We are celebrating our incredible fundraisers. Shout out today to Liz who has run 2 marathons raising funds for our NF2 research in honour of Olivia Goddard Way to go Liz, what an amazing fundraiser and congratulations on the marathons, thankyou all for your support and donation. #schwannomatosis

We are celebrating our incredible fundraisers this week. Shout out today to Clare and the Bookham village ball organisers who raised over £600. Amazing job all round and thankyou for the generous donations to the auction. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2

We are celebrating our incredible fundraisers this week. Shout out today to Laura who ran the AJ Bell Manchester 10K raising funds for NF2 research in honour of her family who live with NF2 Amazing job Laura, thankyou so much for your support #endNF2 #NF2 #NF2Schwannomatosis #schwannomatosis

We are delighted to let you know that our charity trustee and world renowned NF2-SWN expert Prof. Gareth Evans has received an MBE in the King’s birthday honour list. He established the UK highly specialised service for NF2-SWN. An incredible life time contribution. This is absolutely so deserved

T-cell-targeted immunotherapy in neurofibromatosis type 2-related vestibular schwannoma: current evidence and future direction

Medical Therapy for NF2-related Schwannomatosis: A Systematic Review of Current Evidence

Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness #endNF2 #NF2awareness #schwannomatosis #NF2SWN #NF2support #nf2 #nf2family #nf2warrior

Our message is simple. Amplifying our mission to: Fix the Gene, Cure NF2, Change Lives Join Us in achieving this. Donate here: www.peoplesfundraising.com/donation/nf2... or (USA/Canada/Europe) curenf2.org/donate/ Fixing the Gene & change lives #endNF2 #NF2 #NF2Schwannomatosis #schwannomatosis

Congratulations to our PhD researcher Reygn & the team on his first publication - which you can dive into here.... T-cell-targeted immunotherapy in neurofibromatosis type 2-related vestibular schwannoma: current evidence and future direction pubmed.ncbi.nlm.nih.gov/42272870/

We are celebrating our incredible fundraisers this week. Shout out today to Jo who organised an Axe throwing event raising funds for NF2 research. Fellow NF2ers Ryan, Helen, Jade and Sally rose to the challenge as well. Amazing job Jo, thankyou so much for your support #endNF2 #Schwannomatosis #NF2

We are celebrating our incredible fundraisers this week. Shout out today to Paul who took on the Fred Whitton Cycle Challenge 10th May 2026 raising funds for NF2 research in honour of his family who live with NF2 Amazing job Paul, thankyou so much for your support #endNF2 #Schwannomatosis #NF2

We are celebrating our incredible fundraisers this week. Shout out today to Megan who tackled the Nine Edges challenge with Oscars Pediatric Brain Tumour Charity raising funds for NF2 research in honour of Immie who lives with NF2. Amazing job Megan, thankyou so much for your support #endNF2 #NF2

We are celebrating our incredible fundraisers this week. Shout out today to Mitchell who ran the Rob Burrows Leeds Marathon on 10th May 2026 raising funds for NF2 research in honour of his family who live with NF2 Amazing job Mitchell, thankyou so much for your support #endNF2 #Schwannomatosis #nf2

Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness #endNF2 #NF2awareness #NF2schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family

There really is no better time to support our charity Research is key to developing new treatments and to finding a cure for those affected by NF2. With your help we can fund vital research and change lives Donate via our website: curenf2.org/uk-europe/ #endNF2 #NF2awareness #schwannomatosis

Cure NF2 Foundation UK & Europe ambassador and volunteer Michael Archer has gained national attention and awareness for NF2 related schwannomatasis as he spoke to The Mirror newspaper to share his NF2 journey Read Michael's story here: www.mirror.co.uk/news/health/... #endNF2 #schwannomatosis #NF2

Living with NF2 brings unique challenges, but new strategies can help. Discover how psychological approaches and neuroscience-based tools empower individuals to manage stress and find meaning. Watch the recording of our latest webinar here: buff.ly/Z4w9izb

Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome) Date: 25th June 10.30am BST Have a chat, say hi or just enjoy the company - the choice is yours Sign up here: forms.gle/S7Yw1thhnhwJ... Guest speaker - Judy Dyer - Pilates instructor #schwannomatosis #NF2

Fancy getting your hands on one of our brand new Tshirts? You can order from our shop here www.peoplesfundraising.com/shop/nf2-bio... £16 including 2nd class standard postage #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

We are celebrating Volunteers week from Monday 1 to Sunday 7 June 2026. We want to thank all our volunteers for their tireless commitment to our charity and to raising awareness of NF2-SWN, commitment to the NF2 community, connection, sharing stories to overcome isolation. #ENDNF2 #schwannomatosis

We are #NF2Aware Are You Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... Send us a copy for our socials #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

We are still meeting those affected by NF2 highlighting their mental health and well being challenges. We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, anxiety, depression, stress, and reduced self‑esteem Today we meet Simon #endNF2

We are #NF2Aware Are You Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... Send us a copy for our socials #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

We are still meeting those affected by NF2 highlighting their mental health and well being challenges. We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, anxiety, depression, stress, Meet James #endNF2 #NF2awareness #schwannomatosis

We are #NF2Aware Are You - thankyou NHS Forth Valley Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... Send us a copy for our socials #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior

We are still meeting those affected by NF2 highlighting their mental health and well being challenges. We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, anxiety, depression, stress Today we meet Saskia #endNF2 #schwannomatosis

We are still meeting those affected by NF2 highlighting their mental health and well being challenges. We face a distinctive set of mental‑health and wellbeing challenges Today we meet William who is 16. #endNF2 #NF2awareness #schwannomatosis

Our amazing supporters! We are #NF2Aware Are You Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

we ask you to watch this video, it is 3 minutes of your life. To an NF2er that 3 minutes could change their lives for ever, that is EVERY NF2er around the world. This is what we face. This is the mental and emotional toll of living with NF2. 3 minutes thats all. www.youtube.com/watch?v=OOYB...

Emily Owen @nervetumoursuk ambassador shares a poignant poem with us in her blog. Diagnosed with NF2 as a teenager. NF2 has caused Emily to lose her hearing, left her with facial weakness and with difficulty walking. nervetumours.org.uk/news/emily-o...

Our message is simple Fix the Gene, Cure NF2, Change Lives Join Us Donate here: www.peoplesfundraising.com/donation/nf2... or (USA/Canada/Europe) curenf2.org/donate/ Behind every diagnosis is a person, a family, a fight, read our journeys here: curenf2.org/patient-stor... #endNF2 # #schwannomatosis

We are discussing mental health in NF2-SWN today. Now we meet Kim Whitlock, trustee of Cure NF2 Foundation UK & Europe. Here Kim shares a very honest account of her recent surgery and its effects it has had on her mental wellbeing. curenf2.org/the-silent-s... #endNF2 #NF2awareness #Schwannomatosis

Our theme this NF2 Awareness Day is mental health and wellbeing with an NF2 Diagnosis We have met real people affected by NF2 highlighting their challenges in this area. We face a distinctive set of mental‑health and wellbeing challenges in NF2. Today we meet Pujitha #endNF2 #schwannomatosis

Its NF2 Awareness Day!!!! We need your support to amplify our voice, drive fundraising efforts, and raise awareness for NF2 research Donate Today www.justgiving.com/campaign/big... www.peoplesfundraising.com/fundraising/... curenf2.org/uk-europe/ www.facebook.com/nf2biosoluti... #schwannomatosis

As we approach NF2 Awareness Day on May 22, we are touched to see the efforts to raise awareness and support research for this condition. Real people affected by NF2. We face a distinctive set of mental‑health and wellbeing challenges. Today we meet Nissa #endNF2 #NF2awareness #schwannomatosis

We are #NF2Aware Are You - thankyou Addenbrookes team Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... Send us a copy for our socials #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior

As we approach NF2 Awareness Day on May 22, we are touched to see the efforts to raise awareness and support research for this condition. Real people affected by NF2. We face a distinctive set of mental‑health and wellbeing challenges. Today we meet David #endNF2 #NF2awareness #schwannomatosis

As we approach NF2 Awareness Day on May 22, we are touched to see the efforts to raise awareness and support research for this condition. Real people affected by NF2. We face a distinctive set of mental‑health and wellbeing challenges. Today we meet Emma #endNF2 #schwannomatosis

We are #NF2Aware Are You? thankyou Derrie who sent us this lovely picture supporting pour campaign. Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... Send us a copy for our socials #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

As we approach NF2 Awareness Day on May 22, we are touched to see the efforts to raise awareness and support research for this condition. Real people affected by NF2. We face a distinctive set of mental‑health and wellbeing challenges Today we meet Alex #endNF2 #NF2awareness #schwannomatosis #NF2

We end Mental Health Awareness week looking at specific challenges faced by those with NF2 People with NF2 experience significantly higher rates of anxiety, depression, stress, and reduced self‑esteem compared with the general population. #endNF2 #schwannomatosis

Depression and anxiety are very common in NF2, research shows its tied to the uncertainty, physical symptoms, Stress and loneliness is common in people with NF2, and has a major impact on quality of life Emotional distress and somatic burden are deeply interconnected #endNF2 #schwannomatosis

Individual actions matter, but they're only part of the story. We need those in power to take action to ensure good mental health for everyone in the UK. #endNF2 #schwannomatosis #NF2support #nf2 #Community #MHAW2026 #MentalHealthAwarenessWeek #MentalWellbeing #MentalHealth #RareDisease

Come and join us at our Virtual Coffee Meet Date: 19th May 10.30am BST Have a chat, say hi or just enjoy the company - the choice is yours Sign up here: forms.gle/jGkQbSzvcJ1v... Come and meet the researchers - share your story Fully accessible with live captions #schwannomatosis #NF2

We are #NF2Aware Are You Join our campaign, print your poster and be #NF2Aware Print your poster here> curenf2.org/wp-content/u... Send us a copy for our socials #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

By donating to our research you can help us rewrite the next part of their journeys - the one where we have better treatments or even a cure. But we need YOUR help to do that, NF2 IS FOR LIFE THERE IS NO CURE Please consider donating to research to help children like Immie #endNF2 #schwannomatosis

Living with NF2-SWN comes with real, everyday challenges, especially when it comes to mental health. We want to hear from you: what has helped you cope? Share your experience or tips in the comments. Register for our upcoming webinar: curenf2.org/about-us/web...

Mental Health Awareness week The environment we live in impacts our mental health. What can you do to help build mentally healthy communities, workplaces and schools? #endNF2 #schwannomatosis #NF2support #nf2 #MentalHealthAwarenessWeek #MentalWellbeing #MentalHealth #RareDisease Se

We’re bringing together expert voices for our upcoming webinar on Mental Health & NF2-SWN. Featuring: Dr. Louise Robinson, Clinical Psychologist Louise Baker, Applied Neuroscience Specialist Plus moderation by NF2 parent Mary Sell. Join us May 22: buff.ly/NJxiJxq