“What Is Myalgic Encephalomyelitis Like? Patient & Caregiver Perspectives” shares 80 firsthand accounts from people living with and caring for those with ME worldwide. BHC was honored to write the book foreword and chapter forewords for this important project by WIMEL writers. Available on Amazon.

Please Buy & Share this book. #FrailAndFurious #MillionsMissing #ME #ME/CFS @MEaction

Call ME Frail but protect our healthcare. ME must be classified as a “medically frail” condition. Medicaid work requirements threaten to harm our community unless ME/CFS & Long Covid are put into this category of listed diseases. www.meaction.net/savemedicaid #FrailAndFurious #MillionsMissing

Today is World #ME Day. My thoughts and solidarity are with everyone dealing with Myalgic Encephalomyelitis, aka ME or MECFS. Like millions of others with long COVID, I suffer from it. Update from @thereforme.bsky.social @emmagl.bsky.social @karenlhargrave.bsky.social 🤍 #MEcfs #MillionsMissing

If you’re not affected by ME, I challenge you to look through the hashtags this #MEAwarenessDay & choose one post to share on behalf of the #MillionsMissing. We desperately need healthy allies to get angry for us & advocate for research & social support 💙 #MECFS #WorldMEDay #GreatestMEdicalScandal

It’s ME Awareness Day-a perfect time to get your copy of ‘What Is Myalgic Encephalomyelitis Like?’ Available now on Amazon, it has 80 first hand accounts of life with this debilitating illness. I can’t wait til my copies arrive!

We’ve seen a lot of pictures like this today! We hope everyone who has received their copy is as happy as this.

#MEAction met with four Congressional Offices today alongside #NotJustFatigue to discuss funding the ME/CFS Research Roadmap via appropriations. We still have 8 more meetings with Congressional Members to go! #MillionsMissing #pwME #MECFS #LongCovid

ANZMES press release anzmes.org.nz/take-me-seri... "The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) is officially marking World ME Day on 12 May 2026 with a national call to action under the global theme “Take ME Seriously”." #MEcfs #CFS #PwME

Today marks the start of #MEAwarenessWeek (11-17 May). More people are aware of #MECFS but work is still needed to counter misinformation and share medical information. Here are 6 myths and facts everyone should know about #MyalgicEncephalomyelitis. worldmealliance.org/2025/04/worl...

“Imagine you must operate on 15% energy, at your best. If you go into the red it can take days, weeks or months to recover, and only to 15%.” Úna, Ireland, living with myalgic encephalomyelitis since 1982

Finally holding a copy of our book; the fruit of so much effort. Fitting somehow that it has been delivered on a day I'm unable to make it out of bed, having expended a lot of energy (happily) yesterday. Please buy and share! @pillowwriters.bsky.social Day 11 of #MEAwarenessMonth #MECFS #MedSky

Huge congratulations to our WIMEL group on the publication of their incredible book. What is Myalgic Encephalomyelitis Like? Patient & Caregiver Perspectives The book is now available to purchase via Amazon.