What happens when patients use chatbots for medical advice. Great @nytimes story by ‪@teddyrosenbluth.bsky.social‬ & @maggieastor.bsky.social. I'm quoted, along with @adamrodmanmd.bsky.social & @epatientdave.bsky.social www.nytimes.com/2025/11/16/w...

Honest question: WTAF is the rationale for eliminating a safety rule on an amputating device?

This is what happened with my family… A comment on another excellent post from @susannahrfox.bsky.social Honest question: does the place where you go for care actually care about care? Add your story, good or bad, in another comment.

Here’s What Happened When ProPublica Reporters Tried to Find Out Where a Popular Prescription Drug Was Made

I look forward to moderating a panel, co-hosted by JoPM/@jmirpub.bsky.social/ @s4pm.bsky.social on e-patients & evolving use of tech over time. Join @epatientdave.bsky.social @gfry.bsky.social @denisesilber.bsky.social @amyprice.bsky.social and me. landingpage.jmirpublications.com/how-digital-...

"There is no climate of fear without capitulation." Fight.

It was a meeting of the minds last week at @harvard.edu! @cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement. Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH #medsky

This was the most intelligent, perceptive discussion I've ever had about patient empowerment with someone who's not primarily *in* healthcare. And that's a significant sign: I've always said that the more we "liberate" access to tools and data, the more healthcare will become what we want

Woohoo! Fabulous episode! #PatientsUseAI Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.

🎁 link: wapo.st/4izIIpf

Over the past several weeks, ProPublica has identified dozens of people who worked for DOGE. #ICYMI: We just added 20 names to our tracker, bringing the total to 66.

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Man who self-describes as "happens to have two cancers" says this about #PatientsUseAI. Hey @burtrosen.bsky.social - I've been thinking (for real) - would you call this "DIY healthcare" or "DTC" (direct to consumer) or "patient autonomy" or what? (Legit question - been pondering this on LinkedIn)

@burtrosen.bsky.social Me LETTING you be part of it?? Hahahaha ... you're just a RANDOM BLINKIN' EXEMPLAR, dude! You just DO what everyone SHOULD be doing, because we can! Send an update of your latest self-empowered shenAInigans so we can update your history!

“#AI is my helper now.” @epatientdave.bsky.social @burtrosen.bsky.social Two amazing “hunks” of the ‘patient-led revolution’ make it to Men’s Health. Love this. 👏🏽👏🏽👏🏽👏🏽👏🏽 #pinksocks #hcldr

I am happy to say the "Followers only" reply setting is getting implemented. We're also adding a way to set default reply settings If you want your posts to default to "Followers only," that'll become an option

@Lygeia is here too! @lygeia-r.bsky.social I can't be on the #HITSM chat at noon ET today 1/31, but here are the details. @healthcareittoday.com Tag them to get on their BSky HIT list - the place to be! Love to be seeing the smooooth writing of John Lynn @techguy.healthcareittoday.com again!

Who's going to join us tomorrow for the first ever #HITsm chat on Bluesky? Details: http://dlvr.it/THh4fB Invite your friends. #HITsm

I just dropped everything to join Bluesky when I saw there was an #HITSM chat tomorrow. I miss my peeps! 🥰 @healthcareittoday.com

Can private sector serve up sufficient #healthmedia to compensate for public sector gaps? Reflections on repeated #404Error messages from #publichealth govt websites on #CDC #NIH & WhiteHouse.gov (looking for a Jill Biden speech on #womenshealth at #JPM2025) bit.ly/3Q0cZ4h #hcsm #healthliteracy

Hey everybody, Jane's here! THAT Jane - Jane Sarasohn-Kahn, aka elsewhere as @HealthyThinker! Follow, you will. @healthythinkerjsk.bsky.social

I'd even say we need to stop using the word "experts," because, frankly, idiots no longer trust experts! I'm starting to think we need to come back down to the eighth grade insult-war level like them and argue in terms of "You're so stupid you think Bambi is a fish," to quote Gilda Radner

A new resource rating >50,000 foods from 3 grocery stores (Walmart, Target, and Whole Foods) for degree of processing and breakdown of ingredients www.nature.com/articles/s43... Website for consumers www.truefood.tech

New post on the #PatientsUseAI Substack, by Gilles Frydman (@kosherfrog.bsky.social), the pioneering #PatientEmpowerment guy who in 1995(!) created ACOR, which helped save my life. Today he's *hugely* into generative AI for patients. Check it out! patientsuseai.substack.com/p/patientsus...

Primary care fields Pediatrics, Family Practice & Internal Medicine are having trouble filling their residency slots. Low pay, high admin burdens (prior authorizations w/low support) make these fields undesirable leaving many communities without access to essential care. buff.ly/4fQsFS9 medsky 🛟

"Zak’s involvement illustrates something exquisitely important: nothing about patient empowerment is a rejection of doctors." I agree entirely, Dave!

I'm thrilled to announce: I authored a four page article on #PatientsUseAI in Men's Health magazine, on newsstands now! It's GREAT to see patient empowerment in a well edited consumer magazine. Stories from the #PatientsUseAI Substack, and more! patientsuseai.substack.com/p/patientsus... #medsky

Great source of news and info. Give it a follow

Yet another powerful example of how people living with serious illnesses (the "heartbeat...of the cells they studied") can change the game in research and drug development www.nytimes.com/2024/12/22/h...

Hey #MedSky I'm amazed nobody's yet posted this excellent piece, which I just stumbled onto on some other platform. It's good! (Why isn't Becker's VP/Editorial Molly Gamble over here yet??) www.beckershospitalreview.com/hospital-man...

Such an honor to be part of your work this past year, @yuriquintana.com Thank you for the invitation, and here's hoping we can find a way to continue the collaboration in '25!

It has been a while since I’ve seen @erictopol.bsky.social so excited about a development in as in this podcast with @mcuban.bsky.social and rightfully so IMHO. Trump should hire him as his healthcare-tzar ;-) will save more than DOGE all together AND oppose DOGE without adverse “side effects“

A remarkable read- The family story of a carrier of the gene for frontotemporal dementia (FTD) is moving the field towards potential therapies

Hello mother? Hello father? In the first hour after an earthquake, who you call reveals something important about your social network ties. An earthquake is a natural experiment in stressing one's network. academic.oup.com/pnasnexus/ar... #HNL work from 2023 in @pnasnexus.org

Perplexity has reportedly closed a $500M funding round

It is uniquely a US problem.

My family had way better access to healthcare in Vadodara India than we have ever had in the United States. Health Insurance companies are a United States problem.

4 pm ET today - Gilles Frydman, Hugo Campos and me on @boltyboy.bsky.social 's THCB Gang livestream podcast. It will be HOT. open.substack.com/pub/patients... #MedSky @gracecordovano.bsky.social @rasushrestha.bsky.social #PatientsUseAI

Congress nears deal to rein in PBMs after years of debate www.statnews.com/2024/12/16/p... The policies in the package would put guardrails around how PBMs can operate.

If you want to understand why healthcare pricing is horrific, the first thing to know is that our system puts 100% of the credit risk for deductibles, copays and co-insurance on hospitals and doctors. That's insane. We have turned them into Sub Prime Lenders 🧵

More than 75 Nobel Prize winners have signed a letter urging senators not to confirm Robert F. Kennedy Jr., President-elect Donald J. Trump’s pick to lead the Department of Health and Human Services. www.nytimes.com/2024/12/09/h...

A smart colleague called me over to Xitter to see an excellent thread about #PatientsUseAI. Really good stuff - lots of thoughts. And then, as if by guarantee, in pops one of the resident demons I'd almost forgotten about. What a toilet.

Me! I'm going to be gross here: sometimes it feels like flipping up a toilet lid and discovering that somebody forgot to flush Sorry / not-sorry... ... but doesn't that match the kid's expression??

And here we bring you the latest about the genius who thinks he wants to fix US government spending. Or maybe he knows the truth, and he's just lying.

🔥 Embrace #BlueSky like Dr Eric Topol at #RSNA24! ☑️ Every medical conference speaker should have their @bsky.app handle (and not the other one) on their conference badge and talk/s! LET’S GO ALL-IN PEOPLE! @erictopol.bsky.social @rsnasky.bsky.social #MedSky #AcademicSky

The other day I realized that half of what I do on bluesky is repost Eric Topol. Then I realized, that's not without reason: this guy's feed is 2/3 of a "what you need to know today" curation! :-)

When Mark Cuban took Muskie-boi to school about the enormous structural problem of US healthcare's money tumor