🚨Bookings for our CoP Networking Day on 7 Oct in Birmingham close on Friday at 9am🚨 Expect: ☑️Expert-led workshops on eating with risks & much more ☑️Equipment demos, including PEG & LVR ☑️Exhibitors 150 HSCPs have already signed up, hurry up and book now! mndassociation.org/education-ev...

It's the last week to register for the 2025 CoP Networking Day! 📅7 October 📍Birmingham Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK See what guests said about past events and find out more on mndassociation.org/education-ev...

Did you know that your health service has a responsibility to provide trained interpreters? Read more about interpreters and translations in 1B - Health information in other languages or formats. Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder

Registration for the Annual Stephen Hawking MND Lecture is now open! 📆4 Nov 📍virtual live stream or London (followed by drinks & networking) It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture

🚨New free online course! We're thrilled to launch a new course on including adults with capacity and communication challenges in research You'll explore: ☑️law & ethics in research ☑️capacity & decision-making ☑️adjustments to support participation Find out more on mndassociation.org/online-courses

🧠1 week left to register for our free online course for psychologists on using ACT to support people with #MND! Expect: ✅Exercises to use in your practice ✅Live sessions with @ucl.ac.uk expert Prof Gould ✅Resources for further learning ✅Peer discussions 👉 www.mndassociation.org/online-courses

We look forward to our last Information & Knowledge Exchange of 2025 on 23/09 Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice Book on mndassociation.org/education-ev...

If someone with #MND experiences an incident, they may need to call 999. It's vital that emergency care staff understand their unique needs. Check out our webpage to support safe, informed care. It includes a dedicated guide developed with @paramedicsuk.bsky.social: www.mndassociation.org/acute

It's #InternationalCharityDay ! Take a look at our range of resources for people living with and affected by MND and Kennedy's disease mndassociation.org/careinfo And all of our resources for health and social care professionals www.mndassociation.org/professionals

Register now for our next workshop Nutritional management of people with #MND: from adapted cutlery to tube feeding, everyone has a role! 🗓️24/09 in Bristol Ask questions to experts, review real case studies & practice equipment. Book before 10/09 on bit.ly/Dietetics-Wo...!

The next run of our free online course Multidisciplinary working-making it effective for #MND starts on 15 Sept! Designed to help HSCPs explore how to provide multidisciplinary care, it can be completed in your own time over 9 weeks Register on mndassociation.org/online-courses

We're thrilled to announce we added a new webinar to our calendar of events! Join us on 21 October to explore the physiology behind lung recruitment bags for people with #MND, evidence for their use & @theacprc.bsky.social's technical standards Book now on mndassociation.org/education-ev...!

Last week to access our EARLYBIRD rate for the 2025 Community of Practice Networking Event!⌛️ Supporting choice and control for people with #MND 🗓️7 October 📍Birmingham 📝www.mndassociation.org/education-events

What is Genetic testing? 🧬 Our animation provides guidance about genetic testing to identify changed genes known to play a part in MND. Find our full range of animations at: www.mndassociation.org/support-and-...

Only two weeks left to access our EARLYBIRD rate for the 2025 Community of Practice Networking Event! 🔍Supporting choice and control for people with #MND 🗓️7 Oct 📍Birmingham 📝 mndassociation.org/education-ev... Come connect with over 200 HSCPs from UK to share challenges & solutions

Sign up before 26/08 for our workshop Cognitive & behavioural symptoms in #MND: beyond the motor cortex! Prof Eneida Mioshi will deliver a programme of activities designed to help you build practical skills This is a single-date-only event, book now! bit.ly/cognition-in...

We're thrilled to launch a new, free online course, designed to train psychologists in Acceptance and Commitment Therapy -proven to improve quality of life in #MND It includes self-paced modules & live sessions by Prof Gould from @ucl.ac.uk Learn more & register👇 mndassociation.org/online-courses

Our revised guide for care workers is now back in stock! You can order your printed copy for free directly from the MNDA Care Admin Team via: ☎️01604 611812 or 611685 📧[email protected]

We can't wait for our next #MND workshop! Prof Eneida Mioshi will explore how to manage cognitive & behavioural symptoms in practice, including how to interpret assessments and diagnostic criteria This is a single-date-only event, don't miss out & book now! mndassociation.org/education-ev...

Preventing malnutrition & weight loss is vital for the care & quality of life of people with #MND Our workshops help HSCPs build skills through case studies, equipment practice & expert-led discussions Register for our new date: 🗓️24/09 📍Bristol 📝http://mndassociation.org/education-events

The clock is ticking!⏰ Book before 31 August to access our EARLYBIRD rate for the 2025 Community of Practice Annual Event Held on 7 October in Birmingham, the day will focus on how HSCPs can support choice & control for people with #MND Learn more on www.mndassociation.org/education-events

Working closely with HSCPs is crucial to shape resources that truly support people with #MND and ensure our materials are relevant & practical That's why your feedback always matters If you want to help or have comments on our resources, email [email protected]

Do you know someone with MND or Kennedy's disease? From 'Why are things changing?' to 'So what is MND, anyway?' you can find all our resources for children and young people here: www.mndassociation.org/cyp There is also information for parents/guardians, including professionals who give support.

If you are a person with or affected by #MND, including an health & social care professional, our helpline can give you emotional and practical support Call: 0808 802 6262 Email: [email protected] Visit: mndassociation.org/mndconnect #InternationalSelfCareDay

For #InternationalSelfCareDay, watch our webinar Avoiding burnout: caring for yourself when you are supporting people affected by #MND Delivered by Dr Sian Hocking and Dr Emily Mayberry, it will give you practical methods for you & your team of HSCPs

Our newly revised Getting around booklet has info on driving, transport and holiday guidance focusing on different ways to get out and about with reduced mobility. Find the booklet and more support on our movement and mobility page mndassociation.org/mobility

Are you a health & social care professional wanting to stay up to date with #MND news? Our Education Newsletter brings you the latest from the MNDA and beyond-including research, learning opportunities & updates relevant to your practice 📩Sign up: mndassociation.org/educationupd...

Our new guide for care workers is now out! Reviewed with MND experts, it offers specialist & practical advice to assist people with #MND, including on handling emergencies, safeguarding and personal care Visit www.mndassociation.org/propublications to view the guide and leave us feedback!

Ensuring nutrition & hydration in people with #MND is crucial for their wellbeing & to prevent complications, but can be challenging Our revised infographic on dietetics & nutrition is a practical tool for HSCPs with a quick summary of NICE guidelines👇 mndassociation.org/propublicati...

#WorldChocolateDay is the perfect time to highlight our choc mint cooler, ideal for the summer 🍫 Find more recipes in our Eating and drinking with motor neurone disease (MND) guide, along with other resources and support on our 'swallowing, eating and drinking' page: www.mndassociation.org/eating

We're thrilled to share our revised infosheet for HSCPs on dysphagia in #MND! It's designed to offer practical guidance to manage swallowing issues, prevent malnutrition & support decision-making Thank you to all the experts who helped us review it! Visit: www.mndassociation.org/propublications

📢We are looking for educators and health & social care students to help shape our Student Community of Interest! This is a new online learning resource for students, complementary to the MND Professionals' Community of Practice. Interested?📧[email protected] mndassociation.org/cop

Last month we joined #DementiaActionWeek to highlight the impact of cognitive & behavioural changes on the life and care of people with #MND and all those around them It's crucial that HSCPs understand such impact and how to manage these changes👇 Learn more: www.mndassociation.org/professionals

We can't wait to welcome HSCPs from the #MND Community of Practice tomorrow for our Information & Knowledge Exchange! Speakers will share their personal & professional expertise to support people with MND withdrawing treatments Join the CoP to access these unique events: mndassociation.org/cop

We’re reviewing the Allied Health Professionals’ Competency Framework It sets out key skills and responsibilities for those supporting people with #MND, promoting consistent care & professional growth We'll share the new version at the CoP Networking Day👇http://mndassociation.org/education-events

Last day to register! Join us for a day exploring the theory and practice of respiratory management in #MND with subject experts and fellow HSCPs The workshop is CPD-accredited and endorsed by @silvah-uk.bsky.social Book now! bit.ly/respiratory-...

That’s a wrap for our Competency Builder series! 39 HSCPs joined us to learn about managing the impact of communication issues in #MND, including on cognitive changes & decision-making Thank you @speedoftrust27.bsky.social & all the other experts for delivering wonderful workshops!

🚨 Less than 1 month to go! 🚨 If you want to share your research with the global #MND #ALS research community, make sure you submit your abstract for #alsmndsymp by 10 July! More info: symposium.mndassociation.org/abstracts/

Do you know our Community of Practice? All HSCPs are welcome to become members and can have access to unique networking and professional development opportunities Our goal is to work together to improve care for people with #MND Learn more: mndassociation.org/cop

Registrations for our #MND workshop on respiratory care close on 17 June! Book your spot for an insightful day building skills in respiratory assessment, cough augmentation, secretions management and much more: bit.ly/respiratory-... It's CPD-accredited & endorsed by @SiLVaH_UK

@pifonline.bsky.social & @ipsosintheuk.bsky.social created a video on the rise of health misinformation, its impact and how to tackle it We are committed to provide high quality, PIF TICK accredited resources to help people with & affected by #MND Find them on www.mndassociation.org/careinfofinder

Kicking off #CarersWeek with our Caring and MND: support for you guide Find the guide and interactive version here: mndassociation.org/support-and-...

🎨Join us today at 11am for A Conversation with an Art Therapist! Art therapist Adam Levene & MND Co-ordinator Rachel Thomson will discuss the project conducted with people with #MND and their families in Sussex Drop in, learn about art therapy & ask your questions: us06web.zoom.us/j/8135265559...

Invite your MS or MP to join the Association's events to mark #GlobalMNDAwarenessDay and find out about the hidden realities of people in the #MND community! Invite your MS: act.mndassociation.org/invite-your-... Invite your MP: act.mndassociation.org/invite-your-...

HSCPs, we need your help! The MND Association's new strategy for the next 5 years renewed our commitment to #MND research We want to hear from you to shape what that funding and support should look like If you are an HSCP, please complete the survey by 20 June: smartsurvey.co.uk/s/UC7U3S/

Join us for our Information and Knowledge Exchange on 24 June! Together with experts sharing their personal & clinical experiences, we will discuss supporting people with #MND who choose to refuse treatment Join the CoP to attend & book your place: mndassociation.org/education-ev...

On #DietitiansWeek check out our workshop Nutritional management for people with #MND Endorsed by @bapen.bsky.social, NNNG, PINNT, BDA, PENG and RCSLT & CPD-accredited, it will give dietitians & other HSCPs skills to apply to their practice Bookings close on 24 June: bit.ly/dietetics-workshop-08-07

Every piece of care information we produce is reviewed by our incredible user review group. They make that our work is clear, accurate and representative of the people that need it. Curious? Email [email protected] for more info. #VolunteersWeek2025

People with #MND can have swallowing issues that make eating difficult & increase the risk of malnutrition We're working closely with dietitians & SLTs to review our resources on nutrition and dysphagia and ensure HSCPs can provide the best care mndassociation.org/dysphagia #DietitiansWeek

Kicking off #dieticiansweek with our Eating and drinking guide 🍲 Packed full of information, tips and easy-swallow recipes, including dishes from families affected by MND, professionals and celebrity chefs. Find the full guide here: mndassociation.org/eating