I was honoured to spend a few hours recently talking with @yvonnediaz.bsky.social from @oncogenecancer.bsky.social about my lung cancer experiences. This first part is about my initial diagnosis and the start of my treatment. More to come shortly! youtu.be/FZsbfkloPyM?...

This morning’s DeLLphi presentation @myesmo.bsky.social brings so much hope to our #lungcancer community. Love seeing fresh hope for those with small cell lung cancer. #ESMO25

Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN. Sign up 👇 reg.eventmobi.com/ilcsc2025/regi…#LCSMSM

🌍 The 2025 ALK+ Summit brought together our community from 30 countries — united in one mission: accelerating research and supporting ALK-positive lives. 💙 Together, we are stronger. 👉 Stay connected for ALK Summit 2026: mailchi.mp/alkpositive/... #ALKPositive #StrongerTogether

Lung cancer is increasingly being diagnosed in younger, fit women with no smoking history - like Sarah & Becca. As Drs Cecilia Pompili & Alex Georgiou say, we need greater awareness, & more research so that women are seen, heard, and diagnosed sooner. theguardian.com/society/2025/s…#lcsmsm

Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙 #LCSM

After three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...

Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer. Check it out👇📷 static1.squarespace.com/static/65ca0... #LCSM

Surgery isn’t usually offered for stage 4 #lungcancer. Steve, diagnosed w stage 4 ALK+ in 2020, believed it could help prevent resistance. After targeted therapy shrank his tumour, he fought for surgery & got it. Read his story + our patient info: oncogeneresearch.org/surgery #LCSM

✨ What a weekend!✨ Our 2025 ALK+ Summit wrapped up today — but the connections, knowledge & hope keep going strong. Thank you for showing up & reminding us we’re #StrongerTogether. Stay tuned for more moments from this unforgettable weekend! 💙 #ALKSummit25 #LCSM

The ALK+ Summit is truly one of the most anticipated events for our ALK cancer community. Not everyone can travel to San Diego to join, but worth watching online. We will also post all videos after the event too. Registration link below 👇

Oncogene Cancer Research - Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis @oncogenecancer.bsky.social @yvonnediaz.bsky.social @prof-ali-g.bsky.social oncodaily.com/blog/talk-of... #OncoDaily #Oncology #Cancer #Health #Medicine #MedOnc #MedNews #TalkofHope #LungCancer

We’re proud to donate £10,425 to @icr.ac.uk to advance oncogene-driven lung cancer research, supporting the vital work of Dr Paul Huang. This is just the start — stay tuned for more big research plans. 💙🔬 oncogeneresearch.org/icr-donation #LCSM

Amy, Seth, Amanda & Nancy are powered by faith, family & the fight for more research. This #ALKPositive Awareness Month, they’re taking action to raise $500K for lifesaving breakthroughs. Join the #PoweredByPatients movement 👉 secure.qgiv.com/event/alkpos... #APAM

🎥 Missed our #APAM kickoff ALKtALK? Dr. Jesse Boehm shares how @break_cancer is advancing bold ALK+ research & how we’re helping fund it. We’re raising $500K to continue to project the work at BTC & others like it. 🔗 Watch now youtu.be/GxrUsGIAFUs #PoweredByPatients #lcsm

📢 Help us understand the emotional toll of #lungcancer. With @lungcancereurope.bsky.social & 46 orgs, we’re surveying patients & caregivers across Europe to explore the mental health impact of a diagnosis. 🧠 Your voice can shape better support. 🔗 surveymonkey.com/r/LuCESurvey20…#LCSMSM

Promising signals from the ALEK-B ph 2 trial: combining alectinib w bevacizumab achieved 97.1% 12-mo PFS & median PFS of 39.6 months in ALK+ #NSCLC. Intracranial control also notably strong. Could this combo help overcome resistance in more aggressive ALK variants? #research #lungcancer

Understanding cultural norms in cancer care is key. Aurora Lucas, an advocate living w EGFR #lungcancer, shares how she went from staying silent—out of fear of being disrespectful — to speaking up in this editorial with Dr @lungoncdoc.bsky.social. 👇 openworks.mdanderson.org/aceqi/vol1/i... #LCSM

Dr @narjustflorezmd.bsky.social doesn’t shy away from tough, taboo topics. @lungevity.bsky.social #HopeSummit, she led a powerful convo on how cancer affects identity, relationships, intimacy & sexual health. Her message: you deserve care, pleasure & to feel whole. Great party favours #LCSM

Sadly cancer knows no bounds & is common around the world. That’s why Christina, Ruth & Aude, from US, Mexico & France, will take on the @londonmarathon.bsky.social next Sunday. All funds raised will support @icr.ac.uk’s life-saving research. Let’s cheer them on 👇 #lcsm #LondonMarathon2025

Learned loads @lungcancereurope.bsky.social AGM, like: My behaviour style is different in advocacy from my employed work. Cannot crochet. “Chemo brain” is real & applies to cancer generally. Much more. Grateful for the unexpected LuCE Patient Advocate Award. Thank you LuCE family for all.

⏰NOW OUT‼️#ELCC25 🔥COCOON🦋: Preventing Moderate to Severe Dermatologic Adverse Events in 1st-line EGFR-mutant Advanced NSCLC Treated with Amivantamab + Lazertinib 🎙️ Dr. Nicolas Girard 🎯AEs ≥G2: OR 0.19 (95%CI, 0.09–0.40) ✅NCT06120140 #LCSM @oncoalert.bsky.social @myesmo.bsky.social @iaslc.bsky.social

Our EQUAL study is open for enrollment! More in this video! @florezlab.bsky.social @latinasinmed.bsky.social

💬 “Palliative care isn’t about giving up—it’s about living well, longer.” Missed our latest #ALKtalk with Dr. @lpetrillz? Catch the replay to learn how palliative care supports quality of life from day one. 🎥 Watch now: youtu.be/lz_uKKItkWc

Exciting to see the opening of the EQUAL study to see if we can diagnose EGFR & hopefully later other oncogene lung cancers earlier. We often don’t meet screening criteria & know that early detection saves lives. Find out more 👇 #lcsm

Telling people you have cancer is one of the worst parts. It makes it real in those early days when you are only coming to terms yourself. Probably telling the kids is the worst convo of all. Appreciate this conversation w/ @younglungcancer.bsky.social as part of @oncogenecancer.bsky.social #LCSM

We are looking forward to participating in the @lungcancereurope.bsky.social AGM & meeting next week in Berlin. By working together across patient organisations we can achieve outcomes for our lung cancer community faster. We are #StrongerTogether. #LCSM

Check out our friends @oncogenecancer.bsky.social on their new Youtube account! Keeping it tech savvy! youtube.com/@oncogenecan...

Happy Mother's Day to all the incredible mothers and mother figures across the UK. May research and science bring each of us the great gift: more time. Thinking of those missing their mums, those longing to be mothers & those facing complicated relationships today. #MothersDay #cancer #LCSM

Patient voices make a difference in all areas of our care —including the use of AI & wearables to advance research. 👀 this talk w @yvonnediaz.bsky.social our Board Member & co-founder of @oncogenecancer.bsky.social from the UpSmart conference in Manchester 👇 youtube.com/watch?v=5YwAnC…#LCSMSM

@alkpositiveuk.bsky.social—ALK resistance mutations show greater APOBEC attribution than e.g. EGFR mutations. Therefore, patients with ALK+ tumors would benefit more from therapies suppressing APOBEC activity 🧪. www.sciencedirect.com/science/arti...

We patients often wonder why each of us responds so individually to our targeted therapies. It’s heartbreaking when you see up close how not all derive the same benefit from the exact same drug w seemingly the same disease. Important to understand what factor influence this & do something about it.

At @cancergrace.bsky.social Patient Forum, Dr @lungoncdoc.bsky.social reveals that oncologists also get “scanxiety.” Will the latest scan mean their patient needs to move treatment. Touching to hear we share the same concerns 🩵 #lcsm #lungcancer

Great summary from Dr Christine Bestvina at @cancergrace.bsky.social Patient Forum on the CROWN & NVL-655 data. Research is extending our lives and enabling a good life too. We will keep pushing for more research until we have cures #LCSM #lungcancer

Dr. @ChristineBestv1 now presenting: ALK, ROS1 and RET: Pushing the Boundaries of Targeted Therapies #ALK #ROS1 #RET #LungCancer #TargetedTherapies #cancerGRACE

Fears of progression are always there lurking in the background for those of us on #lungcancer TKIs no matter how well they’re working now. Great info from Dr @lungoncdoc.bsky.social on the how, why & things to do. Research and new options can’t come fast enough. #LCSM @cancergrace.bsky.social

Great fishing 🎣 analogy from Dr @ludabazhenovamd.bsky.social on the use of liquid biopsies at the @cancergrace.bsky.social Patient Forum: If a liquid biopsy doesn’t turn up any biomarkers it doesn’t mean there aren’t any fish in the sea. Important to continue w tissue testing. #LCSM

In 2021 I assumed my cough was from allergies & my chest pressure was work stress. It was stage 4 #lungcancer. An x-ray & biomarker testing saved my life. Had no idea that anyone can get lung cancer. 📺 interview from @younglungcancer.bsky.social 👉https://youtu.be/S50UEv81kS0?si=rixipm5FYbvOmpNx 🤍

Professor @drjnaidoo.bsky.social welcomed to the #BTOG25 stage as a Lung Cancer Legend & doesn’t disappoint. Lots of discussion on how we turn discussions on Small Cell Lung Cancer on its head. Lots of optimism in #SCLC coming from new standards & future treatments. #LCSM

@annaminchom.bsky.social on newer small cell therapeutic strategies and management of CRS and ICANS as specific TRAEs With thought around timings of dose delivery and education of AOS teams and patients, safely deliverable within the NHS #BTOG25

@drjnaidoo.bsky.social on the limited stage small cell space and the excitement around CCRT-Durvalumab. EAMS currently open in England… #BTOG25

Packed house at #BTOG25’s SC lung cancer session Dr @stephenvliu.bsky.social talks of need to ID those that do/don’t derive benefit, find biomarkers, review optimal sequencing & better understand evolving biology of #SCLC. Describes SCLC in ppl w no/light smoking history. #LCSM @btog.bsky.social

Patient advocate @sunonmyhip.bsky.social joins #LungCancerConsidered host @narjustflorezmd.bsky.social to discuss her lung cancer journey & the power of advocacy groups. Learn about self-advocacy, patient-centered care & palliative care. 🎧 Listen now: bit.ly/PAGroups #PatientAdvocacy

Please do check out Roxane Chen’s (my iBSc student - a medical student) poster on pan-immune inflammation scoring and outcomes in ALK positive lung cancer. She worked so hard, and has been rewarded with the first abstract in the book, so no excuses not to engage, people! ❤️ No 1!! 🏅 #BTOG25

Treatment landscape for stage 2-3 #lungcancer- w advances in immuno, surgery & radiotherapy- is more complex as presented by Drs @Houdabahig @houdabahig.bsky.social @solangepeters.bsky.social & Yannis Parentes @btog.bsky.social. More complicated for patients. Should patients attend MDTs? #BTOG25

Speed to diagnosis is key for ppl w #lungcancer- many of us are diagnosed at stage 4 when unwell. Great talk from Sandi Deans @nhsenglandldn.bsky.social Genomics at #BTOG25, illustrating the ideal pathway to reach the 14-day turnaround target in UK. Good to see ctDNA here #LCSM @btog.bsky.social

See you at #BTOG25 ✈️📢 Our co-founders @janclark1.bsky.social & @yvonnediaz.bsky.social are looking fwd to hearing the new research & advancements in the UK & connecting w the incredible medical, research, pharma, & patient advocacy community driving progress in lung cancer @btog.bsky.social 👋 #LCSM

As my friend and fellow @alkpositive.bsky.social Board Member Summer Farmen says at @iaslc.bsky.social #TTLC25: We are your reminders of why quality of life matters and why we can’t be complacent even in the face of great clinical trial data. 🤍👏👏 #LCSM @sunonmyhip.bsky.social

We need to be sure #cancer patients understand the risks of and are monitored for cardiotoxicity. Six years after chemoradiation + IO for her lung cancer, Heidi suffered a heart attack thought to be related. It’s important to monitor patients for potential effects of our treatments. #lcsm

Did you know that some cancer treatments cause cardiotoxicity? These include some chemo, radiotherapy, immuno & targeted therapies (including some ALK, EGFR & HER2 inhibitors). The 🔑 is learning more & integrating cardio oncology into your care team👇 www.oncogeneresearch.org/cardiotoxicity #lcsm