#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch. @lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social

Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus

No es necesario navegar por páginas de farmacias este otoño: el nuevo Localizador de Vacunas de @CVEEPSocial lo ha simplificado. Encuentra sitios de vacunación cercanos en un solo lugar y este otoño, programa tu cita fácilmente. Más: cveep.org/es/vaccine-locator/ @lupuschat.bsky.social

Fall is a critical time to stay protected against respiratory diseases. @CVEEPSocial’s new Vaccine Locator is a helpful tool that makes finding a nearby vaccination site easy. Find pharmacies and health centers and schedule an appointment today: cveep.org/vaccine-locator @lupuschat.bsky.social

CC for interest @kristenyoung.bsky.social @rheumcat.bsky.social @lupusdnadoc.bsky.social @lupuschat.bsky.social @ladaorg.bsky.social @lupusresearch.bsky.social

Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice @lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social

Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25! #LADAorg #LupudChat cc: @ladaorg.bsky.social @lupuschat.bsky.social

So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests. cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog. Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like! 🔸…it’s like treating half the disease. 🔸…is like measuring function without asking about QoL (quality of life) See images for reference ↴ #ACR25 cc: @ladaorg.bsky.social @lupuschat.bsky.social

Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social

Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers. cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat

cc @ladaorg.bsky.social

Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat cc: @ladaorg.bsky.social @lupuschat.bsky.social

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social

Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions! Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25

Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters. #LADAorg #LupusChat @ladaorg.bsky.social @lupuschat.bsky.social

We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social #LADAorg

We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.

We are one of 77 groups urging Sens. Rick Scott and Ashley Moody to reject proposed federal cuts to health care and SNAP. Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...

Thank you to #BIO and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social

The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO for developing a great program and our dear friend Paul for always being a good sport! 💜

We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social

#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social

The annual per patient cost to employers, including medical care, work absence, and shortterm disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwareness @lupuschat.bsky.social @masonicresearch.bsky.social

Many #lupus patients are concerned with potential side effects of both drug interventions as well as disease worsening such as hair loss, rashes, weight gain, gastrointestinal problems; outcomes that may be socially challenging to young people in the prime of their lives. @lupuschat.bsky.social

Disease onset coincides with critical years for education and career advancement, #lupus profoundly disrupts working lives. We need treatments that will improve qol so people with lupus can achieve their hopes and dreams and be parents. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social

While some drugs provide benefits to people with #lupus, significant side effects exist and can cause an increase in infections, cancer, significant bone loss and osteoporosis, sterility, and stroke among many other adverse health consequences. We need an arsenal of new drugs! @lupuschat.bsky.social

Join us on Sunday, May 25th at 3 PM ET as we end #LupusAwarenessMonth with an honest #LupusChat discussion on how lupus has changed us through boundaries, daily survival, or shifting our lives. You don’t need to be thriving to share your story. Every voice matters. 💜✨ #LupusTaughtMe

Hope you can join us! @elleonsound.bsky.social @bellaproduces.bsky.social @delightw2023.bsky.social @fklupus.bsky.social @katesattler.bsky.social @medusaswink.bsky.social @itsmorenamorena.bsky.social @ladaorg.bsky.social @musicum.bsky.social 💜✨

#LADAorg Kidney or Liquid Biopsy for Assessing Lupus Nephritis Activity Andrea Fava John Hopkins University School of Medicine, Division of Rheumatology, Baltimore, United States of America @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

#LADAorg Lupus Nephritis #Lupus2025 #LupusChat #Lupus @ladaorg.bsky.social @lupuschat.bsky.social

It is estimated that as many as one in every 250 African American women in America has #lupus and huge health disparities exist. There is a critical need for #socialdeterminants of health (SDOH) to be addressed as well. #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social

Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social

Classification criteria are used to define #lupus study populations due to lack of specific biomarkers to define disease aspects, resulting in combining heterogeneous patients with various manifestations and different pathophysiologies/pathogenesis together into 1 group. @lupuschat.bsky.social

#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights. @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social Kathleen Arntsen, Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen, Autumn Austin

#LADAorg Clinical Scientific Session: Update on Lupus Nephritis, Novel Approaches in LN "It is important to treat the kidney Holistically" @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

#LADAorg team for Ready for Day 3 of #LUPUS2025 💜🦋💜 Meet-the-Professor Session: Refractory Skin Manifestation Dr. Cheryl Rosen is a dermatologist at Toronto Western Hospital. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Dr. Victoria Werth is a Professor of Dermatology and Medicine at the Perelman School of Medicine at the University of Pennsylvania @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients for #clinicalresearch has proven to be particularly challenging, demonstrating the urgency of industry investment to address the issue. #LupusAwarenessMonth #LADAOrg @lupuschat.bsky.social

🔹Dr. Perez shares which medications are safe for treatment and male fertility in SLE 🔹 @eular_org has released 2025 guidelines for male patients w/SLE looking to conceive.🔹pain, guilt, fatigue, libido can impact male sexual health. #LUPUS2025 #LADAOrg @ladaorg.bsky.social @lupuschat.bsky.social

Sitting in on a session that centers Fertility and More - Navigating Male Reproductive Health in Lupus There seems to be no available data on fertility or family planning for men with lupus. So the presenter is sharing data for men w/ arthritis. #LUPUS2025 @ladaorg.bsky.social #LADAOrg #LupusChat

#LADAORG Pediatric Scientific Session: Outcomes and Targets in Children with SLE Andrea M Knight: Targets for the Management of NPSLE (Including Mental Health) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #LupusChat #Lupus

#LADAorg Stacy Payne Ardoin: Targets in CV Disease in cSLE Dr. Ardoin's clinical research focuses on optimal treatment and long-term outcomes of adults and children with lupus. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Breaking Barriers: Advancing Disease Modification and Early Intervention in SLE & LN with Patient-Centered Strategies Professor Karen Costenbader Director, Lupus Program, Brigham @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat

#LADAorg Breaking Barriers: Advancing Disease Modification and Early Intervention in SLE & LN with Patient-Centered Strategies @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Abstract Concurrent Session 04: Advancing Lupus Therapies and Insights 0024 - ENDOTHELIAL BRD4 PARTICIPATES IN THE DEVELOPMENT OF LUPUS NEPHRITIS (ID 733) Authors: Wang X., Zhang W., Ni X. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Richard A Furie: O025 - RESULTS FROM THE REGENCY TRIAL ASSESSING EFFICACY AND SAFETY OF OBINUTUZUMAB IN ACTIVE LUPUS NEPHRITIS (ID 750) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Helen Masson: O026 - MULTI-OMIC INTEGRATION REVEALS THREE MOLECULAR SUBTYPES WITH DISTINCT IMMUNOLOGICAL PHENOTYPES IN A COHORT OF 722 SYSTEMIC LUPUS ERYTHEMATOSUS PATIENTS (ID 740) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #LupusChat #Lupus