So many people will see themselves in Stefanie’s words. The fear, the love, the strength & the reality that living w #lungcancer is never straightforward. What makes the difference is community. No one should ever face this alone. #StoriesOfLungCancer #LCAM25

They were storytellers, visionaries, icons. From Walt Disney to Paul Newman, Betty Grable to Peter Fonda. Each left a lasting mark on the world. Each lost their life to #lungcancer. Lung cancer doesn’t discriminate. Let's push for better outcomes. #LCAM25 #StoriesOfLungCancer

In the #lungcancer community, we lift each other up. Every story, every connection, every moment matters. 💙 It's why we get involved - creating awareness, building community or cheering others on. What community events or moments inspire you most? #StoriesOfLungCancer #LCAM25

A decade of progress in #lungcancer treatment shows what’s possible when research, innovation & patient care come together. Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility. #StoriesOfLungCancer #LCAM25

Some battles aren’t visible. Jennifer lives w stage 4 #lungcancer—her body fights every day, from fatigue to painful side effects. Yet she keeps going, finding strength in love, small joys, and determination. No one should face this alone. 💙 #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social

Advances in #lungcancer surgery are promising, but innovation must reach real patients. As Prof Eric Lim says, we need progress in practice, not just trials. Let’s push for thoughtful access, better outcomes & options for those who could benefit. #LCAM25 #StoriesOfLungCancer

Side effects of #lungcancer treatments aren’t always visible, but they’re real & can turn simple tasks into daily battles. These are just a few from our community. 👇 By talking about the unseen, we build understanding & better care. #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social

Without clinical trials there will be be no new cancer treatments. Clinical trials are also not necessarily for when you run out of treatment lines. It’s worth asking questions if a clinical trial may be your best option now. Thank you, Laura for demystifying what goes on. Wishing you the best.

For Summer, more time means more chances to cheer for her family—under the Friday night lights and beyond. Your support of ALK Positive helps make moments like these possible. Donate today and fund tomorrow's breakthroughs: secure.qgiv.com/event/lcam25... #MoreResearchMoreTime

Fatigue in #lungcancer isn’t just “being tired.” It can feel like your body has turned to stone. It’s invisible to others & overwhelming to live through. By talking about it, we push for better support, care & understanding. @younglungcancer.bsky.social #StoriesOfLungCancer #LCAM25

Research isn’t separate from care - it is care. As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope. Support research. Share stories. Drive change. #StoriesOfLungCancer #LCAM25 @btog.bsky.social

From every corner of the world, #lungcancer knows no borders. This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer. These not only connect us across borders, but help us push for better research, care & more time for what matters.

From every corner of the world, #lungcancer knows no borders. This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer. These not only connect us across borders, but help us push for better research, care & more time for what matters.

No symptoms. No warning. Just one seizure. Duncan was 49 and healthy when he learned he had stage 4 lung cancer. 🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters. @edmonstone.net youtu.be/FZsbfkloPyM?... #lcsm

In the hours after my lobectomy for stage 4 #lungcancer in Apr 2023, I'd never heard of the #NorthStar clinical trial. So, I'm feeling, 'hey, that's just like me,' as I try to decipher the findings just released at #ESMO25. Here's what they found....

This morning’s DeLLphi presentation @myesmo.bsky.social brings so much hope to our #lungcancer community. Love seeing fresh hope for those with small cell lung cancer. #ESMO25

Real people. Real diagnoses. Real impact. Our Patient Voices Podcast shares powerful first-hand stories from people living with oncogene-driven lung cancer — from misdiagnosis and treatment to fear, resilience & hope. 🎧 Subscribe and listen to voices you won’t forget. 🔗 youtube.com/playlist?lis...

Oncogene Cancer Research Launched the Patient Voices Podcast: Stories and Hope in Lung Cancer @oncogenecancer.bsky.social oncodaily.com/insight/onco... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch #LungCancer

Proud to be part of this important conversation on cancer-related cachexia on today - the first ever Cancer Cachexia Awareness Day. Be sure to tune in today at 13.30 ET/1830 UK. Not too late to register: reg.eventmobi.com/ilcsc2025 @lungevity.bsky.social @cancercachexia.bsky.social 👇

Today is the first #CancerCachexiaAwarenessDay Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will. Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM

Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN. Sign up 👇 reg.eventmobi.com/ilcsc2025/regi…#LCSMSM

After three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...

Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙 #LCSM

Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer. Check it out👇📷 static1.squarespace.com/static/65ca0... #LCSM

FDA Begins Real-Time Reporting of Adverse Event Data @fda.gov oncodaily.com/voices/adver... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #FDA #AdverseEvents #AEs #FAERS

We’ve launched the Patient Voices Podcast: Stories & Hope in Lung Cancer! Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies. 🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc #LCSM

Oncogene Cancer Research - Erin and Chloe Raise £800 for Lung Cancer Research @oncogenecancer.bsky.social oncodaily.com/positive/eri... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer

Being diagnosed w #cancer shouldn’t mean losing your rights at work. This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis. 🎥 Watch here: youtube.com/playlist?lis... #LCSM

🏅 Huge thanks to Erin & Chloe for smashing the Bath Two Tunnels 10K in support of Oncogene Cancer Research! 🩵Their dedication, love, and heart behind this run are truly inspiring—and together you’ve raised over £800 for vital lung cancer research! Help us thank them 👏 @janclark1.bsky.social

Surgery isn’t usually offered for stage 4 #lungcancer. Steve, diagnosed w stage 4 ALK+ in 2020, believed it could help prevent resistance. After targeted therapy shrank his tumour, he fought for surgery & got it. Read his story + our patient info: oncogeneresearch.org/surgery #LCSM

This #WorldLungCancerDay, we’re reminding everyone: #lungcancer can hide behind ordinary symptoms. A lingering cough, fatigue, bone pain — know what to watch for. Early detection saves lives. We need more research for everyone with lung cancer. 🩵 #LCSM

Oncogene Cancer Research - Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis @oncogenecancer.bsky.social @yvonnediaz.bsky.social @prof-ali-g.bsky.social oncodaily.com/blog/talk-of... #OncoDaily #Oncology #Cancer #Health #Medicine #MedOnc #MedNews #TalkofHope #LungCancer

We’re proud to donate £10,425 to @icr.ac.uk to advance oncogene-driven lung cancer research, supporting the vital work of Dr Paul Huang. This is just the start — stay tuned for more big research plans. 💙🔬 oncogeneresearch.org/icr-donation #LCSM

Oncogene Cancer Research - What Does it Take to Truly Move the Dial for People Facing Lung Cancer @oncogenecancer.bsky.social @yvonnediaz.bsky.social oncodaily.com/blog/people-... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer

Why are so many young women getting #lungcancer? Our co-founder @janclark1.bsky.social’s daughter Amy was just 20. Jules was 37 and Mel just 52. Worth reading 👇 dailymail.co.uk/health/article…

Post-ASCO 2025#LungCancer 🫁 Highlights by @VJOncology 👉 us06web.zoom.us/webinar/regi... 🗓 June 25, 2025 🕒 15:30–17:30 CEST | 08:30–10:30 CDT | 14:30–16:30 BST 📍 Virtual Webinar Join us for an expert-led session unpacking the most important lung cancer data presented at ASCO 2025

How can rib pain lead to a #lungcancer diagnosis? For Michael, it was the sign of large cell lung cancer, a rare, aggressive type. After he passed, his wife Christine learned of his STK11 mutation. She now advocates for answers, testing & research. Read at 🔗 www.oncogeneresearch.org/michaels-story

🧠 What if trivia could fuel cancer research? Nikki Hirsch, an ALK+ patient, rallied her friends for a sold-out trivia night—raising $6K+ for research & awareness. 💙 Her secret? Turning connection into action. 📖 Read more: alkpositive.org/blog/trivia-... #PoweredByPatients #ALKPositive

📢 Help us understand the emotional toll of #lungcancer. With @lungcancereurope.bsky.social & 46 orgs, we’re surveying patients & caregivers across Europe to explore the mental health impact of a diagnosis. 🧠 Your voice can shape better support. 🔗 surveymonkey.com/r/LuCESurvey20…#LCSMSM

Young people get #cancer. Amy was just 20 when she was diagnosed w stage 4 #lungcancer. Her story & others show why we must act now. Amy’s what’s inspired @janclark1.bsky.social to co-found our charity. Thanks @thesun.co.uk for covering: thesun.co.uk/health/3502801… 🩵

CALLING RESEARCHERS! The ALK Positive Australia & TOGA Inspirational Research Grant for ALK+ NSCLC is back. We are seeking innovative research that makes a real difference for people living with ALK-positive lung cancer. Now is the time to prepare a proposal. Further information coming soon.

Happy Women’s Health Month everyone! This month especially we want to take the opportunity to keep spotlighting women in our community! This week we have a very special message from lunglifebalance!

Encouraging to see potential new treatment options like this combo showing strong responses & prolonged progression-free survival. Improved brain control is especially important to us. We look forward to more research that offers hope and better quality of life for ALK+ patients worldwide. #LCSM

Seeing and treating the person before you is key in our cancer care. Silence doesn't necessarily mean agreement or no questions. Important to contextualise the person and meet them where they are. It's also a learning curve to get the courage to share thoughts. Great article - thank you

Understanding cultural norms in cancer care is key. Aurora Lucas, an advocate living w EGFR #lungcancer, shares how she went from staying silent—out of fear of being disrespectful — to speaking up in this editorial with Dr @lungoncdoc.bsky.social. 👇 openworks.mdanderson.org/aceqi/vol1/i... #LCSM

Breaking news: @abbvie.bsky.social Teliso-V, an ADC targeting c-MET overexpression, has received accelerated approval by @fda.gov. "People w c-Met overexpressing #NSCLC have poor prognosis & limited options, and EMRELIS can address a critical unmet need." news.abbvie.com/2025-05-14-U-S…#LCSMSM

Sadly cancer knows no bounds & is common around the world. That’s why Christina, Ruth & Aude, from US, Mexico & France, will take on the @londonmarathon.bsky.social next Sunday. All funds raised will support @icr.ac.uk’s life-saving research. Let’s cheer them on 👇 #lcsm #LondonMarathon2025

Our EQUAL study is open for enrollment! More in this video! @florezlab.bsky.social @latinasinmed.bsky.social

Learned loads @lungcancereurope.bsky.social AGM, like: My behaviour style is different in advocacy from my employed work. Cannot crochet. “Chemo brain” is real & applies to cancer generally. Much more. Grateful for the unexpected LuCE Patient Advocate Award. Thank you LuCE family for all.

Exciting to see the opening of the EQUAL study to see if we can diagnose EGFR & hopefully later other oncogene lung cancers earlier. We often don’t meet screening criteria & know that early detection saves lives. Find out more 👇 #lcsm