Thank you to the Greens for promising a #FairGoForME 🙌 No commitments yet from Labour? 🤔 #MECFS afflicts growing numbers of Australians since Covid but remains shockingly underfunded and unrecognised. @chrispicton.bsky.social @markbutlermp.bsky.social #Auspol #MECFS #LongCovid

#AusPol #MECFS #LongCovid This is a shocking statistic 👇 PASC MECFS has left me profoundly disabled. This highly debilitating disease urgently needs more recognition and support! @markbutlermp.bsky.social

💥Join the Wild Socks Challenge! 1️⃣ Snap a pic in your wildest socks 2️⃣ Post on social media, tag @BatemanHorneCenter, & use #WildSocksForMECFS 3️⃣ Donate $10 to support ME/CFS research via BHC's Kudoboard! loom.ly/d4vXRFI Let’s raise awareness together! #WildSocksForMECFS

n 2015, Dr. Bateman vowed to wear wild socks until we had a biomarker for ME/CFS. These socks are a symbol of hope & resilience. Watch the video for the full story! Celebrate 10 years of BHC, donate $10, & raise awareness for ME/CFS! 🔗 loom.ly/d4vXRFI #WildSocksforMECFS

💙🧦 #WildSocksForMECFS Awareness @BatemanHorneCenter 🧦💙 Millions of people live with ME/CFS, a debilitating disease that urgently needs more research, better care, and greater awareness. Penguin socks 🐧 because @BatemanHorneCenter is a beacon for #pwME #pwLC even in the #SouthernHem 🩵

Stand with South Africa against Trump's wrath mg.co.za/thought-lead...

Much love and compassion for my fellow sufferers on this International #LongCovidAwarenessDay, 15 March 2025. ❤️

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👇😢 #longcovid #pwLC

In his book 'Good Citizens', Thich Nhat Hanh shares words of encouragement to build an international solidarity movement based on a shared sense of compassion, mindful consumption & right action. 🌍 👉🏽 www.parallax.org/product/good... @parallax.org 👉🏽 Discover more teachings via plumvillage.app 🌞

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Yes, this 👇👏Great article by @vashetc.bsky.social #MECFS #LongCovid #pwME #pwLC #politicalgrief #disabilityactivism & living with energy limiting illness in these unraveling times…

#MECFS #Auspol

Yes, this 👇 And so many millions more left disabled & without treatment #CovidIsNotOver #LongCovid #pwLC

👇 #longcovid #pwLC #disability #disposability

This is so true!

Yes, this👇 #MECFS #PEM #LongCovid

It will take ALL OF US to show that we are support the NIH Roadmap to fight to fund research into treatments & a cure. If you have #MECFS or #LongCOVID or care about people who do, please sign & share! US signers: lnkd.in/e99rsvdT International signers: lnkd.in/e3TpjnTE

✨This petition will close TOMORROW, Nov 15!✨ We're over 7k-- next stop 10k! In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses. Sign & share widely! US signers: lnkd.in/e99rsvdT International signers: lnkd.in/e3TpjnTE

If you follow Covid, Long Covid and/or ME/CFS, you want to follow putrinolab. They are the real thing.

Neat 🧵 from @cleanairclub.bsky.social on Twitter: "50+ ways to show up for people with Long Covid & ME/CFS. Over 400 million people around the world have Long Covid, and millions more have ME/CFS. Here are concrete ways you can show up for them..." threadreaderapp.com/thread/18517...

These FAQs on what you need to know if you’re still sick (or suddenly become sick) weeks/months after having Covid are excellent, vetted by both patients leading Long Covid experts from Hopkins, Mount Sinai, and more. Please share, at present it’s so hard for people to find good info.

ME/CFS gets miniscule funding relative to the number of people it affects. Without more funding, this will only get worse as more and more people develop Long COVID, one potential symptom of which is ME/CFS.

Lee Colligan recently completed a marathon 2500km walk around Ireland in memory of his brother Lee & to raise money for ME charities. Here is a moving image he shared. Lee’s donation pages: www.idonate.ie/fundraiser/L... & joshcolligan.muchloved.com #MEcfs #PwME #CFS #SevereME

With Millions Suffering, Long COVID is Devastating the Economy. "Dropping precautions and infecting the world on a massive scale over and over again may ultimately prove to be far more financially devastating than most people think." #LongCOVID #Economy whn.global/with-million...

"No one gives you a medal for sitting at home, but I'm able to say it is truly incomparably harder than any Olympic training I've ever done." - @oonagh_cousins, former athlete with #longcovid #UniteToFight2024

This article was produced in Dec 22, 2022 by Rachel Wilkerson Miller (@the_rewm on X). Talking about rest was a clever way to invite the broader public to the #MECFS and #LongCOVID conversation. It's also an incredibly well-constructed article. (7/)🧪 www.self.com/story/what-d...

SELF MAGAZINE "Of course, not everyone has the option to rest the way they...should... and that’s also not a personal or moral failure. “We have built a society where it’s nearly impossible to rest,” Seltzer says. “Rest is anti-capitalistic.” (4/) #MECFS #LongCOVID 🧪 self.com/story/what-d...

From @wanderingkayli.bsky.social (on Twitter): "The recording from the Ed Yong keynote + panel event on #LongCOVID from April 4 is officially out!! 🎉 Please share everywhere..." youtu.be/BjNy1rn0yPk?... Featuring @edyong209.bsky.social

We highlight the need for continued support and research for long COVID, as HRQoL scores compared unfavourably to patients with conditions such as multiple sclerosis, heart failure, and renal disease.

Very frustrating to see these updated guidelines from the Royal Australian College of GPs: "Incremental physical activity for #ChronicFatigueSyndrome (#CFS) / #MyalgicEncephalomyelitis (ME)" www.racgp.org.au/clinical-res... 🙄 Critical discussion: www.s4me.info/threads/aust... #MEcfs #PwME

It’s Time To Eradicate The Scourge Of Long Covid By Removing All Reference To It In News Media.

Today @thesicktimes.bsky.social: We're really excited to share this feature by Nairobi-based writer Jael Bore, examining the challenges that people with #LongCovid face in Kenya and across Africa.

👇 on advocacy for #Mecfs #LongCovid #chronicillness: “Why does it fall on severely sick patients? Why are patients and some patient’s families/supporters the only ones who care?“

Media celebrated Long COVID Awareness Day by denying its existence. By Julia Doubleday "Long COVID is a thorn in the side of "back to normal." Attempts to silence patients are intensifying." #LongCOVID www.thegauntlet.news/p/media-cele...

"COVID’s not in the news every day, but it’s still a global health risk. If we look at wastewater estimates, the actual circulation [of SARS-CoV-2] is somewhere between 2 and 20 times higher than what’s actually being reported by countries. The virus is rampant. We’re still in a pandemic."

I miss self-determination I miss spontaneousness I miss freedom I miss being able to take care for others I miss nature I miss light-heartedness I have #MECFS

Ed Yong: Reporting on Long COVID taught me to be a better journalist. Gift article in the NYT: www.nytimes.com/2023/12/11/o...

As energy-depleting illnesses that disproportionately affect women, long Covid and M.E./C.F.S. are easily belittled by a sexist society that trivializes women’s pain, and a capitalist one that values people according to their productivity. @edyong209.bsky.social YES! www.nytimes.com/2023/12/11/o...