Brain Stem compromise. Vagus nerve involvement. Bollocks. #MS #MultipleSclerosis #CranialNerve10 #CNX

B cell targeted CAR-T therapy for autoimmune diseases www.eurekalert.org/news-release...

This is an incredible read. What a woman. With everything she has been through she still shows up. There are no words. #MS #Cancer #Survivor #NeverGiveUp

#MS_Selfie Spring news - good news Fenebrutinib pulverises teriflunomide in relapsing multiple sclerosis gavingiovannoni.substack.com/p/spring-new...

Energy management is medical, not optional. More at livewithms.com #MSFacts #LiveWithMS #MSFatigue

Lucid-MS Phase 2 Trial imminent. Reduce myelin loss and promote myelin repair. Two phrases I like the sound of a lot! multiplesclerosisnewstoday.com/news-posts/2...

Yes it's #dysphonia, yes that's a term (in plain English) used for trouble with speaking. Yes, I have weak vocal chords!! What of it? What's it to you?! 🤣 Vocal physio is now the order of the day. I'll be a baritone before you know! 😂🤣

Christina Applegate has long been admired for her candour, but her recent reflections on living with multiple sclerosis offer an especially stark window into the realities faced by many people with chronic neurological illness...Read more👇 #news #Hollywood #MS www.allangles.co.uk/2026/02/chri...

You are allowed to grieve who you were — without giving up on who you can become. Confidence after diagnosis is not denial. It’s integration. More at livewithms.com #MultipleSclerosis #LiveWithMS #ChronicIllnessJourney

Crushed by #MS #fatigue today. Full day at the wife's MSc graduation ceremony has put me on my ass all day. Love the delayed onset of it all. Love it I do!! 🤬🤬😩

Not a truer word spoken 🙏🏼 I'm currently on 48hr rest to try and get my walking ability back. MS sucks! 🤬😭😩

Living with MS means: Planning carefully. Canceling unexpectedly. Adapting constantly. That’s not inconsistency. That’s awareness.

Voice and breathing complaints are more than likely because of #MS brainstem lesions in the pons and medulla oblongata. 11th cranial nerve involvement. That's why ENT don't care. Nowt to do with them! All Neurology's deal! 🤦🏻‍♂️🤬

**URGENT** referral to ENT in August '25. It's been cancelled/rescheduled 7 times now. NHS is fucked. I need a Dr. Private is the only way. Must invoke the STOP technique immediately!! 🤬🤬 #Livid #Dysphonia #MS #ENT #NHS

Hey Jen! @trippingtreacle.bsky.social great to see you over here, that other site got vile and I decamped over here recently too 😊 Glad to see a familiar face. How are you?

The STOP technique thewellnesssociety.org/wp-content/u... #Mindfulness #STOP

New hope?! #MS #Bavisant #MyelinRepair mymsbuddy.com/news/view/ne...

Hey @brunoamaral.eu, I'm looking for the unsubscribe process for the Gregory AI emails, but there is no obvious link for me to process this. Can you help me out with this please?

#AuroraBorealis above my house late last night. Not #MS related. Absolutely awesome to see so clearly. Amazed at how powerful our star is.

First CAR-T cell therapy in the UK for #MS. #UCLH #CAR-T #Obe-cel www.uclh.nhs.uk/news/first-m...

“Using support doesn’t make you weaker. It makes life more accessible.” Independence looks different for everyone living with MS — and that’s okay. #ChronicIllness #MSAwareness #Accessibility

New to #MS and your doc just handed you a wad of pamphlets and said “go home, choose one and let me know”? Here’s a plain-English breakdown of the stronger MS treatment options — specifically the CD20 meds — and what they attempt to do. mssucks.co/l

Yes, agree. This discussion is very helpful as we make decisions about our own treatment. CAR-T is going to become more accessible I hope (I had it 1.5 years ago and believe I'm now in remission). I want this for everyone. It's important that @gavingiovannoni.bsky.social and others advocate for it.

It’s not “doing nothing” if your body needs it to survive. #RestPlease

I’m not mad at my body. I’m just still learning to negotiate with it. #ChronicLife

Thank you to @gavingiovannoni.bsky.social for writing this over 2 years ago. Thought provoking and will contribute to my discussions with my neuro. #MS #AHSCT #CAR-T-Cell gavingiovannoni.substack.com/p/ahsct-vs-c...

CAR-T for Leukaemia in the news as well! It's a good news day!! #CAR-T #Leukaemia #MS #Cure First leukaemia patient to receive pioneering treatment on NHS says it is 'very sci-fi' www.bbc.co.uk/news/article...

Exercise to treat depression yields similar results to therapy www.eurekalert.org/news-release...

Professor G (Gavin Giovannoni) on B-cells, EBV infection, and B-cell target therapies in multiple sclerosis youtu.be/ZJdaVwPBI9M?...

You’re not weak for needing rest. You’re managing a nervous system that works harder than most people’s.

Theories about how epstein barr virus infection could cause multiple sclerosis pubmed.ncbi.nlm.nih.gov/41505824/

Absolutely hysterical! Can't. Stop. Watching. 😂🤣😂🤣😂🤣😂

Are you happy with your current multiple sclerosis treatment? Do you feel it is under control? #multiplesclerosis

The FDA explains its rejection of the multiple sclerosis drug tolebrutinib in a Complete Response Letter (CRL). "A favorable benefit-risk profile could not be established for any patient subpopulation" download.open.fda.gov/crl/CRL_NDA2...

NY intention, numero dos #MultipleSclerosis #NeverGiveUp

NY intentions, numero uno #NeverGiveUp #MultipleSclerosis

New Years intentions: - #MSGym physio every other day (it started today) - Walk outside, no matter the distance, as often as possible. - Eat well. - Rest better. - Remain sober. - Start running again, slowly but surely. #NeverGiveUp #MultipleSclerosis

Myth: “If you can walk, your MS must be mild.” Truth: Mobility says nothing about fatigue, pain, cognition, or sensory overload.

Happy New Year to all my #MS friends on here. You've all brought so much to my life since I joined this platform, sharing news, research, joy and happiness. I wish you all well and hope 2026 is an improvement on 2025! HNY All 😊😀

I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife

5 Questions Every MS Patient Must Ask Their Neurologist by @AaronBosterMD youtu.be/cVqE933zAyg?...

Your pain is real. Your fatigue is real. Your symptoms are real — even when others can’t see them.

Myth: “If you look fine, you must feel fine.” Truth: MS is mostly invisible. The hardest symptoms rarely show on the outside.

Two new subtypes of MS found in ‘exciting’ breakthrough www.theguardian.com/society/2025...

You are not “too much.” You are navigating a neurological condition that most people will never understand — with strength they will never see.

This is an exquisite opportunity to remove yourself from the hectic, madly rushed, painful and exhausting world of #MS (and any other mind & body intoxicating situations) I listen on SoundCloud and it works. It rids me of severe negative thoughts and rights me again to get on with my days.

No one mentions how lonely it is to live in a body that seems to actively fight against you. #ChronicallyIll

MS can delay signals from your feet and legs, making the ground feel “unsteady” even when it isn’t.

Had my first alcoholic beer in 2 years today! #MS stopped my enjoyment of real ale in December '23. I will fight it! #NeverGiveUp

Myth: “MS fatigue is just being tired.” Truth: MS fatigue is a mix of neurological overload + metabolic dysfunction — not effort-based exhaustion.