Thank you for having me! I'm so glad I got to do this.

BURNOUT! #AYACSM I learned the hard way. Burn out is very real, and very physical. My thyroid stopped working about 6 months after we got through the thick of it.

These are great tips! #AYACSM

@ebpadvocate.bsky.social thank you so much for guest moderating this evening and for the time and care you put into your questions! #AYACSM

Thank you to everyone who joined in on the conversation. Your time, posts and comments are appreciated and important! We are looking for guest moderators for 2025 – please let me know if you are interested! Please tune in Tuesday, October 7th @ 8PM ET for the next #AYACSM chat!

Last question of the evening: Q4 What are your best self-care tips for caregivers during treatment and after? #AYACSM

HIPAA, I think liability issues across organizations, hospitals want things done in different ways than what the outside organizations are doing. #AYACSM

#AYACSM 👇

Q3: How can providers and systems better support parents of AYA patients? #AYACSM Anyone can jump in on any question as well!

#AYACSM 👇

I’m not on the diagnostic side, so it’s hard for me to say. Specialty societies also try to adapt by responding to population based studies—adjusting their screening guidelines to younger ages, populations that may be at greater risk, etc

#AYACSM answer to Q2

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seconded! #AYACSM

Back again this month for #AYACSM! I’m a radonc resident in my final year of training at Duke. Unfortunately, I often see many young adults in our clinics—are people better at reporting symptoms, doctors better at work up, testing improving, or is incidence of cancer increasing? All of the above?

As not a provider or nurse...I try to ask what would help each person feel most supported. But I've also learned to not take on too much. Taking care of myself helps so they don't have an extra patient. Discussing things as calmly as possible or taking a break. #ayacsm

Q2: What are good ways parents can support healthcare providers involved in treating AYA cancer patients? #AYACSM

Q1: What are the best ways parents can support AYA patients and survivors? #AYACSM

I'm Nichole, mom to an almost 16 year old 2x cancer survivor. I'm now pursuing a degree in mathematics and public health in hopes of going into pediatric cancer epidemiology and policy. #AYACSM

Let’s start off with introductions – What is your name? Where are you based? Why are you here? Tell us a bit about yourself! Post #AYACSM if you’re only here to listen.

Thank you @ekdrake.bsky.social for having me! Tonight, we will be talking about Parents of AYA Patients and Survivors #AYACSM

I am thrilled to welcome a new guest moderator this month: @ebpadvocate.bsky.social! Please take it away, @ebpadvocate.bsky.social!! #AYACSM

We assume that all posts shared during #AYACSM express your own personal opinions and not those of your employer/organization (unless specified). #AYACSM

For those of you new to #AYACSM this month, we normally gather for a live chat at 8pm ET on the first Tuesday of the month. We delayed this month due to the start of the academic term. We discuss topics that are relevant and timely for those advocating for #AYACancer patients

An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole! All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) #SkyChat starting now!

This is the sixth chat ever for the #OncSky community on this platform!! Our #AYACSM chats are normally for advocates involved in the adolescent and young adult cancer societal movement – but anyone can join #AYACSM

#AYACSM was co-founded and has been maintained over the past ten years by @ekdrake.bsky.social and @ukfann00.bsky.social!

We’re so glad to have you with us this evening! Be sure to post along using: #AYACSM

Welcome to the 6th #AYACSM (Adolescent and Young Adult Cancer Societal Movement) #SkyChat! This year we are celebrating 11 YEARS OF #AYACSM CHATS!!

We are starting the chat at 8pm EST. I'll be cross posting questions on Threads and Bluesky using the #AYACSM tag. I know its hard to think of things other than...world news, but there will be hundreds of children and young people diagnosed with cancer in North America this month alone.

I get to moderate this conversation on Tuesday Sept 9th, 8 PM EST. This conversation is focused on how parents, adolescents and young adults with cancer, and providers can work together for the patient. I'm looking forward to connecting with everyone!

Well said.

Join us this Tuesday for the next #AYACSM chat featuring guest moderator @ebpadvocate.bsky.social !! We will be talking about parents of #AYACancer patients and survivors! Please help us spread the word. This is for ALL #OncSky advocates! #CancerResearch #ChildhoodCancer #BCSM #BTSM #LCSM

Join us this Tuesday for the next #AYACSM chat featuring guest moderator @ebpadvocate.bsky.social !! We will be talking about parents of #AYACancer patients and survivors! Please help us spread the word. This is for ALL #OncSky advocates! #CancerResearch #ChildhoodCancer #BCSM #BTSM #LCSM

In metastatic #breastcancer, sacituzumab govitecan given after trastuzumab deruxtecan was linked to ⬇️ PFS across all subtypes. Real-world data published in #JNCI show differences in outcomes by type. academic.oup.com/jnci/advance... @maryamlustberg.bsky.social

The mRNA vaccine platform has already been assessed across diverse clinical indications, many with remarkable progress: —cancer neoantigen vaccines [in patients with refractory disease (e.g. pancreatic)] —more than 15 infectious diseases —autoimmune diseases —rare disease for genome editing

Our chat returns next month! More details following! #ayacsm

Great resource with nice figures. They did a good job summarizing external beam radiation therapy and brachytherapy. Fitting on #brachytherapy awareness day! #cansky #radoncsky

go.bsky.app/Vfp4JWE If you would like to be added to the #AYACSM starter pack - please let me know!! #RadOnc #PediatricOncology #AYACancer #TYACancer #CanSky #OncSky #BTSM #BCSM #LCSM

🚨 New resource from @cervivor.bsky.social for people diagnosed with #CervicalCancer patientresource.com/public/prds/... #OncSky #CanSky #CancerSupport #AYACSM #Cancer

That's awesome! I've also been trying to get more trainees on Bluesky. Common feedback is "I have too many social media apps to check" "Twitter/X has a larger physician base." This is all true, but the heyday of Twitter/X is honestly over. All of #radonc is still sadly on X

Thanks so much to @ekdrake.bsky.social for hosting #AYACSM. It reminded me of MedTwitter! It's been a struggle to recruit to Bluesky but I absolutely love the base that's already here. High quality over quantity: that's what we're missing in social media today #cansky #oncsky #medsky #radonc 🧪

To be honest, when I was a younger trainee, I was very hesitant to post anything that might seem "controversial." Now, I speak my mind, in a professional way, and there's nothing controversial about advocating for patients and better public health #medsky #radonc #oncsky

What solidified my love of this platform is seeing posts from people like @sadlersnaps.bsky.social @ellisbrennan.bsky.social @hayleygullen.com , who are all super cool, brave, willing to share their stories. Their advocacy is so important, and if I can amplify anyone's stories, it's worth it.

I use mostly LinkedIn for posting, learning. Looked at X this week, after months not, surprised to find good content there. I look at Bluesky every week-ish, sometimes post. Had hope for bsky replacing X, but it's not the same. I use Instagram to learn from AYAs / younger people diagnosed. #AYACSM

Thank you @ekdrake.bsky.social for leading tonight's discussion!

That’s a great idea @nicholeforcolorado.bsky.social @ekdrake.bsky.social ! Sounds like that’s a great thing to research and/or see how to develop to increase engagement for #AYACSM and other user groups!

Thank you to everyone who joined in on the conversation. Your time, posts & comments are appreciated + important! We are looking for guest moderators for 2025 – please let me know if you are interested! Mark your calendars: Tues, Aug 5th @ 8PM ET for our next #AYACSM chat! #OncSky #MedOnc

We need someone who knows a good tool for BSky. I've seen some mentioned but can't remember. I know I'd like a tool that lets me tailor to each app or post the same thing across apps. I should look into this more. I think I just gave myself homework. #AYACSM