One of the best books I have ever read. Get it!

In case anyone else needs this completely life-changing information:

If you see this, don't participate. It's a rigged study by Lisa Littman and unethical researcher J. Michael Bailey meant to undermine access to care. Spread the word.

“ICE agents, get out now because historically, this ends with you hanging from a lamppost and your body paraded through the streets.” - the …we rate dogs guy

wikipedia turns 25 today! the last unenshittified major website! backbone of online info! triumph of humanity! powered by urge of unpaid randos to correct each other! somehow mostly reliable! "good thing wikipedia works in practice, because it sure doesn't work in theory" - old wiki adage

So you not only get fat, your brain also melts. And by you I mean me 😬 #longcovid

Amazing touching portrayal of Tom with severe ME made by his best friend Jonas, who's a film student. I was honored to have been asked to share some of my life with ME. You can turn on ENG auto-generated subs. Watch it, share it! youtu.be/XTWIWqzaG2c?... #pwme #severeME

If you use google this is gold

Props to the folks protesting Black Friday spending In a few days, if you want art made by a real human save these :) Art prints - fineartamerica.com/profiles/7-j... Fabric/Housewares/Wallpaper - www.spoonflower.com/profiles/viv... Nerdy Tees and more - www.teepublic.com/user/vivid-c...

The “problem” with vaccines? They so effective at preventing deaths that they create generations of people that question whether disease was a problem in the first place because they have never experienced the horrors of a world without vaccines.

If even one person is coerced into MAID because of solvable social issues like lack of housing, the government has failed us and MAID is no longer ethical as it currently is. .. and yes, many people who were not terminate and only needed help have already be euthanized. #Canada

Ttrpg map grid over grass Spoonflower does sell finished tablecloths with this, but its FAR cheaper to just buy the fabric you'd need. You could just use some fabric glue on the edges for a hem :) #Art #ttrpg www.spoonflower.com/en/fabric/14...

Don't forget to stay hydrated and to stay inside between 10AM and September 01.

To spite our corporate overlords, Im trying to sell my art on my own! This design is also available in mint green in the shop. #DnD #Pf2e #TTRPG #Art #Jofi ko-fi.com/s/4cb17ccc20

I am so sorry to say that Walker Storz, a person with severe ME, has passed away. Walker was an essayist, a poet, a musician, and someone I chatted with many times via email. A beautiful essay he wrote in 2022: www.todaysamericancatholic.org/2022/05/mere... May his memory be a blessing.

👋 Hi, we’re Unbreaking, a volunteer-run collective working to document our current moment of institutional collapse and its human costs—as well as the pushback and resilience work already underway. We believe this is critical work for building and retaining political agency.

All the things I do to distract myself from my illnesses just make my illnesses worse

Disabled people are often seen as demanding and controlling - in this blog I look at an example of why this might be, and what is really going on:

Steam-a-thon happening now to raise money for Trans folks who need gender affirming care. Donate if you can, spread the word if you can't :) www.youtube.com/watch?v=NUF6...

Source: @mrlovenstein.bsky.social

When we were introduced at the meeting the woman said that she recognized me “you’re the person who always wears a mask,” and though I wanted to say that there are worse things to be recognized for, instead I just said: it’s nice to meet you too.

My friend, who until recently, worked for the government keeps sending me updates about research grants being cut, and so I asked him if he thinks people will die due to these cuts, and in response he said “it’s not that people will die, it’s that they’re being killed.”

Comme on le craignait

The complicated part about the male loneliness epidemic is that, it's very real, in the sense that social media made us more disconnected than ever. Unfortunately, the people that cornered tackling that subject are all "and it's femoiiiiiiiids fault, bruv !" grifters.

Masking is punk (visibly deviating from social conventions, aligned with progressive values, makes you look awesome)

Belle caricature de Chloé Germain-Thérien dans Le Devoir aujourd'hui. Heureux de voir que le concept de fenêtre d'Overton circule davantage dans l'espace public ces temps-ci. Les idées folles d'hier sont devenues la norme aujourd'hui, à grands coups de tronçonneuse.

I want to announce my new Print Store! www.whitneydafoe.com/store I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life

I hope that this gets funded, what with the US cancelling science…

For #InternationalWomensDay: 3/4 of persons w/ #MyalgicEncephalomyelitis are women & stats are similar for #LongCovid. Most persons w/ #MultipleSclerosis are also women & before the advent of the MRI, M.S. was deemed "The Faker's Disease". Medical misogyny kills. #IWD

Artist: ChronicallyMeh on Insta #chronicillness #chronicallyill #autoimmune

Avec Daphné, on découvre des choses 😋

Meh #chronicpain #chronicpainmemes #chronicillnessmemes

THE GAUNTLET As sick leave costs spiral, European states move to cut benefits Across France, Germany and the UK the story is the same: people are sicker, and governments are blaming the sick open.substack.com/pub/thegaunt...

Die más. Poem in the Shape of the Poet Beating Henry Kissinger to Death with Their Bare Hands by Felix. tacobellquarterly.org/poem-in-the-...

I don't think my body realizes how healthy my labs say I am

As of today, Long COVID is no longer listed in the U.S. Department of Labor Directory of Disabilities Pages re other diseases/disabilities remain available “It seems like LC has been targeted”

Amazing response by Rob Wust et al. that makes the response by Ranque et al. seem painfully silly. One way sad we still need to refute these nonsense claims, but on the other hand an awesome document why the deconditioning claim by the BPSers is nonsense. www.nature.com/articles/s41...

“Despite current popular belief, the immune system is NOT a muscle, and does NOT benefit from being repeatedly challenged with disease-causing microbes. In fact, its finite resources are depleted with each new infection.”

Another day.. another reason to wear the shirt.

This is so important right now. Journalists, your images need alt text so we can search for keywords, so people who use screen readers can understand them. When your images are accessible, people who desperately need this information can access it. Use the OCR tools on your phone. It's so easy.

Apropos of everything, this is the text of the speech I gave when I was one of the guests (with Rivers Solomon and Ryka Aoki) at WisCon in 2023. (It was a great con except for the fact that I'd just found out I had cancer) marthawells.dreamwidth.org/620264.html

“However, during the Omicron era, protection was robust only for those recently infected, declining rapidly over time and diminishing within a year.” No herd immunity! Shocking I know. www.nature.com/articles/s41...

"Techniquement, c'est pas qu'on est POUR l'intolérance. On se demande juste si c'est pertinent d'enseigner la tolérance." - Le PQ presque littéralement

*sigh*

Are you a disabled person who has been affected by the federal funding freeze? Have you been unable to access services, benefits, or care? Share your story with us tonight, February 4, for a Congressional hearing tomorrow. Email your story to [email protected]