“Pain and illness often confine me behind the same four walls, with scenery that never changes. But #books offer a window offering views of worlds and places, both real and imagined.” https://buff.ly/3MzdgZQ @serenebutterfly #chronicpain #chronicillness #booksky

“Chronic pain is very different because It. Never. Ends. We never get a chance to be in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like/ #ChronicPain

To every warrior in our community, #HappyNewYear and #ThankYou so much for your support in 2025, so grateful 💖 the Great CRPS Flare of ‘25 tried its best to hamper things but today is a whole new year & I hope a kinder one for all of us. 💖 Wishing you peace, renewed strength & a #HappyNewYear2026!

“Some of my moments are so full of pain that I long for those to pass. The moments when I can do a little bit more… I plan to live—within my limitations and enjoy what I can, when I can—nothing in concrete.” https://themighty.com/topic/rare-disease/new-year-chronic-illness-rare-disease-making-plans

“To anyone who’s sick or otherwise, and feels like today is not a good day. Who is feeling beaten, broken, sore, down or defeated… Hang in there. I and many others are thinking of you, rooting for you and wishing you well.” https://buff.ly/3Zbvl6i @AChVoice #MentalHealthMatters

“It’s hard because it feels like your fault—but it’s not… Being sick is not your fault…it isn’t you who decided not to go, it’s your #chronicillness …and you let your friends know that as soon as you could.” https://themighty.com/topic/chronic-fatigue-syndrome/canceling-plans-chronic-illness/

“One day I am fully capable of a task while the next, I struggle with generally simple things like brushing my teeth or getting dressed… Your abilities change dramatically from one day to the next.” https://www.themuse.com/advice/working-living-with-a-chronic-illness #ChronicIllness #DisabilitySky

“There was no reason they had to take medication so there’s no reason you need to either—these people do not understand the extent of your #chronicpain… The pill shaming that‘s happening to people w/ #chronicillness and #mentalhealth concerns is not OK.” https://buff.ly/2zq8lFu

“When you struggle with #fatigue, everything is a mountain… Fatigue, unlike tiredness, can be debilitating. To most, these differences aren’t very important but to your #chronicallyill friends, they are massively contrasting words.” https://buff.ly/gWKc0PD%20 #chronicpain #spoonie

“Healthy people don’t understand that #chronicillness and pain is not linear… the consequences don’t always match the actions. We have no idea if what we choose to do now will mean that we can’t move tomorrow.” https://buff.ly/2NAyL12 #ChronicPain #DisabilitySky

“Be kind to yourself! Start small… listen to your mind and body, don’t push things that aren’t ready to be pushed, or if you do push and your body shouts ‘no!’ then step back a little and reformulate.” https://themighty.com/topic/chronic-illness/chronic-illness-acceptance-importance #ChronicIllness

“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #ChronicPain unless you have it, and understanding what it’s like… dramatically affects how you treat someone who lives with it.” https://buff.ly/ZVh1ubc @kmitchellauthor.bsky #ChronicIllness

“I’m pretty stubborn, so I’ve managed to do a lot of things while in extreme pain. But when pain gets to this level, no amount of stubbornness can make it achievable… They don’t realize that it’s actually not a choice… It’s just impossible.” https://cme.sh/chronic-care #ChronicPain

“We may not be able to control the wind, but we can adjust our sails. We may not be able to control or change our circumstances, but we can control how we react and respond to them… You are more resilient than you know.” https://buff.ly/3woQJIt #mentalhealthmatters #chronicpain

Wishing you all a #MerryChristmas, a miraculously low pain one too, with unexpected giggles, spoons and joy. Even if you’re alone today and the pain far too fierce, know that no matter hard it gets—and no matter how much it can feel so—you are never alone in this. ♥️ #GentleHugs

“My final #Christmas wish is for no one to ever have to deal with #chronicillness… But until then, I wish each and every one of you the gift of being seen. Seen for what you are, for who you are and for all of your extraordinary strength. I see you.” https://buff.ly/43CyVej

“Don’t shoulder all the #stress by yourself…the emotional roller coaster of having a #chronicillness makes it necessary to have someone you trust to vent and talk to. Keeping everything inside will only make you feel more stressed.” https://strengthandsunshine.com/remove-extra-stress-chronic-illness

“With #TrigeminalNeuralgia…it’s essential to cover up as even the slightest breeze can make the pain worse… Once my hands & feet start turning into ice blocks w/ #Raynauds that’s when the real battle begins.” https://despitepain.com/2025/12/05/stay-warm-with-chronic-pain-winter-woollies-toasty-toes/

“It’s silly. I know it is. But, I feel like a failure… Writing this isn’t going to offer me or you any help, other than to know #YouAreNotAlone. If you’re struggling and your health is taking all of your available energy, just know I’m sitting here too.” https://buff.ly/IqTbDvn #ChronicPain #Spoonie

“However I try to explain it, I don’t think anyone who hasn’t experienced it can possibly understand…there are layers and layers of pain, and some days, it’s very hard to keep going.” cme.sh/737eQL #ChronicPain #RareDisease

“If you love someone with #chronicillness, please continue loving them through this…the littlest thing will make our day… If you live with chronic illness… You are worth it. You matter. Every. Day.” https://themighty.com/topic/chronic-illness/what-to-say-and-not-say-to-someone-with-a-chronic-illness

“If you handle it well, they tend to forget that you’re handling it at all… doesn’t mean that I’m okay… I still have to deal with my illnesses [&] handle everything… I still have way too many medical appointments and way too much #pain.” https://buff.ly/4eCu91w #chronicillness

“I wish you would learn about my diseases and illnesses, and understand they aren’t going to go away. I’m not going to ‘get better.’ I can only handle my illnesses as best I can.” 20 Things People With #ChronicIllness Want to Tell Their Friends, but Don't https://buff.ly/w6GLvPR #ChronicPain

“Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up… And if all else fails? Cancel everything…and give yourself the grace to rest. That too is part of the plan.” https://buff.ly/7VnekDM #ChronicPain #ChronicIllness #Spoonie

“Every holiday I was bedridden… For people with #disabilities… it is a lot more complicated with #chronicillness during this time of the year… I wish everyone a happy and safe #HolidaySeason… we are in this together.” https://buff.ly/40skpmP #ChronicallyIll #ChronicPain #DisabilitySky

“Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up… And if all else fails? Cancel everything…and give yourself the grace to rest. That too is part of the plan.” https://buff.ly/7VnekDM #ChronicPain #DisabilitySky

“My body has broken down with this pain. I’m exhausted… It’s resulted in the inability to use even my hands. But sometimes pain isn’t the worst part…the thing that hurts the most? Missing out, the lost memories—because of the pain.” https://buff.ly/3YS1lMS

“Many people living with #ChronicPain, #CRPS or #ChronicIllness will push themselves on those 'good days', so you try and catch up… before your #pain becomes too much… One productive day could result in the next day or more, laying in bed.” https://buff.ly/3Oq2pCK

“How exhausting being in constant pain is, and how frustrating it is to be limited physically when there is so much more that I would like to do.” 18 Hidden Parts of #ChronicIllness You Don't Usually See buff.ly/2MXjCSH #ChronicPain #DisabilitySky

“Most people start the day with possibilities, and energy to do whatever they desire, especially young people… Every little thing I do as a person with #chronicillness(es) and #chronicpain requires energy (especially because #fatigue is a symptom).” https://buff.ly/48SlOFX #DisabilitySky

“When I think of the “busy” that I miss in my life—it’s the feeling after busy. Of getting home and plopping onto the couch because I’m tired from activity and interaction, not because of a full day of physical pain and #fatigue.” https://buff.ly/4ej7do5 #ChronicPain #ChronicallyIll

“It's the reality when people cannot see your pain or the other #symptoms accompanying #chronicillness. They assume it doesn't exist or that you're exaggerating it to be much worse than it is.” https://www.brainlesionandme.com/why-im-not-faking-being-sick-im-faking-being-well/ @serenebutterfly.bsky

“When you have #ChronicPain there’s no finish line… Trying to push through the pain will just make things worse… Pushing through pain for a few days knowing that it will get better is very different than every day for years.” https://cme.sh/cuisinE/ #InvisibleIllness #Spoonie

“We never know what someone else is going through just by looking at them. And we certainly have no idea what #patients are going through. ‘Sick’ doesn’t have a look—many of us are stronger than you’ll ever understand.” https://cme.sh/5pK3HT @carriekellenberger #AxSpa #ChronicIllness #ChronicPain

“Because I’m too stubborn to tell my friends that I need a day to recover. Because I’m too stubborn to admit that sometimes, my pain is greater than I am.” https://themighty.com/topic/reflex-sympathetic-dystrophy-syndrome/when-i-cant-ignore-the-pain-of-reflex-sympathetic-dystrophy #CRPS #ChronicPain

“Working when I shouldn’t or working way over my limits for too long. Then I burnout. And keep working. Then things get seriously bad health-wise… There is immense frustration from the unpredictability.” https://chronicallynikki.com/2025/11/08/downturns-with-chronic-illness/ #ChronicIllness #Spoonie

“People with #chronicillness often don’t tell people when they are struggling… Many times, you might notice they disappear for a time. This is often when they are trying to manage their symptoms and are too sick to do much else.” https://cme.sh/information/ #ChronicPain

“#ChronicPain is still poorly understood, and most physicians aren’t trained in managing it clinically… Another concern is that the medical profession often fails to acknowledge the emotional aspects of pain or even the effects pain has on daily living.” https://cme.sh/6MbjMe #InvisibleIllness

“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” https://buff.ly/2JEis0g #ChronicPain #ChronicIllness

“I struggle a lot with accepting my life the way it is now. I had to give up lifelong dreams and accept the fact that my body is not capable of doing the things I love to do… I struggle with accepting the lack of control.” https://buff.ly/38xVMgh #ChronicIllness #DisabilitySky

“It’s tempting to pretend that I’m as healthy as can be, but when I ignore my limitations—by staying out too long or by insisting on engaging in activities that are beyond my energetic abilities—I land in bed for days.” https://buff.ly/Tb49tU2 #ChronicPain #ChronicIllness

“Trying to sleep with an invisible force randomly burning, punching, stabbing and sticking you with needles all night while also turning the thermostat back and forth between extremes.” What Life Feels Like With #ChronicIllness: https://cme.sh/rationale #Painsomnia #ChronicPain

“You may be exhausted and fragile right now… the pain might be pushing you over the edge of what you can bear… but somehow you have risen to meet every day before this… You have overcome so many impossible days. Just get through this day.” https://buff.ly/2OMnXsf #ChronicPain #ChronicallyIll

“I do not hide my #chronicillness, but I do hide how it has made me feel emotionally. I’ve cried a lot of tears behind closed doors. I keep the info I share basic because I do not want to be seen as an attention-seeker.” https://themighty.com/topic/chronic-illness/hiding-chronic-illness-symptoms

“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself compassion—I am doing my absolute best—and that is OK.” https://buff.ly/2yHONMo #DisabilitySky

“There are no magic words, and unless you are living with #ChronicPain, it’s difficult to understand what we are going through. ”This must be so difficult for you.” Comments like this show support without pretending you know how we feel.” https://buff.ly/2MZaEoa #chronicillness #spooniesky

“Don't get me wrong, I’m all for thinking positively. I practice it every day. It has made a huge difference in my life. But the idea that people who can’t move out of #chronicpain have somehow failed has to go.” Being in Pain Does Not Make You a 'Failure' https://buff.ly/2UvwXsu

"The tricky thing about chronic Illnesses are how individualistic they are. Even people suffering from the same illness can present vastly different symptoms… triggers vary… so do coping strategies.” https://buff.ly/2WuDKQF @achronicvoice.com #chronicillness #chronicpain

“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” https://buff.ly/2JEis0g #ChronicIllness #DisabilitySky

“Guilt is a common reaction to cancelling—but it’s important to remind yourself that it isn’t your fault. You are doing the best you can… Your #chronicillness isn’t a flaw or failure… Release yourself from any expectation of what you ‘should’ be doing.” https://buff.ly/4R793wX #DisabilitySky