Had a Dubai strawberry cup and oh my! It's delicious! Of course I am intolerant of chocolate and strawberries so I'm taking meds, but it was worth it. The pistachio cream and shredded phyllo dough are so yum. Highly recommend.

What?! Now there are leaf people across the street. This is hell. Have taken 3 meds and am wearing an ice hat. Hoping I don't need more meds.

I am so excited! I ordered Fattoush salad and falafel for tomorrow's dinner. I've never eaten from this restaurant but the reviews are good. Can't wait!

Oh dear. The leaf people are here. We have huge trees so it takes awhile. And inches deep of leaves, so no we can't leave them. So many blowers. 😭

Got an embr wave 2 and can't get it to Bluetooth pair with my phone. I'm so annoyed. I need a new phone anyways. Wondering if I'd have all these Bluetooth problems with an apple phone.

Can't wait until this week is over. Had appts 4 days.

Found out that on average people need 6 points of blood during those marathon surgeries I need on my spine. Average amount of blood total in a person is 8-12. Wish there was a way I could avoid this, but I don't see a way.

I need to have a myelogram where they inject dye into my spinal canal. I am worried about my head pain as this is a lumbar puncture. Anyone with chronic migraine have any advice, ideas, or info about their experience and maybe how to deal with the pain after? Just take all rescue meds? #MigraineChat

Met with the second option for a spine surgeon yesterday. He wants to do different stuff from the first. Cripes, being a civilian, I don't know which option is better. Putting off the decision until after some brutal testing. I'll meet with them again then.

The Diddy documentary is so much more disturbing than I imagined it would be. The Tupac and Biggie stuff is heartbreaking.

Related, if anybody has recs for really warm women's mittens, I'm in search of a pair for a Christmas gift. This person generally likes knitted ones but I'm not being picky at this point. Will be used for shoveling. I've looked at Etsy but most are one size and may run too small.

Horrific.

I grew some broccoli sprouts to put in my smoothie (only 1/4 c). They are disgusting by themselves but can't taste them in the smoothie.

Got my annual notice telling me how much my supplement premium increased. Holy moly, it's expensive.

For some persimmons at a good price from an international market. Never tried them before. Sadly, not a fan.

Wow! "Sketches in [Oprah's] possession revealed that she had reanimated Dr. Phil after exhuming the freshly buried remains of a deceased cutthroat and scoundrel, which she then combined with the rotting organs of a door-to-door Amway salesman, several telemarketers, and a disbarred attorney."

Every single day, I understand why Jesus flipped tables

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If you have Amazon prime, The Merchants of Joy is worth a watch! It's a documentary about families that sell Christmas trees in NYC. I didn't expect much but I was very pleasantly surprised.

So I have an idea for the AHS Headache & Migraine Competitive Grant Program. Any headache specialists want to talk? I'm not a member and can't afford to become one, even if I were eligible to apply.

Are you a #pwME / #pwLC / #NEISvoid, desire to be involved in advocacy or community in some capacity, but unsure how to get started or where to go? Please feel free to reach out / DM me anytime if applicable [asterisk being for US residents] #MillionsMissing #MyalgicEncephalomyelitis #LongCOVID

Livid. I had 5 moderate and 1 severe migraine attack in the last week. So I tried again to contact my Dr office. I asked for dexamethasone since Prednisone and methylprednisolone have not worked for years. They called in methylprednisolone.

#Migraine attacks that stary with an aura feel so different from my normal attacks. I like my regular pain better. Not used to this. 🤢

I can eat gingerbread. Did I tell you already? I love those little delicious people. Think I'm going to have to stockpile since I can't eat much chocolate.

Accurate.

Jfc I am having such a hard time coping with this slew of moderate and severe migraine days. I am so grumpy.

Healthy Person: Pain is only temporary, my dear Me, always in pain: Wow, truly inspiring, Susan.

this is for when you want to look like you did in that one weird dream

could really do without having to pay £340 between us to get vaccinated twice a year, that’s A LOT OF MONEY!! and despite having asthma, and getting the flu jab every year because of that, we have *never* been eligible for covid jabs for health reasons

this queen is a sexy artist and they are doing a giveaway today. only reason I am not entering is bc they already kindly offered to make me an updated avi for my new body AND my current one is by them as well!

I found out yesterday my C5-C7 have degenerative disc disease and are fusing together. Now I'm wondering how much of my head pain is caused by them.

Thinking I am going to sign up with Neura. My headache specialist here has terrible nurses. They often fail to respond to my mychart messages or calls. And when they do, they are submissive. It's weird cause the Dr is not like that, at all. And I'm in a dang flare and need help.

I hate the whole mental gymnastics I have to go through when my 23 yr old car needs a repair. Is it time to replace or no? I don't know!

Going to see Physician's Assistant of an impressive neurosurgeon today to interview them for my big spinal revision surgery. Keeping my fingers crossed. #Scoliosis #ScoliosisRevisionSurgery

Have my second appointment with the MCAS specialist today. I am so nervous. I feel like I've done so much work on medical trauma in therapy but I guess I have a lot more to do. I'm so scared of being told it's in my head or not getting anymore meds that have been helping me. ☹️

Great talk between Cannon Hodge (MigraineBabe) and Dr Lauritsen about allodynia and migraine. Included discussion on meds and neuromodulation devices that may help. #MigraineChat www.instagram.com/reel/DRQcZZa...

I can't begin to deal with that goth Beaker. 😂

My family member who is dealing with terrible depression got approved for Spravato!!! 🥳

It is so challenging getting things done when you feel like crap all the time. I really need to pick my car up today from the mechanic but lordy. 😭

My relative is going through a bad depressive episode. His psychiatrist is completely incompetent. Twice in one week the Dr told my relative to change his dosage on his meds. Both times the "new" dose is the dose my relative is already on. How does the Dr not know what he is prescribing?! 🤬