For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.

www.youtube.com/watch?v=oxd3... Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social

Rest stop 1: 25 miles Please share this special message and link: mssociety.donordrive.com/participant/... I will personally match every donation received today to my fight, up to $10,000! #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

Interesting 👇 Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination FYI @itreallydoes.com www.biospace.com/drug-develop...

Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks

I bet I've hidden more dead bodies than you have. New Blog Post: When #MS becomes your crappy boss. Read ⮕ mssucks.co/j

Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...

@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social www.theguardian.com/society/2025...

Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...

Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles! #NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon mssociety.donordrive.com/participant/...

I think I figured out why they use to recommend bee stings for #MS. After 5 or 6 stings, you completely forget you have MS while being chased around the yard by a bunch of angry winged sugar junkies. My mistake thinking "Quick peek, no jacket/gloves... What could go wrong???" So, so much can.

Restless legs: the MS version of a rave I didn’t RSVP to. Where’s the free Molly starter pack?

Immunocompromised friends: Anyone use Pemgarda in addition to a COVID vax? Curious if it was useful or just another addition the the “things I injected for fun side effects” list.

I had a cyst removed from a tendon on my middle finger. I'm fine. The OR team did a whole "huddle" where everyone in the room explained their roll. Even asked if I thought anything could trigger my #MS. Caught me off guard how thoughtful that was. Now I'm flipping people off... more than the usual 😂

20 liters of bee syrup a day so far this week. My bees = sugar junkies. My immune system = myelin junkie. Nobody paces themselves at this house 😆 🐝 #MSSucks

Team Microsoft is fighting Multiple Sclerosis! We’ve raised nearly $29K—help us go further! 💙 Donate, ride, or volunteer: together we can end MS now. Every dollar matters! #BikeMS #FundraisingWeek #EndMS #CityToShore2025 @itreallydoes.com events.nationalmssociety.org/teams/micros...

“#Decluttering your home, office, or anywhere else you spend significant time can cut your risk of tripping. One study noted that when individuals with #MS reduced clutter, they reported fewer #falls and better #QualityOfLife.": buff.ly/i84QGrW from MyMSTeam #disability

Multiple Sclerosis: 18 New Drugs! youtu.be/u6tkAdvBja8?...

What’s the most diabolically passive-aggressive thing you’ve ever done? I’ll start… I always buy my friends’ kids Legos on the off chance one is lurking on floor at 3 a.m to be found on a half-asleep toilet walk. Maybe that means they’re just acquaintance? 🙉🙊🙈

I made the bees some food a few days ago. Was empty the next morning and wasn’t sure if they drank it all or something else got it. So I refilled it, next AM empty. Refilled this morn and spectated to see what was getting it. Barely 40 minutes and it was empty. I think I started a bee crack den.

#MS is… Jumping in the shower and scrubbing your hair with body wash and your ass with shampoo. Different bottle, different color, different consistency—doesn’t matter. Stupid MS addled brain. Drop your most ridiculous brain fog moments. Let’s celebrate the stupid together.

The ass crack of dawn.

Infusion day. One of two days a year I get to hit back. If my immune system’s gonna freelance and ignore the manual, I’m taking away one of its favorite toys. No B-Cells for you, ya little shit.

Off to a great start this morning. Brain/Cervical MRI at 7:20. Lost balance getting dressed hit the floor. Then smacked my head getting into the car like I’m trying to give them something extra to find. 43mi drive, arrive and remember the wallet is still at home. Damn #MS brain

The first of many posts to come because the clock starts now! #NeverStopNeverQuit #NeverStopNeverQuitForThem #BikeMSOregon #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon neverstopneverquit.blogspot.com/2025/07/two-...

Annual thoracic MRI: done! Checking for new squatters to see if Briumvi is doing its job. MS doesn’t do deposits or give notice—just moves in. Didn’t pee myself or fart in the tube, small wins! Brain & cervical get scanned on the 15th. Curious how many more assholes showed up uninvited. #MS

I’ve been a bit absent the last few weeks because my cuddle buddy, Zoey, passed away. The empty house has been a bit much so I’ve been keeping myself overly busy. If I missed any messages, I’ll get back to you eventually as I get caught back up.

Have you ever been asked to use these terms in describing your pain to a doctor? This chart is absolutely fabulous for describing pain in terms doctors can hear and understand. This is amazing. MSDinosaurs Multiple Sclerosis chronic illness Crop Disability www.sralab.org/sites/defaul...

Finally a day without rain (so far) and it hit a comfy 74°F. Meanwhile, #MS is over here flipping the hot/cold switch like a sugar-rushed toddler who just discovered chaos is an option.

Coming Up Short Author's Selection Special Edition will ONLY be available on Kickstarter. Please follow and share! Here's the Kickstarter link: www.kickstarter.com/projects/cdw... #booksky #readersky #bookcollectors #booklovers #horror #scary #psychologicalhorror #bookish #bookworm #books

#MS, being the asshat that it is, looked at neck movement and said, “You know what this needs? Electrocution.” Welcome to Lhermitte’s Sign—the unwanted electric shock therapy you didn’t sign up for. mssucks.co/i

If you’re a caregiver for someone with MS, the research company I share/promote has a new survey just for you—and it’s an easy $50. Takes barely any time, no catch. Just sharing your experience and getting paid for it. Sign up here: mssucks.co/survey Caregivers deserve to be heard—and paid.

Predicting progression of #MS www.eurekalert.org/news-release...

What is #MS

What story are you telling? What story are you living? #MultipleSclerosis #chronicillness #MentalHealth @brucewayne24.bsky.social @lightgrw.bsky.social @mal-pram.bsky.social @staykinduniverse.swifties.social

“ignoring a #WheelchairUser and talking instead to their companion is infantilizing and demoralizing. It’s especially outrageous because it happens almost every time I fly.": buff.ly/4tGbtBA from @bezzycommunity.bsky.social #ChronicIllness #MS #awareness #disabled

Being a "Professional Patient" sucks. Getting paid for it, might suck a little less. Do you or someone you care for have a chronic illness? This survey company pays ~$120/hr for surveys about your conditions. Yes, it's real. Jan - Apr I've had 370 deposited. Free to sign up. ➡️ mssucks.co/survey

This weather change kicks off a new round of Which Symptom Wants Me Dead Today? Saturday it was tremors, Sunday it was vertigo and nausea, today it’s the MS hug strangling me like it’s trying to win a damn trophy. Place your bets and grab popcorn. It’s a hell of a show. 😂

Join the free online course worldmsday.org/online-course/ #MSAwarenessWeek #MSConversations #MSMakesMe #BringingUsCloser #WorldMSDay #MSFighter #MSWarrior #MS #MultipleSclerosis worldmsday.org

Multiple Sclerosis Lesion in the Cerebellum Causing Vertigo youtube.com/shorts/I0nUM...

Support the National #MS Society at Get Caked in Rochester, NY! Buy a circle of support for $1 or pay $5 and get a cookie or cupcake of your choice! Please share! #nmss #BikeMS #WalkMS #mssucks #ROC #villagegate #charity #worldfreeofms #ROCtheGreatLakes #multiplesclerosis #getcakedroc

Vitamin D for Multiple Sclerosis Randomized Trial Results youtu.be/OcuThBqAHWk?...

Hi! I have a close family friend who was recently diagnosed with Multiple Sclerosis. I'm walking for MS this Sunday at Gasworks park here in Seattle. Please donate to my fundraising page to help MS research! events.nationalmssociety.org/participant/...

Hi, I'm a high school student who decided to conduct a research project on Multiple Sclerosis (MS) this year. I have a survey that I need people with MS to fill out. It should only take a couple of seconds and would be really helpful. Thank you! docs.google.com/forms/d/e/1F... #multiplesclerosis

Watching this guy on TV that got stung by sea urchins. 3 days later “I have no energy. Constantly nauseous. Legs keep cramping. I’m all wobbly walking. All my joints hurt.” Sea urchins gave him a three-day crash course in #MS and he’s already crying. At least it came with a return policy. Amateur 🤣

The favorite child acting like she pays for the gas to take her for a pedicure. Meanwhile, I’m over here driving Miss Barksy

Just some notes to think about #MultipleSclerosis #MultipleSclerosisAwareness #MS #MSSucks #CureMS

🚀 Introducing Our Apps! 📱✨ 2/3 Understanding pain is the first step toward managing it. See how our app could help you change your relationship with pain, and move toward a meaningful life. Stay tuned! 🧡

How #MS was invented.

I bet my soul smells like weed—and #MS. But also trauma, bad joints, and a touch of “did I take my meds today?” 🧠💨💀 We added a few new cannabis / MS shirts to the shop for the upcoming 4/20. #MSSucks mssucks.co/soul