Mia had a service training session today. After 45 min she snuck away to find a cool, quiet place to nap under the shrubs. I do the same thing when the #MS fatigue hits. Although, I try to avoid the whole crawling under the shrubs part 😆

Genetic Maps Target Root Causes of Multiple Sclerosis https://www.europesays.com/us/808120/ Summary: A milestone neurobiology study has provided the first empirical, direct comparison of the two leading preclinical models…#us #news #usnews

Please share 🙏🏽 Approx. 50-65% of people living with #MS in Ireland have challenges with cognition. #COB-MS trial was developed with a holistic focus on rehab in MS, through an individualised intervention measured taught through OT participation. Recruitment in #Galway & #Dublin open! #spéirghorm

A review of PIP is underway in the UK and those of us with #MS have been invited by @mssocietyuk.bsky.social to get involved. If you have the time & energy, please feel free to contribute as you wish 😀 www.mssociety.org.uk/research/new...

My pal Dave got dxed w #MultipleSclerosis while in the Navy. He's a leader in the Illinois MS community & helped me get my life back on track. Here he is in his "Proud uncle of a Marine" cap. Is there a vet in your life who has MS? Find support for #veterans w MS: tinyurl.com/te65xnek #disability

Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS). You can read the latest update from the trial here: blog.msregister.org/octopus-upda...

By analyzing levels of the protein sNfL in blood serum, researchers at @ucl.ac.uk have identified two distinct subtypes of multiple sclerosis (MS), which appear to progress at different rates and begin in different brain regions. #MultipleSclerosisResearch #MSResearch

Multiple Sclerosis Diagnostic Criteria Explained in graphical form youtu.be/GSHrMn9w0lM?...

Interesting take on Gen-X physiology — feels accurate. Grew up unsupervised taking apart TVs, VCRs, Atari, kitchen appliances… then got yelled at/hit with a belt, wooden spoon, or that wooden beach chair arm that every house seemed to have. Wouldn't trade it for anything 😂 youtu.be/G5YmIqYSqA0

Thanks @theabilitytoolbox.bsky.social for adding our MS Sucks journal to your site. Follow them and check out their resources for people with disabilities. theabilitytoolbox.com

FDA Rejects Tolebrutnib by @brandon-beaber.bsky.social www.youtube.com/watch?v=9LFd...

B-Cell Eviction Day! It was 10° F when I left the house this morning. Usually going out in this temp is a big NOPE for me, but I went with enthusiasm because I’m so over this crap gap.

Downloaded life. Got MS instead. 0/5 stars. Would not recommend.

@griffjc.bsky.social Please don’t block! My name is Brian, I’m a veteran and have #MS. I’m FUNDRAISING for the MS Society and doing squares for the CFP Championship game $20 a square. Half to pot half to fundraiser benefiting the MS Society. Would you like any?

New to #MS and your doc just handed you a wad of pamphlets and said “go home, choose one and let me know”? Here’s a plain-English breakdown of the stronger MS treatment options — specifically the CD20 meds — and what they attempt to do. mssucks.co/l

New Year, same symptoms. Same gremlin immune system refusing to read the god damn manual. If you made it to midnight, congrats 🥳. My New Year Eve tradition, like many other days of the year, kicked off around 7PM when I took my meds and crawled under my weighted blanked. #MS still sucks in 2026

Does Salt Cause Multiple Sclerosis? youtu.be/bu_kqoKuKSw?...

MS drug commercials live in a fantasy world. Rooftop DJs. Rock climbers. Endless energy. Zero symptoms. Reality? Fatigue, heat intolerance, brain fog, medical debt, and just trying to make it through the damn day. These ads do no favors for people with #MS mssucks.co/commercials

Happy Monday. 🌈✨ I’ve officially completed my big achievement for the day: putting on socks and shoes. That heroic feat alone has me ready for a nap. #MSSucks

Alcohol & Multiple Sclerosis: Can You Drink? youtu.be/mmDyu_GT3aI?...

PIPE-307, a “promising” remyelination drug just face-planted in Phase 2. Missed the primary endpoint, missed the secondary endpoint, and basically gave us nothing but a shrug. Hope is great, but data is louder — and this data said “nah.” ir.contineum-tx.com/news-release...

Good afternoon- lovely guests of the tea party. I'll be hosting a Charity Stream For Multiple Sclerosis for MSTrust on the 05/12/25 along with friends, Find the details of this invitation below! #CharityStream #MSTrust #twitch #warhammer40k #gaming #Charity #MultipleSclerosis

As a GenX’er this cracks me up because it’s so true 😆 youtu.be/t2uzCYPcE3I?...

Hello everybunny! My wife, Dragon will be hosting a charity stream for the MS (Multiple Sclerosis) Society! I'd really appreciate it if friends could join in and watch or even lurk during this time! www.twitch.tv/theclockwork... #twitchstreamer #twitch #pngtuber #vtuber #audhd #disabled #ms

Justice has been served. After years of Facebook tracking my every move, which led me to close the account, I’ve finally been compensated—with a life-changing $4.01. I might retire. Or buy half a latte and reflect on my newfound wealth 🤷🏻‍♀️

Mia’s officially home — 3 months old, cute as hell, and already running the place. She came all the way from Mississippi, thanks to an amazing rescue that literally hopped in a van last night and drove 1037 miles to get her to me.

10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...

📚✨Explore the realities and triumphs of navigating life with an invisible chronic illness. Discover the insights and resilience within these pages. Learn More >>> amzn.to/49kKN4B #Fibromyalgia #InvisibleIllness #SurvivalStories

#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it. New post → mssucks.co/k #MSSucks #MSFatigue

Today I'm marching in NYC - No Kings! Tomorrow I'm riding 30 miles circling Manhattan to raise money to find a cure for Multiple Sclerosis I've been living with MS since '87 & I am extremely lucky to still be able to ride a bike Help us find a cure events.nationalmssociety.org/participant/...

For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.

www.youtube.com/watch?v=oxd3... Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social

Rest stop 1: 25 miles Please share this special message and link: mssociety.donordrive.com/participant/... I will personally match every donation received today to my fight, up to $10,000! #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

Interesting 👇 Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination FYI @itreallydoes.com www.biospace.com/drug-develop...

Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks

I bet I've hidden more dead bodies than you have. New Blog Post: When #MS becomes your crappy boss. Read ⮕ mssucks.co/j

Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...

@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social www.theguardian.com/society/2025...

Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...

Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles! #NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon mssociety.donordrive.com/participant/...

I think I figured out why they use to recommend bee stings for #MS. After 5 or 6 stings, you completely forget you have MS while being chased around the yard by a bunch of angry winged sugar junkies. My mistake thinking "Quick peek, no jacket/gloves... What could go wrong???" So, so much can.

Restless legs: the MS version of a rave I didn’t RSVP to. Where’s the free Molly starter pack?

Immunocompromised friends: Anyone use Pemgarda in addition to a COVID vax? Curious if it was useful or just another addition the the “things I injected for fun side effects” list.

I had a cyst removed from a tendon on my middle finger. I'm fine. The OR team did a whole "huddle" where everyone in the room explained their roll. Even asked if I thought anything could trigger my #MS. Caught me off guard how thoughtful that was. Now I'm flipping people off... more than the usual 😂

20 liters of bee syrup a day so far this week. My bees = sugar junkies. My immune system = myelin junkie. Nobody paces themselves at this house 😆 🐝 #MSSucks

Team Microsoft is fighting Multiple Sclerosis! We’ve raised nearly $29K—help us go further! 💙 Donate, ride, or volunteer: together we can end MS now. Every dollar matters! #BikeMS #FundraisingWeek #EndMS #CityToShore2025 @itreallydoes.com events.nationalmssociety.org/teams/micros...