This #MigrainAwarenessWeek, @themigrainetrust.bsky.social have published new research which shows that poor understanding of migraine has devastating implications for careers and personal lives of those with condition. Read more here: bit.ly/3IwqNDr

We are kicking off #MigraineAwarenessWeek with our brand-new campaign film which illustrates what #MigraineMeans for many of the one in seven people living with the condition. youtu.be/19x0y14g8iI

We are delighted to welcome Aberdeen Independent MS (AIMS) as our newest member. Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/

@cerebralpalsyscot.bsky.social are hosting their annual conference on 8 October 2025. Find out more and register your free place here: cerebralpalsyscotland.org.uk/whats-on/ann...

Delighted to announce Shelley Gray, member of the Scottish Human Rights Commission, will be joining our AGM on 24 Sept as our guest speaker. Shelley will cover the work of the commission, what taking a 'human rights-based approach' to policy means and how we can use human rights in the third sector.

It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon. Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.

On Thursday 4 September, we will be meeting the Minister for Public Health and Women's Health, @jennimintomsp.bsky.social to discuss the outstanding elements of the #neuroframework2020-2025 and the importance of a specific ongoing strategy for neurological conditions.

Charlotte's story reinforces the recommendations from our report (Today's Challenge, Tomorrow's Hope) of the critical need for co-ordination of care, better system awareness of neurological conditions and investment in neurology services to reduce diagnostic delays. www.bbc.co.uk/news/article...

We're looking forward to sharing our #2026holyroodmanifesto with our policy group at our next meeting which is coming up on 27th August. The meeting will be chaired by Rachel Edwards, CEO of @epilepsyconnect.bsky.social

We are looking for new trustees to join our board! To be eligible, you must work or be an accredited voluntary representative for a member charity. Please get in touch with Hester at [email protected] for more information. Applications will close on the 27 August.

❗️📢 Key genetic differences found in people with ME/CFS Read more on DecodeME’s website 👇 www.decodeme.org.uk/initial-dna-... #DecodeMEResults #DecodeME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis

The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research. A huge thanks to all our participants for giving their time, energy & DNA to the project. Learn more about our findings: shorturl.at/XOVJ1

1 in 3 carers who responded to the My Neuro Survey said that they are unable to manage their own health and wellbeing, with over half (53%) living with a long-term health condition of their own. Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC

69% of carers who responded to the My Neuro Survey said that mental health services were not meeting their child's needs. A further one in five children cannot access any mental health support at all. This is unacceptable. Read our reccomendations here: bit.ly/4lwLdud

Could you be a NAoS trustee? Applications are now open for candidates to join our board. To be eligible you must work for a NAoS member charity. For more info on how to apply, get in touch with us at [email protected]. Applications close: Wed 27 August

Two thirds of adults living with a neurological condition in Scotland who responded to the My Neuro Survey say life is difficult to cope with and their condition has an impact on their mental health. Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC

Following the publication of our report, 'Today's Challenge, Tomorrow's Hope', the Scotsman has published an op-ed by NAoS Programme Director, Alice Struthers, on the urgent need to prioritise investment into neurological services and support. www.scotsman.com/news/opinion...

Did you see us on BBC Scotland at Seven last night? Alice and Donald were raising awareness of our new report which reveals that 2 in 3 adults with neurological conditions are struggle to cope and unpaid carers at breaking point. Catch the interview on iPlayer at 13.36 mins: bit.ly/4530r3l

“Better support could help people live healthier, more productive lives. It’s like being stuck in purgatory.” Donald has dystonia — his story shows why we need urgent investment in neurology. Read more www.dailyrecord.co.uk/news/scottis... #TodaysChallengeTomorrowsHope #VitalSupportNeeded

We've made front page news! 👏 Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks. Read the full article here: www.heraldscotland.com/news/2529755...

NEW: Scotland’s ‘invisible’ patients and carers are falling through the cracks. 2 in 3 adults with a neurological condition struggle to cope — carers are at breaking point. It’s time for real action. Read our report here ➡️ bit.ly/4eCQfme #Neurology #Scotland #UnpaidCarers #NAoS

We're onto our third full members' meeting of 2025 and we're looking forward to welcoming Gillian Neil from East Lothian Health & Social Care Partnership for a discussion about the relocation of the inpatient neuro-rehab unit at the #AstleeAinslee hospital in Edinburgh

For #MillionsMissing 2025 in #Scotland, we're raising a red alert 🚨 Spread the word! The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it. Email your MSPs & join us @parliament.scot or support online. Info & template email: www.meaction.net/2025/04/27/m...

NAoS trustee Claire Stevens, will be speaking to Prof. Angela O'Hagan on the topic of the topic of "Equality: today and tomorrow". There are a couple of tickets left for this event, so register your place now! We hope to see you there.

Join us to mark the 60th Anniversary of Carers UK with the Mary Webster Lecture. Prof. Angela O'Hagan, Chair of the Scottish Human Rights Commission, in conversation with Claire Stevens, former Chief Executive for Voluntary Health Scotland. Book here: www.eventbrite.co.uk/e/mary-webst...

The Scottish Government has published the Stage 1 report on the Assisted Dying for Terminally Ill Adults (Scotland) Bill. We were pleased to see charity members from NAoS represented strongly in the written and oral evidence in the report, which you can read here: bit.ly/43fYXCW

NAoS member @pspassociation.bsky.social have launched a new grants programme for research into neurological conditions Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). Four grants of £25k and one grant of £250k is available. Find out more and apply here ▶️ bit.ly/42Re3xa

Provision and quality of palliative care are incredibly important aspects of the #assisteddying debate here in Scotland. We're looking forward to our meeting with Lib Dem MSP Liam McArthur next Wednesday, to discuss the bill further. www.bbc.co.uk/news/article...

Job alert - the Craighalbert Centre is looking for a new CEO - see their job pack here: www.edenscott.com/craighalbert...

Our next policy group meeting will be on Weds 7th May, chaired by Catherine Martin from the @scottishhd.bsky.social. We are delighted to be welcoming Liam McArthur MSP for a discussion about the Assisted Dying for Terminally Ill Adults (Scotland) bill. What questions would you like to ask?

Carers UK have published a webinar in collaboration with the BT Digital Voice programme to provide information about the digital switch over, planned to take place by January 2027. The switch over has significant implications for vulnerable people who rely on their landline. bit.ly/3Y6xpNy

We look forward to welcoming Catherine Martin, Intermin Head of Services for @scottishhd.bsky.social, as chair of our next policy group meeting on Wednesday 7 May, 11:00 - 12:30. We will also be joined by Liam McArthur MSP, to discuss the Assisted Dying for Terminally Ill Adults (Scotland) bill.

Research issued today by @nhsgrampian.bsky.social reveals that the rates of Huntington's, which is incurable, are 5 times higher in NW Scotland than the rest of the world. CEO of Scottish Huntington's Association calls for urgent expansion of specialist services www.bbc.co.uk/news/article...

Is it April already? Then it's time for our next Members' Meeting where we will review our recent Brain Awareness Week campaign and run through some of the results of the 2024 National Neurology Patient Experience Survey for Scotland.

It's day four of #BrainAwarenessWeek and we’re highlighting current research projects that PSPA funds. This includes Fellowships, Project Grants & Small Research Grants. Take a look at the graphic and find out more about the projects here ow.ly/mpl250Vcyf7 #InvestinNeuroResearch

We don't know enough about why different neurological conditions happen to us. By understanding the mechanisms behind various neurological conditions, researchers can develop new treatments and therapies to improve the quality of life of those affected. #InvestinNeuroResearch

We have sent an open letter to the Rt Hon Peter Kyle MP, co-signed by 74 member organisations and the four Neurological Alliances, calling for greater investment into research on neurological conditions. #InvestInNeuroResearch #BrainAwarenessWeek Read the letter here ▶️ bit.ly/3XEZ9bw

Welcome to #BrainAwarenessWeek where we will be joining the Neuro Alliances @NeuroAlScotland @NeuroWales @NeuroAlliance in calling for more investment into Neuro Research. Follow along with us this week! @neuroalscotland.bsky.social #InvestinNeuroResearch #PSP #CBD

This #BrainAwarenessWeek help us call for greater investment into research into neurological conditions by sharing our content throughout the week. @@neuroalscotland.bsky.social #InvestInNeuroResearch #Research #Epilepsy #EpilepsyAwareness

Fantastic to see the ACNR neurology and rehabilitation journal's article our #BrainAwarenessWeek campaign #InvestInNeuroResearch, which launched today. ▶️ bit.ly/3XFJeK6

1 in 6 people in the UK live with a neurological condition - but investment into research is disproportionately low. This #BrainAwarenessWeek, Professor Quinn from the Brain Health Arc explains just how much of a difference it makes to #InvestInNeuroResearch

This #BrainAwarenessWeek we've joined the Neurological Alliance in calling for greater investment into research investigating neurological conditions. 1 in 6 people live with a neurological condition, impacting millions across the UK. Join the call to #InvestInNeuroResearch

For #BrainAwarenessWeek, Professor Huw Morris shared why research is so important and what the team hopes to develop from the research funding they received from PSPA. Watch it now! #InvestinNeuroResearch #NeuroResearch #ResearchFunding #PSP #CBD #Neurology

At the Child Brain Injury Trust, we see first-hand how research can transform the lives of those affected by ABI. That’s why we’re passionate about #BrainAwarenessWeek + joining the Neurological Alliance to call for greater investment in neurological research to campaign to #InvestInNeuroResearch 🙏

Tomorrow marks the start of #BrainAwarenessWeek. 1 in 6 people will develop a neuro condition at some point in their life, we just don't know why. Research investment for Neuro conditions has been chronically low & continues to remain underfunded. This must change. #InvestInNeuroResearch