We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.

We are one of 77 groups urging Sens. Rick Scott and Ashley Moody to reject proposed federal cuts to health care and SNAP. Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...

Thank you to #BIO and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social

The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO for developing a great program and our dear friend Paul for always being a good sport! 💜

We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social

#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social

The annual per patient cost to employers, including medical care, work absence, and shortterm disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwareness @lupuschat.bsky.social @masonicresearch.bsky.social

Many #lupus patients are concerned with potential side effects of both drug interventions as well as disease worsening such as hair loss, rashes, weight gain, gastrointestinal problems; outcomes that may be socially challenging to young people in the prime of their lives. @lupuschat.bsky.social

Disease onset coincides with critical years for education and career advancement, #lupus profoundly disrupts working lives. We need treatments that will improve qol so people with lupus can achieve their hopes and dreams and be parents. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social

While some drugs provide benefits to people with #lupus, significant side effects exist and can cause an increase in infections, cancer, significant bone loss and osteoporosis, sterility, and stroke among many other adverse health consequences. We need an arsenal of new drugs! @lupuschat.bsky.social

Join us on Sunday, May 25th at 3 PM ET as we end #LupusAwarenessMonth with an honest #LupusChat discussion on how lupus has changed us through boundaries, daily survival, or shifting our lives. You don’t need to be thriving to share your story. Every voice matters. 💜✨ #LupusTaughtMe

Hope you can join us! @elleonsound.bsky.social @bellaproduces.bsky.social @delightw2023.bsky.social @fklupus.bsky.social @katesattler.bsky.social @medusaswink.bsky.social @itsmorenamorena.bsky.social @ladaorg.bsky.social @musicum.bsky.social 💜✨

#LADAorg Kidney or Liquid Biopsy for Assessing Lupus Nephritis Activity Andrea Fava John Hopkins University School of Medicine, Division of Rheumatology, Baltimore, United States of America @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

#LADAorg Lupus Nephritis #Lupus2025 #LupusChat #Lupus @ladaorg.bsky.social @lupuschat.bsky.social

It is estimated that as many as one in every 250 African American women in America has #lupus and huge health disparities exist. There is a critical need for #socialdeterminants of health (SDOH) to be addressed as well. #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social

Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social

Classification criteria are used to define #lupus study populations due to lack of specific biomarkers to define disease aspects, resulting in combining heterogeneous patients with various manifestations and different pathophysiologies/pathogenesis together into 1 group. @lupuschat.bsky.social

#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights. @lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social Kathleen Arntsen, Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen, Autumn Austin

#LADAorg Clinical Scientific Session: Update on Lupus Nephritis, Novel Approaches in LN "It is important to treat the kidney Holistically" @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

#LADAorg team for Ready for Day 3 of #LUPUS2025 💜🦋💜 Meet-the-Professor Session: Refractory Skin Manifestation Dr. Cheryl Rosen is a dermatologist at Toronto Western Hospital. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Dr. Victoria Werth is a Professor of Dermatology and Medicine at the Perelman School of Medicine at the University of Pennsylvania @ladaorg.bsky.social @lupuschat.bsky.social #Lupus2025 #Lupuschat #Lupus

Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients for #clinicalresearch has proven to be particularly challenging, demonstrating the urgency of industry investment to address the issue. #LupusAwarenessMonth #LADAOrg @lupuschat.bsky.social

🔹Dr. Perez shares which medications are safe for treatment and male fertility in SLE 🔹 @eular_org has released 2025 guidelines for male patients w/SLE looking to conceive.🔹pain, guilt, fatigue, libido can impact male sexual health. #LUPUS2025 #LADAOrg @ladaorg.bsky.social @lupuschat.bsky.social

Sitting in on a session that centers Fertility and More - Navigating Male Reproductive Health in Lupus There seems to be no available data on fertility or family planning for men with lupus. So the presenter is sharing data for men w/ arthritis. #LUPUS2025 @ladaorg.bsky.social #LADAOrg #LupusChat

#LADAORG Pediatric Scientific Session: Outcomes and Targets in Children with SLE Andrea M Knight: Targets for the Management of NPSLE (Including Mental Health) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #LupusChat #Lupus

#LADAorg Stacy Payne Ardoin: Targets in CV Disease in cSLE Dr. Ardoin's clinical research focuses on optimal treatment and long-term outcomes of adults and children with lupus. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Breaking Barriers: Advancing Disease Modification and Early Intervention in SLE & LN with Patient-Centered Strategies Professor Karen Costenbader Director, Lupus Program, Brigham @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat

#LADAorg Breaking Barriers: Advancing Disease Modification and Early Intervention in SLE & LN with Patient-Centered Strategies @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Abstract Concurrent Session 04: Advancing Lupus Therapies and Insights 0024 - ENDOTHELIAL BRD4 PARTICIPATES IN THE DEVELOPMENT OF LUPUS NEPHRITIS (ID 733) Authors: Wang X., Zhang W., Ni X. @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Richard A Furie: O025 - RESULTS FROM THE REGENCY TRIAL ASSESSING EFFICACY AND SAFETY OF OBINUTUZUMAB IN ACTIVE LUPUS NEPHRITIS (ID 750) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #Lupuschat #Lupus

#LADAorg Helen Masson: O026 - MULTI-OMIC INTEGRATION REVEALS THREE MOLECULAR SUBTYPES WITH DISTINCT IMMUNOLOGICAL PHENOTYPES IN A COHORT OF 722 SYSTEMIC LUPUS ERYTHEMATOSUS PATIENTS (ID 740) @ladaorg.bsky.social @lupuschat.bsky.social #LUPUS2025 #LupusChat #Lupus

Amazing prezi by Dr. Michelle Jacobson on Menopause in SLE. 🔺 VMS (Vasomotor symptoms) can have severe effects on QOL 🔺concerning symptoms: night sweats, vaginal dryness, mood disorders, libido loss, etc 🔺Recommended therapy: Fezolinetant #LUPUS2025 @ladaorg.bsky.social @lupuschat.bsky.social

#Fatigue is the most prevalent and incapacitating symptom experienced by about 85 to 92% of people with #lupus, resulting in decreased physical and mental function, and 50% of patients rated it as the most disabling symptom. #LupusAwarenessMonth @lupuschat.bsky.social @caringforlupus.bsky.social

The #LADAOrg team has all arrived in Toronto for #LUPUS2025 where we will be attending sessions and learning about the latest in lupus from international experts while networking with the global lupus community. #Lupus #LupusAwarenessMonth @lupuschat.bsky.social @caringforlupus.bsky.social

Thank you Peter Lipsky for an informative presentation on #ArtificialIntelligence at #LUPUS2025 during the “Future of Lupus” session. #LADAOrg @lupuschat.bsky.social @caringforlupus.bsky.social

#LADAORG Happening Now : The Future in Lupus 👈 What generative Al is and how it can be applied to improve SLE care #LUPUS2025 #LupusChat #Lupus @ladaorg.bsky.social @lupuschat.bsky.social

#LADAORG Team at the #LUPUS2025 opening ceremony 🎉 More than 65 countries 🌎 and over 1,000 registered 👥️ #Lupuschat #Lupus @ladaorg.bsky.social @lupuschat.bsky.social

Minority women tend to develop #Lupus at a younger age, experience more serious complications and have higher mortality rates—up to 3 times the incidence and mortality of Caucasians. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social

We are honored to have you here as part of the #LADA Team this week!

#Clinicaltrials aren’t designed to measure outcomes described as most important to those with #lupus such as mitigating fatigue, daily healthrelated quality of life aspects, reduction in current drug regimen, steroid-sparing, side effect tolerability, and comorbid conditions. @lupuschat.bsky.social

No single test exists to diagnose #Lupus, resulting in many patients suffering more serious complications before a diagnosis is reached. Research to identify better diagnostic measurements is needed. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social

Most medications used to treat #Lupus are drugs approved for other indications such as chemotherapies, for cancer, and immunosuppressants, used after organ transplantation. We need an array of new treatment options because there is no one-size-fits all for people w/lupus. @lupuschat.bsky.social

👉🏾⏰ Set an alarm to join us tomorrow at 3 PM ET as we continue #LupusAwarenessMonth by sharing how we speak up and #AdvocateForLupus —from explaining lupus in powerful ways to standing our ground in medical settings and beyond. Let’s show what real self-advocacy looks like! #LupusChat 📣 💜 ✨

Lupus disproportionately affects women of color in the United States; it’s 2 to 3 ✖️ more common among African-Americans, Hispanics and Latinos, Asians, and Native Americans. #LupusAwarenessMonth #HealthDisparities #Lupus @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social

There are significant challenges in creating a uniform control group in clinical trials in #lupus because of the variety of background and concomitant medications—usually immunosuppressants. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @ghlforg.bsky.social

Check out our Annual #LupusAwareness event in the New York state Senate and Assembly chambers with @lupuschat.bsky.social @lupusresearch.bsky.social @masonicresearch.bsky.social @lupus.org #LupusAwarenessMonth #Lupus www.linkedin.com/posts/kathle...

Some non-approved #Lupus treatments are known to be teratogenic (causing birth defects) and over longer periods of use often compromise fertility in men and women. Fertility preservation option discussions are a must. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @ghlforg.bsky.social

Ninety percent of those affected by #Lupus are women; however, men and children are also diagnosed with lupus. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social @lupusdnadoc.bsky.social

Lupus is an unpredictable condition in which symptoms come and go (flares) and complications can arise suddenly. Having a responsive medical treatment team can improve outcomes. #LupusAwarenessMonth #LupusAwareness #Lupus @lupuschat.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social

There is no known cause or cure for #Lupus or #LupusNephritis. There is research taking place to discover better diagnostic measures that will result in earlier intervention and better prognosis for patients. #LupusAwarenessMonth @lupuschat.bsky.social @michiganlupus.bsky.social