This was a wonderful team effort with Ben Berkman, Don Ford, Dov Fox, Christi Guerrini, Amy Koopman, Natalie Ram, Jessica Roberts, @kaytesb.bsky.social and Sonia Suter!

Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame. n.pr/493YcAm

ELSIhub has officially launched a brand new discussion forum - ELSIconnect! Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space. To join, visit: connect.elsihub.org

Genetic Privacy in the Era of Big Data 🧬🔒 What happens if the company holding your DNA data goes bankrupt? The 23andMe case exposes major gaps in U.S. protections, leaving sensitive, immutable data vulnerable. Read the new paper by Gerke, Jacoby & Cohen www.bmj.com/content/389/...

Really looking forward to moderating this panel next week!

Check out the latest from privacy guru Alex Rosenblat @themarkup.org regarding access to forms signed at the doc’s office. themarkup.org/hello-world/...

Following the 23andMe bankruptcy, good stewardship of public genomic databases is all the more important. www.npr.org/sections/sho...

Glenn Cohen did a great job testifying about the gaps in genetic privacy law!

It was so great to be able to watch this hearing in person. Congress can do much more to protect genetic privacy.

@jillwieberlens.bsky.social presents her new book, Stillbirth and the Law, at the Health Law Professors conference.

Fascinating(yet depressing) plenary session at the Health Law Professors Conference ft. @ninakohn.bsky.social @mayamanian.bsky.social @mblawrence.bsky.social Medha Makhlouf Joan Krause Aaron Kessleheim: Updates on healthcare law & policy in tumultuous times. #HLP2025

There are consequences for not respecting people’s privacy.

“The cable also instructs consular officers to inform applicants with private social media accounts that they could be viewed as evading vetting” - penalizing individuals for simply protecting their privacy is absurd www.politico.com/news/2025/05...

Today’s the day! Looking forward to learning all about AI and insurance. I’ll be presenting on the privacy and discrimination risks of AI incorporated into telematics.

Surveillance of women is the unavoidable consequence of the criminalization of abortion. Per @404media.co Flock enables nationwide surveillance of women traveling by car. www.404media.co/a-texas-cop-...

Chilling… and predictable.

These sorts of requirements make a mockery of our notice and consent privacy framework. “We respect privacy and will only do x, y, and z with your permission.” “….side note: if you don’t give all the permissions, nothing in this app will work.”

🚨 Last chance to register! Tomorrow is the deadline to sign up (in-person or virtual) for this free conference on AI, Insurance Law & Regulation. Don’t miss our incredible speaker lineup—register now: ilc.law.uconn.edu/2025/03/17/c...

This is VERY big genetics & health news, Regeneron (Pharmaceutical company with v strong genetics in medicine arm) is going to buy 23andme. investor.regeneron.com/news-release...

If you haven’t yet read car privacy coverage by @kashhill.bsky.social, do so immediately. Incredibly eye opening and important!

Last year, my journalism stopped the illegal sale of millions of Americans’ driving behavior to the insurance risk industry. Thank you to SABEW for an honorable mention for technology reporting: sabew.org/2025/03/2024...

This is something that should inspire such hope for our future, but now it is coupled with fear that we may not be able to build on it because of federal retrenchment from supporting research. www.nytimes.com/2025/05/15/h...

Huge !!

It was so lovely to speak to everyone at Johns Hopkins on Monday!

Love this. In his “I Agree” installation Dima Yarovinsky-Yahel took the content from terms of service statements for companies like Facebook, Snapchat, Instagram, Tinder and printed them out on A4 paper with a standard font size for legal contracts to demonstrate the length of these agreements.

Don't tell me you're still using Chrome when there are much better browsers out there, including DuckDuckGo, Brave, Opera, Vivaldi etc. " #Google continues to backtrack on its #privacy promises, leaving billions of Chrome users vulnerable to online #surveillance." www.theregister.com/2025/04/22/g...

HIPAA includes broad exceptions that permit health care providers & insurers to share information with govt agencies for public health purposes.

Why a reproductive justice lens explains everything.

Information asymmetry, and a reminder that chatgpt is wholly a surveillance technology.

Got the pleadings. It's actually worse. Catholic hospital also argues that a baby stillborn at 34 weeks is not a "death" and refers to baby as a "non-existent person." Aiming to limit damages, Catholic hospital argues a fetus isn’t the same as a ‘person’ iowacapitaldispatch.com/2025/04/09/a...

What a fantastic symposium featuring @staceytovino.bsky.social @anyaprince.bsky.social @michaelrulrich.bsky.social @jillwieberlens.bsky.social and other fantastic folks at Iowa Law this week! Thinking about the benefits and harms of data collection. Lots to chew on.

Up next, our keynote speaker, @lizchiarello.bsky.social, presenting her book research, Policing Patients. Thanks to the Hawley fund for sponsoring the talk.

Amazing talk by University of Iowa College of Law Professor @anyaprince.bsky.social on state abortion reporting law.

So excited to be here at the University of Iowa College of Law with @anyaprince.bsky.social, @michaelrulrich.bsky.social, @lizchiarello.bsky.social, @jillwieberlens.bsky.social, and so many other amazing reproductive, health, and privacy law scholars!

So excited for today’s symposium on reproductive health privacy @ Iowa Law. jgrj.law.uiowa.edu/symposium-2025 ready to learn from great speakers @michaelrulrich.bsky.social @jillwieberlens.bsky.social @lizchiarello.bsky.social @staceytovino.bsky.social Alex Rosenblat, Adi Youcht & Phoebe Jean-Pierre

The thing to understand re: OHRP/SACHRP, and so many of the axed programs/people, is that those "outside baseball" have no idea they exist, quietly working in the background to keep the American public safe. When things start to go wrong in research oversight + elsewhere, their absence will be felt.

So happy to share that my book Stillbirth & the Law is out today from @ucpress.bsky.social! www.ucpress.edu/books/stillb...

Absolutely gutted for all the dedicated public servants being RIFed today. Every one of you deserved better.

Tariffs get all the attention, but ask economists what they're really worried about and many will point to the Trump administration's cuts to federal support for the sciences, including canceling grants and revoking student visas. #EconSky www.nytimes.com/2025/03/31/b...

Bonus episode of All Access DNA podcast is up now and focuses on #23andMe bankruptcy filing- Should I delete my 23andMe data? We talk to @anyaprince.bsky.social about genetic privacy, data "de-identification" & customer rights. Listen at Apple/Spotify/YouTube allaccessdna.podbean.com/e/23andme_da...

If you’re a junior health law scholar, submit an abstract for the 2025 Health Law Scholars Workshop to get great feedback and hang out with wonderful @sluhealthlaw.bsky.social profs like Sidney Watson, @kellygillespie.bsky.social, @drsinhaesq.bsky.social, and others! www.slu.edu/law/health/s...

With wildfires raging and insurance markets melting across the country, state regulators should be focused on doing their jobs, not trying to prevent the federal government from conducting surveys and generating solutions. www.theinsurer.com/ti/news/naic...

My bluesky posts keep autocorrecting genetic to generic and it really changes the meaning quite a bit. Apparently I study generic discrimination, generic privacy, and generic exceptionalism.

Interesting perspective about 23&Me playing into genetic determinism.

Wondering what's up with 23andMe's bankruptcy? I talked with @alondra.bsky.social and @anyaprince.bsky.social about the implications for genetic privacy. www.sciencenews.org/article/23an...

I grew up attending this church in Pasadena, right near the January fires. I couldn’t be prouder of the community and those roots. www.theguardian.com/us-news/2025...

Interested in a deeper dive about genetic privacy following this week’s 23&Me news? Check out the latest CNN Terms of Service podcast where I chat with host @claresduffy.bsky.social about privacy and 🧬. www.cnn.com/audio/podcas...

Signal is a great privacy tool, but it isn’t magic. And even if you’re not discussing war plans in your group chat, it’s a good idea to know the limits of encryption. Read our piece on what Signal can—and can’t—do for you here: www.wired.com/story/encryp...

When the California biotech firm filed for bankruptcy, there was one looming question for customers: What's going to happen to my data?

Interested in a deeper dive about genetic privacy following this week’s 23&Me news? Check out the latest CNN Terms of Service podcast where I chat with host @claresduffy.bsky.social about privacy and 🧬. www.cnn.com/audio/podcas...