Wanted! Two guest writers to write about your experiences with EDS and mobility devices. Paying $100 USD /piece. Send pitches to: [email protected] thanks. #EDS #hEDS #HSD #Hypermobility #Disability #Mobility #Writers #Writing #Zebras #Spoonies #NEISvoid

Swedish study in 2016 concludes: Individuals with Celiac Disease have higher risk of EDS/JHS than the general population, which may be due to surveillance bias or factors intrinsic to celiac development. buff.ly/3vptsUR #EDS #HSD #hEDS #hypermobility #fibro #NEISvoid

Doctor Clair is a great resource for folks with #EhlersDanlosSyndrome and #HSD 🩵🦓🩵 👇 (You can also find her on IG) EDS Resources: @ehlersdanlos.bsky.social #EDS #hEDS #raredisease #chronicillness

Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (Review) 2020 buff.ly/3SoLVM7 #MCAS #ADHD #ADD #autism #allergy #nuerology #inflammation #NEISvoid #EDS #HSD #hypermobility #MedTwitter

Peeling the Diagnostic Onion - is your doctor falling for too many red herrings and missing your #hypermobility? buff.ly/2QA8nRe #HSD #EDS #hEDS #EhlersDanlos #pain #MedEd #MedTwitter #Fibromyalgia #fibro #zebras #NEISvoid #autistic #ADHD

#COVID19, Mast Cells, Cytokine Storm, Psychological Stress, and Neuroinflammation - Kempuraj, Selvakumar, Ahmed et al July 2020 - in which the role of mast cells in COVID-19 sequelae are recognized: journals.sagepub.com/doi/full/10.... #MCAS #EDS #HSD #MedEd #MedTwitter #doctors #NEISvoid

I spent the last few days after receiving this beautiful book reading it at schools and inclusion events, and to everyone I know and every teacher I’ve run into. The kids hung on every word and several of the teachers and professionals (including me) openly cried. Communication is more than words.

From Diagnosis Odyssey to Scientific Vision: A New Genetics EDS Lab in Norway Opens Its Doors buff.ly/Dys6qeP #EDS #EhlersDanlosSyndrome #hEDS #Hypermobility #HSD #Zebras #NEISVoid #Spoonies #Medicine #Genetics #Doctors #Research #MCAS #POTS #MedSky

How do you handle unsolicited advice? 🩵🦓🩵 #chronicillness #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #HSD

Hot off the press, our February edition of Chronic Pain Partners news for zebras: buff.ly/Yz8aFCG #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #NEISvoid #MedEd #MedSky

"Proteomic analysis revealed 35 differentially expressed proteins in hEDS, with 43% involved in the complement cascade and 80% linked to immune, coagulation, or inflammatory pathways."

Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology October 2025 Griggs, Daylor, Petrucci et al academic.oup.com/immunohorizo... #EDS #hEDS #Hypermobility #HSD #Research #Science #Proteomics #Zebras #NEISvoid #Immunology

I found out the hard way 6 years before they added the black box warning, I sometimes wonder what my life would have been like if that hadn't happened

Flouroquinolones are the devil.

‘..helping to broaden people’s perspective on just how incredibly wide-ranging the effects of faulty and insufficient collagen can be…’

We recommend avoiding Cipro and all fluoroquinolones if you're hypermobile: ohtwist.com/avoid-cipro #EDS #HSD #Fibro #medicine #fibromyalgia #nurses #doctors #medicine #MedTwitter #MedEd #FOAMed #NEISvoid

US Job Accommodation Network (JAN) mentions #EDS in workplace for first time 2016: askjan.org/disabilities... #HMS #Fibro #MedEd #EhlersDanlos #disability #NEISvoid

Magnesium deficiency can explain several common symptoms in the Ehlers-Danlos and Hypermobility Spectrum Disorders. Source, Heidi Collins, an MD with #EDS: buff.ly/41paXSf #nutrition #MedEd #EDS #HSD #MCAS #NEISvoid #Fibro

Patients with #EhlersDanlos or #Hypermobility Spectrum Disorders can spring CSF leaks anywhere along their dura and from noses & ears ohtwist.com/about-eds/co... #EDS #HSD #meded #FOAMed #doctors #nurses #medstudents #MedTwitter #NEISvoid

Differences in manifestations of Marfan syndrome, Ehlers-Danlos syndrome and Loeys-Dietz syndrome 2017: www.ncbi.nlm.nih.gov/pmc/articles... #EDS #LDS #Mafran #CTD #meded #FOAMed #medicine #doctors #genetics

Catch Jan on Episode 52: What is this mysterious “Ehlers-Danlos syndrome”? Explore when to suspect, why it's so poorly recognized, and how to go about getting diagnosed (if you can) via @QuaxPod youtu.be/yxNpuYCuWso #EDS #HSD #hEDS #MedEd #doctors #nurses #FOAMed #NEISvoid

When to Suspect hypermobile type #EhlersDanlos syndrome or a form of #HSD buff.ly/2esfxak #Fibro #EDS #fibromyalgia #meded #FOAMed #spoonies #zebras #Autism #autistic #hypermobility #HSD #doctors #nurses #NEISvoid

Peeling the Diagnostic Onion - is your doctor falling for too many red herrings and missing your #hypermobility? buff.ly/2QA8nRe #HSD #EDS #hEDS #EhlersDanlos #pain #MedEd #MedTwitter #Fibromyalgia #fibro #zebras #NEISvoid #autistic #ADHD

#COVID19, Mast Cells, Cytokine Storm, Psychological Stress, and Neuroinflammation - Kempuraj, Selvakumar, Ahmed et al July 2020 - in which the role of mast cells in COVID-19 sequelae are recognized: journals.sagepub.com/doi/full/10.... #MCAS #EDS #HSD #MedEd #MedTwitter #doctors #NEISvoid

Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology October 2025 Griggs, Daylor, Petrucci et al academic.oup.com/immunohorizo... #EDS #hEDS #Hypermobility #HSD #Research #Science #Proteomics #Zebras #NEISvoid #Immunology

Unfortunately I cannot access this hot new paper by Blitshteyn and Grubb on how POTS is not all in our heads at Elsevier. Can you? www.sciencedirect.com/science/arti...

Talking to children about chronic illness doesn’t have to be heavy or frightening. Calm truth, gentle language, and a reminder that love doesn’t disappear when bodies get complicated. #ChronicIllness #KidsAndHealth #UnremarkableMe #hEDS #EDS #ChiariMalformation www.unremarkableme.com/post/explain...

Need some Ehlers-Danlos Syndrome Management Resources? Take a look here- you may find just what you have been looking for: www.ehlers-danlos.com/management/ #ehlersdanlossyndrome #EDS #hEDS #raredisease #chronicillness #HSD #hypermobility #healthcare

Is there a rare or uncommon illness you are diagnosed with that we have not shared info on? Please let us know! 🤗 @nordrare.bsky.social #raredisease #rarediseases #chronicillness #invisibleillness #eds

Reminder that cold temperature can trigger mast cells. Stay safe and warm out there folks. Good luck to those in the storms path. #MCAS

The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible buff.ly/zTVAuva #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Disability #Autism #ADHD #AuDHD #Dyslexia #Dysgraphia #Dyscalculia #Dysautonomia #MCAS #Mastocytosis #Fibromyalgia #Spoonies #MedSky #Zebras

Chronic illness isn’t a journey. It’s a roller coaster with no seatbelt, no exit, and a very tired goblin holding on anyway. #ChronicIllness #InvisibleIllness #SpoonieLife #UnremarkableMe #StillHere #ChronicPain #EDS #DisabilityVoices #hEDS www.unremarkableme.com/post/the-emo...

Yup. It’s my actual xray. Craniocervical instability. It’s a potential issue with #EDS, #RheumatoidArthritis, and #TBI. I’ve got all 3 of those so #Cervislinky is my chosen #Maladiemon. @ehlersdanlos.bsky.social @rheumatoidart.bsky.social

Love this 🩵🦓🩵 #mentalhealth #chronicillness

Disabled people are not expendable. The elderly are not expendable. Children are not expendable. Worth should never be tied to economic productivity. If we protected the most vulnerable in society, everyone would be better off.

Everyone deserves shelter, food, water & healthcare. Even the people you don’t like. Even the people you feel made “bad lifestyle choices” Even the people who you don’t think “contribute enough” Every person should have their basic needs met This shouldn’t be controversial.

Research Round-up, Edition Six - in which we bring you a variety of research angles involving the Ehlers-Danlos Syndromes as we close out 2025: buff.ly/vsHqh5m #EDS #hEDS #HSD #Hypermobility #Zebras #Spoonies #MCAS #Dysautonomia #POTS #NEISvoid #Medicine #MedSky #Doctors #Genetics

If you know, you know. 🚑 And its even worse if youre Canadian. Just kidding! ... sort of 😅😉 #healthmemes linktr.ee/thezebraalliance #portlandia #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability #mentalhealth

Sometimes, a person truly needs the diagnosis. Other times, there is some wiggle room & maybe you don't need it. Either way, #EhlersDanlosSyndrome is complicated. #BlogPost #Diagnosis #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicIllness #Booksky #Books #WritersCommunity 💕 #Wellness

To anyone who knows my friend Angela Rozewski and her son Stryder Doescher, someone has hacked her Facebook account and is defaming her all over her long held and curated Stryders Story page. It's gross and pure libel, trust me. We're in shock. She is medically fragile now and struggling. 😰 #EDS

“I hate having to exclude myself from ‘life.’ The physical pain in every inch of my #body inside and out is overwhelming me. I feel #anxious because I don’t know how long this will last, or how long I can #survive it. - Chris H”: buff.ly/eX4fkOC via @themightysite.bsky.social #EDS #disability

Help us kickstart 2026 with a donation in John Ferman's memory here today, thank you: buff.ly/mtpdkn9 #EDS #EhlersDanlosSyndrome #hEDS #HSD #Hypermobility #Zebras #Spoonies #Support #MedEd #MedSky #Medicine #HealthNews #NEISvoid

In which Donna Sullivan shares a small win for the #EDS community with our EDS Unplugged Podcast hosts in Episode 2: www.chronicpainpartners.com/podcast/ #Hypermobility #hEDS #HSD #Zebras #NEISVoid #Spoonies #COMPLICATED #MedSky #Doctors #podcast #Medicine

♥️🙏♥️

For more on #EDS, follow my alter @ohtwist.bsky.social or check out: Https://OhTWIST.com Yes, it's as painful as it sounds. 🥺✌️

Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology October 2025 Griggs, Daylor, Petrucci et al academic.oup.com/immunohorizo... #EDS #hEDS #Hypermobility #HSD #Research #Science #Proteomics #Zebras #NEISvoid #Immunology

Interesting mix of studies in here this month. Check it out!

Via the @HMSACharity and Ehlers-Danlos Support UK, check out the 2021 #EDSSchoolToolkit for parents and teachers of bendy (hypermobile) students, diagnosed or not: theschooltoolkit.org #EDS #HSD #HMS #JHS #hEDS #hypermobility #autism #ADHD #MCAS #POTS #NEISvoid