"Stop measuring your worth by what you used to do. Fatigue management isn't about hustling harder — it's about surviving smarter. "Some days you'll feel semi-functional, and other days you'll be a human houseplant." Be gentle on yourself. #MultipleSclerosis #disability

This is one I'd share with my 'younger self' (and he probably wouldn't read it). Some really valuable MS life-skills. Things like self-advocacy and "staying active" took me years to learn. www.healthcentral.com/condition/mu... #MultipleSclerosis #disability

A #MultipleSclerosis dx does not mean your life is over. Ironically, it often makes you even stronger. #Disability

Rant: I just browsed an article about a so-called four stages of MS. I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Someone newly diagnosed could read this article and think, 'What's the point in trying?' #MultipleSclerosis #disability

#disability #multiplesclerosis

“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress Selma Blair, who has been living with #MultipleSclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day. What's your morning routine? #disability

RIP Jane Goodall. I feel like it's shortchanging her legacy to focus only on her work with chimpanzees when her compassion extended to ALL animals. One of the best ways you can honor & continue her legacy is to incorporate more plant based meals into your life. ❤️ news.janegoodall.org/2017/04/28/w...

RIP to Jane Goodall, who opened the world's eyes to our closest relatives. (Photo by NatGeo's Hugo Van Lawick)

Put your voice out there — Become an MS Activist I feel good after I write one of my reps. It was empowering rather than being passive & stewing over things. Has anybody else interacted with their reps? I'd love to hear your stories. nmss.quorum.us/campaign/143... #MultipleSclerosis #disability

“Don’t be afraid and never give up. Never underestimate the difference you can make.” - Christopher Reeve Keep being mighty — for yourself and for others. This weekend would have been Reeve's 73rd birthday. Spinal Cord Injurt Awareness Month #SCI #MultipleSclerosis #disability

"Whatever choices parent of autistic children make, there's somebody screaming at them that they're doing it wrong." Allison Carey, co-author of "Allies and Obstacles: #Disability Activism and Parents of Children w/Disabilities" 30-min podcast interview — sites.libsyn.com/63596/size/2...

Don't pass notes during class.

We Are in the World Is Sylvia Longmire? Wheeling around the globe Sylvia Longmire uses a wheelchair due to #MultipleSclerosis, and tirelessly travels around the globe, showing us wonderful places to go and how best to do so. #disability

Exciting: The inaugural event at new Disability Cultural Center at Univ of TX–Austin! It's a first-in-TX hub for #disability community, education & advocacy—fostering sense of belonging for those who study, teach &work @ UT. dcc.disability.utexas.edu/ With an assist by mighty nonprofit Art Spark TX!

"Change is inevitable. Even when I’m having a really bad flare or feeling weighed down by depression, I remind myself that it isn’t permanent & it will eventually pass.... "Be kind to yourself & give yourself grace to handle the challenges you face." — Nicole Pedra, 37, dxed #MultipleSclerosis at 10

“I [got rid of] the rug in my living room because my foot kept catching on … it and tripping me up. Cute as it was, I’d rather not fall on it again!” #MultipleSclerosis balance problems can make you feel like the world's conspiring against you. But there are practical steps to take back control.

“A #WalkingAid ..can help u stay upright even if #dizziness strikes. People with #MS who may not need assistance all the time often appreciate the security of a cane, which gives them something to lean against if #balance issues hit.": buff.ly/c1XmJQ6 via MyMSTeam #mobility

#MultipleSclerosis & #caregiving fact of life: Unsolicited comments & advice, "You're not doing it right" Sometimes it comes from someone I have no idea who they are, but it hits me just right (or wrong). #@$%! Has this happened to you? How do you deal w this? Bruce Willis' wife addresses concerns.

It's the tiredness that makes you fall asleep early, & sleep in late, & when you wake up, you're still tired. You're not just tired — you're #MultipleSclerosis tired. How many nappers do we have here? How many coffee drinkers? What tips can you share w the community to help w fatigue? #disability

Where are you feeling MS pain? What do you do about it? #MultipleSclerosis

I’m one of thousands who have a compromised immune system due to Multiple Sclerosis. My immune system attacks itself, leaving me open to any & all infections. If you mask and vax, you ARE saving lives. Every time you mask up it’s like a superhero mask to me. I see the inherent good in your heart. 💙

Fall virtual classes for unwinding, destressing — free, from Georgetown Lombardi Arts & Humanities Prog. Movement for #MultipleSclerosis, yoga, writing, painting. myemail.constantcontact.com/Free-AHP-Online-Classes-Are-Now-Open-for-Registration--.html?soid=1139386398450&aid=VmalduOOGPs# #disability

Skaters With A Cause - Thrasher October 1984 "Four skaters take to the road on a cross country skate trek to benefit the Multiple Sclerosis Society and, as Bob Denike reports, to find out a little more about America and themselves."

It's @desertroseszine.bsky.social time !! Here's my preview ! The digital zine is now up for purchase at ko-fi.com/desertrosesz..., and all proceeds from the zine will be going to the Multiple Sclerosis Foundation to aid folks with MS !! Please take a look !! :)

Walking backwards = walking better: Researchers at Wayne State Univ. in Detroit find people with MS can walk better & fall less often — just don't chew gum at the same time. journals.lww.com/jnpt/abstract/9900/structural_and_functional_changes_with_8_weeks_of.110.aspx #MultipleSclerosis #disability

Bradley Cooper was caregiver for his father battling cancer — from that sprang his new documentary about caregiving. It shows the stories of six caregivers. The message: We need to support them and their irreplaceable work *much* more. #caregiving #MultipleSclerosis #disability

UN: "83+% of people with #disability in Gaza do not have the [wheelchairs, hearing aids, etc.] they need, [and] the batteries which enable these devices to work are in very short supply. ... "Over 134,000 people having sustained conflict-related injuries – 40,500 of whom are children."

It would take me 3+ hrs to get ready for work. There is a huge "time tax" with #MultipleSclerosis #disability.

God gave you a brain, and God gave you a spine — use them.

Interesting: The “Walk in my Shoes” interactive exhibit features sensory simulation kiosks to help others understand the often invisible symptoms of MS. In your exhibit, what #MultipleSclerosis or #ChronicIllness symptom would go in your kiosk? #disability

Too bad that our legal and institutional safeguards only work to prevent good policies. It would be cool if they also stopped the evil stuff

My article from last week ft a quote from @caseydoherty.bsky.social 👇

We're living in a Kurt Vonnegut novel. #Disability #MultipleSclerosis

#MultipleSclerosis #disability #caregiving

We're turning the tide vs. #MultipleSclerosis. -- Far fewer people w MS become progressive. It used to be half of cases did w/in 10-20 years. Now about 10% do. -- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, w many more on the way — plus a vaccine is in testing.

Right on! Great thread -- read all the way to the end. #MultipleSclerosis

“In showing Stacey’s full body, her [tracheostomy tube] and her wheelchair as she is in active communication, [the coin shows] an extremely different, but more realistic, version of #disability." A fitting tribute to the Korean-American disability rights activist.

8 very interesting stories So many details & so much variety: different sports, different disease courses, different approaches to treatment. The hockey player on the right side of the photo, Bryan Bickell, donated to our Skydiving for MS fundraisers. #MultipleSclerosis #disability

Good, helpful topic on today's "Ask an MS Expert" virtual session, at 11 AM Central "Managing & Treating Gait & Balance" If you miss it live, no problem: They are all recorded & available here, along w links to today's & future programs. Watch your step! #MultipleSclerosis #disability #caregiving

August is National Immunization Awareness Month – a time to remind Illinoisans about the importance of staying up to date on childhood vaccinations.   As our classrooms fill up again and children return to school, we must take this safe and effective step to protect their health.

Terrible policy-making in action. Shameful. #Medicaid #disability

A funny post by a wonderful birder/photographer.

What is clonus? And do you get it too? Out of the blue, my heel & knee start bucking rapidly up & down like Morse code: tap-tap-tap X 100. This is clonus, a rhythmic muscle spasm brought on by out-of-place signals coming from my brain/CNS. Clonus is brought to you by our sponsor, #MultipleSclerosis.

#Disability Voting Rights Week, September 8-12. Be prepared. #MultipleSclerosis

#Emergencyprep is a #disability issue. Author David Pogue's (How To Prepare for Climate Change) 3 steps for #emergencyreadiness: 1. go bag, 2. agree on family meeting place (ex, parking lot of store), 3. download Emergency app from Red Cross issuing local warnings nationwide. Thx Sasha Lilley/KPFA.

wfh

Seniors, empty-nesters, overworked young adults, runaways—you might find them in these S. Korean "convenience stores" open for people who are lonely. The hangout spaces are much more popular than the city govt anticipated. Reach out & touch someone today. #MultipleSclerosis #disability #caregiving

Summers keep getting hotter, which is not great news for people w MS — up to 80% of whom feel worse symptoms in the heat. Be cool, my buds, with these helpful heat hacks. nationalmssociety.org/news-and-magazine/momentum-magazine/living-well/20-ways-to-survive-summer #MultipleSclerosis #disability

Everybody wants the #disability spots! (newmobility.com's Mat Barton aways finding the funny & frustration of life on wheels.)