ALK Positive Australia Inc.
@alkpostitiveaust.bsky.social
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A charity dedicated to support & research for ALK Positive Cancer patients in Australia.
reposted by
ALK Positive Australia Inc.
TOGA
16 days ago
We're back with an episode on ALK TKI sequencing in the Australian landscape. Join Prof Ben Solomon, A/Prof Tim Clay and A/Prof Malinda Itchins as they discuss treatment for this subset of NSCLC and the advances through four generations of inhibitors. Listen on Apple:
buff.ly/L8TrfTn
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REPOST: Webinar: 'Thriving With and Beyond Cancer' Join us on April 9, World Psycho-Oncology Day, to discover how we can support the emotional and psychological needs of patients and their families. We will be looking at fear of cancer recurrence, the burden on cancer carers, etc.
www.pocog.org.au
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PoCoG
The Psycho-Oncology Co-operative Research Group (PoCoG) is an organisation of close to 2000 researchers, doctors, nurses, psychologists and other health professionals who share a common mission of imp...
https://www.pocog.org.au/?fbclid=IwY2xjawQyoehleHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeLJsnkNEPoWXSESZcHltRwK43TGWrMUOx0x4lDx_Amr0nSbzZWcFeUejEKms_aem_ugHOKOP6vBqKD3_0a742ow
about 1 month ago
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Beautiful words from our friend and ALK Positive Australia Dep Chair Lisa Briggs in OncoDaily today.
oncodaily.com/voices/lisa-...
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Lisa Briggs Calls Attention to the Loneliest Stage of a Terminal Diagnosis - OncoDaily
Lisa Briggs Calls Attention to the Loneliest Stage of a Terminal Diagnosis / cancer, Lisa Briggs, Lung cancer, OncoDaily, Oncology
https://oncodaily.com/voices/lisa-briggs-473962
about 1 month ago
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An article that is striking a chord for many in our community.
www.theguardian.com/society/2026...
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I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle
When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss
https://www.theguardian.com/society/2026/mar/22/i-have-stage-four-cancer-there-will-be-no-cure-but-death-isnt-necessarily-imminent-this-is-how-it-feels-to-live-in-the-long-middle?CMP=Share_iOSApp_Other&fbclid=IwY2xjawQurGZleHRuA2FlbQIxMQBicmlkETFiTk9MeWprTHc2eDZSTnhkc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHhkNKUBq5Kv56c9q1GSOH_0gzjukItWE7a0VDWKK1Caufa_st2aETzeMsqeM_aem__Ti9B6E6-R9IduyzzunGvQ
about 1 month ago
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The TRIANA TRI-611 human trials began last week! It is a new class of drug to treat ALK+ lung cancer, not a next gen TKI. Preclinical lab & animal studies have shown excellent results. One to watch. Go Research!
trianabio.com/press-releas...
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Triana Biomedicines - Press Release 3/19/26
https://trianabio.com/press-release-031926-1?fbclid=IwY2xjawQtYtVleHRuA2FlbQIxMQBicmlkETE2ZE03TVNBQW81Yndjbmt0c3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHsMZ1yxlIy0KUW61y-L1AjkmWVGTmrbMFZJ41ZM6ArebBRF6XjGbK91bTjww_aem_7ehqqQcHh8bfm9g-TQwdpA
about 1 month ago
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alkpositive.org.au/donate/
about 2 months ago
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reposted by
ALK Positive Australia Inc.
ALK Positive Inc.
about 2 months ago
Join ALKtALK this Sunday: New Data, New Directions: Neladalkib (NVL-655) & Precision Oncology in ALK+ Cancer Featuring Alexander Drilon, MD (MSK) 🧬 Latest clinical data 🔬 How trials move toward access 🧪 Biomarker-driven insights 💬 Live Q&A 📅 March 1, 2026 🕖 7 PM ET
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Can we find a way to manage drug resistance & progression in ALK+ lung cancer? Here is a link to Dr. Dane's presentation on his research into this very question. It is science-heavy, but do stick with it as the information within is truly exciting for our community.
youtu.be/Z5fg4akM1eo?...
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Identifying Dependencies of Drug Tolerant Cells in ALK Positive Lung Cancer.
YouTube video by ALK Positive Australia
https://youtu.be/Z5fg4akM1eo?si=DYvvL41SnUoaSbz8
3 months ago
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Why does resistance develop in ALK+ lung cancer, and how might it be prevented? Please join our webinar with Dr Vassiliadis, recipient of the 2026 ALK+ Inspirational Research Grant. This research goes directly to the question at the core of our community. REGISTER NOW:
forms.gle/HL6MHup8UB5S...
3 months ago
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A reminder that there is a (downloadable) Patient Information Guide on our website, which aims to provide patients & carers with clear, correct & current information about ALK positive lung cancer & its treatment in Australia.
alkpositive.org.au/patient/
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Patient - ALK Positive Australia
Find essential Patient Information for ALK Positive Lung Cancer, including resources and support groups for patients and caregivers.
https://alkpositive.org.au/patient/
3 months ago
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An incredible annoucement regarding the ALK Positive Inc Second Opinion Program & its availability to those outside the US:
alkpositive.org/living-with-...
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Second Opinion Program | ALK Positive
Eligible members can connect with ALK-positive lung cancer specialists for free through the ALK Positive Second Opinion Program.
https://alkpositive.org/living-with-alk/second-opinion-program/?fbclid=IwY2xjawPWXEdleHRuA2FlbQIxMABicmlkETFTYk0zbDNBUEUyRDdyYkZoc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHmOMXQw3sFwIw2JjE46N-pQa-VscpcQE1ox00Pj-z5k7okH4kf82hIKleMrA_aem_ABgVaPiDFN6r8a0FbiRMNQ
3 months ago
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Do you have Lung Cancer and are taking a Targeted Treatment? A research project is being conducted seeking to understand the experience. It takes about 20 minutes - please consider sharing your story:
mquni.au1.qualtrics.com/jfe/form/SV_...
Your journey is unique. Your insights are powerful.
5 months ago
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As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia.
docs.google.com/document/d/e...
5 months ago
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We have a Patient Information Guide that is downloadable on our website, that provides an excellent overview of ALK+ cancer & the treatments available to us in Australia.
alkpositive.org.au/patient/
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Patient - ALK Positive Australia
Find essential Patient Information for ALK Positive Lung Cancer, including resources and support groups for patients and caregivers.
https://alkpositive.org.au/patient/
5 months ago
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The '4' in Laces4Lungs represents both AJ's age - 4 months old - and the stage of his Mums ALK+ lung cancer, at diagnosis. What a powerful fundraising drive this has become. Order your laces today:
docs.google.com/document/d/e...
5 months ago
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reposted by
ALK Positive Australia Inc.
TOGA
5 months ago
This Lung Cancer Awareness Month, Bec & Chris Henry are pedalling 620km over 5 days, visiting every PET scan centre in WA. Their goal? To raise $10,000 for lung cancer research and treatment. Together, we can change the future of lung cancer care. Donate here >
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What a week it has been for the ALK+community in Australia. Not one but TWO grants awarded this week that focus on advancing research in ALK Positive lung cancer. Go Science!
thoraciconcology.org.au/inspirationa...
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TOGA Announces Recipients of the 2026 Inspirational Research Grants - TOGA - Thoracic Oncology Group Australasia
The Thoracic Oncology Group of Australasia (TOGA) is thrilled to announce the recipients of the 2026 Inspirational Research Grants.
https://thoraciconcology.org.au/inspirational-research-grant/toga-announces-recipients-of-the-2026-inspirational-research-grants/
5 months ago
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Identifying ALK+ resistance pathways is at the very core of what is important to us all. That makes the announcement of Dr Vassiliadis as the recipient of the ALK Positive Australia/TOGA Inspirational Grant for 2026 so thrilling. Every $ donated to ALK Positive Australia goes towards research.
5 months ago
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An excellent presentation for those of you interested in the science behind this disease & the way we move forward with treatment. A must watch, and delivered in a very approachable way. Thanks you Ms Chen
[email protected]
@florianmerkle.bsky.social
youtu.be/ZlYnuuvLWuE?...
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Ms Roxanne Chen - Understanding anaplastic lymphoma kinase (ALK).....
YouTube video by ALKPositive Experts
https://youtu.be/ZlYnuuvLWuE?si=FPJw1BGHNGBICHYY
6 months ago
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November is Lung Cancer Awareness Month, a time to elevate patient voices. Please consider sharing your story.
alkpositive.org.au/2025/11/05/l...
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Living Longer with ALK Positive Lung Cancer: Share Your Story - ALK Positive Australia
Australians with advanced ALK positive lung cancer can share their experiences in a confidential 30–60 min interview to improve care. Email
[email protected]
.
https://alkpositive.org.au/2025/11/05/living-longer-alk-positive-lung-cancer-study/
6 months ago
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reposted by
ALK Positive Australia Inc.
All You Need is Lungs
6 months ago
#Lungcancer
can affect anyone - even if it’s the last thing you’d expect. It doesn’t care about age, history or lifestyle. Symptoms aren’t always obvious they can be subtle & not always respiratory related. Don’t ignore signs that persist. Finding it early increases your options.
#LCSM
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Buy your @laces4lungs today! Bling up your shoes whilst supporting ALK Positive Australia & standing with us for Lung Cancer Awareness month. Buy your Laces4Lungs today! ORDER HERE:
docs.google.com/forms/d/e/1F...
6 months ago
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ALK Positive Australia have released their inaugural newsletter! It is jam-packed with ALK+ news & achievements. If you are interested in receiving a copy please sign up here:
alkpositive.org.au/membership-a...
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Membership Application - ALK Positive Australia
Learn how to submit your ALK Positive Australia Membership Application and stay informed about ALK positive cancer support.
https://alkpositive.org.au/membership-application/
6 months ago
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Lung cancer is the leading cause of cancer death in Australia but receives less than 6% of the research funding. 35% of women & 15% of men diagnosed with lung cancer have never smoked. Help us drive research this November:
alkpositive.org.au/donate/
6 months ago
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ALK+ community please follow Laces4Lungs and throw your support behind this wonderful initiative, with all proceeds going to ALK+ Australia. Well done AJ - you are a star!⭐️⭐️⭐️⭐️⭐️
www.facebook.com/profile.php?...
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Facebook
https://www.facebook.com/profile.php?id=61580111223274
6 months ago
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Our website got a glow-up! Launching in the next few days — same mission, fresh new look. Got feedback or ideas? Drop us a message here or email
[email protected]
7 months ago
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"WHAT IS IT REALLY LIKE TO LIVE WITH ALK ON TKI'S IN AUSTRALIA?" Share your story in this important study. This is open to any Australian ALKie at Stage IIIB or IV on a TKI for more than 12 months. It will be an online interview for 30-60 minutes. Email
[email protected]
to share your story.
8 months ago
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- 36 Australians are diagnosed with lung cancer every day. - Lung cancer is the leading cause of cancer death in Australia, but attracts less than 6% of cancer research funding. Today we acknowledge those raising awareness & working towards better outcomes for lung cancer patients.
9 months ago
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Our Chair Jon & Dep Chair Lisa with Prof Nick Pavlakis, Prof Ben Solomon & Prof Tom John at the
@togaanz.bsky.social
ASM - working together for better outcomes for ALK Positive patients.
9 months ago
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We could not be prouder of our Dep Chair & friend Lisa Briggs - the recently announced recipient of the 2025 Jeannie Ferris Award. Bravo Lisa - thank you for all that you do. You are a force!
9 months ago
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The TOGA/ALK Positive Australia Inspirational Grant applications are now open!
youtu.be/DzZBR6DPAN8?...
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The ALK Positive Australia & TOGA Inspirational Research Grant applications are now open!
YouTube video by ALK Positive Australia
https://youtu.be/DzZBR6DPAN8?feature=shared
10 months ago
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reposted by
ALK Positive Australia Inc.
TOGA
10 months ago
🤝 Eligibility: Projects must involve consumer representatives. Get ready to apply and make an impact! Let’s work together to drive real change. Find out more >
buff.ly/2Tv3YUR
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The ALK+ Australia & TOGA Inspirational Research Grant applications are now open! We are proudly seeking innovative research that makes a real difference for people living with ALK-positive lung cancer.
thoraciconcology.org.au/inspirationa...
10 months ago
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This recent presentation on the ALK+ vaccine & current research being undertaken in the US is truly a MUST WATCH. It brings true hope. Thank you to everyone involved, we are cheering you on from Down Under!
youtu.be/GxrUsGIAFUs?...
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Break Through Cancer on ALKtALK 6/1/25: updates on ALK vaccine & targeting minimal residual disease
YouTube video by ALK Positive Inc.
https://youtu.be/GxrUsGIAFUs?si=LgWfvPKnoNOaNSbf
10 months ago
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ALK+ Community - many businesses make notable donations to charities at this time of year, for tax benefits & to demonstrate corporate social responsibility. If you know a decision maker in a the corporate world please put forward our charity for their consideration. More Research = More Life.
10 months ago
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CALLING RESEARCHERS! The ALK Positive Australia & TOGA Inspirational Research Grant for ALK+ NSCLC is back. We are seeking innovative research that makes a real difference for people living with ALK-positive lung cancer. Now is the time to prepare a proposal. Further information coming soon.
11 months ago
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One of our favourite days of the year. Go Research!
add a skeleton here at some point
11 months ago
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reposted by
ALK Positive Australia Inc.
Yvonne Diaz
11 months ago
Promising signals from the ALEK-B ph 2 trial: combining alectinib w bevacizumab achieved 97.1% 12-mo PFS & median PFS of 39.6 months in ALK+
#NSCLC
. Intracranial control also notably strong. Could this combo help overcome resistance in more aggressive ALK variants?
#research
#lungcancer
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reposted by
ALK Positive Australia Inc.
TOGA
12 months ago
🎙️ Vaccines in Thoracic Oncology: The Next Frontier in Immunotherapy Join Prof Tom John, Prof Ken O'Byrne and special guest Prof Georgina Long AO as they delve into technological advances spurred by COVID-19 vaccine development, promising results from recent melanoma and lung cancer vaccine trials
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Our Chairperson Jon advocating for molecular testing for all lung cancer patients on the national news, and raising awareness for ALK Positive lung cancer.
youtu.be/eoAT1mDrKnM
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ALK Positive advocating for molecular testing for all lung cancer patients.
YouTube video by ALK Positive Australia
https://youtu.be/eoAT1mDrKnM
12 months ago
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reposted by
ALK Positive Australia Inc.
ALK Positive Inc.
12 months ago
We’re proud to have Dr. Ken Culver representing @ALK_Positive at
#AACR25
in Chicago this week! We’re also partnering with @AACR on a $130K, 2-year fellowship supporting ALK+ lung cancer research 🌍 — open globally! Apply by May 15:
www.aacr.org/grants/aacr-...
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reposted by
ALK Positive Australia Inc.
ALK Positive Inc.
about 1 year ago
What if a leukemia drug could help treat ALK+ lung cancer? A new trial at @UMRogelCancerCtr is exploring gilteritinib—FDA-approved for leukemia—as a way to overcome resistance in ALK+ NSCLC. 🔗 Read the story:
www.alkpositive.org/blog/2024/5/...
#DrugRepurposing
#ALKPositive
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Gilteritinib for the Treatment of ALK positive non-small cell lung cancer (NSCLC) | ALK Positive
This trial is for patients with Stage 4 ALK positive NSCLC that have progressed on an earlier generation ALK TKI AND lorlatinib, and on any number of other standard-of-care or trial treatments. The tr...
https://www.alkpositive.org/blog/2024/5/22/gilteritinib-for-the-treatment-of-alk-positive-non-small-cell-lung-cancer-nsclc
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A must watch for anyone interested in ALK+ Lung Cancer & the advances being made in personalising treatment plans & understanding the behaviour of this cancer. A/Prof Chin talks about her incredible research project (funded by the TOGA/ALK+ Australia Inspirational grant).
youtu.be/w9M-4M9fNT8
about 1 year ago
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