This is the “new” face of Lung Cancer. Why is it being diagnosed in so many young women? It’s unfortunate that there is 0 zero zilch federal research funding allocated in the “Big Beautiful Bill.” #lcsm www.tiktok.com/t/ZP8DQRpfr/

Gini, part of our All You Need Is Lungs team, shared her story in today’s Mail on Sunday. Her shoulder pain was put down to breastfeeding discomfort - but it turned out to be stage 4 EGFR+ #lungcancer. By speaking so openly, Gini is helping raise awareness that lung cancer can affect anyone. #LCSM

New research shows people with ALK+ #lungcancer who already have or later develop liver mets tend to do worse - esp if they appear during trtmt. Newer ALK trtmts are helping control brain spread - but not liver. We need drugs that work better in the liver too. #LCSM www.jtocrr.org/article/S266...

It’s World Radiography Day & we want to say thank you! For those with #lungcancer, radiographers play an important role in our lives. Helping catch cancer early, tracking progress, guiding trtmt decisions. You’re there offering kindness & care every step & make a diff journey a bit easier. #LCSM

Great to see our comms manager @sheenacampbell.bsky.social discussing our members' concerns about audiences seeking advice directly from AI rather than coming to them. The article also mentions the value of PIF TICK certification to show health information comes from a Trusted Information Creator:

To mark Self Care Week 2025, we are hosting an event highlighting how health information supports effective self care and self management. Join us on 20 November from noon until 1.30pm to explore the latest research and hear examples of good practice. Sign up at pifonline.org.uk/training-eve...

Scientists feel that the pressure to publish is rising, but that the time and resources they have to do the necessary research are falling, according to a survey of 3,200 researchers go.nature.com/4hNDvuN

arXiv is taking steps to tackle a surge in low quality, AI-generated content go.nature.com/4oRkjyq

How can AI accelerate the path toward truly personalised cancer care? At #ESMOAI25, the session “AI-based biomarkers for precision oncology” will explore AI’s role in predicting drug activity & developing precision biomarkers. 👉 esmo.org/meeting-cale...

Too many families are affected by #lungcancer when it’s the last thing they expected. People doing all the right things & still missed. Deepa, from the Ruth Strauss Foundation, shares why See Through the Symptoms is about pausing, rethinking, and acting sooner. 👉 seethroughthesymptoms.uk #LCSM

Becs Welsh, Charity Manager at ALK+ UK, was in Swansea today for the All Wales Lung Cancer Forum. A great chance to connect with #lungcancer nurses & healthcare teams across Wales, share resources, & raise awareness of ALK-positive lung cancer. #LCSM

Sylvie had back pain, shortness of breath & weight loss. She was told it was sciatica & sent home. A scan finally showed a mass in her lung - it was stage 4 ALK+ #lungcancer that had spread to her bones, liver, spine & lymph nodes. 💬 “I’d always assumed lung cancer & smoking went together.” #LCSM

Harriet was diagnosed with stage 4 ALK+ #lungcancer at 33 after fatigue & migraines. Now she finds balance through sound healing, meditation, & the support of those closest to her. As members of @lungcancereurope.bsky.social we’re sharing real stories from www.getchecked.eu #LCSM

Jaber was diagnosed with stage 4 #lungcancer at 37. His symptoms were breathlessness & a persistent cough. See Through the Symptoms is an award-winning lung cancer awareness campaign - helping healthcare professionals spot lung cancer early, even in people who don’t fit the usual profile. #LCSM

Our CEO Lynsey Conway & Treasurer Geoff Otterman represented ALK+ UK at the @cancer52org.bsky.social parliamentary reception at the House of Lords - bringing attention to rare & less common cancers & the need for stronger inclusion in the National Cancer Plan. #LCSM #LungCancer #RareCancers

Just out: ESMO Top 10 Abstracts Webcast & Podcast The rationale and design, efficacy, side effects & potential impact with: @tnewsomdavis.bsky.social Dr Shobhit Baijal & Dr Sharmistha Ghosh. Video webcast is members only, audio podcast open access. Details: www.btog.org/esmo25-top10-webcast/

The NHS 10 Year Health Plan will only succeed with strong management and leadership. Our new long read with @unibirmingham.bsky.social explores why management matters, and what needs to change to help leaders deliver better care. Read more: bit.ly/437AuPW

Becs Welsh & Lynsey Conway represented ALK+ UK at the UKLCC Conference yesterday, sharing our abstract on head MRI in ALK+ #lungcancer. It was great to be part of marking 20 years of the @uklungcancer.bsky.social and continuing the conversation on improving outcomes across the UK. #LCSM

Julia has been living with stage 4 ROS1+ #lungcancer for almost 10 yrs. It started with what she thought was a chest infection, then pneumonia put her in ICU for 8 days. She’d also had shoulder pain for months, which she put down to sleeping awkwardly. She didn’t know it could be a symptom. #LCSM

ALK+ UK and EGFR+ UK will be at #UKLCC2025 the today, taking part in a breakout session on mental health and wellbeing in #lungcancer. We’ll be talking about what people really need for better emotional support and how psychological care can be built into everyday treatment. #LCSM

#Lungcancer can affect anyone - even if it’s the last thing you’d expect. It doesn’t care about age, history or lifestyle. Symptoms aren’t always obvious they can be subtle & not always respiratory related. Don’t ignore signs that persist. Finding it early increases your options. #LCSM

Emma’s first sign of #lungcancer was numbness in her fingers. She was pregnant with her second son when the symptoms got worse & she was admitted to hospital. Tests eventually found stage 4 ALK-positive lung cancer that had spread to her brain. www.allyouneedislungs.org.uk/2025voices/e... #LCSM

It’s 1 November - the start of Lung Cancer Awareness Month and the launch of the third year of #AllYouNeedIsLungs! 💟 We’re sharing over 30 real voices this year - all ages & backgrounds who want others to recognise the signs sooner. Because lung cancer doesn’t have one face. #LCSM

Becca, who has stage 4 ALK+ #lungcancer, spoke on BBC Morning Live ahead of Lung Cancer Awareness Month 💙 Diagnosed nearly six years ago after back pain and vision problems, she’s helping challenge outdated ideas about who can get lung cancer. #LungCancerAwarenessMonth #ALKPositive #LCSM

New #podcast release: BTOG does … Chemo RT: What to do in unresectable disease Dr Emma O'Dowd talks to Dr Clive Peedell, Consultant Clinical Oncologist, James Cook University Hospital. Search BTOG in App Store/Spotify/Amazon Music or listen via BTOG website www.btog.org/btog-po...#podcast #LCSM

💭 What’s in a name? Martin Forster opens the event exploring how we label non-smoking lung cancer — and why it matters. 📅 Join us 13 Nov, London 🔗 www.btog.org/non-smo... #Oncology #LungCancer

How can AI unlock the full potential of oncology data? At #ESMOAI25, the session “AI to unlock the data vault” will explore foundation models, real-time data, EHR insights & open-source AI for clinical use. #DigitalOncology #HealthAI 👉 www.esmo.org/meeting-cale...

🆕 UK study (MEDLEY) could change how #lungcancer is diagnosed. Researchers at the Uni of Leeds, funded by NIHR are testing whether people with lung symptoms should get a CT scan instead of a chest X-ray. Chest X-rays can give false negatives - showing everything looks fine when it isn’t. #LCSM

Do you have #lungcancer & no smoking history? Uni of Southampton are running an interview study (funded by Ruth Strauss Foundation) to understand the experiences & needs of people diagnosed with LC who have smoked <100 cigarettes in their life. southampton.qualtrics.com/jfe/form/SV_... #LCSM

Shaun, 54, was diagnosed with stage 4 ALK+ #lungcancer in 2022. “There was a 3 month period in which I ping-ponged between my GP and the local hospital, as they tried to identify the cause of my deteriorating condition.” #LCSM Read Shaun’s story 🔗 www.allyouneedislungs.org.uk/2025voices/p...

Prof Sanjay Popat shares why he’s feeling so optimistic about the future of ALK+ #lungcancer treatment. With new targeted therapies, ADCs, & entirely new drug classes like PROTACs & molecular glues in development - alongside a growing understanding of ALK biology - the field is moving fast. #LCSM

People being treated for certain deadly cancers lived longer if they had received an mRNA-based vaccine against COVID-19 than if they hadn’t go.nature.com/4hkqZma

Responding to the Care Quality Commission's annual 'State of Care' assessment, @swoolnoughtkf.bsky.social draws attention to the lack of focus on moving care into the community. Full response here: https://bit.ly/4ocFDyG

Involving users in the development of health information is one of the best ways to ensure you create health literacy-friendly material. We have just released our updated co-production guide. Members can download a copy of the guide here: pifonline.org.uk/resources/co... #HealthLiteracyMonth

‘I’d had a persistent cough & shortness of breath - symptoms that just wouldn't go away. Finding out it was stage 4 #lungcancer was overwhelming, but I've always believed it's not over till it's over! That philosophy has carried me through the toughest moments & continues to.’ Kirsteen #LCSM

✅ CPD credits (applied for) ✅ Patient voice ✅ Groundbreaking science 🎟️ Join the BTOG Non-Smoking Lung Cancer Essential Update with @ruthstraussfdn.bsky.social 📅 13 Nov, London 🔗 www.btog.org/non-smo... #LungCancer #LCSM #NonSmokingLungCancer

A major new JAMA review by Dr Catherine Murphy, Prof Ben Solomon & Prof Charles Swanton brings together global data on #lungcancer in people with no smoking history. Around 1 in 5 cases are ALK or EGFR-driven - highlighting the need for testing at diagnosis. #LCSM

This is welcome progress! Access to the best treatment for people with ALK+ #lungcancer from the start matters. This decision reflects what we have long called for - equitable testing at diagnosis & access to the most effective therapies without delay.

New JAMA study shows #lungcancer in never-smokers is rising - esp among women - & often linked to EGFR & ALK mutations. Great visual by Dr Rishabh Jain 🙏 - featuring our campaigns All You Need Is Lungs & See Through the Symptoms. #LCSM allyouneedislungs.co.uk seethroughthesymptoms.uk

ALK+ #LungCancer UK CEO, Lynsey Conway, joined Pfizer’s Patient Takeover today - a great chance to connect with other patient groups, share experiences and learn from workshops on topics like managing patient data. 🙏 Thanks Pfizer for bringing us together. #LCSM

Our recent webinar explored best practice in multimedia health information. Guests including NHS England's @josephfreeman.bsky.social, @askawayhealth.bsky.social and @breastcancernow.bsky.social's Manveet Basra shared insights on the content they create. Watch here: pifonline.org.uk/resources/we...

AI tools can, within seconds, analyse information and write essays — some of the exact skills that universities teach. My @nature.com story examines what this means for universities & students: is this the future of learning of the end of critical thinking? www.nature.com/articles/d41...

Congratulations to @charlesswanton.bsky.social on being elected to the National Academy of Medicine @nam.edu. Charlie was elected for his work applying evolutionary biology to cancer genomics, demonstrating how cancer evolution occurs across cancer types. www.crick.ac.uk/news/2025-10...

Even in children, ALK fusions drive #lungcancer - often with TP53 mutations. Rare, but it fits the pattern: ALK+ lung cancer skews young & isn’t linked to smoking. Everyone diagnosed deserves comprehensive molecular testing - age, history or assumptions shouldn’t decide who’s tested. #LCSM

New data from UK screening programs show that individuals up to age 80 who are surgically fit may derive a survival benefit from #lungcancer screening. A new ILCN article looks at findings from Dr. Patrick Goodley. Read now: http://bit.ly/471aKqR

NHS England has just updated the Blueteq criteria for all 1st-line ALK+ #lungcancer TKIs, now allowing a switch to another treatment within 6 months if toxicity occurs. Dr Riyaz Shah said, this is “very permissive & great for patients,” At least one of our members has already benefitted. #LCSM

The number of infections for this time of year is unusual and could seed outbreaks in countries that are heading into winter go.nature.com/4n8V616

Today, we launch the annual Big Mental Health Report with a series of worrying findings about the state of the nation’s mental health. www.mind.org.uk/about-us/our...

AI overviews now appear ahead of search results on most search engines. Our new guide explains AI overviews, the potential flaws in results and provides tips on accessing trusted health information. Download your copy here: piftick.org.uk/guide/can-i-... #HealthLiteracy #DigitalLiteracy

Early ESMO data show neladalkib (Nuvalent) achieved a 44% response rate in ALK+ cancers beyond #lungcancer. Still early, but it hints at strong CNS activity and tolerability. NSCLC results expected later this year. #ALKpositive #LCSM #ESMO25