A List of Things Said to Have Been Ruined by Women 🧵

i feel fantastic and i’ve never felt as good as how i do right now

it feels so good to write again, to play games again, after the worst year of my life. i picked a ridiculous game (that i love!) to relearn controller skills with, but taking my time makes it possible aftermath.site/silksong-hol...

So fascinating that inverting - Y only is like using a joystick in flight sims - both X and Y is moving a camera in third-person adventure games - neither X nor Y is like embodying the character’s head in first-person shooters Which you invert depends on which type of game most influenced you

The iWalkFree is a well made product that lets you kinda walk if, like Chris, you have broken several bones in your foot. aftermath.site/iwalkfree-revi...

You can learn more about capillaroscopy and how it's being used in our clinical study MAESTRO, as well as other technologies if you scroll through this thread here of short explainer videos by Caleb Rother, and undergraduate researcher in my lab: bsky.app/profile/immu...

Incredibly exciting diagnostic tool potential — @immunofever.bsky.social MIT team is doing nailfold capillaroscopies on #LongCovid patients before and after a NASA lean test, and said the results have been incredibly striking compared to controls. My results were very abnormal !

could ibogaine treat #LongCovid? it looks like it could work on a range of neurological conditions warning: may cause ataxia, tremors, or nausea. in rare cases, may cause paralysis, seizures, mania, persistent hallucinations, respiratory failure, or heart failure www.nytimes.com/2025/08/11/u...

i really don’t need a customer service voice bot to have vocal fry

🧵 Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome Full preprint can be read for free here: www.research.ed.ac.uk/en/publicati... #MEcfs #PwME 1/

Breaking NEWS: 🚨 #DecodeME has discovered 8 possible genetic predispositions in the genes of #MEcfs patients that are not found in the control group. youtube.com/shorts/0S5u8...

consulted with a new functional medicine doctor who suggested - brain retraining - semax - extracorporeal blood oxygenation and ozonation or other IV ozone therapy - therapeutic plasma exchange - testing for and treating potential mold toxicity

We see officials saying #COVID cases are rising but healthy kids don’t need to worry. This study found reinfection doubles the risk of Long COVID in kids. Sincerely, families who believed you when you said our kids weren’t at risk — and now they’re disabled.

Great article from @juliametraux.bsky.social in @motherjones.com on the Trump administration ceasing to monitor disability inclusion & axing the 7% goal for govt contractors. After COVID, there are more highly-qualified working disabled people than ever before. www.motherjones.com/politics/202...

*four empty extra-large pill organizers FTFY

Signed up! My question for @simmaronresearch.bsky.social: “How did you select the dosage for the trial? Why not use the higher doses that are standard for its on-label indications?”

Sign up for our Sept. 4 webinar w/Solve #MECFS Catalyst Award winner Simmaron Research. Panelists Dr. C. Gunnar Gottschalk, Dr. Avik Roy, & Dr. Stephanie Grach will discuss the study, “Low Dose Rapamycin in ME/CFS, Long COVID, and Other Infection Associated Chronic Conditions.” 👉 ow.ly/oxC850WaYA3

#ChronicIllness #NEISvoid

the fact that they introduction to the Wikipedia page for #MCAS says most people who think they have it actually have conversion disorder and nothing in the article mentions #ME or #LongCovid at all is bullshit

take my money NOW goddamnit youtube.com/shorts/bQQW1...

63. I think more disabled people would survive climate disasters if their neighbors checked on/helped them.

61. More non-disabled parents of disabled kids should learn about disability culture and history.

58. I actually think "brain fog" describes the sensation pretty well as someone who has it, but know some people disagree.

57. People shouldn't be weird that wheelchair users can be ambulatory wheelchair users.

55. Stop trying to "cure" autism and cure things people want to be cured who have them (cystic fibrosis, sickle cell disease, autoimmune disorders...)

53. I'm very glad that Avatar: The Last Airbender has disability representation. Loved that show as a kid.

50. Allowing everyone to work from home (or at least most of the time) is an example of a universal accommodation that benefits disabled people.

43. It is legal to specifically pay disabled people less than minimum wage in more than half of US states.

41. People aren't wheelchair-bound. Wheelchairs help with independence! The -bound is negative and suggests otherwise.

31. Just because [something] isn't disabling for you, doesn't mean it isn't disabling for other people.

28. Always take the opportunity to listen to disabled elders of how things were worse before Section 504 of the Rehab Act and the ADA.

19. I think internalized ableism leads to more chronically ill people not identifying as disabled.

17. Eugenics is everywhere

14. Whether or not someone discloses their disability is completely their choice

8. People can have a positive relationship with one disability they have but a negative one with another.

6. The amount of disability history taught in school is pathetic.

Thank you to everyone who attended our virtual town hall last week! We appreciated your questions and feedback! If you weren't able to make it, you can watch @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social share updates about our editorial plans and finances on YouTube. bit.ly/4meJGsE

this was truly the week that was youtu.be/7jARdWfJulo

German start-up Berlin Cures announced it would not conduct additional research after a failed #LongCOVID clinical trial of novel drug BC 007. In collaboration with @statnews.com, @betsyladyzhets.bsky.social dives deep on what went wrong with the trial and what's next for BC 007. bit.ly/44KAwhT

The public comment period for the Labor Department’s proposed rule ends on September 2. #disability #section503 To enter a comment: www.federalregister.gov/documents/20...

now make the doctors do it youtube.com/shorts/o7UIO...

Also, because Google Search is bad right now, there's a chance someone is but it's not coming up in Google Search.

Y'all in the #NEISvoid, someone is asking me what's a good book to give to someone with new #MECFS. And I have no good answers. What do you think? Please share!

the mRNA vaccine platform is arguably the most important invention of the 21st century

i feel a strange, pleasant sensation in my head when i’m coming out of an #MCAS. it’s distinct from the just the sensation of not having MCAS symptoms. do you know what i’m talking about?

TREATME: the Open Medicine Foundation’s Mammoth ME/CFS and Long COVID Treatment Survey Results #MECFS #longCOVID www.healthrising.org/blog/2025/07...

St. Louis Post Dispatch: 'WashU closing its Long COVID clinic, leaving struggling patients worried about their care' '“I am terrified to lose access to the only doctors who not only believed but understood me,” said Jess, 36, of St. Louis.' www.stltoday.com/news/local/b...