We need 50 more voices! 📢 Help us reach our goal for the #NeedleFear study. If you've ever felt anxiety in the infusion chair, we need your data NOW to prove this is a real barrier to care. Make your voice count: zurl.co/GQrwH#NeedleFear #Trypanophobia

Special shout-out to @SenShaneReeves for introducing PBM transparency bill SB 1796. Public reporting of violations keeps PBMs accountable and helps protect patients’ access to affordable, reliable care.

For many Ohioans, infusions are life-changing. zurl.co/IvCHp #OhioSB207 would stop insurers from exploiting copay financial assistance. Tell your Senator: Vote YES on SB 207! Click here to send a letter: zurl.co/HM8do

The Infusion Access Foundation thanks @HouseCommerce and @WaysandMeansGOP for today’s hearings on health care affordability. If you’ve faced an insurance denial, share your story here: zurl.co/XbAjm

Experienced an insurance denial? Your story matters.Congress is holding hearings on insurance reform on Jan. 22, and real patient experiences help shape better policy. Share your story in a short, voluntary form here (anonymous options available): zurl.co/M6b5D

ALERT: California anti-steering bill AB 577 will be heard in Assembly Appropriations tomorrow (Jan 22). AB 577 would stop insurers from forcing patients to use specific providers or self-administer meds when provider-administered care is medically necessary. Take action: zurl.co/A0snL

The clock is ticking! ⏰ We need your input for our #NeedleFear study to help us advocate for better patient comfort. Don’t let this chance to speak up pass you by—the survey closes soon. Make your voice count: zurl.co/GQrwH#NeedleFear #Trypanophobia

This afternoon (1/20), WA lawmakers will consider 340B expansion bill HB 2145. 340B was meant to help vulnerable patients afford meds, but some entities profit by marking up discounted drugs. HB 2145 expands the program without fixing these issues. Speak up before the hearing: zurl.co/C5VKd

CLOSING SOON!! Hate needles? You aren't alone—and your experience can help others. We’re running a short study to understand needle fear and advocate for better patient support in infusion centers. Take our 5-minute anonymous survey today: zurl.co/IdKvb #NeedleFear #Trypanophobia

For Ohioans with rare diseases, meds aren’t a luxury — it’s about survival. zurl.co/0DViH #OhioSB207 would stop insurers from exploiting copay assistance & protect patients from crushing costs. Tell lawmakers: Vote YES on SB 207! Support patients over insurance companies. zurl.co/iKQ9Z

Did you miss last month's News Infused By You? News Infused By You is our monthly newsletter that shares news specifically for patients, our internal updates, events you might be interested in and general infusion tips! Read it here 👉 zurl.co/bAIjU Want to get on the list? 👉 zurl.co/A0vzp

Tomorrow (1/16), WA lawmakers will consider 340B expansion bill SB 5981. 340B was meant to help vulnerable patients afford meds, but some entities profit by marking up discounted drugs. SB 5981 expands the program without fixing these issues. Speak up before the hearing: zurl.co/WxTWr

Over 80% of U.S. prescriptions are managed by three PBMs. This investigation explains how PBM-affiliated GPOs collect billions in drugmaker payments outside traditional rebate rules—raising important questions about where drug dollars actually flow. 🔗 zurl.co/bjFZk

Ever get that weird, metallic "sucking on a penny" taste mid-treatment? The Fix: Pack some tart lemon drops, strong peppermint, or ginger candies in your Go Bag. The acidity or strong mint helps neutralize that metallic tang instantly, making your time in the chair just a little bit sweeter.

ALERT: MO All Copays Count bill SB 970 will be heard tomorrow (1/14) in the Committee. It ensures all payments made for patients count toward deductibles & out-of-pocket maxes, reducing costs for patients across the state. Send a support letter to the committee here: zurl.co/7TjMo

URGENT: NH lawmakers consider PBM reform bill SB 547 on Wed, Jan 14. This bill helps lower prescription costs by reining in excessive PBM profits, requiring them to act in patients’ best interests, and making drug pricing more transparent. Take action: Send a letter in support today! zurl.co/jNjct

Are you the missing piece of our puzzle? 🧩 We’re hiring a Program and Communications Coordinator! This isn't just a desk job—it’s a "make it happen" job. If you’re organized, energetic, and ready to keep us running like a well-oiled machine, we want to meet you! Apply here 👉zurl.co/Ov9JW

Great news! @govmurphy.bsky.social has signed A5217 into law. A5217 prohibits the use of accumulator programs, ensuring third party payments count toward copays, coinsurance, and deductibles, instead of being kept by insurers.

We are elated to announce our newest board member! Racquel H. Dozier is the Founder of Lupus In Color, a global movement dedicated to educating, inspiring, and empowering lupus warriors worldwide. Welcome to our team, Racquel! We're so excited to continue our work together.

AB 577 would stop PBMs and insurers in California from forcing patients to use specific providers or self-administer medication when their own provider says it’s medically necessary. The Infusion Access Foundation is proud to support #AB577. Click to support: zurl.co/xLT4x

Did you miss last month's News Infused By You? News Infused By You is our monthly newsletter that shares news specifically for patients, our internal updates, events you might be interested in and general infusion tips! Read it here 👉 zurl.co/b2oeJ Want to get on the list? 👉 zurl.co/A0vzp

Some patients are unable to safely self-administer medications. Steering patients to self-administration can put their health at risk. AB 577 would protect patients from unsafe care. Learn more about AB 577 here: zurl.co/33eUE

Ohio lawmakers have a chance to protect patients from harmful and discriminatory insurance practices by passing Senate Bill 207, a bill that would ensure copay assistance counts toward a patient’s deductible and out-of-pocket maximum. zurl.co/tfShS

What do the expiring #ACAsubsidies mean for your premiums? Read the full update about what to expect 👉zurl.co/t9DJs Don't miss these important policy updates! Get on our Policy Infusion Newsletter list here 👉 zurl.co/NvOxn#ACAsubsidies Continued in comments

Infusion Tip: The "Warm Up" Trick! 🌡️ Dealing with difficult vein access or needle fear? Ask your nurse for a warm pack to place on the site just before the stick. Heat helps dilate veins, making the start smoother and less stressful!

Did you miss last month's Policy Infusion? The Policy Infusion is our monthly newsletter that shares our updates on policy and advocacy. Read it here 👉zurl.co/ZDwrP Want to get on the list? 👉 zurl.co/A0vzp

Health care costs are soaring, and Ohioans with serious illnesses are being forced to choose between paying bills and affording life-saving meds. SB 207 will end harmful co-pay accumulator programs. 25 states have acted and Ohio must too. Tell your legislators to support SB 207: zurl.co/SMA3Y

Dr. Nya Oglesby knows resilience. She uses her infusion days to RISE UP and reminds us: "My strength is not in perfection, but in persistence." Her message for infusion nurses: You give hope! Read Nya's full story: zurl.co/YsAwR

Our patient-focused newsletter has hit your inbox! Want to get on the list? 👉 zurl.co/EJUFI

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social

Understand 340B & its patient impact! Join ICAN Wed, July 16, 10 AM PT / 1 PM ET for "340B - Multiple Perspectives." Fast-paced update on reform efforts in states, DC, & courts. Register now! zoom.us/webinar/regi... #340B #Healthcare #PatientCare #Policy #ICAN

Tens of millions of Americans are at risk of losing their coverage if Medicaid cuts are made law under the One Big Beautiful Bill Act. Call your Representative today to make your voice heard: heyor.ca/wn3rma #MedicaidMatters

🚨 Important update for our community: The Infusion Access Foundation is deeply concerned about the proposed "One Big Beautiful Bill Act" that could drastically cut Medicaid funding and reduce healthcare access for millions of Americans.

😎 Protect your eyes, elevate your health! It’s #NationalSunglassesDay, and your shades do more than just boost your style. They safeguard your vision by blocking harmful UV rays, reducing your risk of cataracts and other eye conditions. So grab those sunglasses and enjoy the sunshine safely!

Governor Jeff Landry, Louisiana families are being hurt by PBMs inflating drug prices. We need transparency and fairness. Please continue to call for #PBM reform on how PBMs are compensated to lower costs for patients. #LALeg

Hand-rolled cigars, hot beats, and big hearts. We celebrated 5 years of fighting for infusion access at #TOAST2025 last night! Here's to a future filled with positive impact for patients! Thank you for your incredible support. 💙

Josh highlights the importance of community, openness, and self-advocacy for men living with chronic illness. Health goes beyond the physical. It's about connection and support This #MensHealthMonth, let’s encourage conversations and strengthen communities

We stand with science-based vaccine recommendations. Dismissing all ACIP members undermines independent expertise that has protected public health since 1964. Our immunocompromised patients need evidence-based care. Thank you @repkimschrier.bsky.social @repfrankpallone.bsky.social!

HB 2385 does nothing to ensure #340B savings reach patients. No transparency. No accountability. Just more power to hospital systems—at the expense of rural and underserved Oregonians. @GovTinaKotek please #VetoHB2385 #ORleg

Great news for Colorado: SB25-301 and HB25-1094 are now law! SB25-301 reduces treatment delays by letting providers adjust prescriptions for chronic care without prior authorization. HB25-1094 reins in PBMs that profit off costly drugs. Thanks to @govofco.bsky.social for signing! #PBMs

Say hola to 5 nights of luxury! 🌴 The Mexico Dreams package sends two guests to a dreamy beach escape: Riviera Maya, Puerto Vallarta & more. Bid at #TOAST2025 before it’s gone! 🎟️ Tickets almost sold out: heyor.ca/sg1vQw

Huge success on our Hill Day in D.C. on May 20! 10 patient champions met with 18 Senate/House offices to advocate for Medicaid, Safe Step Act, HELP Copays Act, PBM reform, & prior authorization reform. Patients deserve access to care, not barriers! #PatientAdvocacy

How much do you know about gout? Take some time on #GoutAwarenessDay to learn about the condition that affects over 12 million Americans. Access our Gout Infusion Guide: heyor.ca/Z0OutG

Today is #WorldIBDDay. We're raising awareness for Crohn's disease and ulcerative colitis, which affect millions worldwide. For those living with IBD, the challenges faced every day can be immense and often invisible. Let's stand together to support, educate, and advocate.

Win a 7-night Dream Vacation Getaway 🌍 at #TOAST2025! Pick from dozens of 4-star global destinations. Beach, mountain, or city - this is your escape plan. ✈️ Voucher valid 18 months | $100 refundable deposit | 2 adults + 2 kids Tickets: heyor.ca/sg1vQw

Did you know that nearly half Oklahoma’s 340B pharmacy contracts are with out-of-state pharmacies? That means the savings meant for Oklahoma’s communities are going elsewhere. HB 2048 expands this broken system. We’re calling on Gov. Stitt to keep healthcare savings local. #OKleg

25 states already license PBMs. With the California Governor’s proposal and Sen. Scott Wiener’s #SB41, California has a chance to lead the nation in PBM reform. #PBMReform

Swoon-worthy fits. Experience the ambience of sultry Havana Nights at #TOAST2025. Sip and socialize at our soiree brimming with style. Expect linen, rhythm, and the refreshment of the tropics. Bring your breezy ruffles, bold blues, and come ready to dance under the stars. Tix: heyor.ca/sg1vQw

Do you live with chronic pain or care for someone who does? Your voice truly matters. U.S. Pain's Pain Experience 2025 Survey is gathering real stories to shape better pain care, treatment access, and support services. Share your experience: heyor.ca/aJdCJY #ChronicPain

TOAST is more than a good time. It fuels care, connection, and advocacy for infusion patients. From Hill Day to Champions' Weekend, your ticket helps make it happen. 🎟️ Show up, speak out, celebrate with us. Tickets: heyor.ca/sg1vQw #TOAST2025