Random take: leggings should be considered reimbursable medical expenses for people with dysautonomia/POTS. See also compression socks.

Out today - our recommendations for Long COVID clinical trial design, focusing on currently available outcome measures: www.sciencedirect.com/science/arti... We make 5 overarching recommendations for Long COVID clinical trials: 1) thorough characterisation of baseline disease 1/3

I am speaking tomorrow at the 3rd Long COVID International Conference about models of care! What do you want researchers and clinicians to learn about models of care?

Super easy prevention: wear a mask. “Preventative action is urgently needed, otherwise there’s a risk that we set our young people onto a path of ill health through the rest of their lives. This would be a sad loss of potential for the individual and the economy.”

We have the evidence of the protective effects for neurodegenerative disease. It’s time to lower the age restrictions.

I truly wish I had the spoons for posting all the amazing content today about health systems and service delivery for LC at #LCWSymposium

Another day, another round of “I can’t believe this needs saying”: Observing a condition in clinic is *not* lived experience of that condition, and trying to claim it as such is an outrageous appropriation. Clinicians have no shortage of authority. Do not grab for the crumbs left to patients.

Dr. Yonkers: right now we’re in treatment of LC symptoms, which I have learned much from ME/CFS colleagues. #lcwsymposium #longcovidkids

Lael Yonkers from @mgbresearch.bsky.social on MIS-C in kids: 60% of children improve after 2 years, but there are still 40% of children whose symptoms do NOT improve. #LCWSymposium #longcovidkids

Dr. Yonkers: there is a better chance for a child to be diagnosed with Long COVID if they miss school or have a facility member. #lcwsymposium #longcovidkids

Day 2 of #LCWSymposium! First up: keynote from Lael Yonker, the Director of the COVID-19 Pediatric Biorepository at @mgbresearch.bsky.social and professor at @harvardmed.bsky.social

From Shlomit Rosenberg from @utoronto.ca on episodic disability research: spirituality was strongest association among energy restoration activities. Not necessarily religion or meditation, but connection to art and nature as well. #LCWSymposium

Important point by @kellyobrien25.bsky.social on LC research: just because something has not been measured does not mean that it is not important. #LCWSymposium

Excellent presentation on LISTEN trial by Prof. Monica Busse-Morris from @kingsnmpc.bsky.social. #LCWSymposium

Pleased to see Amy Proal from @polybiorf.bsky.social discuss viral persistence and the possibilities of biotech at #LCWSymposium.

Dr. Jane McKay from UBC Internal Medicine focused on patient-centered care, particularly in the exam room #lcwsymposium

I know two people who got long covid from infections during doctor appointments where they couldn't easily mask (an MRI and an ENT exam). this is a very real risk. And before anyone says anything - yes, there are MRI-safe respirators, most people don't know about them or have access to them.

Currently attending the 3rd Canadian Symposium on Long COVID! I’m excited to see so many colleagues focused on health systems and service delivery.

Canada: Saskatchewan reported 2 COVID deaths and 11 outbreaks in high-risk settings, including long-term care and group homes in past month. The province’s positivity rate is 7.9%, with Regina 13.8%, north central region 8.6%, and Saskatoon 7.8%. Source: archive.li/KKh5n

#NEISvoid inside baseball— The NIH team’s response to this (the Davenport et al comment) is awful. It’s here: www.nature.com/articles/s41... 1/

The last political column I was allowed to write in the @washingtonpost.com was a criticism of Obama. His people took issue with my piece, but we were respectful. Now he is tweeting in support of me. This is how free political speech and respect for debate *actually works*. Or used to work.

When I was placed on the Professor Watchlist in 2021, people sent death threats about my children. I had security officers monitor my 8yo at school. Where is all the outrage for those of us who have been targeted for years? Where is the outrage for our families? My own colleagues are silent.

📢 Our team at @thesicktimes.org is live blogging the NIH workshop on new Long COVID clinical trials. Follow along today and tomorrow! thesicktimes.org/2025/09/09/l...

You might be overdoing the Hamilton soundtrack when your find “looms large” in your draft while editing.

I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/

Walking through an old graveyard is a walk through public health history. Not only can you track life expectancy and disease patterns across generations, the cemeteries tell stories of (in)equity across gender, race, class, and wealth.

The health industry couldn’t persuade GOP lawmakers to oppose Medicaid cuts in President Trump’s tax and spending bill for many reasons. A big one: Congressional Republicans were more worried about angering Trump than a backlash from hospitals and low-income constituents back home. bit.ly/464IBPv

Pretty damning considering the JAMA piece last week that said Long COVID has surpassed asthma as the most prevalent chronic illness among children.

🚨NEWS🚨 Arts leaders sign letter decrying proposed changes to Access to Work "There is a clear need to reform Access to Work, but this must be based on constructively supporting Disabled people into meaningful work, not a cost-cutting exercise.” www.theguardian.com/world/2025/j...

Sad news from Ontario: "It is with deep sadness that I confirm that an infant, born prematurely and infected with measles, has tragically passed away in southwestern Ontario." -Dr. Kieren Moore, CMOH tinyurl.com/mckw73bu

Raise your hand if you finally submitted your dissertation IRB 🙋🏻‍♀️

"When a US Attorney wields the power of his office to target medical journals bc of their content & editorial processes, he isn't doing his job. He's abusing his authority to try to chill protected speech." #saveourscience This is such bullshit.

Translational research is essential if we want to build patient-centered, evidence-based clinical protocols. H/t @putrinolab.bsky.social

Lab tests!! There are lab tests published!! Perfect, ofc not. But imagine being able to go to your PCP with some kind of road map? Or at least with a place to begin??

2/ Common #LongCOVID symptoms span fatigue, dyspnea, brain fog, dysautonomia, pain & more. Don't overlook the differential diagnoses. This table helps clinicians consider what else might be happening as part of the long COVID. 🔍 Multisystem = multidisciplinary care.

I cannot begin to describe the value this could have for clinicians and patients. This could be a game changer for LC healthcare. Thank you to all the collaborators who worked on this guidance!! H/t @putrinolab.bsky.social

This is really important. Do NOT use the AI summaries at the top of google searches. Ignore them. This is especially important if you don't have any prior knowledge about the topic, but also a good general rule. Search sources, scrutinize them carefully and double-check with other sources.

Have you taken a JAK STAT inhibitor for Long COVID or ME? I'm working on a story about these drugs (baricitinib, abrocitinib, upadacitinib, and others) which are currently being investigated in clinical trials for the disease. Reach me at: [email protected] or dm for signal!

I'm writing someting short about #longcovid and the patient experience and would love to hear in my DMs or replies from anyone who wants to share whatever they think is most important for me to hear. 💙

This story is horrific and terrifying. Then, near the end, this: "The reality became clear: Ice detention isn’t just a bureaucratic nightmare. It’s a business. These facilities are privately owned and run for profit." www.theguardian.com/us-news/2025...

This statement alone about The Regime announcing a $500 Billion initiative for AI to cure cancer is revealing: “Patients would undergo blood tests and AI would be used to find cancer”. This is very similar to what Theranos said they could do and now its founder is in jail for 11 years for fraud.

You can no longer order free COVID tests from the government. Despite still having $500 million worth of COVID tests stockpiled, covidtests.gov is closed.

As we discuss the impact of COVID-19 five years later, I am continuously disappointed by public health leaders.

If public health is going to abandon COVID-19 risk mitigation and prevention, the absolute least we can do is amplify information about Long COVID. #LongCOVIDAwarenessDay is March 15.

Incredible.

ALERT: US government is planning to take down the free COVID tests site tonight! Order now! covidtests.gov And the US government is looking into destroying $500 million in stockpiled COVID tests! They should NOT destroy these tests! wapo.st/42VLGQh

Her story has shaken up metro Detroit. It's very cold up here and she didn't get the help she needed even after calling the city and multiple agencies. She, her mom, and her kids slept in a van. Ran out of gas. Her 9 year old & 2 year old died from hypothermia. I can't stop thinking about her. 💔

Well what do you know? The Regime has just admitted that they must in fact follow a judge’s court order and release NIH funds to grantees. Thanks to @pinktweets.bsky.social for alerting me. popular.info/p/breaking-n...

Who else is teaching their therapist how indirects work this week? 🙋🏻‍♀️

The silence is deafening.