Today! Join our discussion

🧵Why self-reported race/ethnicity cannot represent ancestry? In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation

This Friday! Sign up for a great opportunity to talk about researcher's commitment to the Autism community. cumc.co1.qualtrics.com/jfe/form/SV_...

ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2025 set explores interventions to increase genetic testing for breast cancer and more. Read: elsihub.org/news/elsi-re...

National Human Genome Research Institute (NHGRI) is hiring a new Director, and we’re helping spread the word across the ELSI community. This leadership role oversees NHGRI’s scientific vision, research portfolio, and its long-standing commitment to ELSI. Due Nov 21. hr.nih.gov/careers/open...

A new collaboration between The Hastings Center for Bioethics and Rockefeller University is working to expand global access to emerging medical technologies. 🌍🧬 🔗Learn more, https://bit.ly/4qTn4Be #GlobalHealth #Bioethics #MedicalInnovation #HealthEquity

👩‍🏫 💻 STEM educators: How can your students gain experience with real-world #genomics data? The Database Tutorials module provides guidance for using #BLAST, #cBioPortal, #PolyPhen-2 and #UniProt in classrooms or independent projects: www.jax.org/education-an... #Dataskyence #EduSky

An exciting hybrid event in our ELSI Orbit: "15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More" Keynote: "The Ethics and Futures of Wearable Self-Surveillance". More info: elsihub.org/event/15th-a...

How researchers talk about autism matters. 🧵 🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.

A great webinar on the ELSI of embryo testing - don't miss it!

🗓️Save the date - ELSI Congress 2026 The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC. The organizing committee wants to hear your thoughts on the theme(s)! Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...

Genomic and other Autism research raises hopes for improved health outcomes yet also raises concerns. 💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study. Signup: cumc.co1.qualtrics.com/jfe/form/SV_...

As part of the CERA partnership with @gimjournal.bsky.social , an official journal of @theacmg.bsky.social , CERA invites ELSI-related proposals for review or commentary manuscripts for potential publication in GiM or @gimopenjournal.bsky.social . Learn more: elsihub.org/news/call-ma...

This Friday! Join our Journal Club to discuss the implications of subcontinental genetic variation.

Check out the latest episode of GenePod, the podcast of @gimjournal.bsky.social Dr. Katharine Press Callahan discusses parents’ perceptions of the utility of genetic testing in the NICU. The episode was created as part of the CERA collaboration with GIM. www.gimjournal.org/audio-do/spe...

This Friday! Join our Journal Club to discuss the implications of subcontinental genetic variation.

As part of the CERA partnership with @gimjournal.bsky.social , an official journal of @theacmg.bsky.social , CERA invites ELSI-related proposals for review or commentary manuscripts for potential publication in GiM or @gimopenjournal.bsky.social . Learn more: elsihub.org/news/call-ma...

Are you in Portland for #ASBH2025 ? Check out our list of #ELSI -related presentations and panels. Connect with ELSI scholars and let us know about what's you're up to! connect.elsihub.org/c/general-di...

What will happen if a cognitively healthy individual is given the genetic test result, that they are at risk of Alzheimer’s? On Oct 10th #ELSIFridayForum, our panelists uncovered challenges and concerns on returning and receiving Alzheimer’s genetic risk information. Read the recap ⬇️

🧬 New ELSI Collection: Investigative Genetic Genealogy (IGG) and Law Enforcement Since the Golden State Killer case, IGG has transformed the criminal investigation. Yet, this powerful technique raises pressing ethical and legal challenges. Explore the collection here: elsihub.org/collection/e...

Check out the latest episode of GenePod, the podcast of @gimjournal.bsky.social Dr. Katharine Press Callahan discusses parents’ perceptions of the utility of genetic testing in the NICU. The episode was created as part of the CERA collaboration with GIM. www.gimjournal.org/audio-do/spe...

Are you at @geneticssociety.bsky.social Annual meeting? Check out our list of ELSI-related panels and presentations, ranging from community engagement to the ethical use of population descriptors. Take this opportunity to engage with ELSI community! connect.elsihub.org/c/general-di...

Day 2 of #ASHG25 kicks off with Featured Symposia! Check out "From Data to Diagnosis: Advancing Rare Disease Research through Collaborative Genomics" to learn how large-scale genomic resources are transforming rare disease diagnosis: https://bit.ly/46Sn8ct #ASHG25

Meet the 2025-26 Sadler Scholars and CERA Fellows: Blessing Adewuyi & Victor Ekuta, MD @hastingscenter.bsky.social collaborates with CERA to offer additional professional opportunities to their Sadler Scholars who conduct ELSI related work. Learn more: www.thehastingscenter.org/news/meet-th...

📖 Join us for the next ELSI Journal Club session! Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research Published on @ajhgnews.bsky.social 🗓 October 31, 2025 | 🕛 12–1 p.m. ET 📍 Online via Zoom 🔗 Register here: us06web.zoom.us/meeting/regi...

❗ We are sharing the information from NIH regarding the current US government shutdown, and the possible disruption to NIH-funded research projects/grant applications. Check our post on ELSI Connect: connect.elsihub.org/c/announceme...

📅Join us on October 10th, 12pm ET/ 9am PT for the next #ELSIFridayForum: Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease Speakers: Ottman, PhD; Jessica Mozersky, PhD Moderator: Emily Largent, JD, RN, PhD. cumc.co1.qualtrics.com/jfe/form/SV_...

ELSIhub has officially launched a brand new discussion forum - ELSIconnect! Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space. To join, visit: connect.elsihub.org

Recording is up! elsihub.org/video/septem...

Dr. Sara Gerke, one of the paper’s authors, will join the panel to share insights and lead the conversation on genetic privacy. Sign up for #ELSIFridayForum: cumc.co1.qualtrics.com/jfe/form/SV_...

Genetic Privacy in the Era of Big Data 🧬🔒 What happens if the company holding your DNA data goes bankrupt? The 23andMe case exposes major gaps in U.S. protections, leaving sensitive, immutable data vulnerable. Read the new paper by Gerke, Jacoby & Cohen www.bmj.com/content/389/...

📣We’re excited to share a paper from the GetPreCiSe Center— years of research on genomic privacy, offering a big-picture view of how risks are understood and regulated in practice. 🔗https://www.frontiersin.org/journals/genetics/articles/10.3389/fgene.2025.1629386/abstract

When companies holding genetic data go bankrupt (such as 23andMe), what happens to that data? Join #ELSIFridayForum on Sep 12th 12pm/9am to explore the ethical & legal stakes—privacy, discrimination & regulatory gaps. Register🔗https://cumc.co1.qualtrics.com/jfe/form/SV_9Hm1ZkPmyKElAma

🚀 Trainees & Early Career Researchers: Need quick advice on a manuscript, CV, or grant? CERA TraineeHub is launching a new mentorship program — connecting you with experienced scholars for specific needs. 📝 Register: forms.gle/gzmvJjjdSeCv...

📢 Researchers: build your portfolio! Check out the resources from Stanford’s Integrative Learning Portfolio Lab offering free tools and workshops to help researchers build a digital presence, craft compelling narratives, and showcase their work with confidence. 🔗 eportfolio.stanford.edu/resources

ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA. Our August 2025 set explores psychosocial factors involved in genetic testing for rare diseases, the clinical utility of genomic tests, and more. Explore: elsihub.org/news/elsi-re...

📃Thank you and congrats to the publication! Our "ELSI publication" is a searchable database featuring multidisciplinary, ELSI-related papers, book chapters and more. Explore: elsihub.org/search/publi...

For ethical implications of embryo screening, Explore our ELSI Collections: “Social Norms in Selective Reproduction: Implications for the Wide Offer of Genetic Screening Technologies” elsihub.org/collection/s...

🧬 Silicon Valley startups are promoting polygenic embryo screening and selection (for the “best” baby), but scientists are skeptical. 🔍 Predictions are shaky, ethics are thorny, and risks of commercial eugenics are real. Read here: www.washingtonpost.com/technology/2...

🦠 Our microbiomes reflect more than biology—they mirror social inequities. The Microbes and Social Equity (MSE) Working Group, led by Drs. Benezra, Eggleston @drsueishaq.bsky.social‬ and Weatherford Darling tackles ELSI issues in microbiome science. 💻 Read more here: elsihub.org/news/promoti...

📢 New ELSI Collections! 🧬 Stewardship Obligations for Biobankers Biobank stewardship goes beyond sample management—it's also about sustainable access, ethical responsibility, and trust. Explore key resources in this collection ➡️ elsihub.org/collection/s...

📚 New in ELSI Collection: Patenting and Licensing in Genomics—a curated ELSI Collection exploring how IP law affects access to genetic tests and debates around the public interest. Edited by Ellie Park, Dr. Robert Cook-Deegan & Prof. Arti Rai. elsihub.org/collection/

🧬🛡️Biosecurity in the Age of AI & Genomics AI + DNA tools bring promise—but also risk. How do we prevent misuse like engineered pathogens? In July's #ELSIFridayForum, experts tackled the dual-use dilemma. See recap insights - how to understand, scale and manage the dual-use risk

✏️ If you're already listed, please update your profile here: bit.ly/ELSIhubUpdate

👥 Are you an #ELSI scholar or trainee? Join the ELSIhub Scholar Directory to connect, collaborate, and share opportunities in the ethics of genomics. 🔗 Join or browse: elsihub.org/directory/se...

📢 Now open: The Greenwall Faculty Scholars Program in Bioethics is accepting Letters of Intent through Sept. 15, 2025 (11:59pm ET). This career development award supports early-career faculty pursuing innovative research in bioethics. 🔗 details: greenwall.org/faculty-scho...

🆕 A new addition to ELSI in Review is live on ELSIhub ! This July update features recent reviews on key #ELSI topics—including ethical implications of using genetic predictions of aggressive behavior in the criminal justice system. 🔗 elsihub.org/news/elsi-re...

Today! Join us at 12pm ET ELSI Friday Forum with Drs. Gigi Gronvall, Jassi Pannu & Stephanie Guerra Biosecurity in the Age of AI & Genomics Explore dual-use risks & governance as AI reshapes biotech. 🔗 Register: us06web.zoom.us/meeting/regi...

🎥 Missed our May #ELSIJournalClub? Catch the recording of a rich discussion on parental perspectives & the utility of genetic testing in the NICU, featuring: 👩‍⚕️ Author: Katharine Callahan 🧬 Discussant: Jessica Ezzell Hunter 🎙 Moderator: Josephine Johnston ▶️ Watch here: vimeo.com/1090209844

🧬Join us Fri, July 11 @ 12pm ET for the ELSI Friday Forum with Drs. Gigi Gronvall @jassipannu.bsky.social and Stephanie Guerra Biosecurity in the Age of AI & Genomics Explore dual-use risks & governance as AI reshapes biotech. 🔗 Register: us06web.zoom.us/meeting/regi...