We’re now on Substack. We exist because too many people affected by #lungcancer are still given too little — too little time, clarity & support. We’re working to accelerate research, empower patients & help research reach patients faster. 👇 oncogenecancerresearch.substack.com/p/welcome-to...

Living w ALK+, ROS1+ or other lung cancers can mean learning as you go. Questions like these ones here. To help w answers, Nuvalent worked w @alkpositive.bsky.social @lungevity.bsky.social @go2forlungcancer.bsky.social @iaslc.bsky.social, LCRF & Ros1ders More at 👉elevatelungcancercare.com

Proud to support this webinar on May 14 from LCRF & Susan Wojcicki Foundation on heritable genetics, genomics & lung cancer research w Dr @pateloncology.bsky.social, Dr Isabel Preeshagul, ROS1ders' @jfreemandaily.bsky.social @alkpositive.bsky.social's Marc Muskavitch 👉https://lnkd.in/gFcBUffA

Sarah was training for marathon #7 when a cough changed everything. It was stage 4, EGFR ex 21 #lungcancer But it hasn't changed her determination On 3 May, Sarah & 10 friends take on a 54 km challenge - this one is for more time Read more 👉https://oncogeneresearch.org/sarahs-ultramarathon #LCSM

As a #lungcancer community, we see the impact of myths every day - delaying diagnosis, shaping who gets screened, influencing research funding. This @cnn.com piece challenges 7 of the most persistent misconceptions & highlights where science is moving. edition.cnn.com/2026/04/29/h... #LCSM

There is something powerful about the @londonmarathon.bsky.social The theme music makes us nostalgic, the costumes make us smile and the stories make us emotional. Especially gratetul to Mandy supporting our continued work at @icr.ac.uk Read more👇 oncogeneresearch.org/icr-festival-t…#LCSMSM

Oncogene Cancer Research - A New Possibility for People Living with ALK+ Lung Cancer @oncogenecancer.bsky.social oncodaily.com/voices/oncog... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #CancerResearch #LungCancer

Stage 4 oncogene-driven #lungcancer isn’t one-size-fits-all. Targeted therapies can control disease for years, but progression is inevitable. Guidance (STS and ESMO) supports LCT in selected cases. Why not discuss it more? A patient perspective 👇 bmjoncology.bmj.com/content/bmjo... @bmj.com

📣 England fans: Win 2 tickets to England vs Uruguay at Wembley on 27 March. £5 to enter and every penny supports life-saving #lungcancer research. Thank you to everyone who has already entered. 🩵 Enter 👇 raffall.com/415661/enter-r…#lcsms#rafflel#researchch

We were pleased to join fellow advocates, clinicians and researchers at #BTOG26. Multidisciplinary conversations like these matter — bringing the thoracic community together to keep pushing progress in #lungcancer. #LCSM #StrongerTogether

Progress in #lungcancer doesn’t only happen in clinics or labs. Why not use your skills to accelerate patient-focused outcomes? We’re seeking volunteers w expertise in finance, legal, marketing, data, digital, project management & research. Interested? www.oncogeneresearch.org/volunteer

#LungCancer can turn life upside down – fear, questions, a future that looks different. This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families. Who helps you turn your world downside up. #LCSM

Staying Connected with Oncogene Cancer Research - Yvonne Diaz @yvonnediaz.bsky.social @oncogenecancer.bsky.social oncodaily.com/voices/yvonn... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews

We believe progress happens when patient voices, medical, research & industry come together. Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care. Join our community here: 👇 oncogenecancerresearch.eo.page/rymgx #LCSM

We’re proud to share our first Annual Report. In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research. Thank you for walking alongside us. This is just the beginning. 👉 oncogeneresearch.org/annual-report #LCSM

Some good news! 5 yr survival rates for some hard to treat cancers have increased. Liver cancer, with a 7% relative survival rate in the 1990s rose to 22% Lung cancer- 15% to 28% Myeloma- 32% to 62% This is in part due to early detection & better treatment. 🧪 www.cancer.org/research/acs...

New hope for small-cell lung cancer. UK Markey Cancer Center treated the first U.S. patient with a next-gen trispecific T-cell engager that may work even when standard therapies stop. A big step forward for patients. nkytribune.com/2026/01/univ... #lungcancer #immunotherapy #oncology #TCSC

For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope. Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting

LCRF's Sr. Dir. Research & Administration, Dr. Dhru Deb, explains how early funding for NTRK gene fusion research led to the first targeted therapy for this driver. Our commitment to #LungCancer research continues to make an impact. Read more: LCRF.org/connecting3

Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working. youtu.be/yIWw0U2yg5c?...

A must-read for the ALK+ community. Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs. Written for patients & clinicians alike. oncogeneresearch.org/patient-publis…

The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.

Months for some. Years for others. More than one doctor. More than one misdiagnosis. Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”. Help us change the narrative. Help us create more awareness. #LCSM

2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress. Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us. Happy new year! #HNY2026

Not all advanced #lungcancer is the same. And neither are patients. This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer. Have a read 👇 www.lungcancerstoday.com/post/the-ias...

Oncogene Cancer Research - The Part of Caregiving People Don’t Talk About @oncogenecancer.bsky.social oncodaily.com/voices/careg... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch

Cancer does not pause for the holidays. For those living with cancer, scans and worries do not stop. We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes. Wishing you rest, love, and peace. #LCSM

Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM

The 2nd part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social In this part, I discuss my advocacy work, especially my work with Greater Manchester Cancer Alliance. We also talk about who inspired me to become a patient advocate, Cameron Millar youtu.be/8wRLznxVN0U 1/2

Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment. Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others. 🎙️youtube.com/playlist?list=… #LCSM

#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment. It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation. #StoriesOfLungCancer #LCAM25

New Evidence Highlights the Power of the Patient Voice in Oncology - Yan Leyfman @yleyfman.bsky.social oncodaily.com/voices/yan-l... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews

Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality. As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits. #StoriesOfLungCancer #LCAM25

Lung cancer causes more deaths than colon, breast & prostate cancers combined. Early detection saves lives. If you're 50–80 with a smoking history, ask your doctor about a low-dose CT lung screening. bit.ly/487gjDn

#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out. This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed. Help share to empower & inform more people👇 www.oncogeneresearch.org/biomarker-te...

Sorry for both of your losses, words cannot replace what was lost😔 This troubling news came out. www.nbcnews.com/nightly-news...

It’s a simple wish: to see your child grow up. But for people with ALK+ lung cancer, like Amanda, Jenna, Carla, and Hope, there are no guarantees. You can help give them more precious years with their kids by supporting research. What would you give for more time?

As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...

Not all #lungcancer is the same - and neither should be our treatments. Today, we can personalize care to each person's unique biology. As Dr Lauren Byers @mdanderson.bsky.social highlights, innovation is making precision care a reality. Let’s keep pushing for more. #StoriesOfLungCancer #LCAM25

Behind a young adult facing #lungcancer, there’s often someone holding them up. For @Janclarkgirls, whose daughter Amy was diagnosed at 20, success means seeing Amy work, travel, hike & more. To every care partner who carries someone this, we see you. #StoriesOfLungCancer #LCAM25

What brings Dr Melinda Hsu hope? Seeing researchers, clinicians & advocates advance survivorship science, creating innovative ways to improve long-term quality of life for people living with #lungcancer. Every step forward brings hope. #StoriesOfLungCancer #LCAM25

A @uwhealth.bsky.social story shares the importance of early detection for lung cancer. Last year, Dr. Andrea Axtell performed a life-saving procedure on a patient whose lung cancer was detected early. #ExceptionalPeople #ExtraordinaryResults go.wisc.edu/wqo9g3

Every advance in #lungcancer research is more than data - it’s hope for patients and families. Mark Reale of Takeda reminds us that breakthroughs are measured in the lives they touch. #StoriesOfLungCancer #LCAM25

Hope is the heart of research for people with #lungcancer. It's why Dr Jessica Lin @massgeneralbrigham.bsky.social says, progress happens when we all come together to push the boundaries of what’s possible. Let's keep working together to keep hope & progress alive. #StoriesOfLungCancer #LCAM25

No two lung cancers are the same. We may each have lung cancer and be facing the same storm, but we each experience different waves, have different tools, unique experiences. There are many paths. Together we bring more light and hope.

One Diagnosis: Five Different Paths - Jill Feldman @jillfeldman4.bsky.social @oncogenecancer.bsky.social oncodaily.com/voices/one-d... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews

Progress in #lungcancer doesn’t happen in isolation. It takes industry, researchers, clinicians & patient advocates pushing forward together. Annarita Egidi’s words remind us what can be achieved when we come together. #StoriesOfLungCancer #LCAM25

First trial of a vaccine against lung cancer will be starting soon. #ShareGoodNewsToo www.cancer.ox.ac.uk/news/world20...

Katherine, from Houston, TX has been living a full life with ALK+ lung cancer for six years. As a participant in the Brightstar trial, research gave her more time to celebrate birthdays with loved ones—and more birthdays of her own. More Research= More Time. Donate: secure.qgiv.com/event/lcam25...