To remember another M.E. community member and friend who’s life has ended too soon 😔🌹🦋

Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear. #MEKills #HumanRights

Ten outstanding questions in Neuroinflammation and #LongCovid. Read the preprint here: www.preprints.org/manuscript/2... and check #UnitedtoFight videos from last year here www.youtube.com/@UniteToFigh...

The irony is not lost on me, but this clip speaks to a fundamental aspect of humanity, we have always been unique in our ability to share abstracted ideas, but never have that ability been owned by others. youtube.com/shorts/va0Dj...

#MECFSAwarenessMonth – Day 22: Conclusion Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.

The largest Long C-19 Delphi Consensus to-date has dropped. 179 Clinicians and Scientists contributed to this global effort‼️ With thanks to my amazing colleagues (too many to mention) but led by our awesome Chair @andrewewing11.bsky.social ann-clinmicrob.biomedcentral.com/articles/10....

🚨 New Video 🚨 A Clinician’s Guide to Navigating Complex Illness: ME/CFS, POTS, and Long COVID Explained 🎥 1.5 hours of my clinical insights, practical strategies, and a journey through uncertainty. Video:👉 youtu.be/Ej9yyOsGYNg?...

The #Leonardi_Effect is very real... @fitterhappieraj.bsky.social was correct in 2020.... Increasingly insightful with every publication. For those who may be new to this Start here: thetyee.ca/Analysis/202...

We welcome this research and were pleased to help ensure the experiences of children with #LongCovid were heard. However, we remain concerned the inquiry has not yet appointed a paediatric expert to assist in Module 8. covid19.public-inquiry.uk/news/how-did... #LongcovidKids #CovidInquiry

Hello blue sky people! I have 16,000 Twitter followers to whom I am dedicated to helping with MECFS. How will I ever reach that over here? Do I need to post on both places? ❤️

Some butterflies at home, Sunshine Coast hinterland: Orchard Swallowtail, White-banded Plane, Wonder Brown, Richmond Birdwing

Doing a Bluesky subathon to get to 100k ;p

Wise words from Matt Haig.

The more rehab in ME is studied the more people harmed by it are found. 57% of ME patients harmed by healthcare should make you question the negligible damage so many proponents of exercise have claimed. When actually asked its everywhere as patients have said for decades.

Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE. Pass it on.

Covid Papers of importance - Eyes #5 doi.org/10.1038/s415...

Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care. www.thecourier.co.uk/fp/lifestyle... Meet the Perthshire GP long Covid sufferers turn to when no one else can help… @drclairetaylor.bsky.social #longcovid #longcovidkids

There is no moving on from this. The current chronic illness is just the tip of the iceberg. Long term damage is being done by every infection in a way we haven't seen since the spanish flu.

The battle against #LongCovid on the cover of Science Translational Medicine. Lot of important articles here bit.ly/3YN1ktt

Crucial paper #5 I will slowly compile some of the better science to move Cøvid along on the 🔵 App 🙏🏻 doi.org/10.1038/s415...

🧠 Daily Feed of Brain Damage 🧠 Part 2 t.co/wyWozCgC9l?s...

My first post: Love you all! ♥️ #longcovid #mecfs

Hi all. Set up an account here too! Looking forward to connect, or re-connect! with the science/research, medical and disability communities.

If you are ME/CFS community, please find useful information in below posts 💙❤️🫂

The link between FYN over-expression and endothelial dysfunction seems to be via the dysregulation of Arginase pathway resulting in NOS uncoupling. Could this be the main driver of Long COVID? journals.physiology.org/doi/full/10....