#PEM and "energy coins" - a short video explanation of #PEM (the core and defining symptom of #ME/CFS) From the Norwegian ME Association @meforeningen.bsky.social Thank you @tschei.bsky.social

It was a delight speaking to @davetuller1.bsky.social about our recent paper lead by @simonmcg.bsky.social with @charliehillier.bsky.social, @tschei.bsky.social, Joshua Dibble and Arild Angelsen. We discuss why this is solid evidence for two age peaks in ME/CFS onset and the biological implications.

Did you know there is strong evidence that people are most likely to develop ME/CFS at two points in life - at an average of age of 16 or 37? Read more about this new study led by @aryback.bsky.social 👉 edin.ac/4v3uIv0

Berkeley's crowdfunder for Trial By Error has received 350 donations!! Thanks to all who have supported my work over the years. Here's the link for the current effort: crowdfund.berkeley.edu/project/49720

Artist: @thelatestkatie.bsky.social

Article: Chronic diseases misdiagnosed as psychosomatic can lead to long term damage This happens to nearly all myalgic encephelomyelitis patients. It’s brutal, but validating and important to see the harm named and studied. #GreatestMEdicalScandal www.cam.ac.uk/research/new...

Patients were central to the team that found ME/CFS is most likely to start in the teens and early middle age. Two age peaks is unusual for any disease and might help unravel ME's causes. academic.oup.com/ooim/advance... 1/ team credits to follow

Ingen spesiell grunn til at flere med meg tenker på Horst Wessel i kveld

"We propose that skeletal muscle tissue in ME/CFS and Long COVID-19 progresses through a hypermetabolic state, leading to severe muscular and mitochondrial deterioration. This is the first study to suggest such transient metabolic adaptation." #mecfs #LongCovid iopscience.iop.org/article/10.1...

'Research uncovers ME/CFS's systemic impact for targeted therapies' 'This new research builds upon those findings by investigating how the gut microbiome, its metabolites, and immune responses interact.' www.news-medical.net/news/2025072...

More amazing work coming out of the norwegian ME association. Between www.funcap.no and their survey of over 11k pwME at europeanmealliance.org/emea-pan-eur..., their work has daily relevance for me both in managing my condition, and in my activism for change. Thank you @tschei.bsky.social

Har du ME eller long covid, og tre minutter til overs? Svar på en veldig kort undersøke om når du ble syk, hvor gammel du var, og når du evt. fikk diagnose. Les mer på ME-foreningens nettside. www.me-foreningen.no/hvor-mange-f...

Webinar om nye retningslinjer for bl.a. ME youtu.be/MTVd1gGkxHM?...

#chronicillness #chronicallyill

We're shocked by Trump and Musk's antics because we judge them against the idea that governments should serve the people. But they have no such intention. Government for them is simply about seizing power and wealth. Let's stop being shocked, and build a global, democratic counter-movement.

Key Pathophysiological Role of Skeletal Muscle Disturbance in Post COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Accumulated Evidence onlinelibrary.wiley.com/doi/10.1002/... #LongCovid #MEcfs @scheibenbogen.bsky.social

Wow. 8 years this paper has been out shining a clear, well-written light on the dodgy science done in the PACE trial. It still hasn’t been retracted. People like me with ME/CFS in Australia are still denied disability support cause we won’t do GET, and so “haven’t tried everything to get better.”

FUNCAP for iPhone Version 1.1 now available on App Store FUNctional CAPacity - a clinical & research questionnaire for #MECFS / #LongCOVID - Score your own capacity - Create a PDF report to save or share - Optionally include heart and movement metrics iOS 16+ Free apps.apple.com/app/funcap/i...

Webinar med Anne Kielland mandag 25.11. Hva kan registerdata fortelle oss om prognoser og tilfriskning ved G93.3 diagnose? FAFO-forsker Anne Kielland har sett på data fra ulike registre, og sett på inntekten til ME-syke før og etter de fikk ME-diagnosen. us02web.zoom.us/webinar/regi...

Vi trenger Nav-ombud i hele Norge. Her forteller Nav-ombudet i Agder hva de arbeider med. youtu.be/kleSOpx7Vm8

Nytt webinar fra ME-foreningen. Hvordan arbeider Nav med brukeropplevelsen? youtu.be/003s5lh2ayg?...

New article on the prognoses of ME out now: www.sciencedirect.com/science/arti...

Nytt webinar fra ME-foreningen. Hvorfor krever Nav at ME-syke skal gjennomføre behandling som ikke virker? youtu.be/jtMYTn-fDZ8?...

What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?": www.sciencedirect.com/science/arti...

Svar å en kort undersøkelse om ME-syke erfaringer med styrketrening. Her finner du mer informasjon og lenke til undersøkelsen. www.me-foreningen.no/forundersoke...

Veldig bra fra Frøydis Lilledalen om håp og om hva som virker og ikke virker når de gjelder behandling av ME www.dagensmedisin.no/mer-somatikk...

FUNCAP - skjema for å kartlegge funksjonsnivå ved ME er nå ute som preprint, (ikke endelig publisert) og åpen for kommentarer!

The unscientific gaslighting of #MECFS & #LongCovid patients continues. I have asked these individuals to provide me with research showing that a "persistent stress response" is causative for the disease. They could not provide it. Some people are hopelessly stuck in the past.