Applications for our Biomedical Research Projects are open. 🔬🧪 Apply if you have an idea which could advance our understanding of #MND #ALS and help find effective treatments! 📆 Deadline: 31 October More info: www.mndassociation.org/research/for...

MND patients fighting for a treatment for the disease denied because of hospital capacity is truly scandalous. Sadly this won't help my mum but the NHS can and must do better for these families: t.co/9qQPs2qxqs

Heard about how genetic testing and counselling is key to unlocking the future of precision medicine for people with #MND @mndassoc.bsky.social

We've published our new organisational strategy, which has renewed our commitment to research. Now we want to hear from #MND #ALS researchers 🔬 Please complete this survey to tell us more about your views 👇 www.smartsurvey.co.uk/s/EOLHKG/ Thank you 💙🧡

The number of people providing 35 hours or more a week of unpaid care increased from 1.1 million in 2003/04 to 1.9 million in 2023/24. New requests for support increased from 1.8 million in 2015/16 to 2.1 million in 2023/24, mainly from working age adults www.independent.co.uk/news/health/...

We look forward to our last Information & Knowledge Exchange of 2025 on 23/09 Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice Book on mndassociation.org/education-ev...

🗣️"The waiting list for a new-build wheelchair accessible home is currently 40 years. If you don't live in an accessible home as a Disabled person, it's a dangerous home, and a dangerous home you could be living in for 40 years." DR UK's Mikey speaking to The Housing Select Committee 👇

🏠Accessible Homes Week Webinar! Join Habinteg and CAE for this free webinar sharing the latest insights into England's plans for accessible homes - and a discussion about the inequality still rife in housing. Sign up here👇 www.eventbrite.co.uk/e/forecast-f...

Read our full response to the publication of new league tables for NHS trusts in England 👇

The @mndassoc.bsky.social would really like to hear from anyone who has: - received a Disabled Facilities Grant (DFG) for major adaptations to their home in the last two years - but, found that the grant did not meet the full costs. Please email me at [email protected] - thanks!

I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇 act.mndassociation.org/2025-autumn-...

I've asked my MP to meet with the MND Association (@mndassoc.bsky.social) this autumn, to discuss how they can help constituents living with #MND in my local area. Can you take 1 minute to email your MP too?👇 act.mndassociation.org/2025-autumn-...

Join us at the largest scientific and medical conference dedicated to #MND #ALS! 🌍 San Diego, USA and Online 📆 5-7 December 2025 🐤 Early bird registration closes 5 September! Register today: symposium.mndassociation.org/register/ #alsmndsymp

The clock is ticking!⏰ Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND Learn more on www.mndassociation.org/education-events

I am proud to support @mndassoc.bsky.social and their #PrescribeLife campaign. Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution. You can learn more about the campaign here: www.mndassociation.org/get-involved...

Thank you to everyone who joined the #ShowUsYouCare campaign and shared with MPs the importance of good quality, reliable social care. Wondering if your MP was there? Check our list to find out: careandsupportalliance.com/parliament-2...

Emily Holzhausen, CSA Co-Chair, said: “MPs – your voice really matters to us. We want you to hold decision makers to account and work with us to secure a better future for social care. Investing in care is investing in all of us”. (4/5)

Jack, who receives social care, said: “The less care I get, the less independent I am. There's a real lack of aspiration for what a good life is for someone with a disability. We need a well-funded, needs-led care system that moves from enabling mere survival to fulfilling lives.” (3/5)

We heard from @annadixonmp.bsky.social‬ : “We must build political consensus on social care, and raise public awareness of how important care and support is. People who draw on and provide care are too often invisible. We have to change that and celebrate the value of care and support.” (2/5)

Yesterday, thanks to over 2000 campaigners who sent invitations, we welcomed MPs to our #ShowUsYouCare event in Parliament. Our attendees heard about the 3.5 million people unable to get the support they need and how we can work together to change this. (1/5)

@mndassoc.bsky.social recently published our new organisational strategy, which has renewed our commitment to research. Now we want to hear from #MND #ALS researchers 🔬 Please complete this survey to tell us more about your views 👇 www.smartsurvey.co.uk/s/EOLHKG/ Thank you 💙🧡

A team of eight – many of them in their 60s – are riding the 900-mile route in aid of the Bedfordshire MND Group… #Bedford #BedfordNews #Charity #MND #MotorNeuroneDisease #BikeRide

🧠 The #LongitudePrizeOnALS is now live! This £7.5M global challenge invites innovators across #biotech, #AI, #data science & beyond to help accelerate #ALS treatment discovery. Join us in bringing AI to the fight against ALS. Learn more: bit.ly/4kD3tSh #LPALS #MND

@rachel-p.bsky.social‬ shares why this year’s Patient Partnership Week couldn’t come at a more critical time. With a new government in place and the 10-Year Health Plan expected soon, we’re making the case for genuine partnership with patients to shape the future of health and care: buff.ly/ZN3yZ30

Last day to register! Join us for a day exploring the theory and practice of respiratory management in #MND with subject experts and fellow HSCPs The workshop is CPD-accredited and endorsed by @silvah-uk.bsky.social Book now! bit.ly/respiratory-...

The King's Fund Library is a unique source of information on health and social care policy and management. Come and visit us for a quiet space to study or work, make use of our free enquiry service or utilise our literature search services and reading lists. Find out more. buff.ly/cMo52Ou

This week is Learning Disability Week. In this article we share 14 resources, blogs and reports from the hub for patients, their families and healthcare professionals related to learning disabilities and patient safety. Link: www.pslhub.org/learn/patien... #LearningDisabilityWeek #patientsafety

“We are far more united and have far more in common with each other than things that divide us.” Remembering Jo Cox MP who was murdered nine years ago today. #MoreInCommon

🚨 Less than 1 month to go! 🚨 If you want to share your research with the global #MND #ALS research community, make sure you submit your abstract for #alsmndsymp by 10 July! More info: symposium.mndassociation.org/abstracts/

💷 #SpendingReview sees a higher funding uplift for the NHS than many other services, with spending linked to enabling the 10 Year Health Plan. Yet rebuilding trust in the NHS also depends on a commitment to the wider determinants of health and clear social care investment. 👉 tinyurl.com/4vwzapad

#MND #Tofersen #PrescribeLife

Key announcements from Chancellor Rachel Reeves's long-awaited Spending Review 👇 🏨 Asylum hotels to be phased out 🏘️ Cash for social and affordable housing 🛩️ Defence spending to rise to 2.6% 👩‍⚕️ NHS the big winner

Over 19,000 people have already signed our #Tofersen petition - but we're trying to get still more support for people with SOD1 #MND. Here's a flyer that can be printed and taken to @mndassoc.bsky.social and other events to encourage even more people to support the petition 👇 #Prescribelife

Over 19,000 people have already signed our #Tofersen petition - but we're trying to get still more support for people with SOD1 #MND. Here's a flyer that can be printed and taken to @mndassoc.bsky.social and other events to encourage even more people to support the petition 👇 #Prescribelife

HSCPs, we need your help! The MND Association's new strategy for the next 5 years renewed our commitment to #MND research We want to hear from you to shape what that funding and support should look like If you are an HSCP, please complete the survey by 20 June: smartsurvey.co.uk/s/UC7U3S/

Invite your MS or MP to join the Association's events to mark #GlobalMNDAwarenessDay and find out about the hidden realities of people in the #MND community! Invite your MS: act.mndassociation.org/invite-your-... Invite your MP: act.mndassociation.org/invite-your-...

It's #volunteersweek! We'd like to say a huge thank you to our amazing #MND #campaign volunteers and supporters — thank you for everything you do! We couldn't do it without you. Interested in getting involved? Join us as a Campaign Volunteer today: volunteering.mndassociation.org/vacancy/camp...

Read about our latest findings from the @MNDRegister showcased at the @ENCALS Meeting 2025.🌍 Findings ranged from a new #MND/#ALS incidence and prevalence analysis to clinical characteristics and outcomes. Read more here⬇️ ukmndri.org/2025/06/04/m...

It's #volunteersweek! We'd like to say a huge thank you to our amazing #MND #campaign volunteers and supporters — thank you for everything you do! We couldn't do it without you. Interested in getting involved? Join us as a Campaign Volunteer today: volunteering.mndassociation.org/vacancy/camp...

Why is #tofersen our number one #mnd campaign right now? Read on to find out more and take action! #prescribelife www.mndassociation.org/media/latest...

Why is #tofersen our number one #mnd campaign right now? Read on to find out more and take action! #prescribelife www.mndassociation.org/media/latest...

#MND #Tofersen #Prescribelife

"Every day I wait. More of my independence is lost." Watch Seckin McGuirk, living with SOD1 #MND, speak about the importance of accessing #tofersen. www.facebook.com/mndcampaigns... And if you haven't already, please sign the #Prescribelife petition here: act.mndassociation.org/2025-prescri....

Keir Starmer has confirmed that the government will change the winter fuel payment threshold following backlash from voters and Labour MPs over how it would affect pensioners The PM said they'd look at changing the decision at the next "fiscal event", pointing to the Autumn Budget

"Every day I wait. More of my independence is lost." Watch Seckin McGuirk, living with SOD1 #MND, speak about the importance of accessing #tofersen. www.facebook.com/mndcampaigns... And if you haven't already, please sign the #Prescribelife petition here: act.mndassociation.org/2025-prescri....

I’ve just signed a petition to ask the Government to make sure people with the SOD1 type of #MND can access #tofersen, a life-saving treatment. Can you sign too? act.mndassociation.org/2025-prescri...

I’ve just signed a petition to ask the Government to make sure people with the SOD1 type of #MND can access #tofersen, a life-saving treatment. Can you sign too? act.mndassociation.org/2025-prescri...

We’re gearing up for what’s set to be an amazing Carers Week and are busy planning all our exciting activities, there’s still plenty of time for you to get involved and plan for your local areas! What have you got planned? Find more information here: www.carersweek.org/planning-you...

Today is Spinal Cord Injury Awareness Day 💙 An annual event that raises awareness about spinal cord injury (SCI) and sheds light on the challenges faced by over 105,000 people in the United Kingdom. Find out more www.spinal.co.uk/spinal-cord-... #SCIAD25

As Vice-Chair of the APPG on MND I'm pleased to join the call for urgent access to tofersen Tofersen is a ground-breaking treatment for people with SOD1 #MND Not everyone can access it even though it is being made available to the NHS Sign the petition today act.mndassociation.org/2025-prescri...?