Michigan lupus patients shared their stories in a Time Magazine feature written by Dr. Rachel Bergmans of @umich.edu's Chronic Pain and Fatigue Research Center.

If you thought that the Big Beautiful Bill was cutting someone else’s health care…

Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

Did you know you can use #FMLA leave to take part in a clinical trial, either for your own health condition or that of a family member? This protection helps ensure employees can take the time to participate in clinical trials without risking their jobs. www.nextep.com/blog/fmla-an...

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social

We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social #LADAorg

THANK YOU to everyone who attended and supported the Metro Detroit Walk for Lupus! Over 300 attendees came together to bring visibility to an often invisible illness. We extend a heartfelt thank you to all participants, volunteers, generous donors and event sponsors for making our event a success.💜

Thank you for sharing this personal story about the Grand Rapids Walk for Lupus, Grand Rapids Magazine! www.grmag.com/charity-even...

The Michigan Lupus Foundation has been growing! Thank you for helping us reach more #lupus warriors across the state of #Michigan and beyond. Together we can help raise awareness and build a supportive community for those living with this incurable, debilitating and often misunderstood disease.

Thank you for ending #LupusAwarenessMonth with us by making our Lansing Walk for Lupus a success! Thank you to all participants, volunteers, supporters & our event sponsors. We raised critical awareness of #lupus & strengthened the sense of community & hope for those living with the disease. 💜

What does having #lupus feel like? #lupusawareness #lupusawarenessmonth #lupuswarrior #milupus #chronicillness #autoimmune #michiganlupus #makelupusvisible

People with #lupus can experience cognitive symptoms such as having a hard time thinking clearly or remembering things. This is called #brainfog. Brain fog can impact cognitive skills like language, memory, coordination, mood and vision.

Thank you @wilxtv.bsky.social for helping to spread lupus awareness during #LupusAwarenessMonth!

Many people living with #lupus struggle to maintain full-time employment. A national statistic estimates only 30% of lupus patients are able to be employed full time. #lupusawareness #lupusawarenessmonth

People living with #lupus are often told they do not look sick since they display no noticeable signs of the illness. While it can be taken as a compliment, it also takes away how hard each person with lupus fights every day. Not all disabilities or illnesses are visible. #lupusawarenessmonth

The majority of those with #lupus identify #fatigue as their primary symptoms. Lupus fatigue is not the same as feeling tired — it's a tired sleep can't fix. #lupusawareness #lupusawarenessmonth

Happy #worldlupusday!! Thank you to everyone who gathered in Traverse City and Livonia today to spread awareness! Wearing purple helps make an invisible illness visible. 💜 #lupus #lupusawarenessmonth #milupus #makelupusvisible

The Michigan Lupus Foundation is pleased to announce Governor Gretchen Whitmer officially proclaimed May 2025 as #LupusAwarenessMonth in the state of Michigan. We thank Governor Whitmer for this important recognition! 💜

The exact cause of #lupus is unknown, but research shows it’s a combination of genetic, hormonal & environmental factors. People with a predisposition for #autoimmune may develop the disease when they come into contact with something in their environment that triggers an overactive immune system.

#Lupus is a chronic autoimmune disease with a wide range of symptoms, which can vary greatly between individuals. #lupusawarenessmonth

What is #lupus?

#lupus #lupusawareness #lupusawarenessmonth #lupuswarrior #milupus #chronicillness #autoimmune #michiganlupus #makelupusvisible

#LupusAwarenessMonth starts NOW! 💜 May is a time for the lupus community across the country to join together to raise awareness of the physical, emotional & economic impact of lupus. Help #share information on social media, in your community and with family & friends. www.milupus.org/toolkit

Lupus Awareness Month is right around the corner! 💜 Help raise awareness by talking out loud about #lupus and sharing your personal journey. Submit your story and we’ll share it on social media, email and on our website throughout the month of May. www.milupus.org/story

Are you ready to show your support for those affected by #lupus on May 10th by sharing facts about lupus and proudly wearing your purple for #WorldLupusDay #MakeLupusVisible WorldLupusDay.org/tool-kit @lupus.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social

Even on days when it feels like no one gets it, know there is a whole community that does. 💜 #lupus #lupusawareness #lupuswarrior #chronicillness

"The Invisible Illness" comic book is an innovative story-driven campaign to raise awareness about the unseen battles of #lupus and provide critical funding to ensure the future of the foundation. Learn more at milupus.org.

With the help of BrandComix, a division of Comix Wellspring, the Michigan Lupus Foundation is creating "The Invisible Illness" — an original comic book that illustrates the real struggles of living with #lupus and the support our foundation provides. Stay tuned for more details!

We are excited to become a member of the #Rare_Ready coalition. Don’t miss the chance to tell your story for better access to rare disease therapies. Share your rare at www.rareandready.org. #RareDisease #RareandReady

NY state received an A from The AIDS Institute because it has a law restricting the use of copay accumulator adjustment policies, and protecting financial assistance for people with marketplace plans. Other states do not. Read the report. aidsinstitute.net/documents/TAI-…

Are you hearing about #340B and still not sure what it is? Check out a new resource hub from #ChronicCarePA to learn more about the 340B program and how it could be impacting your access to care: chroniccarealliance.org/priority-iss...

The #Michigan Lupus Foundation has launched an urgent capital campaign to raise emergency funds by May 1 to ensure the nonprofit is able to continue offering support services for those with lupus in the state of Michigan. Read more about how you can help below. 💜

Thanks for the #lupus coverage, The Michigan Daily!

Thank you to everyone who participated in the Ann Arbor Lupus Symposium! We had helpful presentations from Michigan Medicine's Dr. Saleh, Dr. Fivenson from David Fivenson Dermatology, Dr. Bergmans & Dr. Aday for an in-depth look at #lupus and #chronicpain.

Lupus is 3x more common in black women than other races. As many as 1 in 250 black women will develop #lupus and tend to have more severe disease complications. This month and every month, we see you and appreciate you. You are not fighting alone. #blackhistorymonth #lupusawareness

Thanks for following us on @bsky.app! The Michigan Lupus Foundation is committed to improving the quality of life for those living with lupus through support, education & research with the goal of finding a cure. Learn more at milupus.org.