🧵I'm about a week into treatment for Lyme, and I've spent the majority of the last ten days in bed. I've lost almost $2000 of cleaning work in June alone. I have no idea if I should book work in July, because I don't know if I'll be well enough to work by then. #disabilty

Low key pissed off that Jobtread's CEO said they aren't going to consider remote accessibility for their annual conference in TX. By January of next year, it might not be safe for a disabled, trans person to go to a deep red state like TX, so I'm going to have to just not go. Majorly disappointed.

Days like today, I miss having a 5 speed convertible. Perfect day for a top down drive to anywhere.

I've maybe talked about this before, but I have a cleaning client who is a writer for, among other clients, web publications like Real Simple and HGTV. And they frequently ask me questions about cleaning and organizing for their articles. www.realsimple.com/what-to-clea...

Thank you to @birdsoftheworld.bsky.social Merlin app for confirming my first red-winged blackbird encounter of the season. So glad to have them back. 💙

🧵 Racism and discrimination in small businesses versus recognizing patterns of observed and self-reported cultural and/or regional differences in behaviors regarding business and finances, and making it work so both parties get what they need out of the interactions and transactions.

🧵 Using AI powered apps and LLM tools as accessibility aids for varying types of online/remote adult education and professional development. Getting comfortable with using AI. Asking about best practices in building projects, etc. Creating a meeting and webinar memory bank to reference back to.

I seriously need some sleep, but also my brain is bopping back and forth between several kinda important thought processes to be going through. I don't want to lose track of them, which is common with some of my memory issues, and also would deeply appreciate some input on a few different things.

New Yorkers are still being hospitalized with COVID & still dying from COVID. People are still getting Long COVID & other serious health issues from COVID. Everyone is at risk of Long COVID & other serious health issues from COVID. Masks are a critical public health tool! #NoNYMaskBan

Deeply frustrated with a situation at the office and I feel like I'm going to destroy my teeth by clenching my jaw this hard. It's time to go the fuck home, there's nothing more I can accomplish without forward movement and resources from someone else.

"you have to sympathize with the trump voter who thought..." no. sorry. I will not be doing that.

Once again, it is time to level curses at the hoarders of wealth, the architects of brutality, and the stealers of dreams... 🧵

I adore Water Bears, but we all know the 2025 Invertebrate of the Year is Chuck Schumer.

I poked my head into live streams throughout the day to see how it was going, and had the last couple hours of this streaming while I was working on spreadsheets tonight at the office. I'm not gonna lie, I cried when he was talking about John Lewis going into the 24 hour mark.

I demand this not be an April Fools joke 😭

The Onion barely has to try anymore

Today was my first official board meeting at the non profit. Got introduced to everyone, and I remember maybe half the names? They joked about a quiz but I'm seriously going to have to study their pictures before the next meeting 😅

the real villian is late stage capitalism

Processing a lot about being present in my body, and the extremes I've gone to in chasing that. How I'm dissociated and disconnected from my physical body, addressing it as an entity separate from my self. I am not my body, I am more than just my body, the physical body is outside of my control.

Yee fuckin haw, my first hook suspension in 11 years went really well. I am so very sore and also *fucking wired* right now. And I can't wait to do it again.

Marathon day at the office. Still going. Getting so much accomplished though. Rebuilding my post it process layout (not yet pictured because it's still in progress) and color coded it with the colors I had on hand. Even created a key so other people might be able to understand it.

Obligatory odometer milestone photo and link to my #GoFundMe - 301k on the way home from work last night. gofund.me/9c10ff7f

The problem with working in an office, is that I don't get to ask "hey what the fuck? How did you fuck this up so badly?" I have to be civil about it and say things like "I'm not even sure how you managed to do that, could you walk me through your thought process?" So frustrating. WTF WTF WTF

100% ready to scream. [Insert ranting about fucked up work shit that I can't fix and have to do some kludgy workaround for] also [more ranting about staff somehow fucking shit up, to the point where I have to do everything my damned self] I'm clocking out, going home, and getting high.

Nothing like a 630pm "oh fuck" moment while going through work shit to set the tone for the evening. I'm going to be here all night.

Just got home from a trip to Ithaca, rain and fog the whole four hour drive. Having a smoke sesh out in my car, deciding on a playlist for Sunday. I'm pretty sure it's going to be this one. It's an impromptu celebration of making it this far. Deeply NSFW playlist: open.spotify.com/playlist/6Kz...

In true cannonball fashion, I'm shuffling my calendar to make way for a short notice hook suspension next weekend.

Your maskless face is a weapon being used by fascists as they dismantle public health. Do not help them harm BIPOC, disability, trans, immigrant, etc communities, who face greater risk with fewer resources. Wearing n95 is an act of hope, community care, and resistance. Give/get mask mutual aid:

An entire mood, Jorts

I hate that I know *what* I'm trying to do, and that it's theoretically possible, but I have no idea how to write the code or figure out the no code solution to work with it. Gahhhhhh.

Really important. Another person with ME/CFS is at risk of being forced into a psych ward, and needs funds to hire a lawyer ⤵️

Just got to my office job, and I might have just yelled "I DONT WANNA" really loud in my car. It's gonna be one of those days, I guess. 🫠

My car hit 300k miles on my way home from work today! It's a 2010 Scion xD that I bought four years ago with 201k miles on it. 32k of that has been in the last 12 months, according to my fb memories of a similar post on my way home from Philly last year. Good time to post my GFM! gofund.me/4855bb95

Yesterday was first day off in almost two weeks. My partner cancelled their visit because they've had some kind of head cold, and I ended up sleeping almost the entire day yesterday. Slept through meals, meds, texts, emails and more. It probably means that I need to be scheduling more time off. Lol.

Having a smoke and contemplating how far I've come since ECT (Dec 2022 and Dec 2023), and how far I still have to go before things are like... Properly functional again. I still have a ways to go, including dealing with my taxes and health insurance and some old debts. But I'm getting there!

This is of little import to the world at large, but I'm officially on the board of trustees at a small non profit in the Hudson Valley.

You've already covered it, but here's a handy little guide for people that want to spot the new Model Y for whatever reason they might want to do that!

Highlights of today include having a close friend say that I was in a work situation where I was thriving, instead of just surviving it to pay rent. And that's mostly true. There are some pain points that I'm trying to work out, and working through steep learning curves on the new platforms.

Getting some witchy social time today was very much needed. Finally home after a lot of driving and talking. Having a smoke and planning out tomorrow's very long day. Cleaning out my car and some of my living room, donation run, in Brooklyn by 1pm for a late-start full-day appt.

It was a three meeting day and I'm pulling a late night at the office. Went out to grab dinner and came back to keep working. This all looks lowkey insane, but I'm starting to map out the #jobtread workflows and features to work on, what part of the sales process they're linked to, and more.

Tbh I’m never rawdogging the air on a plane again for the rest of my natural life

Survive them out of spiiiiiiite.

Please tell everyone you know who isn’t a total Covid denialist to order these tests to 1. Provide evidence that this a popular program 2. Prevent hundreds of millions of dollars of tests from being disposed of covidtests.gov

Here's the GoFundMe for my new car! gofund.me/5ee47013

Dammit. I had an entire GoFundMe for my car written up in the app, and it glitched on me when I went to publish. Whomp.

This photo was on my way home from work, the odometer of my car hitting 299,000 miles... and it's time to start getting real about figuring out how I'm going to fund my next car. Combo of crowdfunding, personal loans and possibly a business loan and/or micro grant or whatever else I can find.

Unholy landlord special today. The more I scrubbed the shower, the worse it looked. I was pulling up white paint from the shower walls and floor. The fucking management company *painted* over the stained plastic shower stall inset. That's a new one, and I've been doing this for over a decade.

I feel like someone I know has written something like this. Help an anxiety friend out?

I'm "finished" with work day three of 11 or 12 in a row. About to do four full cleaning days in a row and a round of city errands in the middle of that. Yee. Haw. So many things in the works. So much driving. Doing the most direct acts of goodness that I can manage, within my capacity.

This, historically, has been called a "work cure," the idea being that hard labor will "cure" your disabilities. It was a big predecessor to eugenic ideology, and is still a key component of the exploitation of disabled people's labor.