I'll be speaking at this event on what makes a good Chief Investigator, focusing on the role of meaningful PPI and embedding EDI from the start. Looking forward to it! 🌟

PhD Student, Ella Howes, has just released the latest episode of the Trials Methodology podcast with our very own @willjcragg.bsky.social , covering all things to do with the 'how' of trials methodology💡 Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...

Following on from our very popular December webinar on 'the invisible labour of #PublicInvolvement' registrations are now open for the second webinar in the series, on Emotions in #PPI, led by colleagues from @penarc.bsky.social. Come join us! @arceastofengland.bsky.social @elspethma.bsky.social

I had an enjoyable time presenting at the RadResearch Conference in Leeds today, hosted by RadResearch and the NIHR-supported Incubator for Diagnostic and Therapeutic Radiographers. I really hope my presentation inspired attendees to embed #PPIE #PublicInvolvement into their research plans 🌟

#PPIE and ethics "Public involvement and engagement in scientific research and higher education: the only way is ethics?" researchinvolvement.biomedcentral.com/articles/10....

There's already one at bsky.app/profile/did:... - @brynphd.com kindly directed me to this yesterday

I tried to create a #PPI / #PPIE feed, but found it a bit confusing. If anyone else want to have a go - please do. Otherwise I'll try again another day 😅

Only today in an ARC sesssion on #evaluatingPPI we were talking about invisible work and emotional labour in #PPI and #co-production. Great to see @louca-mai.bsky.social will be speaking about this next month. It’s labour that is not recognised, costed or valued - yet it’s essential

So pleased to see this adapted version of the #EQ5D for people with a #LearningDisability we began this work in 2014 & @johnodwyer.bsky.social made it happen. If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures rdcu.be/d0YUL

I've started a second University of Leeds starterpack! go.bsky.app/HUKJ7bK

Just a few autumn pics to brighten up your feed 🍂

Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch. Kindly put together by @louca-mai.bsky.social 🌟

First post on Bluesky. I’ve made a film. It’s going to be screened @leedsunimedia.bsky.social in December. #aicinema

Over 200k people waiting (on NHS waiting lists) for an autism, surely this is the point at which something has to change. The current models have never been sustainable and are only becoming less so.

Great to get so many new follows from health researchers here on Bluesky! But I hope you’ve actually left X—because if you still have an account, you're supporting Elon Musk, who continues to back Trump. We all have a moral duty to choose platforms that reflect our values 🌍💙 #LeaveX #HealthResearch

New blogpost on the 'invisible labour' of #PublicInvolvement for @nihrarcs.bsky.social based on a recent paper by me and Stan Papoulias: arc-sl.nihr.ac.uk/news-insight...

Do you know what happens at the end of a clinical trial? Once we've collected all the info we need, we analyse this data. This allows us to find out: 📈 How effective a treatment is 🚨 How safe it is 🤢 If there are side effects ⚖️ Whether it is better than the current treatment or placebo

🆕This new diagram explains how young people can get involved in research. Co-designed by our amazing public contributor @louiseting.bsky.social and our Young People's Advisory Group, we hope it helps young people understand the contribution they can make. bit.ly/3C7oTW4

Thinking about involving public contributors in your #qualitative data analysis? You will need to: ➡️identify their learning needs ➡️send out materials in advance ➡️be responsive to their needs ➡️read AliceMoult's paper on how her team did it! #PPI News tinyurl.com/2rt6ucz8 Paper tinyurl.com/28wr3usf

Last Thursday wrapped up the ICTMC conference in Edinburgh. I had the opportunity to present two posters on PPIE, which sparked some great conversations and meaningful discussions. #ICTMC2024 #ICTMC #Edinburgh #PPIE #ClinicalTrials

Jama summit : is the clinical trial enterprise broken? #ictmc2024 lots of food for thought. We need to conduct better and more impactful research. Efficient designs, core outcome sets, patient and staff involvement, implementation science - all discussed as solutions.

“The [autism is a] superpower myth is damaging because it overlooks the humanity of neurodivergent individuals. We are not mutant X-Men somehow endowed with special powers. Like everyone, we deserve empathy, humanity and understanding." -Rebecca Brenner Graham: www.salon.com/2024/09/22/a...

Important blog post from @nihr.bsky.social on the continuing underreporting of #PPI in #research publications. Thanks to @bmj.com who asked us to expand on the PPI in our last publication! We must report the learnings when PPI works and when it doesn't! www.linkedin.com/pulse/report...