Such a great conference this year. The venue was fab and the organisation was spot on. I really enjoyed all the sessions I went to and the interesting discussions and insights shared. Looking forward to next year in Manchester.

On the metro travelling to the 2nd day of #HSRUK25. Looking forward to presenting our work on Q-DaPS (qual data sharing and re analysis). Join us at 10am in Rm 1.17 in the Qual methodologies session

Don’t forget to join one of our Poster Walkround Sessions! These sessions offer a great opportunity to interact with speakers and hear about a wide range of topics! Happening today and tomorrow during our parallel sessions #HSRUK25

At #HSRUK25 opening plenary session. Looking forward to discussion on the NHS Ten Year Plan: How might health services research respond.

A powerful editorial journals.sagepub.com/doi/10.1177/...

Great thread from @marionkcampbell.bsky.social, here’s hoping this becomes mandatory as it’s an ethical imperative.👇 The COVID Voices approach to sharing results, I personally won’t participate in research that doesn’t offer to share results, why would anyone? blogs.manchester.ac.uk/centre-for-e...

Our new paper on capturing the impact of living with multiple long term conditions in routine electronic health records. Is the work lost in translation? journals.sagepub.com/doi/10.1177/...

Screening for multiple cancers with a single blood test Obviously an attractive proposition All that glitters is not gold There is smallprint Smallprint matters This stellar article gives the top line smallprint www.bmj.com/content/388/... 1/

❓ Can you help? 🔎 We are looking for healthcare professionals in the UK or Ireland who look after couples at the time of a second trimester pregnancy loss (or subsequent pregnancies) to complete our survey 🙏 Please share if you can 🔗 forms.office.com/e/xqRzJTqCqG @keelinodonoghue.bsky.social

Will do a proper thread on this when I can, but HURRAH you can see a summary of the Youth LIVES mental health coproduction work here sites.google.com/york.ac.uk/y... Summaries of what young ppl asked professional researchers about, our methods, and fantastic summaries of the projects they designed

Once upon a time (25 years ago) the NHS had a good understanding of the causes of long waits in A&E. The biggest problem was flow through beds. It wasn't attendance volume, staffing levels or overwhelmed GPs...

Looking for a great overview of the evidence on scale-up and sustainability of innovation and improvement in healthcare? Here you go - part of the open access @thisinstitute.bsky.social series and authored by the mighty @trishgreenhalgh.bsky.social and team. www.cambridge.org/core/element...

Great article from @lynnlaidlaw.bsky.social looking at the gaps between the rhetoric and reality of 'patient and public involvement'. With important questions about the extent to which claims of involvement are meaningful. Page 4 here: pexlib.net?246078 #PatientExperience

New newsletter from @patientlibrary.bsky.social. Pleased to contribute my experience of looking for evidence of #PPIE. @louca-mai.bsky.social qual paper on PPIE workforce and @katherinesleeman.bsky.social excellent Best end of life project both included 🌟 www.patientlibrary.net/cgi-bin/down...

Thanks to @elenichambers.bsky.social for sharing this useful document which I wasn’t aware of. healthandcareresearchwales.org/sites/defaul...

I have come across this and I think sometimes it is the money. People have to live off very little. Every bit counts.

... but more to ensure diversity of exp/perspectives that validation. With online groups we've had to push for cameras on (where possible) for safeguarding reasons - so we can see who people are

When looking for young people to get involved in #PPI groups/projects we normally ask them to fill in an 'expression of interest' form which includes a free text box asking for info on why they're interested & relevant lived experience. If lots of interest we may have an initial 1:1 meeting...

Interesting question Lynn, especially when public involvement is one-off and/or online - which makes it hard to know who people are (or even if the people attending are the same people who booked). But I'd be interested to know why people would want to do this - certainly not for money or fame!

Interesting responses to @lynnlaidlaw.bsky.social's question. Are 'imposter' public contributors something we need to worry about, especially when #PublicInvolvement is one-off/online? Or is the trust element too important to risk asking people to prove their lived experience? #PPI

We have been discussing this at Institute Mental Health. It’s tricky - Patient & Public Involvement is about building trusted relationship betw members & academic researchers - but if that’s founded on misinformation…

I am aware that there has been papers and talk recently about “imposter” qualitative research participants. This is probably a controversial question but is anyone seeing the same issues in people applying to be patient and public partners in research? Any strategies to deal with this? #PPIE

GREAT news on my final working day of the year – the final paper I worked on at @craeioe.bsky.social is live in @journalautism.bsky.social 🥳 Free to read, here: journals.sagepub.com/doi/10.1177/...

NEW The impact of living with multiple long-term conditions on everyday life – a qualitative evidence synthesis from Emilia Holland (Southampton) and colleagues, including @lynnlaidlaw.bsky.social - a Public Contributor at this Unit - #openaccess bmcpublichealth.biomedcentral.com/articles/10....

A great addition to the growing literature on the burden of living with multimorbidity. Why we need whole person advanced generalist healthcare. Not just coordinated delivery of multiple diseasefocused elements. bjgplife.com/reclaiming-g...

So chuffed to have been involved with this research. Living with MLTC’s is hard work and should be acknowledged. The lines of work aren’t static, they ebb and flow with the individual depending on their context. People living with MLTC’s aren’t a homogenous mass. 1/

Our commentary on commercial influences on patient & public involvement is out today @healthpromint.bsky.social as part of special issue on the #CDoH. We hope to stimulate discussion & debate (& hopefully meaningful action) in this area academic.oup.com/heapro/artic... @jameslarkin13.bsky.social

📢 New paper 👇🏼 This research is about diversity, community engagement, & co-design in health & social care research, focusing on the importance of including individuals from all backgrounds in the research process. 1st of Dec is off to a good start 🥰 Link: bmjleader.bmj.com/content/earl...

Join us December 2 for a training on Bluesky, with lots of tips and guidance for social change groups and activists. The training is free for those who need free access to join. #Bluesky #endX community.socialmovementtechnologies.org/courses/blue...

Compensating patient partners on #PatientEngagement teams is about equity. @kwaneleasante.bsky.social wrote this powerful piece about renumeration of African patient partners being about health justice www.bmj.com/content/387/.... Pls take a few mins to learn from this global patient leader

Do you live with Heart Failure with Preserved Ejection Fraction and are interested in EDI? We are recruiting people for a Patient Advisory Committee, details 👇 If you could re post or share in your networks that would be fab. Contact me if any questions #PPIE #EDI

I know the assisted dying debate is complex and emotional. I have my own thoughts but can’t help but think some of the debate has a “your body my choice” feel 🤔

Post-doctoral researcher with palliative and end of life interests and qualitative / mixed methods skills? Come and work with us in the dynamic PELi_Cam Group at @cambridgeuni.bsky.social Leading on some excellent studies Job details: www.jobs.cam.ac.uk/job/49229/ Full-time to 80% FTE post

When it comes to co-production I often feel quite protective of how it is described, but it’s from a place of wanting people and organisations to be honest about how they work with people. It’s often thrown about to mean something it isn’t, which makes building trust and relationships harder.

This is a hot topic in #Switzerland. It's difficult to get proper contracts & ethical+sustainable remuneration. We #patientpartners #PPIR are trying very hard to get this recognised. Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.

The nature of roles and how payment guidelines are interpreted can often be left to the discretion of research budget holders and research teams, despite guidelines providing differentiation between types of role and activity. Consistency is so important!

Check this out, follow us here and share with friends 🤗

Questioning Representativeness 🤔 We need to hold institutions - rather than individuals - to account for how 'representative' our lived experience engagement initiatives are. 💭 Brett Scholz tinyurl.com/479x77fa #PatientExperience #LivedExperience #CommunityEngagement #Health

#PPIE hive mind. If you are a public contributor or a researcher involving people what is the hrly rate you cost Public contributor co apps in grant applications? Standard £25 or enhanced £40? What do you consider to make this decision eg responsibility, expertise, role etc?

Join us at the Health Research from Home (MRC funded project to set up a community of practice using smartphones and wearables for research) annual event, Connect. 7th Feb 2025 Free to register Fab programme and speakers including co design workshop sites.manchester.ac.uk/health-resea...

📢 PhD project opportunity join us on this interdisciplinary project exploring Time, Convenience, and Identity as roots of health inequalities in the Glasgow diet ℹ️ www.gla.ac.uk/colleges/mvl... ⏰ Deadline 12/01/25 please get in touch for guidance on applying #FoodStudies @dnblane.bsky.social

Interested in staying up to date with the Health and Social Care Workforce Research Unit, including all our Events series? Here's how: ⏩ www.kcl.ac.uk/news/connect...

🌟 blog and paper. I can relate to the issues as a public contributor and also occasional PPI lead. Involvement isn’t a method, it’s about relationships not toolkits and frameworks. PPIE leads and public contributors are powerless within existing research culture that doesn’t see the need for change

Are you a current patient of a #Rheumatology outpatient department in the UK NHS/HSC? We want to know your views on clinic letters and who they are written to. For information on our interview and focus group study, please visit: sites.manchester.ac.uk/writing-to-r...