I screen for #LungCancer annually. So does my kid sister. Our mother died as a result of LC treatment. Most LC is caught at an advanced stage. Catch it in time. #StayAlive #lcsm

I'll be speaking in a webinar about ROS1+ lung cancer on November 17. Registration is FREE and available here: floridasocietyofclinicaloncologyjune152017.growthzoneapp.com/ap/Events/Re... Hope you can join us!

Join me at #ILCSC25 September 26-27 for breakout session w/Upal Basu Roy and rockstar @drcamidge.bsky.social. The International Lung Cancer Survivorship Conference is a free virtual conference for people w/ #lungcancer, #caregivers and #advocates. Learn more and register here: lungevity.org/ilcsc

A moment in my cancer history Thirteen years ago today, I experienced a revival of hope. In mid September 2012, I had learned my cancer had grown despite two different lines of chemotherapy plus radiation. But on this date, the University of Colorado notified me that my tumor tissue tested…

Chances are strong that at least one person you know and love (or even you) will have cancer at some point. Why should you care?  Because people are dying for better cancer treatments.

News I did not want to hear Dr. D Ross Camidge is many things. Today he's the source of news that broke my heart.

Do you assume a person had to have known they had metastatic cancer before they were diagnosed? Here are four reasons why they often don't know.

Remembering Mount St. Helens 45 years ago today, Mount St. Helens erupted. From my home in Tacoma over 70 miles away, I could hear and feel the blast and see the plume of ash, rock, and hot gases rising into the atmosphere. Such major blasts of chaotic energy and hot gases produce extensive…

If you're concerned about this serious security breach, which is a federal crime, TAKE ACTION! Call: Congressman Mike Rogers (head, House Armed Services Committee) (202) 225-3261 Senator Roger F. Wicker (head, Senate Armed Services Committee) (202) 224-6253 www.wsj.com/politics/nat...

What a great news! Finally we have a journal dedicated to liquid biopsy research! I am truly excited. 🔥

Erasing unique accomplishments as DEI If anyone is still inclined to think the government's efforts to delete "DEI" hires are aimed at people hired for reasons other than their skills, consider the case of the Navajo Code Talkers. Pages about them have been removed from DOD websites and replaced…

Updated @ascocancer.bsky.social living guidelines for NSCLC are out! Participating on the Expert Panel not only gives me hope to see so many new treatments, it also reminds me how challenging it must be for clinicians to keep up. ascopubs.org/doi/10.1200/... ascopubs.org/doi/10.1200/...

I was working as an engineer at Boeing when the company offered early retirement benefits in 1995 to workers 55 and older. It was offered in part to avoid layoffs. www.nytimes.com/1995/03/25/b... 1/4

Rewriting journal articles to eliminate the forbidden words research, woman, female, systemic, bias, diversity: Our [research] analysis considered a group of people treated with a [systemic] cancer drug which travels throughout the body. 1/3

A thoughtful perspective on the importance of government-supported research infrastructure. It's not perfect, and could use reform. But you can't reform something that's disappeared due to lack of funding for labs, support staff, equipment and office space. www.nytimes.com/2025/02/14/o...

🚨 Applications Open! The 2025 #IASLC STARS PRA & Scholar Program empowers lung cancer advocates to drive patient-centered research & scientific progress. 📅 Apply by March 14, 2025 🔗 Learn more & apply: www.iaslc-stars.org Make a difference! #LungCancerAdvocacy #IASLCSTARS

Amp up your lung cancer patient advocacy! Apply for the STARS Program Take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS (Supportive Training for Advocates on Research and Science) can help you develop and…

@jfreemandaily.bsky.social our first #ayacsm #OncSky #MedSky #SkyChat is tomorrow! Please follow back and spread the word! #Rebuilding

DEI is not the same as diversity in clinical trials. Diversity in clinical trials aims to test new drugs in a wide variety of people, because response to some medicines can vary by gender, age, ethnicity, and genetics. www.statnews.com/2025/01/23/f...

Science alert: new administration is imposing wide range of restrictions on NIH, "including the abrupt cancellation of meetings such as grant review panels. Officials have also ordered a communications pause, a freeze on hiring, and an indefinite ban on travel." www.science.org/content/arti...

Biomarker testing can help identify actionable mutations in patients with SqNSCLC, especially in those without a history of smoking. Testing is not performed consistently in this setting. #LCSM #lungcancer www.sciencedirect.com/science/arti...

I feel seen.

Thanks for the laugh, @joehaldeman.bsky.social . "Kyloren syndrome" for the win!

. @jfreemandaily.bsky.social The example in this article of how AI in healthcare could help empower cancer patients made me think of you. www.liebertpub.com/doi/full/10.... "...predicts that institutional health care will focus on adopting AI for incremental operational improvements..."

Geeking out with fellow NTRAP research advocate @whyiresist-1.bsky.social at IMAT meeting--learning about and providing patient perspectives on technologies for molecular analysis (proteomics, microfluidics, microdissection, digital pathology, etc). Fascinating! www.cancer.gov/about-nci/or...

My suggestion after Duncan’s good advice is once you tell your story, and you’re over the shock of diagnosis, don’t leave it there. Call out stigma (no one deserves this disease) & lack of research funding. Champion lung cancer screening for whom it’s appropriate. Try for media coverage, too. #lcsm

⭐️Leptomeningeal metastatic disease: new frontiers and future directions @natureportfolio.bsky.social Nature Reviews Clinical Oncology www.nature.com/articles/s41...

Please be patient. I left 10.5k followers behind on Xitter. Sure, some were bots, but still. It’ll take some time to pick up appropriate follows/followers on this app. Quality, not quantity. Please help me build another lung cancer patient/caregiver community here. Our hashtag is #lcsm.

Why should anything less than a grade 3 toxicity be considered acceptable and why, when grade 1 and 2 toxicities can be so different, are they grouped?

The need to remedy this approach has been percolating in several tumor types and I urge colelagues to replicate this simple analysis in their disease type and track it over time and publish it.

ISJETs: Learn the terminology and lead in your own disease type. Im very excited to say our first paper on INvestigator-assigned subjective or judgementl efficacy and toxicity reporting is now in press at JTO.

ISJET reporting is arbitrary. For example, there is no universal definition of what constitutes a “tolerable”, “acceptable”, or “favorable” toxicity. Demonstrating this, we found these terms used in studies with grade 3+ AE rates ranging from 0 to 93%.

Only 12% of trials separately reported grade 1 from 2 AEs. The difference between grade 1 and 2 AEs can be highly significant to patients. Often, grade 1 AEs refer to asymptomatic or mild clinical manifestations, whereas grade 2 AEs carry a functional consequence.

Regarding efficacy reporting, ISJET terms were used in 41% of studies. Trials evaluating treatments with a higher ORR were more likely to use ISJETs, although there was broad range of ORR rates (5-100%) for which ISJETs phrases were used.

'No new safety signals' when trials are published with longer follow up is a particular sleight of hand. While this sounds like toxicities are not evolving, it is really saying no new 'categories' have appeared. Increase in frequency or severity of the same toxicities over time woud not count.

pubmed.ncbi.nlm.nih.gov/39643116/ official isjet reference

All told this new paper is the perfect companion to our 2020 call out on variation in toxicity reporting practices at conferences and the need for standardized minimal disclosure approaches pubmed.ncbi.nlm.nih.gov/32353598/

Why #lungcancer (the #1 cancer killer) needs more funding and research: Only 2 of the 7 LC patient advocates in this 2018 photo are still alive (including me). While newer treatments like targeted therapy and immune checkpoint inhibitors are effective for some, they don't work for all. #LCSM

Apparently there's a new ROS1/NTRK TKI in development. #LCSM #lungcancer #ROS1 www.businesswire.com/news/home/20...

Susan Wojcicki, former CEO of Youtube and one of the principals of Troper Wojcicki Philanthropies, wrote a blog post prior to her passing about her experience with #lungcancer. If you have lungs, you can get lung cancer. #LCSM #LCAM #LungCancerAwarenessMonth blog.youtube/inside-youtu...

Facebook will be changing their terms as of January 1, 2025. I followed the link to the new terms, read through it, and discovered it was last updated in 2022. Where are the NEW terms? In a locked filing cabinet in a disused lavatory with a sign on the door saying "Beware of the leopard"?

www.nytimes.com/2024/11/23/h... Doctor’s Office Medical care can be wearying and time-consuming, especially for seniors. Researchers are beginning to quantify the burdens.

"The Value of Offering #Oncofertility Counseling in Young Patients With Newly Diagnosed Cancer Is Unquestionable" 🫳🎤The name says it all. 🙏 Authors and #JCOOP journal #ASCO #AYACsm #AYAc #oncSky #canSky ascopubs.org/doi/10.1200/...

Let's create a starter pack for #lungcancer patient advocates. Once you complete your profile, please add your bsky handle in a comment. @dhendrickson.bsky.social @findlungcancer.bsky.social #LCSM go.bsky.app/LtNfehd

@statnews.bsky.social picked up my blog post! www.statnews.com/2024/11/22/t...

Welcome to all those who recently joined bluesky! Please remember to complete your profile--it's nice to see who's following me before I choose to follow back. (Just a bit nervous after recently swimming in troll-infested waters) #oncsky

Might we implement hashtag cancer communities on Bluesky? They genuinely help stakeholders (esp patients) find info related to a specific cancer. This paper explains how #bcsm #btsm #lcsm and other cancer community hashtags evolved on Twitter. ascopubs.org/doi/pdfdirec...

I am fortunate to call her my friend. #lcsm

Annual morbidity in the 20th century, before and after vaccines: Measles: Before: 530,000, After: 47 Mumps: Before: 160,000, After: 429 Rubella: Before: 50,000, After: 3 Diphtheria: Before: 20,000, After: 2 Smallpox: Before: 30,000, After: 0 Polio: Before: 16,000, After: 0