Fliip through to pages 14 & 15. I am in the annual reports of Housing First who manage where I live. www.housingfirst.org.au/flipbook2025

I am finally out qnd back in my own room. Nerve block didn't work, but pain not too bad after a heap of drugs, no idea what. Bit dopey, just letting you know I survived! 🤣 There is a plaster cast under the bandage.

#thyroid #Thyroxine 🩺 Stumbled across a change to dairy rules. CHECK WITH YOUR DOCTOR for you! "After thyroxine administration, only 30–60 minutes delay is needed before eating anything (including dairy products), whereas a two-hour delay is required before taking calcium-containing supplements"

Ankle Fusion No. 2 🧵! I'll add as I go. I'm almost packed! Still have to pack up my laptop & collect my knee scooter in the morning before heading to the hospital, but on target. Bought kitchen tidy bags & waterproof tape this morning to be able to "bag" the cast for showers when I get home.

This will be my last steps achieved 4 weeks (daily goal is 7,500, my daily average was 7,924) for about 3 months. 😢😢 See quoted post below for why! My right ankle is going to look like the RH pic for way too long for my liking! Love the end result, hate the recovery period. 🥴

⚠️ Mild COVID, lasting damage: Long COVID w/ cognitive symptoms shows brain atrophy, iron buildup, CSF barrier changes, and injury markers (↑GFAP/NfL)—confirmed twice. Protect your brain. www.nature.com/articles/s41... #LongCOVID #BlueSky #MedSky #NewsSky #IDSky #SciSky #NurseSky #PedsSky #IMSky

From NCNED in Australia: Altered brain tissue microstructure and neurochemical profiles in long COVID and recovered COVID-19 individuals: A multimodal MRI study Free fulltext: www.sciencedirect.com/science/arti... #LongCovid #COVIDBrain #NeuroPASC

🧵 1. #ChronicIllness #Disability #InvisibleIllness #Health Australia Suggest we all keep an eye on developments here. Without the safety net, many of us coud not afford specialists. We need to be ready to raise our concerns if necessary. Australian ... Abbott-era #Medicare safety net ‘explodes’

"In the five years I’ve had my conditions, I’ve been asked MANY times about my #PainLevels. About my mobility. I do not recall EVER being asked about fatigue or #CognitiveImpairment.": buff.ly/ewwhVRd by @limberation.com #disability #ChronicIllness #BrainFog

This getting prepared for surgery thing is time consuming! Knee scooter: suitable size finally found, booked, paid hire, collect on way to hospital. Weights bought so I can maintain upper body in hospital gym & home post-op. Program for 12 weeks designed with exercise physiologist today. (1/3)

I recommend everyone watch out for their B6 intake. I discovered mine is higher than I'd like. B6 gets added into things we don't expect. Bit scary, actually. #health #ChronicIllness #disability TGA says some vitamin B6 to be removed, prescriptions needed [depending on mg/d] after toxicity cases

🧵 1. I am nothing if not stubborn. After a lifetime of officework (e.g. sitting!), my piriformis muscles give me a bit of grief periodically. So I have a stretch routine. Per below video. I noticed my left leg is a nice 90⁰, but my right is not. So I whinged to my myotherapist.

🧵 1 I think a few Australian #chronicillness people will have experiences similar. The "I" below is not me, jftr! #health #Medicare I just paid $870 in medical bills (after Medicare) in six weeks. My faith in Australia’s public health is crushed

Good article. 🧵 1. How my on-air 'brain fog' moment sparked a big debate #ChronicIllness

Australians with disability tell their stories for International Day of People with Disability 2025

I have had a day. Did my laundry, walked with my neighbour, all good. Despite a bit of back & glute pain, I went to gym, then quick lunch with a friend then to GP. By now my pain had ⬆️ & sitting driving was not helping. Drive to pharmacy to fill pain med script. They didn't have it in stock. 🙄 🧵1

#ChronicIllness #Surgery With ankle surgety looming, I'm gearing myself up for maintaining #MovementAsMedicine at home for the recovery duration.

“A Victorian inquiry has found a dismissive and disrespectful health care system built around "Caucasian male biology" is contributing to poorer outcomes for women and girls.”

"When I mention [ #BrainFog] as a #symptom, I want to see the reaction I got from my gastroenterologist – acknowledgement that this IS A SERIOUS ISSUE. Let’s have a serious name for it.": buff.ly/2SnWhXi via @limberation.com #awareness #ChronicFatigue #InvisibleIllness

Women's pain inquiry finds Victorians' suffering worsened by male-centred healthcare system

@dragonslayer5.bsky.social thank you for the repost Danny. 🙂

Just been diagnosed with a chronic illness? I'm about to start my 12th year. This is what I found. Note: this will not apply to all chronic illnesses. #ChronicIllness Accept The Project.

More and more Neuroscience shows that building muscle makes your brain more resilient to adversity by improving its ability to handle stress. I decided to experiment on myself. 3 months of strength training 3-4 per week. Daily 2g of protein/kg and 10g of creatine. Never felt better 💪

There is SO MUCH scientific evidence that muscle growth profoundly affects brain health. I could not ignore it anymore. There is no age to start. Especially for women — ladies, hear me out — strength training is one of the best investments we can make to improve our cognition🧠

I am featured in Musculoskeletal Health Australia's newsletter! Discovering the Power of Movement #ChronicIllness #Arthritis #Disability #MusculoskeletalConditions

This is a real issue. I tripped on pavement in disrepair. I didn't break anything, but I have great bone density. Anyone with, say, osteoporosis would not have been so lucky. Cash-strapped councils let footpaths fall into disrepair, creating accessibility problems for people with #disability 🧵 1/2

I'm not sure if this is #aging, medications or #ChronicIllness, but I keep forgetting to do simple little things. In the last 12 hours, for example, I forgot: To put the yoghurt in the fridge at 12 hour mark Change HRT patch before bed Charge watch this morning (Cont)

This is how normalisation works — silence and denial. Simply stop acknowledging that COVID exists. Parents deserve to know when a contagious virus that can cause long-term harm is spreading in classrooms. #COVIDisNotOVER #LongCOVID #COVIDisAirborne #CleanAir #MaskUp Source: x.com/chaitrovert/...

Did you know that Emerge Australia has a range of position statements on critical matters that relate to various issues surrounding #MECFS and #longCOVID in Australia? You can find our more here: zurl.co/ms4si#MECFS#longCOVID#myalgicencephalomyelitis #chronicfatiguesyndrome

Dr. Tim Cook is an Internal Medicine Specialist who has spent decades helping patients with complex illnesses. He worked abroad with the Canadian Armed Forces and he has been the physician for multiple officials at Rideau Hall. #cdnhealth #Lyme www.lookingatlyme.ca/2025/10/tim-...

#MichaelJFox is an incredible human being, regardless of how good of an actor he is. #ParkinsonsDisease has ravaged his body, but his spirit & will to live never seems to dim. Compared to all the vanity that possesses everything and everyone in #Hollywood, his life story is one of real humanity.

I am featured in Musculoskeletal Health Australia's newsletter! Discovering the Power of Movement #ChronicIllness #Arthritis #Disability #MusculoskeletalConditions

I saw his video last night. It was very good. Glad there is media coverage. Advocate lodges complaint after accessibility issues at Disability Minister Mark Butler's office #Disability #ChronicIllness

While I'm not young, I understand this predicament. It is somewhat similar to the issues I outline in my Invisible Illness article (post below). "I may have arthritis, but I am not old," says Dayna, who is now 20. Young people with #ChronicPain feel 'unheard', misunderstood #ChronicIllness

Given my looming ankle surgery, I need to buy some dumbbells for home, given there'll be no gym for weeks. Looking at these. Didn't realise dumbbells were so expensive! www.rebelsport.com.au/p/celsius-20...

I'm going to brag a little bit. Look what I've managed to do, despite my chronic conditions, multiple ortho surgeries etc etc! Not sure I'll get to the target, my looming ankle fusion has a long recovery so my fitness will drop while I do the recovery thing. Even so, I'm pleased. #ChronicIllness

Once again Rolling Stone knocks it out of the park with Covid coverage. Long Covid is real and it is a serious threat to our long term health. It’s already surpassed asthma as the most common chronic illness in kids. Yet tons of doctors and schools won’t even recognize it:

Clean the air in daycare and schools. #SaferAir #KidsHealth #longCOVIDkids

Next weekend, some guy I'm often mistaken for willl be doing the 28km 7 Bridges Walk to help raise funds to assist with Cancer research. I'm supporting him -- and you should too! #Cancer #Australia #Charity www.7bridgeswalk.com.au/fundraisers/...

Today is World Mental Health Day 💚 A gentle reminder that it’s okay to not be okay. Take a moment for yourself, reach out to others, and remember – you’re not alone. #WorldMentalHealthDay #ItsOkayToNotBeOkay #MentalHealthMatters

A study of 74,738 COVID cases and 18,790 influenza cases found that COVID patients had a higher risk of severe long COVID within 6 months. Within 30 days, 826 COVID patients vs 89 flu patients died; within 90 days, 1,391 COVID patients vs 149 flu patients died, showing worse outcomes for COVID-19.

Want to feel calmer? How 20 minutes outside will help #health

World Arthritis Day 2025: #RMDreams World Arthritis Day (WAD) is a global awareness day aimed towards increasing knowledge of the existence and impact of rheumatic and musculoskeletal diseases (RMDs) among all audiences. Over 120 million Europeans live with RMDs. #arthritis #ChronicIllness

Studies show vaping raises the number of ACE2 receptors: the doorway COVID-19 uses to attack. That means higher risk and slower recovery.

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

Increased Risk of #Autoimmune Inflammatory #Arthritis After Acute #Lyme Disease www.hopkinslyme.org/research/est...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome. "Research could offer hope for ME patients – but some experts urge caution and say more studies needed." www.theguardian.com/society/2025...

As someone with autoimmune issues, I support this choice!

FINALLY getting there! This is my first FULL week (7 days) of reaching or exceeding my daily step goal after getting discharged from hospital on August 13 (see post below for details - atypical pneumonia). I've been concentrating on recovery, not writing. 🤗

“It seems to think that #disabled means lesser and that #healthy people stay healthy forever. In other words, #society is rather stupid. So why do we even listen to that crap?”: buff.ly/NvAW51y by @brainlessblogger.bsky.social #ChronicIllness #disability