CO2 monitors have become popular tools people can use to estimate their indoor air quality. A new study was recently published that looks into how we can use them to optimise occupancy thresholds and identify problem locations. Actual practical science!!! A thread

Starting a 🧵 of things not to say to a family in crisis. Feel free to chime in: - All the rain is what makes the flowers bloom. - Say ( ) prayer. (Pick whatever combo.) - You're like Job. - You need an exorcism on your house. (Seriously!)

Everything is a lot these days and I know I’m very lucky to live in a place in a situation that is relatively calm right now. So how about you come kayak along Lake Winnipeg with me? Hopefully it brings a little peace to your day. 1/ 🌿

Today’s #ThereForME blog is from our very own @oonaghcousins.bsky.social! Oonagh explores the importance of understanding rest, comparing her experiences as an athlete to those as a patient. Link in next post 👇

Better late than never. We’ve asked why we are still doing routine measles immunizations when we’re in an outbreak. Now, the guidance appears to have changed (though the date thing is confusing) 2nd doses for those who have only had one measles vaccine. Routine: Outbreak:

School Indoor Air Quality Basics. "Easy-to-understand resources are designed for school staff and decision-makers without a technical background, helping them make informed choices about indoor air quality." Direct link to fact sheets ( www.ashrae.org/file%20libra... ). #school #iaq #airquality

I'm 5'1" on a good day so getting my kayak on the roof of my car by myself can be a challenge. My friend lent me this roller that suctions to your window and it helps so much. That combined a with a folding stool that I keep in my car, and I'm good to go all by my short self :)

Grateful to @putrinolab.bsky.social and the clinicians, researchers, & PLRC members who authored this response piece in the BMJ yesterday. There are countless biological findings in severe ME, and people with severe ME need to be treated with effective therapies! #pwME www.bmj.com/content/389/...

Hey fellow therapist & MH peeps. Anyone have a curriculum for a caregiver (esp stroke caregiver) support group they'd be willing to share with a student (me)? I'm putting together a support group for stroke caregivers specifically and while I have ideas I'd love advice from others!

by the patient community. For the longest time, patients have told us that CBT and GET cause harm. We finally have hard physiologic data to support this and yet idealogues are allowed to freely publish OPINION about #MECFS and other energy-limiting diseases in @bmj_latest. To 4/

Help and support automatically should be there for us, side by side with support for our carees. We also need to define caregiving as an emotional experience rather than one about tasks and chores. It's how we feel that takes a toll. /4

A few thoughts on this beautifully-written piece by @mcgowankat.bsky.social We deserve help during difficult times. Receiving help and support shouldn't depend on what we call ourselves. www.npr.org/2025/04/01/n... /1 #caregiving

Le Musée de Vancouver prépare une exposition captivante visant à faire découvrir au public la réalité de la vie avec la covid longue. 1/3

The Museum of Vancouver is planning an intriguing exhibition to show people what it’s like to live with long Covid. Longhaulers from across Canada are invited to share up to six pictures and captions, showing people what it’s like to live a day in your life. 1/2

NEW PUB (open access): Weathering the Storm: Climate-Related Weather Event Experiences of Families of Children With Medical Complexity #ClimateChange #ClimateImpacts onlinelibrary.wiley.com/doi/full/10....

The other day my husband got the "you should really go on vacation" line from our GP. This is one of the worst things you can say to a caregiver. This is not support. This is just making a person feel worse about a situation over which they have little control. Please don't reply with suggestions.

My robot vacuum isn’t perfect, but it saves me an hour or two a week. It’s one of the few ways I’ve “found” more time. If you’re supporting a friend who is #Caregiving, this could be a useful gift, especially if you’re not in the same location and want to help.

And people with ME/CFS, and people with Lyme, and and... If "think yourself better" worked for *any* biological illness, we'd know about it and would all be taking advantage of it. Try telling someone with MS or cancer to "think themselves better" and notice how ridiculous you sound.

Canada needs a plan to help struggling caregivers. Without this army of helping hands, the country’s health and welfare systems would be collapsing even faster, by @picardonhealth.bsky.social www.theglobeandmail.com/opinion/arti... via @theglobeandmail.com @cdncaregiving.bsky.social

I had someone decline to participate in a qualitative study using interviews because they don't want their recorded voice to be stolen by AI. Anyone else experience this? It's a first for me. #QualitativeResearch

Experts say people with disabilities are often left behind during evacuation and recovery efforts, and that as climate change amplifies the frequency and scale of natural disasters, the discrepancies are becoming more serious. #CareAndClimate #CareEconomies www.nbcnews.com/data-graphic...

A reminder that it's ok for Support Workers to: 1) Work remotely/offsite. 2) Go out alone on errands. 3) Work alone while we work, rest, play or go out. 4) Work with us only when needed. Not all disabled adults need supervision, training or companionship. Social stimulation can be counter-helpful.

This is neat! My video on how to use a CO2 monitor to measure ventilation has been reviewed by a YouTube channel dedicated to home performance. It's really good, and they bring up a few points I missed. Check it out: www.youtube.com/watch?v=Uzce...

Assistive Access is a game changer for loved ones who need a more simple, more accessible version of Iphone with guardrails that give YOU a little more peace of mind.

RFK Jr seems intent on erasing chronic illness with “wellness activities”… Remember that healthy living can’t make you bulletproof & the wellness movement is often toxic & dangerous Before I became disabled I was big into holistic health. The community turned on me the moment I didn’t “heal myself”

#ValentinesDay can feel like one of the toughest days for #pwME #ME takes a huge toll of the lives of those who are close to us, some relationships don't survive this, for many other #pwME there's no possibility of a relationship Sending love to all your courageous hearts💖

Dr Menattallah Elserafy is known for her research on using yeast to study DNA damage-related diseases. She advises women to dream big, emphasizing that their unique qualities can make them leaders in scientific research. 🔬 #WomenInScience

It is International Day of Women and Girls in Science. Gagandeep Kang’s research on enteric infections has contributed to the rotavirus vaccine rollout in #India, protecting millions of children and shaping a healthier future. for all. 🔬 #WomenInScience #WomenInSTEM

"I have a message for the next generation. They have to do something that they enjoy. If they like to solve puzzles, science is for them." Katalin Karikó’s journey in #mRNA research shows that persistence and belief in one’s work can change the world. 🔬 #WomenInScience

“Many were frustrated and stressed from having to constantly accommodate the system and its requirements.” This quote from the paper feels familiar. Other #caregivers may also appreciate feeling seen by reading the (pseudonymous) stories of navigating home care supports.

Please share this post with undergraduate university students in Canada 🍁 Study Title: Student Perspectives on Health-Inclusive Learning in Response to Infectious Disease Transmission and Additional Health-Related Challenges Please see the poster and link for more details. 🔗: bit.ly/edu-ca-survey

Language matters! The way people throw around the word "stalking" makes it difficult for survivors to be believed because "Hey, haven't we all done a little light stalking in our day?!" + your ex is allowed to move on! They, and their future partners, don't deserve harassment as a result.

Handled stressful matters for my loved one today. Instead of running back, I was reminded to build an hour of time into my leave request for my own self care. It meant I wasn’t completely burnt out when it came to the end of the day. Supporting #caregivers in the workplace makes such a difference!

Great new #TimeUse #DataVisualization tool from Statistics Canada, which includes "unpaid #Care" as an activity group. www150.statcan.gc.ca/n1/pub/71-60...

Great piece about policy and advocacy efforts to demand a National #Caregiving Strategy, featuring insights from CGSP director Ito Peng and #CareEconomies in Context project partner CCCE.

NIH must address the twin crises of long Covid and ME/CFS — together www.statnews.com/2025/02/04/r... via @statnews.com

Would you like to avoid buying respirators made in the United States? We have options. Check out the StillCOVIDing.ca site for lists of respirators made in 🍁 Canada and the 🇪🇺 European Union. stillcoviding.ca/en/resources... #CovidIsntOver #LaPandemieNEstPasFinie

Vous voulez éviter d’acheter des respirateurs fabriqués aux États-Unis ? Nous avons des options. Consultez le site StillCOVIDing.ca pour obtenir des listes de respirateurs fabriqués au 🍁 Canada et dans 🇪🇺 l’Union européenne. stillcoviding.ca/fr/ressource... #CovidIsntOver #LaPandemieNEstPasFinie

Prévisions de COVID pour le Canada : FÉV 1-14, 2025 GRAVE : ON TRÈS ÉLEVÉ : CAN, AB, MB, Nord, QC ÉLEVÉ : CB, NB, TNL, NÉ, ÎPÉ, SK MODÉRÉ : aucun Environ 1 personne sur 42 est actuellement infectée au Canada.

Canadian COVID Forecast: Feb 1-14, 2025 SEVERE: ON VERY HIGH: CAN, AB, MB, North, QC HIGH: BC, NB, NL, NS, PEI, SK MODERATE: none About 1 in 42 people in Canada are CURRENTLY infected.

This study made some waves on social media yesterday. It purports to show that CO2 concentration doesn’t correlate with covid transmission. Let’s talk about this, I have some thoughts. www.sciencedirect.com/science/arti...

DYK? Since July 2022, the lag between COVID-19 symptom onset and a positive PCR test is 4.5-6.5 days. You might test positive earlier than 5 days after symptom onset, but it can be up to one week. That's PCR--with RATs you're even less likely to test positive within the first 5 days of symptoms.

#IndoorAirQuality and #CovidConscious teams … what do I need to consider before moving a loved one into a multi-unit residence with an HVAC system that has an energy recovery unit with a MERV 15 filter for each unit? (I think it might draw from a shared supply of heated/cooled air.)

American influences in Canada abound but the "You must register to vote!" one isn't talked about enough and the misinformation is a problem. I've voted in every election since I was 18 & never been on the registry because of my stalker. It's FINE. It still takes me less than 5 mins to vote!

#IndoorAirQuality and #CovidConscious teams … what do I need to consider before moving a loved one into a multi-unit residence with an HVAC system that has an energy recovery unit with a MERV 15 filter for each unit? (I think it might draw from a shared supply of heated/cooled air.)

3/ If you only received one vaccine (everyone prior to 1970 did) you can take this article and, regardless of your titres, ask for a measles booster. I did. Also, many thanks to @deonandan.bsky.social and @kidsdoc1.bsky.social for your excellent and timely info on measles.

Just your regular reminder that iron deficiency is super common especially in those who menstruate and it matters even if you aren’t anemic. jamanetwork.com/journals/jam...