Long COVID (and life) teaches you this. Research imagines what medicine could be, but medicine often shrugs. The best doctors chase the questions. The worst don’t even look up.

Important new work from @leorahorwitzmd.bsky.social + NIH RECOVER (incl my son Max 🥰). Link👇 Nearly 80% of those with self-reported change in/loss of sense of smell after SARS-CoV-2 infection were found to have ↓ olfactory function on formal testing. Rate ↑ but not entirely unexpected.

The NIH in the US have highlighted a recent ME/CFS study they funded: "Overactive immune responses in ME/CFS" www.nih.gov/news-events/... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mhornig.bsky.social

Great to speak w/@jasongale.bsky.social to add much-needed depth back into the still-unfolding story of autism pathogenesis. Hopefully helps to course-correct Monday's WH presser, which put forth clinical guidance many find worrisome + dangerous for pregnant women + their developing offspring.

🚨🧵 by @david.notesforfriends.com about Covid's damage & a cigarette metaphor: "Your Body Is Keeping Score Here’s the thing nobody gets: COVID doesn’t give a shit about your positive thinking. It’s not checking your Instagram to see..." Full🎯thread here: threadreaderapp.com/thread/19645...

Not just scientists and universities anymore: threat to nonprofits: insurance companies are cancelling insurance because of environmental advocacy eedition.timesunion.com/infinity/art...

When the moment came, Harvard didn’t hedge or flinch—it stood up. A reminder that integrity isn’t complicated, it’s just rare.

Jesse Welles delivers one more time what you’ve probably been trying to put into words… RED #singersongwriter #country #folk #song 👇👇👇

"Driving under viral impairment" ▶︎ #SARSCoV2 PCR positivity rates (CDC) associated w/car crashes: OR 1.25 [1.23-1.26] ▶︎ independent of Long COVID status/vaccination status ▶︎ risk analogous to driving impairment w/EtOH at legal limits dx.plos.org/10.1371/jour...

h/t Collab for Health & Environment @che-healthenv.bsky.social Lawyers for Good Government is providing legal advice/support for all qualifying federal grantees w/funding at risk. 1:1 consultations pro bono to EPA, USDA, DOE grantees. See: www.lawyersforgoodgovernment.org/fund-protect...

1. Today in Santa Barbara I saw an extraordinary abstract art piece—or so it seemed—from Hank Willis Thomas. As we speak, Trump seeks to erase large swaths of our history, attempting to erase the most shameful parts of our history, and paint over the triumphs and sacrifices of people of color.

For context, as we extend past 5 years from the start of the pandemic: Although some findings in Long COVID are reminiscent of the illness duration effect we found in ME/CFS 👇, immune analyses over time in rigorous prospective, long-term studies of Long COVID are imperative to pursue now.

DOGE/SSA marked this person dead and *removed his savings from his bank account,* cancelled his social security and Medicare. #seattle https://www.seattletimes.com/seattle-news/politics/heres-a-dead-person-on-social-security-in-seattle-with-plenty-to-say/

Walz: "The idea that the secretary of education would not know what IDEA is -- individuals with disability in education act -- that's like your mechanic not knowing how to put air in your tire. And she's in charge of this nation's education progress. It is catastrophic."

AOC: "It's not just that Trump is corrupt. It's that everyone participating in this is corrupt. Elon is corrupt. Jeff Bezos is corrupt. Mark Zuckerberg is corrupt." 🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥

What a wonderful idea…👇 Let’s. Do. This. ✨

In case you were wondering how Fox News is covering the proposed cuts at the NIH:

PLOS has issued a statement on recent US Executive Orders and scientific integrity. We are determined to stand firmly behind our mission, our values and our principles, and against any attempt at censorship or undermining of the core principles of scientific inquiry. plos.io/3D4O8cH

There's a wonderful letter to Cochrane about their outdated and harmful review of exercise as a treatment for ME/CFS, organised by @davidtuller1 and signed by a group of experts. virology.ws/2025/02/20/t...

Great 🧵by @leorahorwitzmd on the new JAMA ppr on 2024 update to #NIHRECOVER #LongCOVID index. Also listen to her incisive presentation on the podcast (see🔗👇). Great to work w/this group as we strive to refine understanding of this disabling disorder's clinical manifestations

12/18, JAMA: “2024 Update of the RECOVER-Adult Long COVID Research Index” Linda N. Geng, MD, Kristine M. Erlandson, MD, Mady Hornig, MA, MD et al. jamanetwork.com/journals/jam...?

OK #oncsky: 45+y ago Koprowski proposed CA19-9 as part of #PDAC screening armamentarium. Yet few pubs on clinical f/u of assay discordance. 👇 (*same* hosp sys; no known clin correlate): Siemens assays consistently ↑↑ (mid-triple digits) Beckman assays consistently normal Which assay do you trust?

I am only at 81 followers 🥲 Can you guys re-post this so I can reconnect with more people here. It's me, Ramy 👋

Make America Healthy Again lasted less than a Scaramucci

HUGE THANKS 🏆 to everyone who has signed so far! We're at ✨8300 signatures✨-- can you help get us to 10k? This petition closes TODAY so please sign and share, not just here but w/your networks!

Hey @support.bsky.team after successfully managing to get #medsky labels removed, my profile now suddenly states “Invalid handle” instead of showing the handle. How to fix?

I'm just not so sure the presidency and the position of attorney general were meant to be safe havens for people trying to avoid prison time

Thx for the heads up @erictopol.bsky.social Really 🙏 to see this attention to #LongCOVID. The cover art suggests to me not only the burden shouldered by patients/those who care for them but the weighty challenges posed to our medical/scientific communities as well. May the momentum be sustained…

Sustainable Microbiology (doi.org/10.1093/sumb...) The ISME Journal (doi.org/10.1093/isme...) mSystems (doi.org/10.1128/msys...) FEMS Microbiology Ecology (doi.org/10.1093/fems...)

“Our study of #MECFS symptoms in two cohorts with different recruitment strategies demonstrates that…a clinically significant group of individuals with #LongCOVID exhibit a phenotype consistent with #MECFS” www.medrxiv.org/content/10.1...

Mortality ⬆️ and #LongCOVID: what might the mechanisms be? What targets might help prevent/mitigate? Let’s keep The Conversation (@theconversation.bsky.social) going *and* the rigorous interrogations expanding

#LongCovid is added to list of autoimmune-illnesses by #autoimmunRegistry #rheumatic #autoimmune https://www.autoimmuneregistry.org/long-covid-announcement