Snow Falls (It’s Christmas Time Again) youtu.be/gLgvImsPs1s?...

When you receive a ‘timed message’ from your almost 14 year old daughter at midnight to mark your 43rd birthday, you realise that things have changed, kids grow up and you inevitably get older. I have it all. Living the dream. Thank you Ev x

Silent Night www.youtube.com/watch?v=d58j...

The videos have started to come through! I’m really excited to put this film together! 👍 thanks for sharing @salsbergmathews.bsky.social !! 😍

Hi - myself and Becca Miller are trying to put together a Christmas end of year video together featuring the Parkinsons community - just a “hi my name is” , introduce yourself etc - tell us what your hopes are for 2025 (or not)

Briefly.. this is why you should take part in the #parkinsonsxmaswrap-up 2024 youtu.be/84waVIAE00g

I want to put out a collective message, a wrap up (if you like) of 2024 and your hopes and fears in 2025! #parkinsonsxmaswrap #parkinsons OPEN TO ALL AGES please take part: deadline for submissions DECEMBER 2nd THANKS @rebeccamil.bsky.social for all your help - you rock x youtu.be/rdDvYIUAGqM

@elipollard.bsky.social hi! check this out: go.bsky.app/R25na6o

More info regarding the #parkinsonsxmaswrap video

#pdcommunity check out this project and consider contributing your video! Your voice needs to be amplified #parkinsons #yopd #disability @davidsangster.bsky.social

Ok @bsky.app #parkinsons community here's a way to put out call, to raise the flag, to shine a light and reach out. Would you like to help myself and @rebeccamil.bsky.social do just that. I haven't made a video like this is a while which means its definitely overdue. >>>

Just added @malutansey.bsky.social @saraschaefer1.bsky.social @markahirsch.bsky.social @phdmarie.bsky.social Also if you haven't followed already, @parkinsondotorg.bsky.social and @worldpdcongress.bsky.social are here!

Try my starter pack! go.bsky.app/UPQMXtK

resolved: people who insist that all social media sites must be places where users are constantly encountering and arguing with people over fundamental disagreement do so because their actual, real lives are echo chambers where they do not encounter any meaningful difference from day-to-day.

I thank the lord for the people I have found youtu.be/eO1g5u1V1ts?...

This place already feels like more opportunity for community and connections

Good morning #pdcommunity! Yesterday was a great day for #parkinsons on #bluesky, we welcomed @parkinsondotorg.bsky.social and @worldpdcongress.bsky.social Who will join today? Don’t miss the #pd starter pack pinned on my page #yopd #disability

An advocate who personally stands by their message motivates an audience. #parkinsons

“We, as patients, represent an enormous and untapped opportunity to bring urgency (experience, focus, passion and feedback) to the delivery of the science and to become a significant resource in the quest for a cure. Without such participation, there is little hope. (Tom Isaacs)

Here's to the bridge-builders, the hand-holders, the light-bringers, those extraordinary souls wrapped in ordinary lives who quietly weave threads of humanity into an inhumane world.

Somebody needs your help . Chris Rea has been driving home for Christmas since 1986. Can somebody make sure he gets home this year.

Since neither the coffee nor levodopa have kicked in yet - here is a wild theory that needs to be shot down: The concept of "off" and "on" might be better discussed as switches. Take levodopa on time - switch #1 should go on in about 30 minutes to an hour.

#Parkinsons is a bucket with a hole in the bottom.

So this week I didn’t get very far. This is my battle with my own legs and brain. #parkinsons #yopd

You can find beauty, waste precious time, and chase the things that you don’t have.. a shiny new car or the next big thing.. or you can find beauty and happiness in the things that you do have. Life is short.

Be open to change. Be willing to shed old to make space for the new. This is energetically a time of rebirth. It will be chaotic, you will feel unsettled, but remember you hold the power to create the reality you want. Do NOT accept that there is only one option. The universe will meet you. ✨

🤓🤓🤓🤓🤓🤓🤓🤓🤓🤓🤓🤓Join me and a growing number of people with Parkinson’s here on BlueSky bsky.app/profile/did:pl… or just searc#parkinsonsn#yopdp#pdcommunityty

There are lots of new people on Bluesky over the last few days. I wonder if this is a platform where we can build a healthy, supportive Parkinson's community. Like or comment if #Parkinsons or #YOPD is relevant to you I'll build a list to help people find each other. Shares welcome. #PDcommunity

Our first post on Bluesky - hello! We're looking for the #Parkinson's community here. 👋 We've been the leading voice for #Parkinsons in Europe for over 30 years. Our team is small, but mighty! Let's grow a strong voice on Bluesky to share our experiences of living with Parkinson's. ❤️🌷

Freezing of gait.. when your legs just won’t GO is a real problem for me right now but if i walk backwards then it’s a whole different story. (Not a solution) #Parkinsons #yopdTV

Guys, Check on your friends. It’s a lot right now. I know we’re over here in the *good place* disassociating but find ways to support others in RL. 💋❤️🐍

I’ve been pretty quiet lately and i havent posted a videos in a long time. #parkinsons #yopd youtu.be/tvLEVZdUOnk?...

If you have a voice, make it heard and let the message be clear. If you have the heart, you gotta show it. If you have the time, you gotta spend it. If you have a choice, choose the right path. If you have the words, say what you’re really feeling. (ds)

This is interesting. #parkinsons youtu.be/E6c2iPBXVow?...