save-nevra

Thank you @natashadevon.bsky.social for hosting another excellent segment on #MECFS 💙 And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there. #MyalgicEncephalomyelitis is a serious disease that can happen to anyone.

Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this! All participants IG handles tagged at the end 💙💙 #SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME

🚨 I have 10 days before August rent is due, I need 832.33£ or $1,131.18 This is an emergency, so few people have donated recently, I’m at risk of homelessness, I could not survive that Please boost/engage with this! 🚨 Rent PayPal: www.paypal.com/paypalme/Sav... GFM: www.gofundme.com/f/save-nevra

Please support my friend Esam

“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.” 5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...

#IsItOk for @alastaircampbell2.bsky.social to complain about how many disabled people are not working on #TheLastLeg without questioning why? Have you heard of #LongCovid Alastair? And the pandemic which is an ongoing mass disabled event? And that there’s no cure and virtually zero support?

A few days ago we heard the UK’s government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME? So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan @thereforme.bsky.social

Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.

I don’t want my friends to keep getting sicker 🖤❤️‍🩹🖤 Words on existing in the severe ME community, TW severe illness ⬇️

A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years I’ve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy

Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesn’t push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME

I was able to spend an hour or so with my 2 year old nephew yesterday for the first time in over a year (due to a combo of me being too sick, him have Covid last time and them living the other side of the UK). It was so sweet and magical. He’d been told all about Auntie Fran and Uncle Dan so

Despite being severely unwell @katiamek.bsky.social spent her precious energy to speak out about this negligent treatment she’s been through in an effort to stop others experiencing the same. time.com/7206080/long...

The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland. Watch it in 7 minutes. V. important from my video colleagues. www.theguardian.com/society/vide...

Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️

Thanks so much to everyone who responded re my very severe friend in the Netherlands’. An update is that her dietician has supported the idea of her having an NG tube placed at home by a home care company. However the GP needs to support this and is so far declining to /1

Callout for advice for very severe pwME in the Netherlands (my best friend) pls RT. Main concern is not currently able to keep food down and is too nauseous to eat. Not kept down anything significant since Sunday 29th. Severe nausea continues even when not attempting to eat. 1/

The @MEAssociation have not provided any adequate response to @alexisme.bsky.social’s open letter, therefore a collaborative of severe ME advocates have sent a follow up letter as well as creating a petition for Neil Riley to step down. Please sign and share: www.change.org/p/me-associa...

(1/3)🧵 Check out this winter raffle created by #pwME to support @nlizaki.bsky.social! Organized by @franhaddock.bsky.social & other beautiful folks on IG. You can DM me a screenshot of donation here & say if you’re in UK or EU & I’ll pass on your info! Enter by Dec.22! #SevereME Part 1/2 of video 💜