Proud to have been part of this project #patientpartner #PPI and to share our publication. "Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis." bmccancer.biomedcentral.com/articles/10....

Trump officials are trying to sneak around federal judges’ orders. They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social . My latest for @theguardian.com www.theguardian.com/us-news/2025...

In 2025... what a dark new world we're in. 😔

#We seek #collaboration, not control!" Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp! patientsuseai.substack.com/p/patientsus...

Que 2️⃣0️⃣2️⃣5️⃣ vous apporte le meilleur: santé, bonheur, amour, moments partagés, sérénité, rêves, accomplissements, joie de vivre, paix, légèreté, couleurs, magie, surprises, musique, projets, mystères, amitiés, ... 🌺🏵🌸🌼🎋🌻🪻⚘️ B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺

just blurted out in class "yes, you have to cite where you got your info. in a world in which lying loudly is the only thing that seems to get rewarded, citing your sources is an act of resistance" and folks, I really believe that.

Shame must change sides. -Gisèle Pelicot #PersonOfTheYear #Survivor

On Thursday the 2024 issue of @theneweuropean.bsky.social comes out and they have given me the platform to explain why Gisèle Pelicot is my hero and how she radically changed the conversation about shame and sexual assault It is my proudest writing. app.theneweuropean.co.uk/2024/10/26/v...

“We share the same fight.” Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape. Impossible to find the words to adequately describe this lady’s courage. Unquestionably, irrefutably 2024’s Person of the Year. Merci Madame.

Tagging for 🧪 🩺💻 #MLSky

9months after stopping my #Herceptin & #Perjeta infusions (147 - 9yrs!) I got my #PET-SCAN & #ctDNA results back: ALL IS GOOD! 🥳 After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th! Take that #TNBC #HER2+ #breastcancer #fuckcancer!

Key @hsruk.bsky.social recommendation for #HealthResearch: 7. Emphasise Diversity & #PublicInvolvement ✅ Develop inclusive strategies to engage underrepresented communities in research & service design ✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities

Article about #SCAPE Swiss Cancer Patient Experience study, where I was a #patientpartner in the steering committee. This was my first #PPI #PPIR experience w/ @chantalarditi.bsky.social Training #patients & #researchers to work together creates meaningful research. www.mdpi.com/2072-6694/16...

💭ADHD medications effective at reducing symptoms in adults but not improving quality of life, study finds www.abc.net.au/news/health/... #PatientExperience #LivedExperience #PatientEngagement #CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign

Good morning, Blue Sky. Being resilient is easier when you're surrounded by the right people. Build communities that make you smarter and tougher for the battles ahead. Never give up hope. Never stop fighting for what is right. And just. Whatever comes our way, we will face it together.

Thank you to everyone who's booked so far - we should have some interesting discussions! #PPI people: It's filling up fast if you haven't booked already.

We’re not going back.

‘A place of joy’: why scientists are joining the rush to Bluesky www.nature.com/articles/d41...

I will not hide my inner convictions anymore. Be the change you want to see in the world ! #AcademicSky 🧪

Another step towards AcademicSky Science magazine is here: @science.org

Welcome newcomers to the friendly skies of @bsky.app, emerging as the science sharing platform for the future!

So grateful for physician researchers like Dr @sofiamerajver.bsky.social who truly put their hearts and minds into improving outcomes for our patient community. #LCAM #grateful

I’ve started to put together a starter pack of researchers, funders, practitioners and decision-makers working to promote the production and use of evidence. Please comment to be added and repost to share. go.bsky.app/ErqVP8g

21 MILLION! 🚀 Another Bluesky milestone hit this morning.. User numbers have quadrupled in 90 days and doubled in just over 30 days. A tiny team of 20 in @bsky.app brilliantly managing exponential growth 👏

"After recent changes to Elon Musk’s X, a gradual migration turns into a stampede" BlueSky really does feel like twitter felt before it became so toxic. www.science.org/content/arti...

My thing: #patientadvocacy #patientpartnership #PPI #PPIR (patient&public involvement in #research) #coproduction #patientempowerment #letpatientshelp! 🧩 Started 15yrs ago on Twitter, when #patients got together to build #patientcommunities, mentor one another, find their peers & become #empowered.

@roxanadaneshjou.bsky.social could you add me to ai med list. See academic.oup.com/jamia/articl...

Ooops, there seems to lagging and internal server issues on #Bluesky @Bluesky tonight... Are we breaking the happy place? 😬

Here's the #PPI starter pack! Come join in on the fun! #coproduction #collaboration #patientpartner 🧩🤝

This is fantastic! When #PatientPartners engage in #PPI #PPIR, they want to do coproduction work, but sometimes their full-time job of being a #patient needs to take all of the space. Be mindful of that, we are doing our best! ❤️ (Thank you @kellieocallaghan.bsky.social for this lovely piece!)

💭 Reimagining the language of engagement in a post-stakeholder world For research to retain public trust, it must be experienced as inclusive, accessible and fundamentally relational tinyurl.com/467pj3rh #PatientExperience #LivedExperience #CommunityEngagement #Health #RuralHealth #RegionalHealth

Thanks to @chantalarditi.bsky.social who involved me #patientpartner from the beginning (2018) in #SCAPE steering committee www.scape-enquete.ch/e/the-study-... I discovered the fascinating world of #PPIR (patient and public involvement in research). #coproduction #collaboration #letpatientshelp!

In the classes I give ( #patientpartner ), I always explain to #HCPs how much their words matter: they can make our #patientjourney wonderful or horrible! Thank you to those who make the effort - I can assure you that you are making a difference! ❤️

As a #patientpartner I wholeheartedly support these! I always say in my classes to #HCPs that words really matter to #patients! They have an impact on our #patientjourney. I still have PTSD from clumsy (or downright awful) words that have been spoken to me! TY to all of you who make the effort! ❤️

I am now recognizing that although there’s a ton of research on COVID, there’s not really a landing page for -vetted studies- that doctors can easily access? Does anyone know of one? I’m working on a CME and trying to provide practical guidance.

I've set up a couple of 'starter packs' to help me and others find people with shared interests. The first is on #PublicInvolvement and #Co-production in health and care research: go.bsky.app/PWEAnFR

Bluesky tip for newbies: Bluesky has no real algorithm. Likes here do nothing but show the poster that you enjoyed their content. That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. 🙂

RFK Jr. claims he's not anti-vax, but his decades of spreading vaccine misinformation say otherwise. His track record isn’t just dangerous—it’s disqualifying. The Senate must reject him. #StopRFK

Part 2. www.youtube.com/watch?v=wog3...

Bumping this for all the newbies. Make sure you catch both parts. The first part shows you how to find the content you WANT to see, and the second shows you how to filter out the content you DON'T want to see.

Holy sh**! I accidently opened X instead of Bluesky and was horrified for a second, thinking it had become like over there overnight! 😅😅😅 🙈 I need to remove the X app from my phone to not scare myself again.

Elon Musk asked X users to submit X-rays, MRIs, CT scans and other medical images to Grok, the platform’s A.I. chatbot, with the hope that if enough users feed the tool with their scans, it will eventually get good at interpreting them accurately.

New tool that helps you discover new accounts based off who you already follow. #AcademicSky 🩺🖥️🧬

Here’s how to do stuff with Bluesky that you could not on X. #medtech #bcsm #medsky #Xodus www.theverge.com/24295933/blu...

They can keep their white supremacy on X. Bluesky will be a place for kindness, black empowerment, women’s rights, gays and neurodivergents 🔥