What an experience after more than 6 years of not speaking live at any events to be able to contribute to the @ecrgroup.bsky.social seminar at the @ec.europa.eu Compassion, the importance of what person centered really can mean and acknowledgment of the most vulnerable are key points I made.

Interesting presentation from @bhisma.bsky.social about the concept of looking at ways to provide digital solutions to get someone into support pathways rather than waiting for a formal diagnosis @euparliament.bsky.social @ecrgroup.bsky.social

Ik vind deze campagne belangrijk - doe je ook mee? actie.degoedezaak.org/petitions/bo...

Great to be at the 14th @autismeurope.bsky.social International Conference in Dublin and hear the opening speeches sharing common hopes on the impact it can have for the international community. #AEcongress2025

Good morning from Dublin! We're so excited for Day 1 of the #AECongress2025. Come say hello! 👋

So if #longcovid has been linked to reactivation of latent viruses+risk of new infection, it makes sense that there can be neuro degenerative risks. Not comforting at all for people with LC. @putrinolab.bsky.social @virusesimmunity.bsky.social www.psypost.org/a-common-chi...

How Covid can affect the brain—the central role of blood vessel inflammation and microglia—and impact on body-wide inflammation @natureneuro.bsky.social www.nature.com/articles/s41...

Children & young people with #LongCovid have important questions—insightful & often heartbreaking ones. We’ve received so many questions from young people ahead of our event with Dr. @buonsenso.bsky.social, and they remind us why listening is just as important as taking action. #LongCovidAwareness

Looking at what is going on in the world today makes me even more clear on how education for peace is still as vitally important in this day and age as when the UWC movement was set up.

We believe many neuro problems associated with #COVID come from the virus hijacking blood vessels to gain access to the brain. This is what it looks like for me, using super-resolution microscopy. With thanks to @harryspoelstra.bsky.social, combining vascular and neuro to understand #NeuroCovid 💪

I appreciate this response from Ed Yong on why he requests that people mask at his events. www.nytimes.com/2025/02/22/m...

Free resources available to help you get ready for International Long Covid Awareness Day. (and if you have been thinking about ordering a limited edition 5 year pin …just to let you know they are flying out) longcovidkids.org/so/dfPKjZA8y... #LongCovidKids #LongCovid #LongCovidAwareness

How to support your child with Long Covid : the importance of the family danilobuonsenso.substack.com/p/how-to-sup... If you find it useful, please like and share it wifely! free access. Next episode will be on role of schools and teachers

1/ In March 2023, I received a lumbar puncture. This was key to receiving my chronic inflammatory demyelinating polyneuropathy #cidp diagnosis. This 🧵 is on my experience with identifying and treating #autoimmunedisease. I'll also be sharing some 🧵s I posted previously on the Other Place.

A pro-inflammatory protein panel signature that accurately identified Long Covid in kids compared with controls www.nature.com/articles/s41...

A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns. Early results suggest it could guide tailored treatments, but larger trials are needed. www.bbc.com/news/article...

How our gut microbiome regulates sugar preference nature.com/articles/s41...