This is not history. This is not Anne Frank’s attic. This is today.

I would rather live next door to someone who speaks another language than live next door to someone who doesn’t want to live near people who speak other languages. I know nothing about Person A but I know person B is a shitbird.

Agree with Adams (keynote at #ASBH25) that we should always be aware of the role of money driving everything. Disagree that we can’t/don’t ever imagine better ways beyond hyperfixation on capitalism.

Thought provoking keynote by Jerome Adams for #ASBH25 abt finding where we can work together w ppl w different viewpoints….but I’d like to ask-at what point are you complicit in the harm?

VACCINES ROCK www.washingtonpost.com/science/2025...

People before power. Always. Support truth-telling journalism: buff.ly/pbcGNpl

Annnnd I’m in Portland for the #ASBH25 annual meeting. Speaking on ableism at the bedside and how hospital visitation policies impact disabled people.

Just watched this awesome youth and autistic led video at #PCORI2025 which provided a study update in plain language: notless.org/research/

We're in DC for the Patient-Centered Outcomes Research Institute’s annual meeting! PCORI funds research that meaningfully includes patients, families, and caregivers as partners throughout the research process. #PCORI2025

Last session at #PCORI2025 (for me before I head to the airport) is on research WITH people with IDD. It’s been an excellent annual meeting.

I'll be watching this "Dirty Work: The Story of Andrew Young" tonight-9pm EST on MSNBC : www.youtube.com/watch?v=nwC3...

Our Disability Research Lab is set for our biggest year yet as we are now funded! Join us for our kick-off meeting Thursday, October 16 at 12pm EST. To register for our first meeting, sign up here (or via QR code in image): lnkd.in/gCwd3s5P

Why We Should Be Concerned About an Autism Registry url: jamanetwork-com.uc.idm.oclc.org/journals/jam...

I'm glad PGD and genetic testing exist as more options for disabled parents. I don't like the suggestion that using this tech is the better/best route to parenthood and there's just blatantly false info. She'd pass on her type of OI-which isn't fatal: womensagenda.com.au/latest/how-g...

This past weekend more than a hundred Ohioans demonstrated outside the Statehouse against a pair of bills that could effectively outlaw some immigrants from owning land in the state. ohiocapitaljournal.com/2025/10/01/d...

The awesome video team at the New York Times helped me make this video about the shutdown and Obamacare premiums.

@kff.org finds a stark reality if ACA enhanced premium tax credits are allowed to expire. Premium payments will more than double next year.

Watching this year's LEND trainees present to their cohort about their disciplines. I really love the feeling of pride in our students and trainees. It's such a needed experience of having hope for our future.

This afternoon I'm part of the Kentucky UCEDD's (Human Development Institute) Seminar on Improving Transition Outcomes for Youth with Disabilities. I'll go on about 2:30pm EST. Join us: uky.zoom.us/meeting/regi...

Cw filicide I think some reporters really need to learn about the Disabled Day of Mourning. Some parents of autistic kids despise them so much they kill them. This is how deadly ableism (and lack of social supports) can be. Our articles do not need to feed into ableism.

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

File this under, this is actually a good thing you should try and cure, not autism. www.bbc.com/news/article...

I find studies like these that help us understand what type of health messagine motivates people to get preventative screenings really interesting: publichealthpost.org/sexual-repro...

Had to read this title (on the website) a couple times: "Parents find a way...." A critical value I teach my children is we don't sit at tables we aren't wanted. Find schools where you don't have to "find a way" to be deemed worthy of an education. aleteia.org/2025/09/01/p...

Family ableism and conditional inclusion are unfortunately common experiences of disabled people but rarely talked about. Yes, this is one family's wedding drama, but this is an important discussion [ignore very silly stock image]: www.newsweek.com/gen-z-bride-...

A new British study that looks at the barriers faced by disabled docs. I originally thought this would be about broader ableism but I guess the headline still fits. www.healthcare-management.uk/medical-prof...

Survey Practice is seeking submissions for our 2026 special issue on Mixed Methods research - full details at the link! www.surveypractice.org/post/3334-20...

A new resource from @unitedspinal.bsky.social about supporting kids with disabilities to get OUTDOORS! unitedspinal.org/supporting-c...

Ahem! I am trying an experiment. I listed several sets of my itty-bitty #sciart paintings on Ko-Fi ko-fi.com/1626SLXL3044... Choose from viruses, neurons, algorithms, blood cells, and more

Several of these proposed regulation changes would impact people with disabilities.

Scientists in North Carolina: Thom Tillis is vulnerable. Go public and pressure him to vote down the Republican health care cuts. ‘If you proceed on this provider tax...you won’t have a member from NC sitting at this table after next year.” Make it so www.politico.com/liv...

We in the world of disability love to wordsmith and language has power. One of the new(ish?) terms "lived disability experience" always makes me wonder if the opposite is dead disability experience. Besides being unclear who we mean, this is not my favorite term we use.

Different country and different decade but I also had to wait for more tha a year to drive because of broken systems that stall independence for disabled people: www.bbc.com/news/article...

Tomorrow I'll be presenting from 2:00-3:00pm EST with Drs. Emily Hotez and Robin Lanzi about Leveraging Lived Disability Experience in Research Teams. You can register here: zoom.us/webinar/regi...

Justice Jackson nails where we are right now: “Your argument turns our justice system into a catch me if you can kind of regime from the standpoint of the Executive where everybody has to have a lawyer and file a lawsuit in order for the government to stop violating people’s rights.” 🎯🎯🎯🎯🎯🎯🎯

If you had "monkey business" on your Bingo card for the RFK hearing, BINGO!

Pretty wild that RFK is a-ok with Geyer's (not a doctor) history of giving hormone blockers to children with autism.

Shame on my Senator-the only member who gave other his time for the Secretary to "make a few points" of his choosing when constituents like me SENT HIM IMPORTANT QUESTIONS TO ASK. We never elected Husted. He was appointed and refuses to represent us.

Amid DEI funding cuts, trainees are losing pillars of support. Grassroots mentorship organizations are stepping in to continue championing young researchers. @blackinneuro.bsky.social @colorsofthebrain.bsky.social @neurolatine.bsky.social By Paige Miranda www.thetransmitter.org/qa/we-still-...

A common theme of this morning's RFK hearing was that he seems to have a very difficult time identifying HIS relevant history or experience. Instead he references "my brother did this", "my dad did this", etc. It feels very un-merit-like.

"We need to stand up-not be afraid. This is the time to meet the moment....I will never stop fighting against this dangerous dismantling of health and human services and its agencies." @delauro.house.gov

"Mr. Secretary you have no lawful authority to undertake this (dismantling HHS) by yourself." @delauro.house.gov

You can watch the RFK hearing live here: www.pbs.org/newshour/pol...

Grateful to Rep DeLauro for recognizing the importance of our work through the Administration for Community Living it-NAMING it. Thank you for fighting for us! @delauro.house.gov

Not sure what to make of this-the use of AI to remove ableist content from social media. While I can see the value of harm reduction, I also like to know what I'm up against: news.cornell.edu/stories/2025...

It's almost like we saw it coming....

Disability experts I spoke to expressed that the decision reflected a lack of awareness of the Administration for Community Living’s crucial role for disabled and aging Americans.

If you suffered in life and want other people to suffer as you did because "you turned out fine," you did not in fact turn out fine.

Don’t change your subject headings. There is no library jail. Keep using the real names not these fake ones. Obeying in advance is worse than those doing the change because when you obey with soenthing that is clearly wrong you are putting false information into official “fact” places.

Stop using DOGE's messaging. They're destroying the federal government. The "pause" is a lie. There is no pause.