Every year in the UK, around 40 children are diagnosed with diffuse midline glioma (DMG). This Childhood Cancer Awareness Month, we’re standing with every family impacted, and pushing for the research breakthroughs that children urgently need. 💛

We’ve almost hit our family fundraising target of £2000 to support @braintumourrsch.bsky.social at next week’s Walk of Hope. If anyone has a few £ to donate, please support this vital charity and help us teach our target. Thank you to everyone that has already www.justgiving.com/team/evannes...

We’re saddened to hear of the passing of Keith McIvor (JD Twitch), one half of Glasgow’s Optimo duo, following an untreatable brain tumour diagnosis earlier this year. Our thoughts are with his loved ones and the music community who all cherished him. 💛 www.bbc.co.uk/news/article...

The British Neuro-Oncology Society (BNOS) Patient & Carer Event. Monday 6th October 2025. Discover the latest on inclusive trials, innovative treatments, AI in care and smarter tumour analysis. Huge thanks to @brainstrust.bsky.social 👉 bit.ly/3VqalYm

The MHRA has approved Vorasidenib for certain low-grade gliomas (grade 2 astrocytoma or oligodendroglioma with an IDH1/2 mutation). NICE must now consider whether it will be made available on the NHS. bit.ly/4grZpmu

Pharmaceutical giant Merck (MSD in Europe) has scrapped its planned £1bn UK expansion, moving research operations to the US and cutting UK jobs. A setback for UK life sciences highlights why our mission matters more than ever. bit.ly/3VKiqag #BrainTumourResearch #TogetherWeWillFindACure

Brain tumours kill more children than leukaemia. Yet research into this devastating disease remains woefully underfunded. Every child deserves the chance of a future and with more investment in research, we can make that a reality. 💛 https://bit.ly/46aLMEK  #ChildhoodCancerAwarenessMonth

74 year old super gran, Linda Malcom swam 15km across the Firth of Forth. Dodging jellyfish “the size of dogs”, curious seals and even a cargo ship, in just over six hours. 🌊💪 Her epic challenge helped raise funds for research into brain tumours! 💛 www.bbc.co.uk/news/article...

It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon. Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.

Interested in cutting edge technologies to study malignant brain tumours? Check out this great @braintumourrsch.bsky.social funded #PhD opportunity to join my team @blizardinstitute.bsky.social @qmul.bsky.social

We're proud to see our partnership with @beatsoncharity.bsky.social featured in The Scotsman. As we celebrate being shortlisted for Charity Partnership of the Year at the Third Sector Awards. 🏆 Fingers crossed for next week.🤞 Read the full article here: bit.ly/3Vxm9I5 #TogetherWeWillFindACure

We’re thrilled that our partnership with @beatsoncharity.bsky.social has been shortlisted for the Third Sector Award for Charity Partnership of the Year! 🎉 👏 Huge thanks to our community whose support is making this possible. bit.ly/47j8xaF #TogetherWeWillFindACure

@braintumourrsch.bsky.social Such an important reminder of the challenges faced by children with brain tumours. Awareness is key to driving change. #ChildhoodCancerAwarenessMonth #CancerSurvivor #CancerSky

September marks Childhood Cancer Awareness Month. 🎗️ On average, 420 children in the UK are diagnosed with a brain tumour every year. That’s more than one child every day. 💛 https://bit.ly/46aLMEK #ChildhoodCancerAwarenessMonth #BrainTumourResearch #TogetherWeWillFindACure

At just 25, Max was diagnosed with a glioblastoma. Earlier this month, he made the brave decision to stop treatment and marry his partner, Georgie. 💛 Their story is a powerful reminder of why we must keep investing in research to find a cure. #BrainTumourAwareness bit.ly/3UQGKqG

Enough is Enough. Tumour Treating Fields is already helping 35,000 people with brain tumours globally, yet NICE refuses to even evaluate it. We’re demanding action and we need your help! 👉 Write to your MP this weekend: bit.ly/4614CNz Image credit: ICR Sutton Site Light Microscopy Facility

By 2040, it’s projected that someone in England will receive a cancer diagnosis every two minutes. Together with over 60 cancer charities, we united outside Parliament as #OneCancerVoice calling on the Government to turn promises into action by delivering a truly world-leading National Cancer Plan.

The Mad Hatter of Chester takes on 874 miles for brain tumour research! Robert Nieri is cycling 874 miles throughout August to raise funds for Brain Tumour Research.🚴‍♂️🎩 Support his fundraiser: bit.ly/4lLBi3a #TogetherWeWillFindACure #Cycle274Miles #BrainTumourResearch

Seven-year-old Zac is on the brink of completing an incredible year-long challenge! Visiting all 20 Premier League stadiums in memory of his uncle, trainee RAF pilot Stephen Realf, who died from a brain tumour aged just 26. #TogetherWeWillFindACure 💛 www.bbc.co.uk/news/article...

A good day out with @marcobiagi.bsky.social on the 4 Munros north of Inverar in Glen Lyon, also raising money for @braintumourrsch.bsky.social as part of Glenn Campbell (of BBC) Munro Challenge

We’re looking for passionate, fundraisers to join our team, helping us raise the vital funds that fuel our research. 💰 Competitive salary & generous holiday allowance 🥼 Private healthcare scheme 🚗 EV & bike salary sacrifice scheme https://bit.ly/4535IsO #CharityJob #RemoteJob #BrainTumourResearch

The US Food and Drug Administration has granted accelerated approval for Modeyso the first-ever treatment for diffuse midline glioma, an ultra-rare and aggressive brain tumour that often affects children and young adults. braintumourresearch.org/blogs/latest...

Join Team Brain Tumour Research at the Adidas Manchester Marathon 2026 and help fund the fight to find a cure 💛 Every step you take helps us get closer to a cure for all types of brain tumours ➡️ bit.ly/3UbG9zq #BrainTumourResearch #TogetherWeWillFindACure

We’re proud to announce that our Co-founder and former Chief Executive, Sue Farrington Smith MBE, is stepping into a new chapter with Brain Tumour Research as our Ambassador. Donate to her fundraiser ➡️ bit.ly/46Bayfl #BrainTumourResearch #TogetherWeWillFindACure

From celebrating milestones to pushing for change, to acknowledging Glioblastoma Awareness Week, July has been full of emotion, action, and hope. Together, we will find a cure. Stay up-to date and sign-up to our newsletter: bit.ly/45HYACZ #BrainTumourResearch #TogetherWeWillFindACure

Zak Edwards began experiencing strange symptoms like jumbled words, stumbling, and struggling to tell his wallet and keys apart. Sadly, Zak passed away, just 3 days before turning 47 💔 Now, his family and friends host an annual football fundraiser in his memory. Read Zac's story 💛 bit.ly/45hTs6E

Walk of Hope Torpoint returns on the 27th September at beautiful Mount Edgcumbe Country Park, Cornwall! Sign up by 31 July to get 50% OFF with code WALK25  Mount Edgcumbe, Torpoint | 🎟️ Adults £10, Kids (6-17) £5, Under 6 free  https://bit.ly/46cYcww

Ready, set… Hackney! 🏃‍♀️🎶 Hackney Half Marathon returns on Sunday 17th May 2026 as one of London’s most epic running events! General entries sold out in record time, but you can still secure a charity place with Brain Tumour Research. Sign up today: https://bit.ly/45mvyIR

Jack Penrose, 65, from Shropshire, braved soaring temperatures to complete a 13-hour spinathon in memory of his 13-year-old granddaughter, Ella, who sadly died from an undiagnosed brain tumour. Joined by friends, Jack helped raise more than £3,400 for Ella’s Army.

Nominated for their tireless campaigning in memory of their beloved son Graham, Don and Rachel were introduced to His Majesty King Charles III. The McKies, have raised more than £58,000 over 19 years. Their story continues to inspire us all. 💛 braintumourresearch.org/blogs/latest...

“Hope and positivity…” 💛 In the face of a devastating diagnosis, Sam Suri chose hope. Our ambassador Sam shares how positivity helped carry him and his loved ones through the darkest of times. #Hope #TogetherWeWillFindACure #BrainTumourResearch

Say hello to Dr Thomas Millner, one of the new co-leads at our Centre of Excellence at @QMUL.  As a neuropathologist and clinical researcher, Thomas is focused on bridging the gap between lab research and patient care. Read more: https://bit.ly/4hKi0dW #GlioblastomaAwarenessWee

Of the 12,000 people diagnosed with a brain tumour every year, around 3,200 of those are diagnosed with glioblastoma. 5% people diagnosed with a glioblastoma live more than five years but less than 1% survive more than 10%. We urgently need change https://bit.ly/40Gh4Ae #GlioblastomaAwarenessWeek

As we shine a spotlight on glioblastoma this week, we're excited to introduce Dr Radu Zabet, newly appointed co-lead at our Centre of Excellence at Queen Mary University of London. Learn more: https://bit.ly/40Gh4Ae #Glioblastoma #GBMAwarenessDay

This #GlioblastomaAwarenessWeek, take action and join our Cycle 274 Miles in August 2025 challenge to help find a cure for brain tumours! 🚴‍♂️ Sign up now and make this August one to remember: https://bit.ly/44iuDqv 💛 #TogetherWeWillFindACure #BrainTumourResearch #Cycle274 #GlioblastomaAwarenessWeek

We’re thrilled to welcome Dr Lovorka Stojic as one of the new co-leads at our Centre of Excellence at Queen Mary University of London. Her work focuses on long non-coding RNAs molecules once considered “junk” but now known to play a critical role in how glioblastoma develops.  https://bit.ly/4hKi0dW

It's Glioblastoma Awareness Week! 💡 We’re shining a spotlight on the most aggressive type of brain tumour - glioblastoma (also called GBM) to raise vital awareness and drive change. 💛 👉 https://bit.ly/40Gh4Ae #Glioblastoma #BrainTumourResearch #TogetherWeWillFindACure #GlioblastomaAwarenessWeek

Two weeks of research funded in Glenn’s honour! 💛 After marathon runner Glenn Pearce was diagnosed with a glioblastoma, his friends and family have raised more than £39,000 to help find a cure. Donate to boost their total 👉 https://bit.ly/44ZbRWE #BrainTumourResearch #TogetherWeWillFindACure 💛

The #RareCancersBill has officially passed its Third Reading in the House of Commons, unamended and with cross-party support! We’re proud to stand alongside @drscottarthurmp.bsky.social‬ & our partners in supporting this vital Bill, which is now on track for its First Reading in the House of Lords.

Are you a strategic leader ready to drive transformational growth? We’re hiring a Director of Income Generation and Development! 💼 📍 Based in Milton Keynes | Hybrid working 🗓️ Apply by: Monday 11 August 2025 Apply now: bit.ly/40HGNs3 #CharityJobs #BrainTumourResearch #TogetherWeWillFindACure

Today campaigners, including Dr Scott Arthur, Brain Tumour Research, and cross-party supporters visited the House of Lords to inform and prepare members ahead of the #RareCancersBill’s journey through the Upper House. https://bit.ly/44kffLK #BrainTumourResearch #TogetherWeWillFindACure

Take on the iconic Edinburgh @thekiltwalk and help fund vital research at our brand-new Scottish Centre of Excellence!  📅 Sunday 14 September 💛 Reg fee just £20 Sign up now: https://bit.ly/44vDUgf #BrainTumourResearch #TogetherWeWillFindACure

Just back to share this. My pal's choir has released a cover of 'Hold Back the River' by #jamesbaymusic (li.sten.to/slymiholdbac...). Proceeds go to @braintumourrsch.bsky.social !! Listen and DONATE. Link: www.justgiving.com/page/singlik... BIG LOVE ❤️

Exciting news! Applications for our new AHP Research Fellowship open July 4th🎉 This fully funded, part-time Fellowship supports AHPs to pursue research alongside clinical duties. 🔗 Learn more: tessajowellbraincancermission.org/strategic-pr... 💬 Join our Q&A: events.humanitix.com/ahp-research...

OUT NOW 🎶 Sing Like You Mean It Choir have released their powerful cover of ‘Hold Back the River’ by James Bay in support of Brain Tumour Research 💛 Listen on your favourite platform. Donate via their JustGiving page https://bit.ly/4nh7FZE #TogetherWeWillFindACure

Today is the start of the Indie Visible Charity Week sale! Don’t miss out on some fantastic indie author books this weekend. ICYMI: I’ll be donating half my profits from this sale to @braintumourrsch.bsky.social who the week is dedicated to. www.indievisibleevents.com

It's charity week at IndieVisible, raising funds for @braintumourrsch.bsky.social For the first time, I'm joining as an author rather than a reader. (Well, I shall be buying books too, obviously 😂). I'll share more over the weekend, but wanted to share the links to everything now ⬇️ #BookSky 💙📚

Charity Golf Day supporting Brain Tumour Research 💛 A huge thank you to Gary Hope of Bespoq Commercial Solutions and Stephen Hope Wealth Management for choosing Brain Tumour Research as the beneficiary of this year’s golf day. Contact: [email protected]

Meet Dr Phoebe McCrorie -  British Neuro-Oncology Society (BNOS) Young Investigator of the Year 2025! 🌟 Her ground-breaking work into improving drug delivery for aggressive brain tumours is giving real hope to patients. https://bit.ly/3HS3gfH #BrainTumourResearch #TogetherWeWillFindACure

Ready, set… cycle! Our summer challenge #Cycle274 Miles in August is back! 🚴‍♂️ 274 miles = 8.8 miles a day or 61 miles a week 🎁 FREE cycling jersey 🏅 Raise £137 to earn your exclusive medal! 👇 Register online now https://bit.ly/44iuDqv #TogetherWeWillFindACure