Far too often, people with MCS are dismissed by clinicians and researchers. We have a lot of knowledge — and this must be acknowledged. Check out The Chemical Sensitivity Podcast with Aaron Goodman and guest @megancmoodie.bsky.social

• dismissal + psychologization
 • lived experience as knowledge
 • researcher–community collaboration Listen:
www.chemicalsensitivitypodcast.org/1970633/epis... Watch on YouTube: youtu.be/k4aNnImGMd4 #MCS #multiplechemicalsensitivity #chemicalsensitivitypodcast

Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...

Heading to #NoKings in San Francisco today? I'm helping a researcher conduct a 20-city academic survey of protesters. I'll be at Civic Center 12–3pm. Looking for a few volunteers. No experience needed, stay as little or as long as you like. DM me if interested!

So I never posted this here, but in December, a wild thing happened with a small bit of patient activism I’d been working on for years. You can read about it here: open.substack.com/pub/meganmoo...

Tension explores how rapid development in the Western Himalayas affects the minds and bodies of the Gaddi people through the multifaceted state of distress they call “tension.” 🗓️ 19th March 2026 🔗 buff.ly/EGRuIBP 📍SOAS University of London @soasuni.bsky.social @dukepress.bsky.social

In comments of the quoted thread, @fractalecho.bsky.social says: "In my book I call this the Disability Diversion where all criticism of techno fascism is deflected with appeals to technosaviorism." "Disabling Intelligences: Legacies of Eugenics and How We are Wrong about AI" by Rua M. Williams

Masterful Troll, TCM.

Official pub day is tomorrow!! (But I know folks have already received copies). @briwok.bsky.social & I have some book events in the pipeline, so watch this space. #GraphicMedicine

When I saw pictures of Liam Ramos with his Spidey backpack and bunny hat, I felt an overwhelming responsibility as someone who works in superhero comics. Please do check out the art in #Comics4Liam and visit comics4liam.com to support Liam and groups helping other immigrants like him. ❤️💪🐇

If you are in Seattle, please go patronize this store because this is amazing content/promo 😂 (laughing to keep from crying, and I do kind of low-key want that orange spider plant I have never seen that before) Source: www.instagram.com/reel/DTQrTqZ...

Essential context for what is happening in Portland and Trump's declaration of war against us. Note that it's *local law enforcement* accusing the feds of incitement.

This is literally what the actual "siege" of the auxiliary ICE building looks like

🐌📖🎊🥳 I’m thrilled my piece, Snail’s Pace: The Art of Cripping Time is featured in THE PEOPLE’S PROJECT, is available now! Edited by @theferocity.bsky.social & @maggiesmithpoet.bsky.social, this anthology is filled with art, poems, and essays by so many amazing writers! bookshop.org/p/books/the-...

Join us for a call party to contact our elected officials about upcoming telehealth legislation on September 17th at 12 pm PT/3 pm ET. Please feel free to invite friends and allies! RSVP here: ow.ly/6Gnw50WNS1E #pwME #disability #Telehealth #MECFS #LongCovid

It’s up to the discretion of RFK Jr to define what ”medically frail” is when it comes to potential Medicaid work requirement exemptions—which may play a huge role in deciding which chronically ill and disabled people could qualify. My latest for @motherjones.com. www.motherjones.com/politics/202...

Coming October 2025... A labor of love, and in exquisite company. The Annual Review of Anthropology this year is gonna be a banger.

I am so proud I can hardly stand it: www.comstocksmag.com/article/youn...

All new guest essay for the Disability Visibility Project by Leah Harris and Liat Ben-Moshe: Unmasking Mask Hate: The Racial-Criminal Pathologization of Dissent disabilityvisibilityproject.com/2025/07/13/u...

If you want to read about the legal structure (i.e. lack of consumer protection) that puts people at the mercy of this perfunctory, dangerous theater of expertise, some colleagues and I wrote this a few years ago. Based in first-hand knowledge: ceur-ws.org/Vol-2657/pap... ceur-ws.org/Vol-2657/pap...

A U.S. surgeon trying to have a “peer to peer” consultation with a doctor at a health insurance company who is hiding his identity as her patient gets denied coverage. And it gets worse from there. You have to see it to believe it. (1/2)

In 2013, the Obama administration introduced a goal for federal contractors to work towards having 7 percent disabled employees. Now, as I reported for @motherjones.com, the Trump administration is working to undo this. www.motherjones.com/politics/202...

Can confirm from personal experience that ableism is also rife for disabled pregnant people in UK

More about the film here roxie.com/film/life-af...

Bay Area folks, I'm going to be moderating a panel on August 10 for the documentary film "Life After," which explores how "right to die" can be very ableist. The great @sfdirewolf.bsky.social will be on the panel with director Reid Davenport. Tickets here ticketing.uswest.veezi.com/purchase/185...

I've previously written about the harms of mask ban, and we'd very much like to do a scene report featuring people who are masking in a place with a mask ban! We can discuss ID (potential for first name only). Pls repost!!!

If you didn’t read this yesterday, you darn sure should today.

Trump’s views on disability fits disturbingly well to the social Darwinist and eugenicist tendencies in the MAHA movement.

Calling this “shocking” says a lot. Not news, Psychology Today. We’ve known this, ask any support group.

Beautifully argued and researched, Violet Affleck. A+ from this disabled professor! yaleglobalhealthreview.com/2025/05/18/a...

Dude, I just cannot listen to WH spokeswoman Barbie anymore. It's like they took the meanest mean girl from high school, slapped her in an Emily Gilmore suit and told her to see if she could break the world record for smug. 🤮

My interview with Anne Ursu is up on Lit Hub!

If your literary organization lost an NEA grant this week, I'd like to hear from you for a story I'm writing for the LARB. DMs are open, email is [email protected].

Oh yeah nice one kid hook that hope for humanity right into my veins

Pope Francis’ Popemobile, “the very vehicle from which he waved and was close to millions of faithful all around the world, is being transformed into a mobile health unit for the children of Gaza.” www.vaticannews.va/en/pope/news...

Theories as to why 47 has chosen DOLLS as the thing that all us poor folks need to reign in our spending on, the thing he’s getting all fake-moral “rational dad” about in these inane interviews where he sounds like a car salesman who huffed rug cleaner? I have mine but want to hear others. GO!

Glad this research is being published and with all due respect, a lot of us having a mental convo with researchers that goes “Ya, no duh. We’ve been saying this about LC since 2020 and the other conditions for a lot longer…” Onward. www.sciencedirect.com/science/arti...

"This also raises the question of a possible shared pathophysiology in myalgic encephalomyelitis/chronic fatigue syndrome, postural tachycardia syndrome, hypermobile Ehlers-Danlos syndrome, & #hypermobility spectrum disorders with LC." www.sciencedirect.com/science/arti... #EDS #Disability #CripCoop

Scoop: Democrats have introduced an official inquiry into the decision to closure of the Administration for Community Living, which helps disabled and aging adults remain independent. New from me at @motherjones.com. www.motherjones.com/politics/202...

Pope Francis telephoned a church in Gaza nearly every night since October 2023. But the New York Times didn’t include that fact in its obituary. mondoweiss.net/2025/04/main... #Palestine #Israel

For the fatherhood medal you need to either have five children with three wives or a legion with a mysterious number of surrogates.

RFK Jr. says there are no autistic poets, so we interviewed one. Hear from Elizabeth McClellan, @popelizbet.bsky.social, an award-winning poet, attorney, and legal educator based in Memphis, Tennessee.

To RFK, from all of us: "We stand absolutely as one with this degenerate art. In it reside all the hopes of the future." "Long Live Degerate Art," Art and Liberty Group, Cairo, 1938. Also, f*ck you.

Save 30% on #NewBook "Care at the End of the World" by Jina B. Kim, which develops what she calls crip-of-color critique, bringing a #disabilitystudies lens to bear on literature in the aftermath of 1996 US welfare reform and the subsequent evisceration of social safety nets. buff.ly/hr1teOD

NEW: Of the 7,837 disputed procedures in the lawsuit, involving 1,680 patients, Blue Cross paid this breast cancer center about 9 cents on the dollar, paying $43M on invoices totaling $500M. Some 60% of the claims weren’t reimbursed at all.

Insurers’ denial rates are a critical measure of how reliably they pay for customers’ care. But they remain mostly secret to the public. Federal and state regulators have done little to change that. (Published 2023 w/ @capitolforum.bsky.social)