Alcohol & Multiple Sclerosis: Can You Drink? youtu.be/mmDyu_GT3aI?...

PIPE-307, a “promising” remyelination drug just face-planted in Phase 2. Missed the primary endpoint, missed the secondary endpoint, and basically gave us nothing but a shrug. Hope is great, but data is louder — and this data said “nah.” ir.contineum-tx.com/news-release...

Good afternoon- lovely guests of the tea party. I'll be hosting a Charity Stream For Multiple Sclerosis for MSTrust on the 05/12/25 along with friends, Find the details of this invitation below! #CharityStream #MSTrust #twitch #warhammer40k #gaming #Charity #MultipleSclerosis

As a GenX’er this cracks me up because it’s so true 😆 youtu.be/t2uzCYPcE3I?...

Hello everybunny! My wife, Dragon will be hosting a charity stream for the MS (Multiple Sclerosis) Society! I'd really appreciate it if friends could join in and watch or even lurk during this time! www.twitch.tv/theclockwork... #twitchstreamer #twitch #pngtuber #vtuber #audhd #disabled #ms

Justice has been served. After years of Facebook tracking my every move, which led me to close the account, I’ve finally been compensated—with a life-changing $4.01. I might retire. Or buy half a latte and reflect on my newfound wealth 🤷🏻‍♀️

Mia’s officially home — 3 months old, cute as hell, and already running the place. She came all the way from Mississippi, thanks to an amazing rescue that literally hopped in a van last night and drove 1037 miles to get her to me.

10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...

📚✨Explore the realities and triumphs of navigating life with an invisible chronic illness. Discover the insights and resilience within these pages. Learn More >>> amzn.to/49kKN4B #Fibromyalgia #InvisibleIllness #SurvivalStories

#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it. New post → mssucks.co/k #MSSucks #MSFatigue

Today I'm marching in NYC - No Kings! Tomorrow I'm riding 30 miles circling Manhattan to raise money to find a cure for Multiple Sclerosis I've been living with MS since '87 & I am extremely lucky to still be able to ride a bike Help us find a cure events.nationalmssociety.org/participant/...

For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.

www.youtube.com/watch?v=oxd3... Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social

Rest stop 1: 25 miles Please share this special message and link: mssociety.donordrive.com/participant/... I will personally match every donation received today to my fight, up to $10,000! #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

Interesting 👇 Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination FYI @itreallydoes.com www.biospace.com/drug-develop...

Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks

I bet I've hidden more dead bodies than you have. New Blog Post: When #MS becomes your crappy boss. Read ⮕ mssucks.co/j

Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...

@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social www.theguardian.com/society/2025...

Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...

Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles! #NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon mssociety.donordrive.com/participant/...

I think I figured out why they use to recommend bee stings for #MS. After 5 or 6 stings, you completely forget you have MS while being chased around the yard by a bunch of angry winged sugar junkies. My mistake thinking "Quick peek, no jacket/gloves... What could go wrong???" So, so much can.

Restless legs: the MS version of a rave I didn’t RSVP to. Where’s the free Molly starter pack?

Immunocompromised friends: Anyone use Pemgarda in addition to a COVID vax? Curious if it was useful or just another addition the the “things I injected for fun side effects” list.

I had a cyst removed from a tendon on my middle finger. I'm fine. The OR team did a whole "huddle" where everyone in the room explained their roll. Even asked if I thought anything could trigger my #MS. Caught me off guard how thoughtful that was. Now I'm flipping people off... more than the usual 😂

20 liters of bee syrup a day so far this week. My bees = sugar junkies. My immune system = myelin junkie. Nobody paces themselves at this house 😆 🐝 #MSSucks

Team Microsoft is fighting Multiple Sclerosis! We’ve raised nearly $29K—help us go further! 💙 Donate, ride, or volunteer: together we can end MS now. Every dollar matters! #BikeMS #FundraisingWeek #EndMS #CityToShore2025 @itreallydoes.com events.nationalmssociety.org/teams/micros...

“#Decluttering your home, office, or anywhere else you spend significant time can cut your risk of tripping. One study noted that when individuals with #MS reduced clutter, they reported fewer #falls and better #QualityOfLife.": buff.ly/i84QGrW from MyMSTeam #disability

Multiple Sclerosis: 18 New Drugs! youtu.be/u6tkAdvBja8?...

What’s the most diabolically passive-aggressive thing you’ve ever done? I’ll start… I always buy my friends’ kids Legos on the off chance one is lurking on floor at 3 a.m to be found on a half-asleep toilet walk. Maybe that means they’re just acquaintance? 🙉🙊🙈

I made the bees some food a few days ago. Was empty the next morning and wasn’t sure if they drank it all or something else got it. So I refilled it, next AM empty. Refilled this morn and spectated to see what was getting it. Barely 40 minutes and it was empty. I think I started a bee crack den.

#MS is… Jumping in the shower and scrubbing your hair with body wash and your ass with shampoo. Different bottle, different color, different consistency—doesn’t matter. Stupid MS addled brain. Drop your most ridiculous brain fog moments. Let’s celebrate the stupid together.

The ass crack of dawn.

Infusion day. One of two days a year I get to hit back. If my immune system’s gonna freelance and ignore the manual, I’m taking away one of its favorite toys. No B-Cells for you, ya little shit.

Off to a great start this morning. Brain/Cervical MRI at 7:20. Lost balance getting dressed hit the floor. Then smacked my head getting into the car like I’m trying to give them something extra to find. 43mi drive, arrive and remember the wallet is still at home. Damn #MS brain

The first of many posts to come because the clock starts now! #NeverStopNeverQuit #NeverStopNeverQuitForThem #BikeMSOregon #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon neverstopneverquit.blogspot.com/2025/07/two-...

Annual thoracic MRI: done! Checking for new squatters to see if Briumvi is doing its job. MS doesn’t do deposits or give notice—just moves in. Didn’t pee myself or fart in the tube, small wins! Brain & cervical get scanned on the 15th. Curious how many more assholes showed up uninvited. #MS

I’ve been a bit absent the last few weeks because my cuddle buddy, Zoey, passed away. The empty house has been a bit much so I’ve been keeping myself overly busy. If I missed any messages, I’ll get back to you eventually as I get caught back up.

Have you ever been asked to use these terms in describing your pain to a doctor? This chart is absolutely fabulous for describing pain in terms doctors can hear and understand. This is amazing. MSDinosaurs Multiple Sclerosis chronic illness Crop Disability www.sralab.org/sites/defaul...

Finally a day without rain (so far) and it hit a comfy 74°F. Meanwhile, #MS is over here flipping the hot/cold switch like a sugar-rushed toddler who just discovered chaos is an option.

Coming Up Short Author's Selection Special Edition will ONLY be available on Kickstarter. Please follow and share! Here's the Kickstarter link: www.kickstarter.com/projects/cdw... #booksky #readersky #bookcollectors #booklovers #horror #scary #psychologicalhorror #bookish #bookworm #books

#MS, being the asshat that it is, looked at neck movement and said, “You know what this needs? Electrocution.” Welcome to Lhermitte’s Sign—the unwanted electric shock therapy you didn’t sign up for. mssucks.co/i

If you’re a caregiver for someone with MS, the research company I share/promote has a new survey just for you—and it’s an easy $50. Takes barely any time, no catch. Just sharing your experience and getting paid for it. Sign up here: mssucks.co/survey Caregivers deserve to be heard—and paid.

Predicting progression of #MS www.eurekalert.org/news-release...

What is #MS

What story are you telling? What story are you living? #MultipleSclerosis #chronicillness #MentalHealth @brucewayne24.bsky.social @lightgrw.bsky.social @mal-pram.bsky.social @staykinduniverse.swifties.social

“ignoring a #WheelchairUser and talking instead to their companion is infantilizing and demoralizing. It’s especially outrageous because it happens almost every time I fly.": buff.ly/4tGbtBA from @bezzycommunity.bsky.social #ChronicIllness #MS #awareness #disabled

Being a "Professional Patient" sucks. Getting paid for it, might suck a little less. Do you or someone you care for have a chronic illness? This survey company pays ~$120/hr for surveys about your conditions. Yes, it's real. Jan - Apr I've had 370 deposited. Free to sign up. ➡️ mssucks.co/survey

This weather change kicks off a new round of Which Symptom Wants Me Dead Today? Saturday it was tremors, Sunday it was vertigo and nausea, today it’s the MS hug strangling me like it’s trying to win a damn trophy. Place your bets and grab popcorn. It’s a hell of a show. 😂