“I may have a few months [or] weeks, where I’m physically able to reach ‘new normals’ of increased function… despite incredible #pain… Then you barely heard from me for a few weeks and it seemed I fell off the face of the planet. Truth is…I did.” https://cme.sh/IA7u67 #NERVEmber #CRPSAwarenessMonth

“The other unfortunate side effect of being #paingry is that is leads to #painsomnia… Many of us have nights like this and don’t say a word… It is 3 a.m, I’m awake and I’m in pain…the absurd thing is I am exhausted. I want to sleep.” https://buff.ly/3NjgxLI #ChronicPain

“Have you ever been stuck in bed for a few days from a really bad infection or surgery? You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months then years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie

“It is not about numbing or ignoring your emotions, but rather observing them without judgement… Seeing them as clouds passing on a sunny day, instead of letting them crowd your mind and take your attention.” https://www.bloomingmindfulness.co.uk/mindfully-coping-with-grief #MentalHealthMatters

“#CRPS—a fine line exists between pushing past breaking point—between the freedom of mobility & reality that I could send myself into a downward spiral/flare that lasts days/weeks/months.” https://cme.sh/culturE #NERVEmber #CRPSorangeday #CRPS #CRPSAwarenessMonth

“A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety Through the Prism of #ChronicIllness https://buff.ly/7tDtXVZ @serenebutterfly.bsky.social #FND

“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber

“Don’t tell your friend that you know how it feels to be living in #ChronicPain. Suffering from the flu, a broken leg, or dealing with a bad back don’t compare to what [they’re] going through. In fact, your friend might be feeling like she has all three.” https://buff.ly/xYLu5qd #NERVEmber

“Rare patients don’t expect you to know everything but they do expect you to #bekind and helpful… Listen to the patient! We know our condition better than most doctors… You don’t have to hide that you’ve never dealt with it.” https://buff.ly/URxX8XI #NERVEmber #RareDisease #CRPSawarenessmonth #Zebra

“When people allow you to know about their pain and talk about it, take your shoes off. It’s a holy place. Be humble, be kind when someone shows you vulnerability.” - Amani Albair #ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0

“Photos on Facebook show my life for what it is: inconsistent. Some days I am in my wheelchair and some without a mobility aid… When you do have good days, you take advantage of them.” https://themighty.com/topic/chronic-illness/judged-for-being-sick-facebook-social-media/ #Disability #ChronicPain

“You may be feeling [relatively] okay, when suddenly a blitzkrieg of pain invades. You have no control or defense, and have no choice but to wait it out, cowering under the covers waiting for it to pass.” https://www.painnewsnetwork.org/stories/2025/6/19/a-pained-life-stop-torturing-us #ChronicPain

“Chronic pain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicPain #FreezingFire

“Remember #YouAreNotAlone there's a whole community here you can come to… Keep doing whatever helps… We have to take care of ourselves or wind up even worse. Don’t feel guilty for doing what you need to.” https://themighty.com/topic/chronic-pain/advice-support-chronic-pain-want-to-give-up/

“I’m astonished by the fact that I look at my feet and there are no flames… Not only does touch hurt but so do other things… vibrations from music hurt me… it becomes very hard.” https://themighty.com/topic/reflex-sympathetic-dystrophy-syndrome/crps-flare-ups/ #NERVEmber #CRPS #CRPSAwarenessMonth

“There is so much that you just don’t see. So much that we hide because we don’t want to scare you…because we don’t want to have to worry about you worrying about us.” https://invisibleillnessbattle.wordpress.com/2015/04/20/what-does-it-mean-to-live/ #chronicillness #raredisease #chronicpain

“Don’t let anyone, even the doctor tell you what you feel. You know what you feel.” 10 Things I Wish I Had Known About #CRPS/RSD When I Was First Diagnosed https://buff.ly/6cOGvHa https://buff.ly/2yBH30C #NERVEmber #CRPSAwarenessMonth #ChronicPain

“A drop in temperature causes my pain level to soar through the roof… If I go outside in the cold for even a few minutes it causes my pain to creep up and stay that way.” 19 Ways #ChronicIllness Affects Daily Life https://cme.sh/life-living #ChronicPain #ChronicSky

“My medication isn’t the reason I’m in pain, and because of my medication, I am able to have a life. We need to stop shaming people for taking medication because sometimes it’s necessary.” https://myrockindisabledlife.com/2025/04/17/what-not-to-say-to-someone-in-pain/ #ChronicPain #ChronicIllness

“I don’t know what it’s like not to be in pain, to have a refreshing, unbroken #sleep… to do things without causing pain.” 12 People Describe What It's Like to Live With #ChronicPain https://themighty.com/topic/chronic-pain/what-chronic-pain-feels-like-2 #disabilitysky #chronicillness

“Chronic pain and illness is a full-time job, only without so much as coffee break, much less a day or evening off.” Why it's So Vital to Do What You Love When You Have #ChronicPain https://cme.sh/autumn-flowerinG #invisibleillness #disabilitysky #spoonie

“It’s more than just the physical… it caused me to leave my job and put me in a horrible financial situation. That the guilt I feel is overwhelming since my husband and I can barely pay our bills. The mental side of #chronicillness can be as difficult.” https://cme.sh/7Cb3wT #ChronicPain

“The reasons you don’t see the flares…vomiting…desperation…are many. It’s taken years… please don’t undermine that by assuming I’m fine because I’ve learnt how to hide the worst from you.” https://themighty.com/topic/complex-regional-pain-syndrome/complex-regional-pain-syndrome-facebook-posts/ #CRPS

“However I try to explain it, I don’t think anyone who hasn’t experienced it can possibly understand…there are layers and layers of pain, and some days, it’s very hard to keep going.” https://thechronicpainfiles.wordpress.com/2017/07/14/how-do-i-explain/ #ChronicPain #RareDisease

“I wish people understood being ill does not get easier with time. It gets harder… You may adjust… but you never truly adjust… You never get used to those around you saying, “Again?! Weren’t you just in the hospital?”” https://cme.sh/81siTO #disabilitysky #chronicillness #chronicpain

“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social

“There’s no shame in using whatever tools help you function… Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up…& if all else fails? Give yourself the grace to rest.” https://vikkyleaney.substack.com/p/my-top-5-pain-management-tools-as/

“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like ME (#MyalgicEncephalomyelitis), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF

“Healthy people don’t understand that #chronicillness and pain is not linear… the consequences don’t always match the actions. We have no idea if what we choose to do now will mean that we can’t move tomorrow.” http://j.mp/2NK1rjy #ChronicPain

“I’m sorry I’ve been so distant. I’m sorry I constantly change or cancel plans. I don’t mean to be ‘flaky’ or seem like a bad friend… I’m just trying to get through each day.” https://cme.sh/value-centric #ChronicPain #ChronicIllness #Disabilities

“One day I am fully capable of a task while the next day I struggle with generally simple things like brushing my teeth or getting dressed… Your abilities change dramatically from one day to the next.” https://www.themuse.com/advice/working-living-with-a-chronic-illness #ChronicIllness #Disability

“I used to believe that with hard work you could achieve anything. Learning this wasn’t true was soul destroying… Speak to anyone with a #chronicillness who is unable to work, I guarantee you they would give anything to be well again and be able to work.” https://cme.sh/chronic-carE

“ #ChronicIllness is…constant change and adapting to where your illness is—a cycle of never-ending frustration, grief and trying to find ways to still do the things that have to be done… #Fatigue often comes out of nowhere.” https://www.bloomingmindfulness.co.uk/coping-with-another-fatigue-flare/

“No one has the right to question my use of a cane… He doesn’t see that I can’t walk up stairs and have to crawl. He doesn’t see the days I can hardly walk, because those days I’m not on his bus at all. Very few people see the times I struggle.” https://cme.sh/1qq8Ku #Disability #InvisibleIllness

“What I failed to recognize was that it is just as important to allow myself to stop sometimes. To stop before I could barely walk… It is unrealistic and unhealthy to keep expecting myself to function like I did before #ChronicIllness.” http://j.mp/2LAN57F #ChronicPain #Disabilities

“When you have #chronicillness, pacing is about every day… In a previous healthy life, seeing something through; pushing to get something finished, usually equated to success.” https://www.themecfsholisticcoach.com/2019/04/no-1-pacing-tip-how-to-unlearn-the-completion-compulsion.html #pwME #MECFS

“The other unfortunate side effect of being #paingry is that is leads to #painsomnia… Many of us have nights like this and don’t say a word… It is 3 a.m, I’m awake and I’m in pain…the absurd thing is I am exhausted. I want to sleep.” https://cme.sh/7RmPj0 #ChronicPain

“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness

“Just because I’m smiling or laughing doesn’t mean I’m pain-free. I think that’s one of the hardest things for those without #ChronicPain or #ChronicIllness to understand… it’s always there.” https://themighty.com/topic/migraine/shifting-perspective-chronic-pain-migraine/ #InvisibleIllness

“Because people in #ChronicPain have to be good at ignoring their own pain, their maximum sneaks up on them and on you… The wall of pain will hit hard.” https://www.elephantjournal.com/2013/04/23-tips-for-supporting-a-partner-with-chronic-pain-pete-beisner/ #InvisibleIllness

“#Disability is diverse and complex, and a large fraction of the #disabled community have invisible disabilities… Believe and support us as we try to live—amid our numerous obstacles and limitations. We too want meaningful lives, just like everyone else.” https://cme.sh/health-centered #Disabilities

“Have you ever been stuck in bed for a few days from a really bad infection or surgery? Think back… You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months or years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie

“I spend everyday in excruciating #pain. I’m sensitive to light & noise, simple tasks are hard… My short term memory’s bad… #CRPS is a horrid disease… Don’t allow someone to minimize your journey… every warrior is a warrior.” https://rsds.org/dont-allow-someone-else-to-minimize-your-journey/ #RSD

“While they know my illnesses are bad, I don’t often show just how bad they can get… When I’m able to hang out, that’s me on my absolutely best days.” https://themighty.com/topic/chronic-illness/what-sick-people-dont-tell-friends/ #ChronicIllness #ChronicPain #SpoonieSky

“I just love how #reading is gentle, restorative and a way to travel…when your body needs to stay still… Flares are never easy, and can be very frustrating, but finding cosy moments in a #fatigue flare makes all the difference.” https://buff.ly/2crqTdU @bloomingmindxx.bsky.social

“”You’re so lucky! I wish I had a vacation every single day!” I haven’t had a vacation in ages… And being home, sick and in pain—every single day—is not a vacation.” https://themighty.com/topic/chronic-illness/being-unable-to-work-with-chronic-illness-is-not-a-vacation #chronicillness #disability

“I have grieved many times for my life with regards to #chronicillness I grieved for the life I had before becoming ill and the life I had planned…for the loss of my career due to illness.” https://memysefandchronicillness.home.blog/2023/01/26/my-first-blog-in-four-months/ #chronicpain #spoonie

“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability

“I hear you suggesting that I’m not trying hard enough to manage my #chronicillness… that I’ve not done enough research… that I’m not doing everything in my power… when that’s all I’m doing… I wasn’t looking for advice… I was looking for kindness/support.” https://buff.ly/5BYBH5n #chronicillness

“I’m pretty stubborn, so I’ve managed to do a lot of things while in extreme pain. But when pain gets to this level, no amount of stubbornness can make it achievable… They don’t realize that it’s actually not a choice… It’s just impossible.” https://cme.sh/chronic-care #ChronicPain